Skip to navigation | Skip to content

Share your knowledge. Make a difference.

Cancer, Patients and those around them.

1 - I can do better 2 - Jury's out 3 - Pretty darn good 4 - Splendiferous 5 - Awesometastic (by 6 people)   Your rating: 1 - I can do better 2 - Jury's out 3 - Pretty darn good 4 - Splendiferous 5 - Awesometastic

Ranked #625 in Volunteering, #91023 overall

Rated G. (Control what you see)

If you are thinking one person can't make a difference you are wrong.

 

Hello, my name is Linda. I am new to this so any helpful advice appreciated.

I am a recovering cancer patient making a fresh start in life.  Does not matter if you have cancer, are a relative of a cancer patient, or someone with no knowledge of cancer. Please take the time to read this and leave a comment.

 

Love of Linda Cancer Fund-Giving Back Makes A Difference! 

If you are thinking one person can't make a difference you are wrong.

My name is Linda and I am here not to ask you for money. I am here to tell you one person can make a difference. I also wish to say thank you to all the people who gave to the Love of Linda Cancer Fund, which includes those who gave their time as well as those who donated.
There are a lot of ways a person can give, even those who think they can't.
Some say they can't give money because they can't afford it, some say they have nothing to give. I am here to tell you, you do have something to give. strong>

First let me say I was raised in the way that you never asked for help unless you were half dead. I am not the type who wants sympathy just answers. In 2003 I was diagnosed with breast cancer. At that time I had been caring for my father for 7 years who had Alzheimer's. I had three surgeries within three weeks time. All of these surgeries I did as same day surgeries because my father could not be left alone. I then went through chemotherapy treatments all the while caring for my father. I had to rely on others for the first time since I can remember. I had to find rides to and from hospital for the surgeries, rides to and from treatments, someone to do the shopping as I had no immune system and could not go out in public. I had to have organic food because any livestock raised with any type of antibiotic made me even sicker. I had to have special soaps, lotions, toothpaste, medicines, etc. which contained no alcohol. This is just a small example for those of you who are not familiar with special needs of cancer patients.

For the first time since I could remember I was not in control, I was lost and felt helpless; while at the same time knowing my father needed me. At that time I did not know where to turn. Sure the doctors would hook me up with other doctors as I needed them but where is one supposed to turn to for the incidental things? Once my next door neighbors (who had already fought their own battles with cancer) found out I had cancer a lot of help came forward. They helped with transportation and made phone calls to make connections for me so I did not have to stress over what healthy people take for granted. Even sitting and talking to my neighbors because they had gone through their own treatments gave me pointers and helpful hints like eating 1/2 a potato and waiting a half hour then eating a meal would help you keep it down. In my neighbors case it was a baked potato, in mine it was a boiled one. Continued

Continued from If you are thinking one person can't make a difference you are wrong. 

Giving of yourself.

The point is; they gave up their time to sit and talk. Realizing everyone is different and every treatment is different and people react to things differently any tip however meaningless it might be to you means something to someone else. The time they gave up to make the phone calls which connected me with the Love of Linda Cancer Fund might have taken only 5 min. but it meant the difference of having food on the table for me.
Thanks to those who gave up two hours of their time for transportation to and from treatments, for those who called and said I'm going shopping would you like me to pick up anything for you, for those who called up with helpful tips. It really made a difference of me being able to get my treatments.
Thanks to the Love of Linda Cancer fund--their mission is to provide financial help to Cape May County, N.J.'s cancer patients in memory of Linda Bickel Grassi, a Glenwood Ave. school teacher who lost her battle with ovarian cancer in May of 1994. Donations Made to Love of Linda Cancer Fund, PO Box1053, Wildwood, NJ 08260.
The moral here is one person giving and then another, and then another and by the time you know it you have 20, 50, or more giving. It doesn't matter if it is just the time it takes to make one phone call, or time to tell of your experiences, or a ride to Dr.'s , or picking up something at the grocery store... IT ALL MATTERS!
Thank you for taking the time to read. Please feel free to leave a comment, a helpful tip for someone going through cancer, a donation to your favorite charity, or just ask someone what you could do for them.
Remember the Golden Rule.

Cancer - What is it? 

How does it affect us?

Cancer

What is it? How does it affect our lives-the lives of those around us? What are the different types of cancer and which ones are curable? These are just a few questions. All these answers can be found at http://www.cancer.org . Cancer is an ever growing disease and an alarming increase is within the younger generation. If you are one of those people who say I'll deal with it when I have to, I really wish you would at least become informed on the subject. If you are someone who has a loved one who has had or is going through cancer treatments please take the time to check out the following links. They are filled with information, support programs and services.
For those who would like to check out ways to help but are unsure; there are numerous ways to donate. There is the obvious - contribution of money, however there is also donating your time - offer to go to store for someone who is unable to go themselves, drive someone to and from appointments, donate a wig, knit/sew a chemo hat, pick up prescriptions. Participate in fund raisers. There are just so many ways someone can contribute you just have make up your mind that it is something you want to do and you will find something to contribute no matter how small of a task it seems to you. If you have been through treatments you may feel like you're a survivor and get on with your life. You have a valuable knowledge that could be helpful to someone else. Find a blog, web, community board, some way to pass on a few of the tips & tricks which helped you get through your treatments. Things you would have avoided etc.
Please take the time to check out the websites below.
Choose a charity of your choice, You can make a difference.

About Cancer

In this cancer resource, you will find symptoms of more...1 point

Mesothelioma Cancer

Your Introduction to Mesothelioma, its causes, sym more...1 point

http://www.celinasfrontier.com/newjersey/capemay/cmcobits/bright.txt

Love of Linda Cancer Fund. Donations used to help more...0 points

Mesothelioma Asbestos Cancer

mesothelioma asbestos cancer info0 points

FDA Okays Gene Test to Predict Breast Cancer Recurrence 

Rockville, Md., Feb. 6 The FDA said today it has approved the first microarray genetic analysis designed to aid in predicting the risk of stage I or II breast cancer recurrence or metastasis.
For more info. on this visit http://www.medpagetoday.com/HematologyOncology/BreastCancer/tb/5002

Lymphedema 

What is it,Symptoms,& Causes

Cancer Patients Be AWARE !
Lymphedema
refers to swelling that occurs most often in your arms or legs. It may affect just one arm or leg, but sometimes lymphedema can involve both. Swelling occurs when a blockage in your lymphatic system prevents the lymph fluid in your arm or leg from draining. As the fluid accumulates, the swelling continues.
Your lymphatic system is crucial to keeping your body healthy. It circulates protein-rich lymph fluid throughout your body, collecting bacteria, viruses and waste products. Your lymphatic system carries these through your lymph vessels, which lead to lymph nodes. The wastes are then filtered out by lymphocytes - infection-fighting cells that live in your lymph nodes - and ultimately flushed from your body.
When lymphnodes are removed example: breast cancer patients often have lymph nodes involved and they have to be removed. This leaves you at risk for lymphedema. Even if it does not appear right away you are still at risk for the rest of your life!
No cure for lymphedema exists. But lymphedema can be controlled. Controlling lymphedema involves diligent care of your affected limb.
Lymphedema Symptoms
Lymphedema
is a type of abnormal swelling of an arm or leg. Swelling ranges from mild, hardly noticeable changes in the size of your limb to extreme swelling that can make it impossible to use the affected arm or leg.
Signs and symptoms of lymphedema include:

Swelling of part of your arm or your entire arm or leg, including your fingers or toes
A feeling of heaviness or tightness in your arm or leg
Restricted range of motion in your arm or leg
Aching or discomfort in your arm or leg
Recurring infections in your affected limb
Hardening and thickening of the skin on your arm or leg
Causes of Secondary Lymphedema

Any condition or procedure that damages the lymph nodes or lymph vessels can cause lymphedema.
A) Surgery can cause lymphedema to develop if the lymph nodes and lymph vessels are removed or severed. For instance, surgery for breast cancer may include the removal of one or more lymph nodes in the armpit to look for evidence that cancer has spread. If the remaining lymph nodes and lymph vessels can't compensate for those that have been removed, lymphedema may result in the arm.
B) Radiation treatment for cancer can cause scarring and inflammation of the lymph nodes.
C) Cancer cells can cause lymphedema

Breast Cancer & Lymphedema 

What is Lymphedema?

Lymphedema 

Review Prevention Methods A Must!


Cancer Patients Be AWARE !
Please Pay close ATTENTION to the PREVENTION METHODS!
REVIEW them often.

Do not rely on Doctors to tell you about this! My experience was no one warned me of this. When I found out about lymphedema it was from a nurse, not a doctor. Even then I did not remember a lot of things like something as stupid as lifting a grocery bag. Well a heavy grocery bag did me in. There are treatments and garments to help, No Cure. You will have it for life if you get it. So let people call you weakling, or what ever name they wish, but refuse to lift!
Most hospitals have a Lymphedema Clinic so if you are not sure talk to your doctor and have him refer you to one. The longer you wait the worse it gets, and is harder to control.
http://www.cancer.gov/cancertopics/pdq/supportivecare/lymphedema/HealthProfessional/page2
http://www.lymphnet.org/
http://www.vascularweb.org/_CONTRIBUTION_PAGES/Patient_Information/NorthPoint/Lymphedema.html

Lymphedema 

18 Steps to Prevention

Risk-Reduction Practices

All the complex and interactive factors placing an individual at risk for lymphedema are not known
known and, therefore, cannot totally
prevent its occurrence based on our current level of knowledge; we focus on reducing risk of occurrence based on our best knowledge.

I.__ Skin Care - Avoid trauma/injury and reduce infection risk

2. Keep extremity clean and dry.
3. Apply moisturizer daily to prevent chapping/chaffing of skin.
4. Attention to nail care; do not cut cuticles.
5. Protect exposed skin with sunscreen and insect repellent.
6. Use care with razors to avoid nicks and skin irritation.
7. If possible, avoid punctures such as injections and blood draws.
8. Wear gloves while doing activities that may cause skin injury (i.e., gardening, working with tools, using chemicals such as detergent).
9. If scratches/punctures to skin occur, wash with soap and water, apply antibiotics, and observe for signs of infection (i.e. redness).
10. If a rash, itching, redness, pain, increased skin temperature, fever or flu-like symptoms occur, contact your physician immediately.

11. __ Activity / Lifestyle

12. Gradually build up the duration and intensity of any activity or exercise.
13. Take frequent rest periods during activity to allow for limb recovery.
14. Monitor the extremity during and after activity for any change in size, shape, tissue, texture, soreness, heaviness or firmness.
15. Maintain optimal weight.

16.__ Avoid limb constriction

17. If possible, avoid having blood pressure taken on the at risk arm.
18. Wear loose fitting jewelry and clothing.

19.__ Compression Garments

20. Should be well-fitting.
21. Support the at risk limb with a compression garment for strenuous activity (i.e. weight lifting, prolonged standing, running).
22. Wear a well-fitting compression garment for air travel.

23.__ Extremes of Temperature

24. Avoid exposure to extreme cold, which can be associated with rebound swelling, or chapping of skin.
25 Avoid prolonged (> 15 minutes) exposure to heat, particularly hot tubs and saunas.
26 Avoid immersing limb in water temperatures above 102° F.

___ Additional practices specific to lower extremity lymphedema

Avoid prolonged standing or sitting.
When possible, avoid crossing legs.
Wear proper, well-fitting footwear.

AIR TRAVEL and Lymphedema 

Considerations for Air Travel

AIR TRAVEL and Lymphedema

____ Guidelines for Garment Fit
An upper extremity compression sleeve should fit snugly from the wrist to the axilla (arm pit). There should be no evidence
of the sleeve material gathering at the inner elbow, or gapping at the forearm. Upon wear of the garment, there should be no sign
of redness at the top or bottom bands of the sleeve. If a silicone border is selected, no discoloration or skin irritation along the
border should occur. There should be no symptoms of numbness or tingling in the hand or fingers with wear of the sleeve. A
compression glove or gauntlet hand piece should always accompany a compression sleeve to ensure that no distal swelling occurs
with wearing the sleeve.
A lower extremity compression garment should fit snugly from the foot to the top of the garment. If a knee-high stocking is
selected, the fit of the garment should end just below the bend of the knee to assure comfort and adequate circulation. A thigh-high
stocking may be utilized and should fit up to the groin. Any stocking should be well fitted with no gapping and/or gathering of the
material behind the knee.
Any medical compression garment should be recommended and sized by a health care practitioner who is experienced in garment
fitting. Special instructions should be reviewed for wear and care of the garment according to the manufacturer's guidelines.
Lymphedema compression garments will maintain their advertised compression for up to six months with frequent wear. Garments
worn less frequently may potentially last longer. Garments older than six months should be assessed for adequate compression
and fit.

____ Other Considerations for Air Travel

In addition to the alteration in air pressure, several other factors may contribute to an exacerbation of lymphedema during
travel. Air travel is sedentary in nature, normally causing blood and lymphatic circulation to slow. This may precipitate an exacerbation
of swelling as the fluid pools in the extremity. Further, lifting and carrying luggage, an activity endemic to travel, may
cause undue stress on muscles in an involved or high-risk limb, thereby increasing the risk of swelling.
Another factor influencing fluid dynamics in an extremity may be attributed to dehydration during travel. Ambient air in
the passenger cabin of a plane is dry and may lend itself to dehydrating the body. If adequate water intake is not achieved, the
blood capillary pressures face further alteration. Due to the protein-rich nature of the extracellular fluid, dehydrating the lymphedematous
limb may result in an increase in ultrafiltration of fluid from the blood into the extracellular spaces. This is due to the
hydrophilic nature of the protein molecules and thus, their propensity to attract and retain water, potentially propagating further
swelling in the affected limb.
The sedentary nature of prolonged air travel may further encourage fluid pooling in static limbs. All individuals traveling by
plane are advised to move their arms and legs frequently to prevent swelling from occurring. Standing and moving around the
cabin once every 30-60 minutes will encourage improved uptake of extracellular fluid and prevent further accumulation of fluid in
the tissues.
___ Guidelines for air travel:

____ For Individuals With A Confirmed Lymphedema Diagnosis
____ Regarding Compression Garments:


a) Be measured for and obtain a well-fitted compression garment for air travel
b) Obtain compression of at least 20-30 mmHg for most upper extremity lymphedema conditions. A hand piece, either a glove
or a gauntlet is absolutely necessary and should be worn with the compression sleeve
c) Obtain compression of at least 30-40 mmHg for most lower extremity lymphedema conditions
d) Obtain any new garments well in advance of the trip to assure adequate fit and be sure to wear the garment in advance of travel to identify any adverse effects that may occur.

LYMPHEDEMA and EXERCISE 


Exercise is an integral part of a healthy lifestyle. Exercise presents several considerations for individuals with lymphedema and for those at risk for developing lymphedema.


Exercise positively affects the lymphatic system through the influence of muscle contractions
and deep breathing leading to an increase in lymphatic flow.
An exercise regiment for each person is different.
It is important to go to a Lymphedema Clinic and have your individual evaluation done.
In individuals at risk for developing lymphedema, and in those with a confirmed diagnosis of
lymphedema, exercise programs may need to be modified to reduce the risk of triggering or worsening lymphedema.
Individuals with lymphedema should understand that activities of daily living may induce a physiologic
response similar to that of an exercise program; therefore, adequate compression should be
maintained during daily activity

.

The location of the lymphedema, area of lymphatic limitation, and overall health of the individual must be considered when designing an exercise
program.

Conditions
such as cardiac disease, arthritis, high blood pressure, etc. are important factors in the design of the exercise program and the type of exercise to be performed.
In addition, the prior level of physical activity is also considered and environmental conditions (hot weather, high altitude) should be considered in designing a beneficial exercise program.
Personal interest of the individual is also important in selecting an exercise routine to
enhance compliance.

The goal of lymphedema exercise is to enhance muscle pump activity and thus promote improved venous and lymphatic return in the involved extremity.
The risk of exacerbating lymphedema is low when exercise is performed appropriately with shortstretch compression bandages worn on the involved limb.

Lymphedema exercise is defined as non-resistive active motion of the involved extremity.

Arm Lymphedema 

Features pictures of Lymphedema

Pictured examples of Lymphedema in Hands, Arms, Legs

Loading Fetching RSS feed... please stand by

Cancer - Facts,Figures, Support Programs, Medical Treatments 

Cancer Information and Resources

Cancer Support,facts,medical facts and treatments.
American Cancer Society
Learn about, and join the fight against cancer. Support programs and services for cancer patients and their families. Cancer facts and figures.
Gilda's Club Worldwide > Home
The mission of Gilda's Club is to provide meeting places where men, women and children living with cancer and their families and friends join with others to build emotional and social support as a supplement to medical care. Free of charge and nonprofit, Gilda's Club offers support and networking groups, lectures, workshops and social events in a nonresidential, homelike setting.
Find Us - www.gildasclub.org/WhereToFindUs/FindUs/tabid/115/Default.aspx
Resource Directory - www.gildasclub.org/.../tabid/84/Default.aspx
Gilda's Store - www.gildasclub.org/GildasStore/tabid/85/Default.aspx
Make A Gift! - www.gildasclub.org/MakeAGift/tabid/77/Default.aspx
National Cancer Institute
Official site for the National Institute of Health's principal agency for cancer research. Types of cancer,Clinical Trials & Cancer Trials
Quick Links
Director's Corner
Updates from the Director
Dictionary of Cancer Terms
Cancer-related terms
NCI Drug Dictionary
Definitions, names, and links
Funding Opportunities
Research and training
NCI Publications
Order/download free booklets
Advisory Boards and Groups
Information, meetings, reports

NIH Calendar of Events
Scientific meetings

Español
Información en español

Reader Feedback 

Good2Know

Thanks for all of the information you've provided. Great lens!

Posted July 23, 2008

RinchenChodron

Very informative and useful site ***** Some of your readers might want to read this book especially if they have just recently been diagnosed.

Posted July 18, 2008

kah22

You really turned out a great lens on cancer care! I got a lot of great info on the subject. I have a lens on acne too at Childhood Leukemia Check it out and rate it for me! Kevin ;)

Posted July 18, 2007

Cynthia White

Nice Lens! Here is my lens about mesothelioma. Take a look at that

Posted July 09, 2007

wenfri

Ihave read your story and know exactly how you must have felt. I am a 10 year Breast Cancer Survivor I have add your lens to mine under Breast Cancer stories
It is worth reading Hope you don't mind
My lense is called Wendy's whimsy Rated a 5 star All survivors deserve a 10 star LOL

Posted May 30, 2007

denman4

Great lens on a much-needed topic! I'm building a lens about Mesothelioma Cancer - Take a look at this lens and rate it for me! Thanks, denman4

Posted May 10, 2007

X
Dynamite8

About Dynamite8

Hello, my name is Linda, better known as  Dynamite8. I enjoy  helping others, church, music, gardening, and designing/creating; embroidery,needlepoint,
cross-stitch, and plastic canvas. I create designs and patterns for all of the above crafts. My web http://www.dynamitestitches.com

 

Dynamite8's Pages

See all of Dynamite8's pages