Congenital Heart Defects
This lens will have links to resources, information, ideas, and support for parents of babies with congenital heart defects. I will donate any money made from this lens to the American Heart Association.
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Spread the Word about CHD's
- Be A Winner Like Baby Diva
- In the month leading up to my baby's first birthday, I'm hosting a contest to spread the word about CHD's. Click the link and get a chance to win.
- Baby Diva's Birthday Tribute Page at the American Heart Association,
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Medical Information
Information for Parents
Links to excellent pamphlets on preparing your chi more...1 point
American Heart Association
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WebMD Heart Disease Guide
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Support Groups
CHIN: Family Room
Interactive forums, resources, and internet links more...0 points
CHD Families
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Awareness and Organizations
Websites that promote awareness of congenital heart defects
American Heart Association (AHA)
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For Hearts and Souls
For Hearts and Souls is Baby Diva's cardiologist's more...1 point
Angel Notion
Angel Notion is a non-profit organization dedicate more...1 point
THE CHD QUILT
The CHD Awareness Quilt Project. Passionately prom more...0 points
Welcome to Little Hearts - Parental and child support groups, health resources, family networking, information and hope for families affected by congenital heart defects CHD such as Ebstein's Anomoly, Pulmonary Stenosis, Total Anomalous Pulmonary Venous R
A non-profit organization founded by Lenore Camero more...0 points
CHD Families
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Congenital Heart Defects
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Kids With Heart
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Adult Congenital Heart Association
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Saving Little Hearts
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The Cardio Blog
Updates about new information, treatments, and mor more...0 points
Other People's Stories
Blogs About Congenital Heart Defects
Here are some blogs I found when I really needed to read others' stories. These are mainly "tet babies" because that is what I was searching for--but I will include any relevant blogs brought to my attention. If you have a blog or know someone who does, leave it in the comments and I will add it.
- I Heart Sophia
- Alexandra Reynolds was born October 27th, 2004 with a congenital heart defect called Tetralogy of Fallot with Pulmonary Trunk Atresia and MAPCAs and a right aortic arch. She has a genetic disorder called DiGeorge Syndrome which is the cause of her heart defect as well as, some developmental delays.
This blog is still updated. - Ryan Andie Owen
- Repair on September 20, 2006.
- The Day and Life of Kelsey and Family
- Repair on September 14, 2006.
- Heather & Family
- Repair on May 10, 2005. Drew was born with heart and kidney problems.
Our Story...
On August 9, 2006, our beautiful baby girl came into this world. It was a long labor and her Daddy was thousands of miles away but that was okay...she was here and she was perfect.Then, increasingly worrying reports came to us of a heart murmur. Still, they assured us, she was fine. Babies with heart problems do not feed well and look blue, they said, and our baby was ravenous and a delightful shade of pink.
Finally, a long drive to a major hospital three hours away and we had a diagnosis: Tetralogy of Fallot.
My heart nearly broke, but I had my little girl depending on me. So, I concentrated on her. Through three months alone, with colic, we survived.
On November 6, 2006, she had a successful repair. She is missing her pulmonary valve, but otherwise is heart healthy.
This lens contains the resources I have found useful. Please share your own as well!
Keep up to date with my little one at my blog: Mama Saga (mamasaga.blogspot.com)
Great Stuff on CafePress
News from Google
Blog Posts from Google
- We Missed It! « Adventures of a Funky Heart!
- So when you talk about rebuilding your life after heart surgery, we'll show you child after child wh...
- A Beautiful Heart: Cautious Progress
- But we are thankful for the great medical care she has received so far, and we are optimistic that w...
- Children with heart defects from Uganda to be flown to India for ...
- Children with heart defects from Uganda to be flown to India for treatmentZimbabwe StarTwenty childr...
- A Beautiful Heart: Surgery Day
- CHD Books. Heart Defects in Children; It's My Heart; The Heart of a Child; The Parent's Guide to Chi...
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