Cystic Fibrosis

Cystic fibrosis is an inherited disease of the mucus glands. It causes chronic, progressive damage to the respiratory system, chronic digestive system problems, and can affect other organs.

The signs and symptoms of this disorder are caused by the production of abnormally thick, sticky mucus in the body's organs. Problems with breathing are among the most serious symptoms. Mucus can obstruct the airways and cause bacterial infections in the lungs, leading to chronic coughing, wheezing, and inflammation. Over time, mucus buildup and infections lead to permanent lung damage, including the formation of scar tissue (fibrosis) and cysts in the lungs.

Links

Cystic Fibrosis: CF; Cystic Fibrosis Research Directions; Fibrocystic Disease of Pancreas; Mucoviscidosis - GoldBamboo.com
CF Advantage: The mutation that causes deadly cystic fibrosis has survived for 52,000 years - perhaps because it offers protection against diarrhea. By Josie Clausiusz
PulmonologyChannel: Information on cystic fibrosis.
Mamas Health: Find out what Cystic Fibrosis is, the symptoms and the causes.
MyCysticFibrosis.com: Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
Cystic Fibrosis Resource Center: Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
Cystic Fibrosis I.Q. Test: Test what you know about cystic fibrosis.
Cystic Fibrosis Health FactSheet: Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
Cystic Fibrosis Links: Cystic Fibrosis Links and Information
The Breathing Room: Guidance about the art of living with cystic fibrosis.
Cystic Fibrosis Management: Article detailing therapeutic options for co-management.
Manual for Cystic Fibrosis Patients and their Families: From the European Thematic Network for Cystic Fibrosis. In depth information in PDF.
Jewish Genetic Diseases - Cystic Fibrosis: Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
Cystic Fibrosis Western Australia: Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
CF Prescriber: Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
Cindy's Friends: Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
The Spirit of Lo - Inspirational Book: Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
Cystic Fibrosis Medicine: Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
Cystic Fibrosis Resource Centre: A source of information for cystic fibrosis patients, parents, doctors and other carers.
Home Page-Harminder: Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
Irri Shark's Page: About the '65 roses' story.
A-Z Directory of Cystic Fibrosis Resources: Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
CysticFibrosis.com: Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
Medline Plus - Cystic Fibrosis: A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
Clayton Bates Cystic Fibrosis Support Site: For family, friends, and other supporters to find out about the disease and offer support for Clayton.