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OCD: A Mother's Perspective

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I've experienced OCD in a personal and sometimes heart-breaking way. As I've learned more about the topic, I have found that most people know OCD by extreme stories they've heard or from television shows like "Monk." This lens is my attempt to help others by sharing my family's experiences. If I'm able to make a positive difference in just one person's life with my sharing here, then I've accomplished what I set out to do.

OCD: One Family's Experience 

A few years ago, when my son was starting 1st grade, we learned that he has OCD. I'm not sure how much credence I give to such distinct labels - OCD, ADD/ADHD, etc. I've come to believe that, at least in part, many disorders overlap on a spectrum that includes characteristics such as creativity and other intelligences. Still, the labels are helpful in giving a reference point for locating information. And, when it comes right down to it, it gives the doctors a way to talk to the insurance companies.

But, back to my son. The turning point from "quirky kid" to "OCD" came in the summer between kindergarten and 1st grade when he spent more time washing his hands than riding his bike.

Most people hear OCD and think of germ phobia or checking and counting. In my son's case, the germ connection is part of his issue. In particular, he was obsessed with contamination and dealt with it through unusually frequent handwashing.

Let me give some basic definitions, as I understand them, that might help clarify OCD at a basic level. The person with OCD experiences obsessions which are typically unwanted, uncontrollable thoughts. The affected person attempts to alieve the obsessions with compulsive actions that might not always seem to directly relate to the obsession.

Now, being a perfectionist and therefore constantly rearranging your CD collection doesn't necessarily constitute OCD. The "D" in the acronym stands for "disorder." In other words, the state only becomes a disorder when normal life is disrupted by your obsessions and compulsions. If you can't go to work until you make sure your CDs are alphabetized and thus end up late each date, eventually losing your job, then you might consider your condition a disorder. In my sons case, he had become paralyzed by the compulsive handwashing. The time spent washing kept him away from riding his bike (his "job" as a kid, if you will) and raked the skin off of his hands until they bled.

Another opinion that I hold is that the obsession isn't always what it seems. While the germs might appear to be the obsession, I think it goes a few steps farther back to the idea that germs cause illness and illness causes death. Death is the fear at the root of the obsession. Again, this is just my own opinion.

I'm not a doctor or a therapist, but I hope that in some small way I can be of help by sharing my experiences.

A few of the many links to sites about OCD 

Obsessive Compulsive Foundation
International organization dedicated to education, assistance and research.
Dr. Jeffrey Schwartz's 4 Steps
The book listed below, Brain Lock, defines this process in detail. I think it is a wonderful process that is a humane alternative to cognitive-behavioral therapy involving exposure.
National Institute of Mental Health
The NIMH definition of OCD.
Kidshealth.org
Easy to read information specific to children and OCD>
Misdiagnois and dual diagnosis of gifted children
An extract from a book listed below.

My latest OCD helpers 

These few books have been a big help to our family of late.

More Helpful OCD Titles 

Rewind, Replay, Repeat: A Memoir of Obsessive-Compulsive Disorder

Amazon Price: $11.16 (as of 10/11/2008)

Misdiagnosis And Dual Diagnoses Of Gifted Children And Adults: Adhd, Bipolar, Ocd, Asperger's, Depression, And Other Disorders

Amazon Price: (as of 10/11/2008)

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New Wikipedia 

Obsessive-compulsive disorder (OCD) is a chronic anxiety disorder most commonly characterized by obsessive, distressing, intrusive thoughts and related compulsions. Compulsions are tasks or "rituals" which attempt to neutralize the obsessions. OCD is distinguished from other types of anxiety, including the routine tension and stress that appear throughout life. The phrase "obsessive-compulsive" has become part of the English lexicon, and is often used in an informal or caricatured manner to describe someone who is meticulous, perfectionistic, absorbed in a cause, or otherwise fixated on something or someone.Berrios G E (1985) Obsessional Disorders: A Conceptual History. Terminological and Classificatory Issues. In Bynum W F et al (eds) The Anatomy of Madness Vol I , London, Tavistock, pp 166-187 Although these signs are often present in OCD, a person who exhibits them does not necessarily have OCD, and may instead have obsessive-compulsive personality disorder (OCPD) or some other condition.

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Nila

About Nila

A Certified Brand Strategist with nearly 20 years experience in marketing communications, Nila helps business leaders articulate vision, unearth brand essence and create foundational formulas for success.

In 1993, Nila co-founded the predecessor of today's Element Three, an Indianapolis firm situated at the intersection of business, brand and creative. Nila is a Trusted Advisor with Vistage, the world's largest CEO membership organization and an active member of The Brand Establishment.

Nila received a Bachelor of Fine Arts in Visual Communications from IUPUI/Herron School of Art and Design in 1990. Her love of learning fuels her interests in psychology, culture, communication and art. "This combination of subjects has naturally led me to the brand niche."

When not working with business leaders, Nila can be found with her nose in a book or hanging out with her husband and 2 children.

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