What You Should Know About Epilepsy

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What is Epilepsy?

Epilepsy is a common invisible illness, medical condition/disorder that affects more than 3 million people world-wide. Sometimes it is hereditary, sometimes there is some type of medical cause such as a tumor and other times is spontaneous. This medical condition is essentially neurological but affects so much more than the brain alone. How, you ask? When someone has Epilepsy, they have what is called a seizure. Seizures occur when the electrical system of the brain malfunctions and discharges the electrical energy uncontrollable causing possible unconsciousness and/or uncontrolled muscle contractions/spasms. They can last anywhere from a few seconds to a few minutes and can produce a multitude of physical symptoms ranging from mild to severe. The after-effect can possibly last much longer depending on the type of seizure. Some seizures cloud awareness, produce unorganized movements, block normal communication, cause confusion, muscle soreness/stiffness and memory loss for a short time.

If you have Epilepsy...

It is important for you to know that you "have" Epilepsy. It is only a part of who you are. It is not you and it is not your whole life. You are more than that. Do not let this condition take away the beautiful amazing person that you are.
Shine thru it!

Understanding Seizures a bit better

A few common classifications of seizures to know

Seizures are the main culprit and identifying symptom of Epilepsy but there are many more (we'll get to that in a bit). A seizure is caused by a malfunction of the brain and in most people the cause is not identifiable. In some cases, if a doctor is present during a seizure, he/she may attempt to find the underlying cause. If the cause is not apparent or a proper diagnosis cannot be made, then the epilepsy will be determined by type of seizure and syndrome. Doctors will also classify the type of seizures and epilepsy by running tests such as EEG recordings, MRI's, CT Scans, trigger and sensitivity tests. Causes of seizures are often also divided into two sub-types: acute and remote depending on whether the abnormality is result of an active brain disease or if it is result of an past injury or event.

There are two main Classifications of Seizures in Epilepsy Symptomatic and Cryptogenic. Symptomatic seizures can be linked to identifiable diseases or abnormalities of the brain. Cryptogenic seizures are diagnosed when no cause is found or identifiable.

Someone may also suffer from what is called a Non-Epileptic seizures. Theses types of seizures are not epileptic and have no identifiable cause. They more commonly cause brief changes in the person's behavior but may somewhat look like epileptic seizures. Non-epileptic seizures are not related to abnormal electrical activity in the brain but are considered to be more psychological than of physical origin. They do resemble epileptic seizures in many ways but the difference is in the test results. A non-epileptic will have normal EEG results between seizures and will only occur during wakefulness. Epileptic seizures may occur during sleep or when awake. Also, non-epileptic seizures tend to last much longer than epileptic seizures as well as changing in character over time. Anti-seizure medications do not help, affect or prevent non-epileptic seizures. Treatment for people with non-epileptic seizures is commonly counseling and psychiatric medication.

Do you have Epilepsy?

Do you have a seizure disorder?

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Books on Epilepsy & Seizures

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Seizure Triggers

A few ideas of things that could potentially cause or bring on a seizure

Firstly, it is important to note that not everyone who has had a seizure is Epileptic. Seizures can be caused by many things and anyone can have a seizure at any time. They are highly unpredictable. Seizures can be triggered by a multitude of things- even simple things you may not expect. Here are some triggers you may not know:

1.) Missed medication for those who have been diagnosed as needing a preventative
2.) Hormonal imbalances (extreme fluctuations in hormones in women during monthly cycles or during pregnancy)
3.) Imbalanced diet
4.) High stress levels
5.) Lack of Sleep- no schedule
6.) Excessive alcohol or drug use or abuse or sudden withdrawals
7.) illnesses or high fevers
8.)flashing lights or strobes (light-sensitivity)
9.) bright lights
10.) video games
11.) pattern-sensitivity (looking at patterns such as circles, squares or stripes in high contrasts)
12.) extreme heat (in cases of soaking in hot water or relaxing in steam rooms)

These are just a few of the triggers that some people who suffer with different types of Epilepsy have. Not everyone who has Epilepsy struggles with all of these listed triggers. In some unique Epileptic cases, seizures can be triggered due to thinking, touching, reading, eating or hearing something.

Epilepsy Awareness Gifts

Epilepsy Awareness necklaces, bracelets, pins and silicone wristbands

November is National Epilepsy Awareness month! Support and uplift the ones you know- family and friends- who suffer with Epilepsy and seizures by gifting them one of these lovely purple themed gifts of hope. Let us all become aware in hopes that we can find a cure.
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Types of Seizures

Learn the many different types of seizures and their unique symptoms

Neurons with high functioning electrical activity during a seizure

There a so many different types of seizures that it is difficult to simply tell you about only one. Each seizure type is unique in every way from its' name to its' symptoms. Most seizures have been named based on what part of the brain is affected when they occur. Others have been named based on when they appear in the lifetime. Here are a few examples of some very common seizures many epileptics battle with.

1.) Absence seizures- This form of seizure is quite common and frequently goes unnoticed because it has no noticeable aura or abrupt onset. It commonly called petit mal seizures. My father used to call them staring comas because they cause momentary loss of consciousnesses but generally don't last long. Unfortunately, those who have this form of epilepsy go unnoticed when it occurs because they do not look to be in any discomfort, but rather they simply seem to be staring off into space.

2.) Myoclonic seizures- This form of seizure causes a brief but sudden jerk of the muscles in arms and legs. Often it only last for a short period and in most instances it is a very mild jerking that resembles the unconscious jerk that sometimes happens to your legs while lying in bed during sleep. Other times, the jerks and muscle spasms can be forceful enough to throw someone to the floor. These types of seizures can be isolated or in clusters.

3.) Atonic seizures- These types of seizures are also known as drop attacks because during an Atonic seizure, one will lose posture, the head will droop or hang without control or the person may suddenly collapse. Atonic seizures are often abrupt and come without warning, leaving those who have them feeling victimized and as if they have no control of their muscles.

4.) Tonic-Clonic seizures- These types of seizures are the most common type of generalized seizure and have also been called grand mal seizures. It has two phases- the Tonic phase and the Clonic phase. During the Tonic phase, the body and limbs of the person begin to stiffen breathing generally begins to slow or even stop causing the turning blue of nails, lips and face but generally returns during the Clonic phase. Shortly following the Tonic phase the Clonic phase begins. The Clonic phase consists of mild to slightly more severe jerking and twitching of the limbs and face. During this type of seizure, the body may feel overwhelmed and stressed out causing the person to vomit and/or alleviate their bows while unconscious and unaware. This type of seizure typically doesn't last very long, but as a result of the Clonic phase, the person may have minor injuries within the mouth and on the tongue. Also, this type of seizure tends to weaken the muscles, causes lethargy, confusion or fuzziness and headaches.
*Some Epileptics only experience the Tonic seizures, while others only experience the Clonic seizures; while there are also other who experience a Tonic-Clonic-Tonic seizure pattern.

Remember!

If you see someone have a seizure always be reassuring, supportive and remain with them until they have regained consciousness and the seizure has ended. Try to remain calm as you help them recover and remember to try not to judge them for anything they may have done... they have no control of what has happened.

First Aid

What To Do If You See Someone Have A Seizure

  1. Most Important keep them safe and prevent any possible further injury.
  2. Remain calm and stay with them until the seizure has ended naturally and they've regained consciousness. Also be sure to reassure anyone else who may be nearby to remain calm.
  3. Another biggy Don't hold the person down or try to constrict his/her movements. Instead, try to make the place as safe as possible by removing any large objects that could be knocked over onto the person or tables/chairs that he/she could bang their limbs or head on. Lay something soft and flat underneath the head to prevent banging of the head on hard surfaces.
  4. Gently turn him/her over onto one side. This will open the airways and allow breathing. Do not put anything (including spoons or fingers) in the person's mouth for any reason! Doing so could cause injury. Also be sure to remove any accessories from around the neck that may constrict breathing.

    It is not true that a person having a seizure can swallow their tongue

  5. Important Be sure to time the incident with your watch. This is important because seizures of any kind should not last more than five minutes. If they do or if they occur in a series, doctors will need to care for the individual in order to stop the seizing. So, if someone you know has a seizure lasting longer than five minutes or has a series of seizures, call an ambulance. Please do not attempt to drive someone who is having a seizure to the hospital yourself.

Epilepsy Awareness Gifts

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A lil bit about why I wrote this article

The subject of this article is very personal to me. I have been afflicted with seizures since I was a young child. I will tell you a bit about it. It is not a hereditary. I have no tumors or diseases such as meningitis. The cause for them is currently unknown. I have had many many tests done over the course of my life; none conclusively explained the cause for my seizures. I suffer from multiple types of seizures including but not limited to the Absence or petit mal and Tonic-Clonic or grand mal type seizures.

I tend to worry about how uncomfortable and scared I will make others feel if I seize in-front of them. Unfortunately, I have no control of when one will occur. I have had a good number of seizures over the course of the years... some of them in the worst possible places.

What happens most times when I have a seizure:

I do not feel what is happening to me as I am seizing. I am unconscious. I am told that the more common type of seizure I have is the Tonic-Clonic, so I twitch and jerk a lot. My muscles also seem to loosen and contract as well during these events. We no longer call the ambulance when I have them, unless I hit my head, have one in a severely dangerous place or have one for longer than five minutes. I have had a few that have been more than 10 minutes long, which is pretty scary. Rest assured the ambulance was there to be sure I was okay. After I am conscious again, I feel foggy, physically unstable and my muscles are sore, heavy and weak. It takes awhile for me to recover my strength and ability to think right again. For awhile, I have no memory of what happened or the events from at least 2 hours leading up to the seizure. It comes back to me slowly... sometimes a day or so before I recover all of it. I am the world's worst at biting my tongue while seizing but that always heals too, and I never really mind a few days of eating soft foods such as mashed potatoes and applesauce. :)


I have been on anti-epileptic medication for many years now and it works fairly well to prevent my seizures. On some occasions, I have what are called breakthrough seizures. Those types of seizures are while you are taking an anti-epileptic that has previously proven to help aid you in preventing seizures.

As someone who has had seizures for more than 15 years, I have began analyzing the events leading up to my seizures by recalling them in a journal I keep. I have found thru my recordings, that much of my seizures have been directed connected with stress(both physically and mentally), lack of sleep(working on that) and sensitivities to things such as extremely hot or humid places, lights of bright contrast and some sounds. The sensitivities are called reflex triggers. This is a very good idea for anyone who has seizures because it may help you to determine what you should try to limit use of, avoid or do to prevent an incident.


Report: After adjusting my life to relieve as much stress as possible (the highest factor that caused my seizures), along with the medication I take... I can say that I have not had a petit mal or grand mal seizure in two years! I am proud about that. I still have some Myoclonic type seizures when I am faced with some reflex triggers but I am hoping that I stay seizure free. I hope you do too!
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Do You Know Someone With Epilepsy?

a friend, family member, child or co-worker...

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More Awareness Gifts!



Did you Finding this Article Interesting?

  • Squidoo_Chick Mar 3, 2012 @ 3:13 am | delete
    Great info to help people who may know someone with Epilepsy
  • weddingchecklist Mar 1, 2012 @ 12:19 am | delete
    Very helpful information.
  • Tipi Feb 28, 2012 @ 6:34 am | delete
    Thanks for putting this together, good information and interesting!
  • capturedbykc Feb 28, 2012 @ 10:18 am | delete
    Thank you so much for your kind comment. I truly appreciate it. Also, thank you for stopping by this lens.
  • EdmondHoggeJr Feb 21, 2012 @ 9:20 am | delete
    Nice work on the lens!
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Great Sites to visit to learn more about Epilepsy!

Did you know that dogs have seizures too? Some of the links below will direct you to sites that inform you about canine seizures and how to manage them. There is also a link hidden in there about how dogs may be able to sense an oncoming seizure before it happens.
The Epilepsy Foundation
Find out more about Epilepsy from the Epilepsy foundations site.
CDC site- About Epilepsy
CDC site with information about Epilepsy
American Epilepsy Society
American Epilepsy Society
Epilepsy in Dogs
Do dogs have seizures too? Find out on petmd.com
Types of Epilepsy
Read more about the different types of seizures and the parts of the brain they affect here.
Seizure Alert Dogs!
A very cool article about how dogs may be able to sense and alert you before an oncoming seizure!

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capturedbykc

Hi! My name is Kristina. I am a blissfully married woman who-together with my husband- raises and spoils 2 boxers, a tabby cat and a ball python snake... more »

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