Adult Aspergers

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References for the Asperger's Adult

Adults with Asperger's Syndrome, and those who live with them, are often at a loss for help with their condition. Most references to Aspergers are aimed at children and their caretakers. Aspie kids grow up, and need information about jobs and relationships and being parents.

In this lens, I will be providing links to many resources for Asperger's adults and those who love them. These will be a combination of books, websites, and other references. Most are written for the adult Aspies themselves, though some are written for their romantic partners. If you have a favorite reference I've left out, please let me know in the Comments section at the bottom of this lens.

Image: Hans Asperger, the first researcher to document Asperger's Syndrome, from Wikipedia. Dr. Asperger may have been Aspie himself.

Do You Know Any Asperger's Adults?

Aspergers is more common than most people think. It's estimated that 1% of all people have some level of autism, from very mild to disabling. You probably know someone on the spectrum.

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Aspie-Speak: Some Basic Terms

There are some terms and abbreviations that come up frequently in discussions of Aspergers. As I'll be using the terms here, I'm providing a few definitions.
  • Aspergers, Aspie, AS are all terms for a person with Aspergers Syndrome. Aspergers is a mild form of autism. People with AS can function in general society, but often have notable weak areas in social understanding.
  • Neurotypical, NT This term is often used by Aspies to mean someone who is not on the autism spectrum.
  • ASD, Autism Spectrum Disorders, The Spectrum Autism is a condition that can range from very mild to completely disabling. This range is referred to as the Autism Spectrum, or the Spectrum for short. Aspergers is on the mild end of the Spectrum.
  • HFA, High functioning Autism This term is often used to describe people who have fairly severe Aspergers, or mild autism. People with HFA have more trouble fitting into the NT world, but can often become successful with help and understanding.

"If you've seen one person with Aspergers ... you've seen one person with Aspergers."

Because it is a spectrum condition, each individual with Asperger's Syndrome is a bit different, with different weak areas and strengths. You can't generalize about all Aspies -- we are all different.

Basic Books on Aspergers

These books are classic reference books on Aspergers, and biographies that are an excellent introduction to Aspergers. Though they focus on children, the information provides a good grounding in what Aspergers is, and how it affects individuals.
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Most books about Asperger's focus on children.There are several reasons why:
- Aspergers is a fairly new diagnosis, and adults are rarely diagnosed;
- Teaching Aspies to manage their condition works better in children than adults;
- Children are cute. Though this sounds trite, we tend to focus on cute things/people more than the less cute.

Books About Adult Aspergers

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"Aspies have no empathy."

Not quite true ... while people with AS don't always understand the inner workings of other people, some Aspies have so much empathy it overwhelms them and they shut down. The seem cold and uncaring only because they don't know how to handle their emotions.

Books About Aspies in Relationships

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Myth: Aspergers is a male condition

Women can have AS too, but the textbook presentation is based on boys and men. Women with AS tend to care more about other people, and are more concerned with developing social skills.

Websites Helpful to Adults with Aspergers

This is a list of websites that are primarily reference material, or are links to organizations that are useful to adults with Aspergers or their partners. For more personal information, see the list of blogs below.

If you have any links you'd like me to add, please add them to the Comments section at the bottom of the page.
ASPIRES Home Page
Aspires is a combination of a reference clearinghouse and an active e-mail list. The reference information includes book reviews, article links and other writings on all facets of Aspergers. The e-mail list focuses mostly on relationships, and is about half Aspie, half NT.
Asperger's Association of New England - AANE
"AANE: Asperger's Association of New England is a non-profit working to support people with Aspergers Syndrome. AANE's mission is to foster awareness, respect, acceptance, and support for individuals with AS and related conditions and their families."

I have used AANE's services, and they are an excellent resource. The organization is run by Aspies.

Aspergers Emergency Card

We don't all need one ...


Aspergers Emergency Card for sale by Cartesian Bear on Zazzle

Some people with Aspergers can have problems dealing with authority figures in an emergency. They can become argumentative, overly fearful, or just don't display the expected body language.

If you or an Aspie you care about might have problems this way, consider ordering an Emergency Card for them. I designed this card with personal information and a photograph on the outside, and tips for working with an Aspie inside. Someone with Aspergers can often hand this card to an authority in cases where s/he can't speak well.

Blog List

The following blogs are personal stories about Aspergers and adults, from many different viewpoints. While there will be some reference material here, the main focus is on personal experiences or non-professional advice.

If you have another blog you want me to add, please tell me in the Comments section below.
Aspie Parent at Polymath Solution
"...it is full of advice and random commentary for parents of children, teens and adults with Asperger's Syndrome, Aspies who have children, and various relationship issues faced by people with Aspergers. I'm no professional, but I do have a lot of personal experience with Aspergers and related issues.."

This is the Aspergers portion of my own blog.
Asperger's Syndrome and Autism Spectrum DVDs, Videos and Resources | Coulter Video
Dan Coulter is a video producer who discovered he was Aspie after his son was diagnosed. In addition to his films, he writes excellent articles about Aspergers, his own, his son's, and in general.

Aspergers Awareness Merchandise

from Zazzle

I have chosen a small set of images from Zazzle for adults to show their pride in having Aspergers Syndrome. Nothing cutesy, nothing insulting, no pleas for a cure. Just items an Aspie adult would be proud to wear, or own.

I am just like my mom.
I am just like my mom.
by aspiegirl
Buy Now

Asperger Quote
Asperger Quote
by jillgo4th
Buy Now

The Autistic Spectrum
The Autistic Spectrum
by webcarve
Buy Now

Autistic Pride
Autistic Pride
by ASParenting
Buy Now

Adjust your perspective hooded sweatshirt
Adjust your perspective hooded sweatshirt
by wolfmama
Buy Now

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Comments

Did you learn anything here? Have something to share? Want to tell me about a great book, website or other resource. Please share!

All comments are reviewed before approval. To prevent spam, html will be removed. If you have a link, give me the name of the site, and I'll look it up myself.

  • davespeed Jan 11, 2012 @ 7:44 pm | delete
    Thanks for sharing this info. I know someone with Aspergers and knew very little about it before visiting your lens. All the best.

About the Author

I first found out about my Aspergers when I was in my early 40s, and it explained a lot about how I grew up.
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by

ZCademy

I am an adult with mild Aspergers, and I was married to a man with Aspergers Syndrome. I learned about Aspergers in adults the hard way.
I live in a...
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