A Personal Look at Autism
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He has Autism?
I am the mother of 3 wonderful children (who are all teenagers now! LOL) I am divorced, which happened as a byproduct of raising a child with a disability.
This lens is about my son Jonathan who has Autism. He is my youngest. I want to point that out because many parents are afraid to have children after having a child with autism because of the strong possibility of having another child with autism. Would I have stopped having children if Jon had been my first? I have often thought about it. I may have been scared but eventually I would have tried for more children. If I knew what raising a child would be like ahead of time, I don't think I would have hesitated. It is truly a challenging but beautiful experience.
Unlike many other children out there with Autism, who talk and educate others about how they feel and think, Jon, who is almost 15 yrs old, does not know he has Autism or even what Autism is.
And frankly, I kinda think it's a good thing.
Jon was diagnosed at 2 1/2 yrs old when we were concerned that he had stopped speaking. At this point we had never heard of Autism. I engulfed myself into the internet to find out everything and anything I could about it.
Jon immediately entered the Early Intervention system, getting almost daily therapy in speech, OT, and social skills. We decided on the Picture Exchange Communication System. (PECS)
It is very confusing and scary for a parent just entering the world of Autism and treatments. Nothing, not even the information or therapies, is cut and dried. There are many different forms of therapy and someone is always there to tell you theirs in better, theirs is THE CURE.
I am glad I chose the PECS system for his communication therapy. It worked. Not only can he speak but his vocabularly level is above average for his age. You know what else contributed to this? The computer and the internet. Jon knew how to work on a computer since the age of 3 yrs old. He constantly played computer games like The Living Books
series and Dr. Seuss. Each child with Autism is different, this is why there is a whole Autism Spectrum. Jon falls into the higher end but not quite into Asperger's Syndrome.
That's a little background into how we started out. Read on to who learn about who he is today.
For those of you who have followed this lens, I thought I would add a little "update". Please see the new 2009 text.
This lens is about my son Jonathan who has Autism. He is my youngest. I want to point that out because many parents are afraid to have children after having a child with autism because of the strong possibility of having another child with autism. Would I have stopped having children if Jon had been my first? I have often thought about it. I may have been scared but eventually I would have tried for more children. If I knew what raising a child would be like ahead of time, I don't think I would have hesitated. It is truly a challenging but beautiful experience.
Unlike many other children out there with Autism, who talk and educate others about how they feel and think, Jon, who is almost 15 yrs old, does not know he has Autism or even what Autism is.
And frankly, I kinda think it's a good thing.
Jon was diagnosed at 2 1/2 yrs old when we were concerned that he had stopped speaking. At this point we had never heard of Autism. I engulfed myself into the internet to find out everything and anything I could about it.
Jon immediately entered the Early Intervention system, getting almost daily therapy in speech, OT, and social skills. We decided on the Picture Exchange Communication System. (PECS)
It is very confusing and scary for a parent just entering the world of Autism and treatments. Nothing, not even the information or therapies, is cut and dried. There are many different forms of therapy and someone is always there to tell you theirs in better, theirs is THE CURE.
I am glad I chose the PECS system for his communication therapy. It worked. Not only can he speak but his vocabularly level is above average for his age. You know what else contributed to this? The computer and the internet. Jon knew how to work on a computer since the age of 3 yrs old. He constantly played computer games like The Living Books
series and Dr. Seuss. Each child with Autism is different, this is why there is a whole Autism Spectrum. Jon falls into the higher end but not quite into Asperger's Syndrome.That's a little background into how we started out. Read on to who learn about who he is today.
For those of you who have followed this lens, I thought I would add a little "update". Please see the new 2009 text.
Jonathan and Autism
- So who is Jonathan?
- It's 2009. What's in store for Jon this year?
- Things I Learned From Autism
- Books on Autism
- Blog Posts from Google
- Autism Awareness
- See what Autism is About
- Halloween Costumes Jonathan would love!
- Autism Awareness on CafePress
- Places about Autism
- Please share your thoughts here
- Links for Various Autism Therapies
So who is Jonathan?
Jonathan is one month shy of his 14th birthday. He is in a special BOCES class and takes a 2 hr ride to school each day. He is advanced in English, Science and Computer skills. He is way behind in Math. He sometimes struggles with his social skills. One of his biggest hurdles right now is "personal space". He stands almost "rightontop ofyou" when talking with you.One of his favorite pastimes is watching Youtube and Spongebob and Villains Wikipages on the computer. At YouTube, he searches for reused animation in different animated video clips. He can usually find 3-4 clips that all share the same exact scene! At Wiki, he adds to the SpongeBob and Villains pages. He can write out a SpongeBob episode script from memory.
Although many children of Autism cannot handle touch, I have been luck as Jon is almost to the point of overly lovable! My big lovable cuddly bear!
He has a few sensory problems to date. He conquers an issue but it is always replaced but something different. It is his outlet for excitement and frustration. He rocked, which was replaced by jumping and hand flapping, which was replaced by hitting his knee, etc...now he presses his hand on his chin. I know when he does this, it is my cue he is overstimulated in some way.
Things he wants to do/be when he grows up: palentologist, comedian, artist, animator, film creator, inventor, actor.
He wants to travel to California to create and film his own traditionally animated movie.
He can play piano by ear. His art drawings are fantastic. He can draw on the computer just as well as a pencil and paper..no easy feat.
He hates to lose and gets very frustrated when he is playing a video game that he can't win.
His favorite holiday is Halloween. Once the month of June comes along, all the talk is about Halloween coming soon.
Therapies that worked for Jon: PECS, social stories, and visual learning.
Strengths Jon has because of his Autism: music by ear, memory, and drawing.
It's 2009. What's in store for Jon this year?
In Jon's Words
I thought it would be interesting and informative for Jon to add his own thoughts to this lens. I have asked him the question: What things are you looking forward to in your life? and then handed the computer over to him:
"I was thinking I would plan to make animated movies, record songs in albums, provide character voices, and others. Some of the movies that I want to see are Coraline, Monsters vs. Aliens, and Tim Burton's version of Alice in Wonderland. I love books about Dinosaurs and I'm always looking for new books on Amazon. I've also become very interested in learning about the works of Drew Struzan, a well-known movie poster artists that ever lived. I like to dream about becoming famous. I also look forward to learning how to drive a car. I would someday like to travel to California which is where the people make the films."
---Jonathan 1/31/09
Things I Learned From Autism
Things I learned along the way, sometimes the hard way.
- How to pronounce every prehistoric dinosaurs name correctly.
- What a beautiful thing it must be to keep your childhood innocence while growing up. I am jealous.
- Jonathan is probably the happiest person on Earth. Oblivious to his disability, yet happy from the time he awakes to the moment he falls asleep again.
- I know what reused animation is, and stop motion and computer generated....smile
- Who does the voice for SpongeBob Squarepants AND pretty much every animated character from every animated movie ever created. Oh yeah and also the date of release for the newest Disney movies!
- YouTube really does have videos of every posssible thing!
- Knowing that no matter how mad my other children get at me or stomp around yelling how life is unfair (LOL), I can always find comfort and unconditional love from Jon... always.
- Your family unit, no matter who it is made of of, is only as strong and close as you make it to be. Put effort in teaching your children the importance of family. It's the glue that keeps everyone together through life's rough times.
- I never swear. Jon repeated EVERYTHING he heard when younger and now that he knows he shouldn't say swear words, if he hears them he says "What the H..can I say that???" and smiles cause he knows the answer.
- I know what animals are related to each other, whether its a mammal or animal, and facts of the most obscure!
- Autism isn't always about routine. I am one of the most unorganized, laid back parents there are. Our days can be so chaotic, one day is NEVER like another. Jon had his hard times but adapted to our ever-changing world. One of his teachers believed that Jon has come so far because I am so laid back. I told the teacher, if I hadn't been, I would be in a nuthouse by now.lol.
- It isn't my fault. I read about how the extended family might not believe your child has Autism and thought "Wow, thats bad" Well, when it happened to us, my parents and siblings were very unsupportive. They believed the "spoiled and temper" theory over the diagnosed professional one.
- To get over being embarrassed. During Shrek 2, when the evil fairy godmother died, everybody cheered except Jon..he burst out crying, really loud. I remember sh-ing him to no avail. Oh heck, it has become one of our funniest Jon stories to date! And we still go to movies every chance we get.
- Most importantly, I have learned to not feel bad or sorry that Jon is "missing" out on parties and sleepovers, going to a normal school etc...because basically he is happy, to him he doesn't know any different, to him, he is missing nothing. I cannot be selfish and want for him. And to me, it's his happiness that matters most.
- I have been asked as I'm sure most parents have been "Do you want your child cured?" or "Do you wish he/she was normal?" My ex-husband would answer "yes" to those questions. He has never accepted Jon and his autism. For me, Jon is Jon with autism. I cannot imagine any different. And I wouldn't want him any other way.
Books on Autism
Blog Posts from Google
Autism Blogs
Connect with others through blogs
- Police: Autistic Teen Bullied, Hit On School Bus
- Three teenage boys in Brevard County are accused of beating a classmate with autism, said police. Joeleon Abel, Ty'Juan English and Deon Glispy were arrested after deputies were told about the bullying on Friday morning. Investigators said Abel and ...
- Autism affects motor skills, study indicates
- Researchers from Washington University School of Medicine in St. Louis used activities such as this to measure motor skills in children with autism?. Children with autism often have problems developing motor skills, such as running, throwing a ball or ...
- GOP Legislative Leaders Find Compromise on Autism Issue
- A perfect example arose Tuesday, when House GOP leaders unveiled their ?Utah solution? to a very emotional and difficult issue: Autism, and insurance coverage for the challenged kids who have it and families who deal with it. Early in the day, ...
- Fortugno: Don't panic about autism changes
- OpEd Newsday > Opinion > OpEd Fortugno: Don't panic about autism changes Originally published: February 10, 2012 6:45 PM Updated: February 13, 2012 12:01 AM By DOMINICK A. FORTUGNO Dominick A. Fortugno is director of the School Psychology Program at ...
Autism Awareness
Latest stats show that every 1 in 150 children fall into the autism spectrum.
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See what Autism is About
Celebrate Autism
Become part of the cure-spread the awareness of Autism.
curated content from YouTube
Halloween Costumes Jonathan would love!
Places about Autism
Visit the following links to learn more and connect with others sharing the Autism experience.
- Autism Society of America
- ASA, the nation's leading grassroots autism organization, exists to improve the lives of all affected by autism.
- National Institute of Neurological Disorders and Stroke (NINDS)
- National Institute of Neurological Disorders and Stroke's Autism Fact Sheet
- Autism Speaks
- At Autism Speaks, our goal is to change the future for all who struggle with autism spectrum disorders.
- Autism Research Institute
- For more than 40 years, the Autism Research Institute (ARI) has devoted its work to conducting research. We provide research-based information on Autism to parents and professional
- Autism Today, latest news and resources and books - Autism Conferences in the US and Canada
- Trusted resources for Autism and Aspergers related issues.
- Overview - Autism, DD, NCBDDD, CDC
- Information on autism. Provided by the U.S. Centers for Disease Control & Prevention.
- National Autism Association is here to offer information and support to everyone affected by Autism Spectrum Disorders. Autism informational education and advocacy.
- National Autism Association advocates, educates, and empowers those affected by autism spectrum disorders.
- Auties.org - Autism Employment: Home
- Auties.org is for people on the Autistic Spectrum who are ready to dare reach out, open the doors to the community and market their abilities directly to the public..
- AUTCOM - The Autism National Committee
- Dedicated to Social Justice for all Citizens with Autism
- Division TEACCH - Treatment and Education of Autistic and related Communication handicapped CHildren - UNC-CH
- Division TEACCH (Treatment and Education of Autistic and related Communication-handicapped CHildren) as a part of the Department of Psychiatry in the School of Medicine at the University of North Carolina at Chapel Hill, provides services to individuals of all ages with autism spectrum disorders.
- Asperger and Autism Information by MAAP Services, Inc. - The Autism Source - A Global Information and Support Network
- A nonprofit organization dedicated to providing information and advice to families of persons with Asperger's Syndrome, High-Functioning Autism and Pervasive Developmental Disorder (PDD)
- ASD Friendly Autism and Asperger's Syndrome Parents' and Carers' Support Group
- ASD Friendly is a UK web based community of parents helping parents of ASD kids.
- Center for Autism and Related Disabilities
- The Center for Autism and Related Disabilities at the University at Albany (CARD - Albany) is a university - affiliated resource center that brings research and practice together in community settings.
- Organization for Autism Research
- Putting research to work providing answers to questions for those confronted directly and indirectly by autism
- ABC News: ABC News OnCall+ Autism
- ABC News Medical Editor Dr. Tim Johnson welcomes you to the OnCall+ Autism Center with easy-to-use advice from dozens of expert doctors on autism spectrum disorders.
Please share your thoughts here
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chinchanchan
May 5, 2011 @ 3:17 am | delete
- Autism spectrum disorders (ASD) often can be reliably detected by age 3. In some cases even earlier than that. Recent studies suggest that kids may eventually be accurately diagnosed by the age of 1 year or even younger. One thing for certain is that if your child shows any of the early warning signs of autism then they should be evaluated by a professional who specializes in autism disorders. Visit my site to learn more about autism signs and symptoms
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alisha66
Jan 31, 2011 @ 10:54 pm | delete
- Autistic disorder is also known as autism. It is a neurological disorder that causes disability. Autism affects the brain, causing difficulties in communication and social interaction, unusual patterns of behavior, activities and interests. It is a spectrum of psychological conditions
characterized by widespread abnormalities of the social interactions and communication.
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speciallyforu57
Oct 3, 2010 @ 9:29 am | delete
- College Living for Students with Learning Disabilities, Executive functioning Deficits, Autism Spectrum Disorders (including Autism, Aspergers, and PDD-NOS)
For students with special needs, life after high school is full of possibilities, including college.
Finding the right college program for students with autism spectrum disorders, Asperger's, nonverbal learning disorder, ADD/ADHD and other learning disabilities is vital for a college student's transition into independent adulthood. The right program should provide support for each student's unique needs and goals.
With the help of New Directions, young adults with learning disabilities are experiencing independence for the first time in their lives. Some of our clients pursue collegiate endeavors and some pursue vocational training/tracks. New Directions helps students attend universities, community colleges, and technical and vocational schools.
For more information, go to http://www.newdirectionsfya.com/ or call 954-571-5102 to contact Dr. Drew Rubin, Ph.D.
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Kylyssa
Sep 10, 2010 @ 1:58 pm | delete
- Your poll module is missing an option and that option is "I have autism" - one in 150 adults and teens also have autism so it's likely you'll get more than a few who read your page. I'm a semi-verbal adult with what the psychologist referred to as high-functioning autism or low-functioning Asperger's. I can fake normal interactions in a business setting or in ones which fit to a known script but my real interactions usually only happen with the written word. Using scripts on how to act and react in common situations allows me to interact on a shallow level (the level humans need to survive in a work environment) in a manner nearly indistinguishable from normal.
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WeddingZazzle
Apr 13, 2010 @ 12:00 am | delete
- Nicely done with lots of great information and links. Thank you for sharing your personal story. Blessed by a Squid Angel :)
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Links for Various Autism Therapies
I cannot comment on any of the therapies listed below as I haven't used any but the PECS system for communciation. Become informed helps to empower you as a parent.
- Learn and Grow: Understanding RDI with Connections Center
- We have learned not only to teach the sophisticated skills which make a real difference, but have developed powerful tools to help parents teach these skills to their children
- CCBS: Applied Behavior Analysis (ABA) for Autism treatment and Early Behavioral Intervention
- Autism and ABA
Welcome to the Autism Section of the Cambridge Center for Behavioral Studies! John Jacobson, Ph.D. was a tireless advocate for the ABA approach to autism treatment, and we are proud to say he was a member of the Cambridge Center's Autism Advisory - www.gfcfdiet.com
- The Official GFCF Diet Support Group FREE Informative Website
- SPD Foundation
- The SPD Foundation focuses on research, education, and advocacy related to Sensory Processing Disorder (SPD), a complex disorder of the brain.
- Research Autism
- Charity which provides free, impartial and scientifically accurate information about treatments and therapies for people with autism spectrum disorders.
- Pyramid Educational Consultants
- Exclusive home of PECS (Picture Exchange Communication System) and the Pyramid Approach to Education. Internationally acclaimed workshops and consulting services to the Autism community.
- The Gray Center
- We approach the social impairment in ASD as a shared impairment. We work to improve social understanding on both sides of the social equation,helping individuals with ASD to communicate and interact more successfully with the people with whom they live and work
by funcoolcollectibles
funcoolcollectibles
I have 3 wonderful children. Life has been anything but typical for us. My one son has Autism and my daughter has kidney disease. I'v raised them pretty... more »
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