Don't support AUTISM SPEAKS: Let Autistics Speak for Themselves!
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Why Autism Speaks is No Good for Autistics
Don't support AUTISM SPEAKS: Let Autistics Speak for Themselves!
Okay, so you want to donate to Autistic Charities. Good for you!
Autism Speaks isn't one of them.
I could just tell you about how every single Autistic individual I have ever spoken to seems to hate the "charity" with a passion. But if you want proof...
Much of their "education" on Autism is deliberately demonizing Autism / Asperger's Syndrome, which as you can imagine is the last thing ANYONE Autistic actually needs. Their most famous video, Autism Every Day, even features a mother who admits in front of her autistic daughter that she had contemplated carrying out a murder-suicide because of her child's Autism.
(Ironically, only a few days after the video's release, one mother did just that to her own daughter. Check out "Karen McCarron" below.)
There are no Autistic members in any controlling position of Autism Speaks, only parents and other related family members. As you can imagine, the divide between "Being Autistic" and "Putting Up with someone else's Autism" is a BIG difference, given how social slights and other communication issues are part and parcel of Autistic behavior, even though it doesn't have to be. As a result, with such lopsided representation, they can hardly presume to speak "for" Autism in any sense.
There exists a very vocal contingent of Autistics online who are appalled with Autism Speaks right down to the choice of logo (They don't appreciate being called "Puzzles", to be honest.) In fact, even MENTIONING Autism Speaks will spark flame wars in Autistic Communities, backed up by plenty of evidence from shunning at Autism fundraisers and conventions to the sheer lack of support they provide current Autistics in favor of long-term "research" that allows them to splurge on PR stunts and lavish corporate expenditures without having to show any proof of the progress they're making with all that money, while true Autistic Charities are choked for funds because it all goes to Autism Speaks.
Fortunately, there ARE alternative charities which would have a far better impact. The Autistic Self-Advocacy Network is the best I can recommend to you. Please consider them as your charity to support instead of "Autism Speaks".
I assure you, Autistics prefer to speak for themselves.
What do you Think?
(Relax, you don't need an account to voice an opinion! Just type it into the box and let it fly!)
Fetching blurbs now... please stand byAutism Speaks is Evil! Autistics are People too!
snaphead says:
Hey guys. You can talk more about this at :
http://www.dailyargue.com/argument/Dont_support_AUTISM_SPEAKS_Let_Autistics_Speak_for_Themselves-10.html
Registration is not required..
Posted May 30, 2009
diane says:
we just participated in a walk to benefit Autism Speaks due to their commitment to research in the field. It pains me to know that there is characterization of them as evil. This implies an intent to do damage when possibly the intent is to inform. Maybe it is the brutal truth that can be frightening. i don't know but I do plan to do more research before I walk again.
Posted April 11, 2009
annalaurabrown says:
As a PDD individual and someone who has worked for a library who supports autistics. I have no personal experience with them but I heard quite a bit of negative things about them.
Posted March 10, 2009
Josh G says:
I'm a 14 year old with Asperger's and I am proud of who I am.
I am making a site to protest against Autism Speaks and if they try to take it down I will fight them.
The worst thing they can do is write DMCA takedown notice to the host and if they do, I'll contact the host and tell them that there is no copyright infringement on my site and they are welcome to check.
If the site does get taken down, I'll set a new one up with another host.
THEY CANNOT SILENCE ME! IF MORE PEOPLE DO WHAT I'M DOING, AUTISM SPEAKS WILL BE SCREWED!
Just look at what Anonymous is doing to Scientology! If enough of us help out, we will have the same effect on Autism Speaks!
Posted March 07, 2009
Anonymous says:
I think that people need to be aware of Autism but it is not a burden, people with Autism are just that, people. People think that just because they have Autism they are a burden and it is so horrible for parents to take care of them but the truth is that people with Autism can bring the most joy in the world, it's just that people need to be aware that Autism is out there and that the kids are not merely brats (they aren't brats at all). People with Autism are amazing in their own way.
Posted February 10, 2009
Gorbek says:
I think autism speakes is really going the wrong way with this, when was the last time normal person achieved anything otherthan "lol i ran, or swam, or climbed or just kicked a ball into a net alot and became famous" einstien, dyslexic,(sorry i dont know how to spell it)bill gates autistic and theres a whole other list out there of people i dont really know.
Posted December 19, 2008
EelKat says:
As an Aspergers, I can tell you outright that I really hate it when people start sticking pills at me and telling me if I would take them I'd be normal. You know what? I have no problem with who I am, I do not see any reason why I should change. I am different, yes. I know that, and have never denied it. I just want people to stop telling my to *be normal* or how nice it would be if I would *seek medical help*. I'd just like the whole pack of them to leave me alone... I don't need a bunch of Hitlers in my life telling me how to act, how to talk (which I don't and that pisses most people off), or anything else.
I esp don't like people who walk up to you and say: "Why don't you answer me? What are you retarded?" I really, really, REALLY hate that.
I'm afraid I can't really comment on Autism Speaks, because I'm not familiar with any of the autism orgs. I don't like to get involved in groups and such, because that means being around people and being out in public, both of which means there will be folks pestering me to talk and that'll lead to teasing, and I really don't want to deal with rude, cruel mouth, mean people anymore so I rarely leave the house anymore. People preach kindness and understanding and acceptance, but you'd be surprised how very few actually practice what they preach when they are forced to come face to face with someone like me.
Posted September 28, 2008
Anonymous says:
People wishing to hear a 13 year old boy's opinion of Autism Speaks only need listen to the podcast entitled "Special Feature Interview with Douglas Giesel and An Update Interview with Lewis Schofield"
The podcast is issued by Midnight In Chicago at www.mic.mypodcast.com
The boy has Asperger Syndrome and does mot believe Autism Speaks ought to speak for anyone. His comments come near the end of the podcast, but they are worth listening to and spreading.
Tell all whom you know about this podcast so that they know how negatively Autism Speaks affects people with autism.
Posted August 06, 2008
ivanova says:
i think that autismspeaks sucks and i am not supporting them. if poeple went to be different then ther should be nothing wrong with it. i have autistic friends and i think they are awsome and i support them. i to have asparger traits and i am tired of poeple trying to change me.
Posted July 24, 2008
Sharon says:
Well, what organization, oversight agency or fiscal accountability does Autism Speaks have to answer too?
Perhaps it might be effective to begin a concerted effort/protest in the state legislature where Autism Speaks resides!
If enough pressure were put on their state legislators to follow the money trail, as well as gaining PR interest in the local/regional/state press, perhaps something might blow up.
I enclose a link to a recent PR press release from Autism Speaks in which they present themselves as the 'largest autism advocacy group in the world'.
Where are they getting their numbers from...they used to send tons of unsolicited mail to my e-box...does that mean that they were counting all of those who didn't agree or request their solicitation? That's called slamming and somebody out there ought to catch them for that too.
Here's the link-
http://www.eurekalert.org/pub_releases/2008-05/as-asa050908.php
Sharon (aspie, wife of aspie, mom of aspie kids...wow are we ever a creative bunch!)
Posted July 14, 2008
Autie-Mom E says:
I remember visiting the website shortly after my daughter was dx'd. I remember one video in particular, the one of the mother who said she thought of driving off a bridge with her Autistic daughter. It was her "normal" daughter who prevented her from doing so. I remember thinking...what exactly are they trying to promote here?
Posted July 13, 2008
The_Homeopath says:
Having treated clients with Asperger's spectrum, I have never once heard a parent refer to their children as a burden.
Posted July 08, 2008
pahsophist says:
I think this is right in line with Autism Speaks' past behavior. But I hope that Zazzle verifies it was indeed AS that "requested" the shirt removal.
If what gadfly wrote is true, and AS is saying they never contacted Zazzle (and if they actually did), they're already trying to cover their tracks.
Zach needs to get a hardcopy of the original letter/email from Autism Speaks to Zazzle before it's destroyed.
Posted June 23, 2008
Jude says:
Looks like they found the cure right? Autism doesnt exist past the age of 18! People like me, at the age of 23, no longer need treatment because we are no longer children! How clever! [/sarcasm]
Posted June 22, 2008
Amanda says:
Steve, no one is demonizing parents. Of course it must be hard to have an autistic kid, especially when the kid is very low-functioning and doesn't communicate. But Autism Speaks encourages parents of autistic kids to think of their kids as having been stolen! That doesn't encourage the parent to start loving the kid for who he or she is.
Posted June 20, 2008
(another) Kate says:
Autism Speaks' main reason for existance is to justify the shame parents have for their "broken" children. The parents want an excuse for why their babies are "retards" instead of the "normal" kids they were expecting. They can't handle the idea that this "broken" child is "broken" because of the parents' genes - so its, uh, vaccines' fault! Yeah!
Is everything I said a generalization. Yes. But its not any worse than the inaccurate, offensive garbage that organization spews forth everyday.
Posted June 18, 2008
Kate says:
Autism is not a tragedy, although it is usually a surprise. The tragedy lies in the reactions of some parents who get so upset that they didn't get the child they wanted or expected. Then it's all about their pain, their grief, and rarely is it about learning about the very real child that they actually have. Somehow the child gets left behind in all the wailing and gnashing of teeth.
And Autism Speaks only makes it worse. Don't give them anything!
Posted June 17, 2008
Think of the Children Parents! Those poor, pathetic Parents!
spirituality says:
I don't know the organisation 'autism speaks' well enough to know whether they are evil. The parents should get support in dealing with autistic children (and adults) - and wining may to some extent be part of THEIR healing process. After all - even if you love your kid, you would not have wanted it to turn out autistic.
It does sound like funding should be directed more to actual help than to research on featuses.
BTW: the non-verbal autistics ARE actually the majority. The smart asperger type is a minority amongst autistic people. Not saying they don't need help, just that - they don't represent autism.
Posted August 10, 2008
Steve says:
Demonizing parents is just as stupid as demonizing autistic people. Both of them suffer tremendously, and one side's suffering isn't less valid than the other's.
Posted June 20, 2008
Five Things Autism Speaks Must Do Before I'll Support Them
(Like that'll ever happen.)
- Stop referring to Autism as a "horrible burden". Okay, we get it, you're mostly made up of pissed-off parents. Stop giving 'em what they want to hear and start telling them "Okay, so your kids are Autistic. Are you going to help them become all they can be regardless of whatever difficulties they have, or are you going to sit here and whine about it?"
- Drop the 'Cure or Nothing' Attitude. Among Autistics, there is a special name for this -- a curebie -- that is basically a slur against folk who think that you can magically "remove" the Autism and find a healthy, normal person underneath. It doesn't work that way. The autism spectrum is a behavorial and sensory amalgamation of traits and quirks, and to remove those and replace them with "Non-Autistic" traits and quirks just isn't going to happen. And even if it could, it would basically be brainwashing on the most horrific scale you could think of.
- Recognize that Autistics who are articulate, verbal, and intelligent need help too. Autism Speaks defines a very narrow band of autism; namely, the one where a child seems to have been replaced by a "little demon" who can't speak, can't function, and is doomed to life sweeping floors for a living. Yes, there is a name for the smart, savvy kind of Autistic; it's called Asperger's Syndrome. That doesn't mean they have it any easier, and it certainly doesn't mean they're the 'cured' kind of Autistic.
- Start supporting Autistics that need the funding. In today's health care crisis, Autism is not funded by any major insurance companies. All treatments at this point are untested, unfounded, and costing hundreds of thousands of dollars to provide one-on-one learning, personal assistants, equipment that can stand up to abuse, not to mention whatever various medications these parents are testing out. If the money Autism Speaks spent on research and dissecting dead brain tissue -- to try and find a neonatal test they could apply in order to "filter out" Autistic fetuses -- were spent cushioning the costs of all these treatments and expenses, families would be a whole lot better off for it.
- Quit threatening lawsuits against everyone who so much uses the name "Autism Speaks" to criticize you! Okay, really now: threatening legal action against Autistic people who you KNOW aren't as socially (let alone legally) savvy enough to stand up to you otherwise? What's up with that? The only other group I know of that reacts even close to the same way when their name is brought up is the Church of Scientology. Now who wants to be associated with a money-grubbing, closely-guarded organization who refuses to listen to Psychiatrists and allows Autistics to rot on the vine without any treatment? ... Wait, which group was I talking about again?
Think Vaccines Cause Autism?
Think Again! MMR Doctor fudges results to fake link between vaccines and autism!
Twitters about Autism Speaks
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- dkmnow
- @Jail4Bail Save your evasions. Autism Speaks & their deceptive interpretation of statistics do not interest me. THEY. DON'T. SPEAK. FOR. US.
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- mccannjl
- Not Born to Run Fourth of July: The Day in Pictures: Fourth of July, Part Un. The annual Autism Speaks Fourth of July 5k, ..
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- autismfamily
- @BrownieOR I have been on twitter one yr now and want to move past Autism Speaks discussions, I am not alone in not liking the org, thanks
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- linnefaulk
- RT @autismfamily my kids on the autism spectrum - living with autism is my main interest, do not push Autism Speaks on me or ask me about...
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- autismfamily
- my kids are teens on the autism spectrum - living with autism is my main interest, do not push Autism Speaks on me or ask me about them
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- autismfamily
- glad I have not been around to see all the buzz about Autism Speaks and their working hard to find a cure or cause - they DONT speak for us
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- living_autism
- RT @Confutata: Eric London resigns from Autism Speaks over vaccine agenda - http://shar.es/52UJ ~~Hmm, this is not good, what a waste.~~
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- jefflindsay
- RT @autismsaas Autism safety program by Autism Speaks http://bit.ly/2o77FS Safety of autistic children not always considered well in advance
Check Out the Aspergers LJ Community!
Fetching RSS feed... please stand byProof Autism Speaks is No Good
If you agree, add links (proof!) that help me make my case
Got more proof? Wrote a big blog article about why you don't like Autism Speaks? Add it!
Think a certain link is better than the others? Vote it up!
Karen McCarron - Did she Kill her Autistic Daughter thanks to Autism Speaks?
The wikipedia article about the woman who killed h more...0 points
No Autistics Allowed
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The Real Voices of Autism
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Why Autistics hate Autism Speaks
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Everything About Autism Speaks
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Autism Speaks ads on Livejournal
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Autism Speaks - Autism Politics, Activism, and Media Representation
Wrong Planet - Aspergers and Autism Community0 points
AspieWeb Being Bullied By Autism Speaks | AspieWeb.net
I just received a legal notice from the big bad b more...0 points
NOT Autism Speaks
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Today's Autism-Related Article from Wikipedia
Asperger syndrome is an autism spectrum disorder (ASD), and people with it therefore show significant difficulties in social interaction, along with stereotypies and other restricted and repetitive patterns of behavior and interests. It differs from other ASDs by its relative preservation of linguistic and cognitive development. Although not required for diagnosis, physical clumsiness and atypical use of language are frequently reported.
Asperger syndrome (AS) is also called 'Aspergers syndrome, Asperger (or Asperger's) disorder, or just Asperger's'''. It is named after the Austrian pediatrician Hans Asperger who, in 1944, described children in his practice who lacked nonverbal communication skills, demonstrated limited empathy with their peers, and were physically clumsy. Fifty years later, AS was standardized as a diagnosis, but questions about many aspects remain. For example, there is lingering doubt about the distinction between AS and high-functioning autism (HFA); partly because of this, the prevalence of AS is not firmly established. The exact cause is unknown, although research supports the likelihood of a genetic basis; brain imaging techniques have not identified a clear common pathology.
There is no single treatment for Asperger syndrome, and the effectiveness of particular interventions is supported by only limited data. Intervention is aimed at improving symptoms and function. The mainstay of management is behavioral therapy, focusing on specific deficits to address poor communication skills, obsessive or repetitive routines, and physical clumsiness. Most individuals with AS improve over time, but difficulties with communication, social adjustment and independent living continue into adulthood. Some researchers and people with AS have advocated a shift in attitudes toward the view that AS is a difference, rather than a disability that must be treated or cured.
Proof Autism Speaks is . . . Mostly Harmless?
Disagree? Put your money where your mouth is and show us why.
Post links that point out why you think I'm wrong.
Autism Speaks announces multinational initiative
Autism Speaks, the world's largest autism advocacy more...0 points
Outraged?
Sign the
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Books on Autism from Amazon!
What People are Saying About Autism Speaks Right Now
- AGE OF AUTISM: Autism Speaks: Call Speaker Pelosi to End Autism ...
- Managing Editor's Note: Click HERE to see the new TV ad campaign from Autism Speaks calling for an end to insurance discrimination for autism. Below is an action alert from AS asking you to please call and email Speaker Pelosi...
- Autism Speaks Launches TV Ad Campaign Calling On Congress To End ...
- Autism Speaks, the nation's largest autism science and advocacy organization, today launched a new national television advertising campaign highlighting private insurers' blatant discrimination against children with autism and calling ...
- Autism Blog - Eric London resigns from Autism Speaks « Left Brain ...
- Dr. Eric London has resigned from Autism Speaks. I read his resignation letter a while back, but I held off blogging it until I could confirm it was legitimate. This letter is taken from the Autism Science Foundation blog. ...
- Disability News | PatriciaEBauer.com » News Archive » Autism ...
- Dr. Eric London resigned this week from his post on the scientific affairs committee at Autism Speaks, citing ethical differences over the advocacy organization's stance on the autism and vaccine debate. London was a co-founder of the ...
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WeddingZazzle wrote...
Thanks for the info. Would love for you to review our Autism-101 lense at Autism 101
spirituality wrote...
Great way to introduce the topic. I used to teach in a school for special education - there were kids with autism there too.
You might like these lenses:
Books about Autism
Sensory Processing (aka Sensory Integration) explained: with tips on how to help your child.
Information about sensory processing and tips for parents.
Anonymous wrote
Spread the link to this podcast everywhere you can, folks:
"Special Feature Interview with Douglas Giesel and An Update Interview with Lewis Schofield"
can be found at www.mic.mypodcast.com
At the end of it, a 13 year old boy with Asperger's Syndrome explains why it is Autism Speaks is NOT an organization to be supported.
Wow. Who wrote all this stuff?
Lensmaster JigsawForte, aka Rachel Keslensky, has been a member since March 9 2008, has rated 22 lenses, favorited 37, and has created 72 lenses from scratch. This member's top-ranked page is "The Best Furry Comics Ever!". See all my lenses
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