When You've Been Told You Have a Blighted Ovum
Six years ago, when facing my own diagnosis, there was virtually no information on misdiagnosed miscarriages online. In fact, women on miscarriage sites told me, kindly, to just have the D&C and move on. Thankfully, I did not listen and my daughter is here today.
You may or may not have that happy ending. Unfortunately, time is the only true test of a blighted ovum. I'd like to share some of what I've learned so that you can make an informed decision on how and when to end your pregnancy or whether it needs to be ended at all.
I believe every woman deserves to have no doubt before having her pregnancy ended.
I am not a medical professional. The information I share is meant to supplement the information given you by your doctor. If you feel your doctor is not doing enough for you or not willing to listen to your concerns, I strongly encourage you to take what you've learned here and get a second opinion.
On This Page
What Is A Blighted Ovum
Let's start with the basics
Your doctor may also refer to this as an anembryonic or empty sac pregnancy.
Important Note: if you are able to see a yolk sac during the ultrasound, you do not have a blighted ovum. A baby is needed for the yolk sac to appear. That does not mean this will not end in miscarriage. It just means you do not have a blighted ovum.
If you would like to learn more about blighted ova, you may find my Frequently Asked Questions about Blighted Ova page useful.
Since many of the questions have been covered on that last page, I'd like to move on to how a blighted ovum is diagnosed.
How A Blighted Ovum Is Diagnosed
unfortunately, many doctors make the diagnosis too early
In a nutshell, a physician will often diagnose a blighted ovum when nothing is seen in the gestational sac. We've had some women tell us they've been diagnosed as early as five weeks.
According to the Encyclopedia of Medical Imaging, the criteria for a diagnosis of blighted ovum are:
1) failure to identify an embryo in a gestational sac measuring at least 20 mm via transabdominal ultrasound.
2) Failure to identify an embryo in a gestational sac measuring approximately 18mm or more via transvaginal ultrasound.
3) Failure to identify a yolk sac in a gestational sac measuring 13mm or more.
This is the criteria many doctors use when making the diagnosis of blighted ovum. Fortunately, due to the many Misdiagnosed Miscarriage Stories we are collecting on the Misdiagnosed Miscarriage site, we know that there is still a lot of hope even when these "benchmarks" are not met.
How To Know This Is Truly A Blighted Ovum
only time will tell.
Unfortunately, the only true test of a blighted ovum is time. If you've been told a baby is always seen by seven or eight weeks, you've been misinformed. Many women find their babies after eight weeks and, often, with gestational sacs measuring bigger than the 20mm given in ultrasound literature.Important Note The vast majority of women who find their babies after eight weeks have a tilted uterus although some women who have an anteverted uterus (normal position), have found their babies later as well.
First things first, if you are being diagnosed with a blighted ovum before nine weeks, it really is too early to know with certainty this is indeed a blighted ovum. If you have a tilted uterus, and you need to ask because most women do not know until they ask, you really should wait to verify the diagnosis.
After nine weeks, some women have reported finding their babies. Although most women see their babies by nine weeks, some women have been even further along. We don't know the explanation behind why it takes so long to view babies sometimes but it does every great once in awhile.
Also, do not be worried if you are told you look one to two weeks behind. Many women with a tilted uterus will look one to two weeks behind even if they are certain of their conception date. In fact, many women are misdiagnosed after IVF for this very reason. We've seen time and again, that once these women hit the second trimester and their uterus is no longer retroverted, their dates look right on again.
So, how do you know when to end the pregnancy? If you would rather have a D&C or medical miscarriage than a natural miscarriage, that is your right. Many doctors still encourage a natural miscarriage up to ten weeks. After ten weeks, even if you decide to have a natural miscarriage, you are more likely to need a D&C due to complications.
Keeping in mind that hCG levels start to really slow, plateau and even decline after seven or eight weeks, hCG monitoring is not really a good way to determine this is a blighted ovum. However, that said, if you are monitoring them and they are dropping a lot, then you know your body is probably preparing for miscarriage.
Bleeding is also not a very reliable sign of a blighted ovum. Up to 1 in 3 women will spot or bleed during their pregnancies.
If you get to ten weeks or so and are certain of your conception date and there is still no baby found on the ultrasound (done by a trained technician), you can be reasonable certain this is a blighted ovum. Some women have found their babies later and while they are the exception rather than the rule, this may be something you want to consider.
What it boils down to is that you do not need to be pressured into a D&C too early. You can wait out a diagnosis. If you discuss the signs of infection with your physician and stay monitored, you can choose to wait. Some women only wait a week or so and others end up waiting four or more weeks. The waiting really is a miserable time but, unfortunately, it is the only way to know what is really happening.
What Can I Do After Being Diagnosed?
If you still have hope this might be a viable pregnancy, there are a few things you can do to be certain:Ask to have your hCG levels monitored As stated before, hCG levels are not reliable after seven or so weeks because they do slow down a lot and even begin plateauing. However, if your levels are really low or if you see that your numbers are dropping a lot then you know that this may likely end in miscarriage. I've talked to women whose numbers began plateauing at 40,000 with no baby seen. They turned down their D&Cs and continued on with a viable pregnancy. That does happen.
Make certain your ultrasounds are done by fully-trained ultrasound technicians Studies have come out showing that physicians tend to make mistakes when it comes to ultrasounds because they only have cursory training with the equipment. Also, because they may not use the equipment properly, if you are pregnant, your baby may be at risk from improper use. You can ask to have your ultrasounds done only by fully-trained technicians.
You can decline to have the D&C. According to the 'Journal of Family Practice' and other medical organizations, a woman can safely wait to miscarry naturally (or until she knows for sure there is absolutely no hope) if she:
1) does not have a fever
2) has stable vital signs
3) has no excessive pain
4) has no excessive bleeding
Also, if you are ten weeks or less, many doctors encourage waiting for a natural miscarriage
Get a second opinion If you feel pressured to end your pregnancy before you are certain this is truly going to end in miscarriage and there are no complications, get a second opinion. Some women have told me they've even gotten third of fourth opinions before finding their babies! Really, I think a second opinion is only necessary if your doctor does not want you to wait this out and there are no complications. As I stated before, time is the only true test of a blighted ovum and if a trained technician in the first office does not see your baby, chances are a trained technician in the second office will not see that baby until you are far enough along to have that baby seen. Having a physician, though, who will listen to your concerns and will not rush a D&C can be very helpful in getting through this time.
Find support. You are going to find that this may be one of the loneliest and most miserable times you will go through. Honestly, the waiting is awful and the only thing that helps is knowing you are not alone and that you have support. Find friends to help you through this time. You may also choose to find support online. Many women join the Misdiagnosed Miscarriage site because there are always women there going through this scare and women who have already been through it and are willing to provide support. Sometimes women are not comfortable posting and instead e-mail me ( bonzobean@gmail.com ) and I feel honored to be able to provide some support. Really, though, just having somebody who will listen and be supportive is the best way to get through this.
My Stories
and articles
My Own Misdiagnosed Blighted Ovum Story
- After turning down the D&C twice, we found my baby at nearly nine weeks!
My First Misdiagnosed Miscarriage
- During my first pregnancy, we believed I was miscarrying at 12 weeks
A collection of Misdiagnosed Miscarriage stories
Bleeding during the First Trimester
What your Doctor may not know about your pregnancy after IVF
Coping With A Miscarriage
Miscarriage News and Research
hCG levels and Pregnancy FAQ
When You've Been Diagnosed with a Miscarriage
Tilted Uterus and Early Pregnancy
16 Days Past Ovulation (DPO) and hCG levels
Blighted Ovum FAQ
Infant Survival Rates during Pregnancy
Progesterone and Miscarriage
Asherman's Syndrome: Why you may want to rethink your D&C
So You've Been Told You Have A Blighted Ovum
Non-Doubling hCG Levels in the First Trimester Do Not Mean Inevitable Miscarriage!
Can Stress Lead to Miscarriage?
The First Trimester: Enlarged Yolk Sac
Getting a Second Opinion about a Miscarriage Diagnosis
Why You May Want an Ultrasound Right Before Your D&C
Is This Really an Ectopic Pregnancy?
Comments?
Have I left anything out? Can you think of anything I can add to make this more useful? Do you just need somebody to listen? Please, leave a comment.
If I don't reply to you here, please feel free to e-mail me directly at bonzobean@gmail.com
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- Supermama Supermama Dec 2, 2009 @ 1:50 pm
- I was told I had a blighted ovum and that I should schedule a D & C. The transvaginal was done in the office by the doctor and he said that I could come back later in the week to check again but most likely that was what it was. Two days later I went back to have a "real" sonogram done by a tech with more high tech machine and long behold there was the yolk sac with the tiny baby and a little "blip" of a heartbeat. Thank god I got the real sonogram done. Beware that some of the older ultrasound machines don't pick up fine detail and if the person doing the ultrasound (even the doctor) doesn't know what they are doing you can have a misread. The details are so tiny early on you need proper machine to pick that up. Even when the tech did the ultrasound in one angle there was nothing and in another angle there was everything! Always make sure you have an official ultrasound done...............I'm so glad that I did!!
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- WENDY N WENDY N Oct 20, 2009 @ 2:48 pm | in reply to Wendy N
- If anybody has any advise please email me wn1127@hotmail.com
thanks for your website--i understand more what i've been told, but still terrified and super stressed.
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- Wendy N Wendy N Oct 20, 2009 @ 1:41 pm
- I had my 1st us on October 1st. According to the calculator I should have been around 9 weeks. They found the sac but said it was empty and said I would miscarry in 2 weeks. They never told me what it measured or did any other tests. I waited 2 weeks and went to another Dr for a second opinion. The Dr confirmed that I had a blighted ovum and said I would miscarry in another 2 weeks. The sac measured around 8 weeks. The only test they did was a urine test that showed that I was still pregnant. It has been a week since then and I still feel very pregnant. I have had no cramping or bleeding but just this weekend I started getting a brown discharge. My sister was 8 weeks when she started spotting with her 1st preg. When at hospital the dr said she had a blighted ovum and almost insisted on dc. She went back 10 days later and they found the baby. My mom was also told they could not find the baby with her 1st pregnancy and went on to have her. We all have a tilted uterus. ??
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- Melissa C. Melissa C. May 5, 2009 @ 5:33 pm
- I went to the doctor yesterday for my 8 week checkup (according to my last period on March 5) & an u/s was performed. The sac was empty. The doctor said I may have a blighted ovum. Blood was taken to check my hcg levels and I go back again tomorrow. I'm happy to have found this website, it gives me hope. With my second pregnancy I was diagnosed with twin blighted ovums and had a D&C. If I would have known what I know now I would have waited for nature to take its course. Thanks for your website.
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- sprete sprete Apr 23, 2009 @ 12:46 pm
- I've visited this lens before and the update looks great! 5* and featured... http://www.squidoo.com/squidu-threads
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I believe every woman deserves to have no doubt before having her pregnancy ended.
