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But You LOOK Good! A Guide to Understanding and Encouraging People Living with Chronic Illness and Pain

1 - I can do better 2 - Jury's out 3 - Pretty darn good 4 - Splendiferous 5 - Awesometastic (by 11 people)   Your rating: 1 - I can do better 2 - Jury's out 3 - Pretty darn good 4 - Splendiferous 5 - Awesometastic

Ranked #2863 in Health, #33481 overall

Rated G. (Control what you see)

Do Your Loved Ones Have a Hard Time Understanding Your Chronic Illness or Pain, Because to Them You LOOK Fine?

 

But You LOOK Good! is a 52 page booklet that gives those living with chronic illness and pain a voice about how they feel, what  they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest!

This booklet gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not "look" sick or in pain.

Moreover, it gives them simple, pragmatic ways to truly be an encouragement, "What to say," "What not to say" and "Why," along with "How to help."  Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!

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IDA is a 501(c)3 Non-Profit Organization

But You LOOK Good! 

A Guide to Understanding and Encouraging People Living with Chronic Illness and Pain.

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Proceeds from But You LOOK Good! go to IDA, a 501(c)3 Non-Profit Organization.

See What Others Had to Say about But You LOOK Good! 

Booklet is Helping People Express Their Thoughts and Feelings About Having a Chronic Condition

"I always wished I could find a booklet like this! The information on your site is great and since it's so hard to explain MS or other invisible disabilities to others, I am grateful to you for writing your booklet and making it available." - Brenda, Indiana

"Terrific insights and communicated clearly...my husband said it finally opened his eyes to what I had been trying to say all these years. Thanks." - Sue, New Jersey

"I just finished reading the [But You LOOK Good] booklet and although I found myself filling up with tears on almost each and every page, I enjoyed it immensely." - Bonnie, Rhode Island

"My husband read [the booklet] straight away and I actually got a cup of tea in bed this morning, what a treat!" - Kris, Australia

"This is the best book I have ever read in regard to invisible disabilities...I have had such a hard time explaining what I go through and how I feel. I cried and cried reading the book because it described me to a tee. I think you are a wonderful person for putting all of this in writing and making it understandable. Thank you so much." - Debbie, Virginia.

"I encouraged my mom to order your book, But You LOOK Good. She said it's helped her to better understand that [just] because I look ok on the outside, doesn't mean I feel ok on the inside. I am grateful for your site and your book, I don't think my mom would have ever understood without it. She's passed it along throughout the family and everyone who has read it so far has had a better understanding of what just daily life does to me. Thank you so much for writing this book, and sharing it with us, it truly has been a godsend to me." - Kelli, Illinois.

"You have said what I have wanted to say to so many people for so many years. I have suffered with Crohn's disease for 35 years. I have never been able to find anyone who could really understand what it's like to suffer with an illness that can affect every aspect of my life all the while, looking (for the most part) normal on the outside. Not that I have been searching for pity, just some understanding. My thanks goes out to you!" - Matt, Washington

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Links to Our Main Sites! 

The Invisible Disabilities Advocate
IDA creates a better understanding of living with chronic illness and pain with articles, books, links, support group and more!
But You LOOK Good!
But You LOOK Good! is a 52 page booklet that helps readers better understand how to better understand and encourage people living with a debilitating condition. It is full of practical ideas on "What to say," "What not to say" and "Why," along with "How to help."
The Cleaner Indoor Air Campaign
A Campaign to Help the Millions Who Report Multiple Chemical Sensitivity (MCS), Allergic, Asthmatic, Immunologic and Neurologic Reactions to Chemicals, Perfumes and Fragrances.

Our Featured Squidoo Lenses! 

Do You or Does Someone You Know Live with Chronic Illness or Pain? 

Tell Us Your Story

Home-healthcare

"But you LOOK good." How many times have we heard that! In the US, the average 75-year-old has 3 chronic diseases... but look at the dramatic increase in fibromyalgia and other "hidden," chronic diseases among the baby boomers! We are a hurting society. Thanks for a great lens.

Posted February 21, 2008

netventurer

What a great lens, and it certainly speaks to the issue. We work with brain injury, certainly an invisible disability. Check out our lens. Brain Injury Guide

Posted December 15, 2007

flicker

"But You LOOK Good!" looks like an interesting booklet. I have fibromyalgia and come across the same "you look good" attitude - and almost always by well-meaning people. If you'd like, come visit my lens on /www.squidoo.com/livingwithfibromyalgia/">fibromyalgia./

Posted October 25, 2007

jasmineann

Great 5 star lens! Going to lensroll this to my back pain lenses as I think it will help people there. Back pain is often invisible and not understod well. Thank you for this.

Posted October 22, 2007

DOUA

Many of our Disabled Online Users Association (DOUA) members have invisible illnesses. Thank you for sharing this information and for joining our non-profit group - DOUA.

Posted September 27, 2007

 
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Terms of Use 

The Invisible Disabilities Advocate is honored to be a source of information about chronic illness, pain, injuries and disabilities. Our comments are based on personal experience and opinion, therefore do not represent therapeutic recommendation, prescription nor advice. IDA and its affiliates are not to be held liable for information shared on this website. For legal, medical and professional advice, consult a professional physician or attorney. Any references or links to other groups, sites, products, etc. are not to be construed as an endorsement or recommendation by The Invisible Disabilities Advocate or any affiliates. We cannot be held responsible for the contents of any "off-site" information. The Invisible Disabilities Advocate, nor its affiliates, assume no liability whatsoever for the use or contents of any product or service mentioned.
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Invisible_Disabilities_Advocate

About Invisible_Disabilities_Advocate

Often the most difficult part of living with a disabling illness or injury is the lack of understanding the person encounters. Since most living with a chronic condition do not always "look" sick to us, we find ourselves struggling to believe their limitations are real. Even when our friend or family member tells us they are unable work, attend a gathering, shop, cook, clean, etc., we often disregard what they are saying, because we think they "look" fine! 


Let's face it, most people cannot comprehend what it is like to be sick or in pain for weeks, months or even years, because we are used to going to the doctor, taking some medication and soon feeling better. Consequently, unless we are educated about what life changes a chronic condition can bring, we may inadvertently treat our loved one as if they just need to "snap out of it" or "stop complaining." As a result, the only way to transform our well-meaning, but hurtful view is to understand that the illness can debilitate a person's body against their will.


 


Therefore, The Invisible Disabilities Advocate strives to explain that even though the symptoms from chronic illness, pain and injury may not always be obvious to us, these "invisible disabilities" are very real. IDA provides helpful links to sites and organizations of several diseases, disorders and conditions, as well as a support board. 


 


VISIT US AT www.MyIDA.org or www.InvisibleDisabilities.org


 


IDA is a 501(c)3 Non-Profit Organization

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