(by 1 person)
What do you do after cancer?
I can remember the day like it was yesterday. Almost ten years ago now, I took my oldest son to a routine check up with his pediatrician. I never imagined that my life would never be the same afterwards.
Medulloblastoma?????
What is that?
I was told after hours of MRI's, CT scans, and X-Rays that my little baby had a brain tumor about the size of a golf ball!! He had Medulloblastoma!! This is a word I will never forget in my life! Medulloblastoma is the most common malignant brain children of children ages 3-8 years old. It accountd for 15-20% of brain tumors in children! What comes next.......
I feel that the best way to help your child get through this terrible ordeal is to be open and supportive about everything. My son was comforted by all of the explanations. I would let him know what test were going to be done and why...what the medicines were that he was given.... I know that he was to young to actually know what they were but it made him feel better and that was the most important thing at the time!
Remember, they are still children!!
Sometimes you can lose view of the fact that they are still children and just because they have cancer does not mean they are made from glass!! Yes, activities might have to be altered some now but making them feel as normal as possible is sooo important, especially now! They need to be able to play with other kids, laugh, draw, and just interact with others their age. They need to be told that you love them and hug them as much as possible! These children are going through a terrible ordeal but this should not be the focus...remember, these children have cancer, cancer does not have them!!
Childhood cancer is more common than you may think!
Childhood Cancer Awareness
We are a group of parents from across the country with children afflicted by cancer. Our hope is to spread childhood cancer awareness and to restore funding for childhood cancer research.
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Here is some others who have something to say about childhood cancer!
- Adult Survivors Of Childhood Cancer Have Lower Bone Mineral Density
- Men who survived childhood leukemia treatment into adulthood were more likely to have low bone mineral density than other adults their age, putting them at risk of osteoporosis and bone fractures, according to a new study. Article.
- Spread the word: Let’s cure childhood cancer. « Soup Is Not A ...
- Spread the word: Let's cure childhood cancer. Posted on December 2, 2008 by soupisnotafingerfood. Hey everyone - I'm posting a Very Special Message to you from my Soup Husband, Curt. Please see and respond to action items below! ...
- Dad's Diary - a journey through childhood cancer: Happy Child, Mad ...
- With just the donations made on Sydney's tree we can get one child on trial through the NANT that would otherwise not be able to. That means another child can receive cutting edge MIBG treatment, IV Fenretinide, UltraTrace, ...
- Cancer Research UK : Children with cancer 'failed' by system
- The charity, which cares for young children with cancer, surveyed children with cancer and their families to mark the start of Childhood Cancer Awareness Month. Researchers found that nearly half of families felt they did not get the ...
How can you help?
- make-a-wish foundation
- Make-A-Wish foundation grants wishes for terminally ill children! There are many ways you can help through them. Not only can you volunteer your time, you can donate money, frequent flier miles or even just give gifts! This is a great way to get involved in the help of these unfortunate children.
- ronald mc donald house
- Ronald Mc Donald house offers a comfortable place for the family of an ill child to relax, take a shower, eat or just take a break without having to go far from your hospital ridden child. Through Ronald Mc Donald charities you can help by volunteering your time or by donating to the charitie fund, either individually or corporately.
Helpful websites to get more information on childhood cancer!
- young people with cancer
- This site has what is called a handbook for parents...it has helpful tips, resources, answers to common questions about childhood cancers, and much much more!
Here are some helpful books in Amazon about childhood cancer!
Living With Childhood Cancer : A Practical Guide to Help Families Cope
Amazon Price: $13.57 (as of 12/05/2008) 
List Price: $19.95
Childhood Cancer Survivors: A Practical Guide to Your Future (Childhood Cancer Guides)
Amazon Price: $20.40 (as of 12/05/2008)
List Price: $27.95
Lauren's Story An Inspirational Cancer Journey
Amazon Price: $17.95 (as of 12/05/2008)
List Price: $17.95
Helpful reading material on childhood Medulloblastoma!
The Official Parent's Sourcebook on Childhood Medulloblastoma: A Revised and Updated Directory for the Internet Age
Amazon Price: $28.95 (as of 12/05/2008)
Medulloblastomas in Children: New Concepts in Tumor Biology, Diagnosis and Treatment (Monographs in Pediatric Hematology/Oncology)
Amazon Price: (as of 12/05/2008)
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papawu wrote...
I would have liked to have read a little more about your son , but I applaud you for your support.I have lensrolled this lens to my CANCER IS A PUNK lens.
Posted October 05, 2008
