Care Notebooks

Ranked #1,782 in Parenting & Kids, #54,638 overall

Care Notebooks helped me to be a better advocate

Parents who have children with special needs know first-hand the amount of paperwork that can be acquired in a short period of time. There are doctor reports. Years of IEPs. Contact numbers for specialists. The list goes on and on.

It can be overwhelming to say the least.

One way to be more organized, and feel more in control, is to set up a care notebook for your child. The Care Notebook is a simple tool to help parents organize and keep track of information related to their child. The notebook can then be taken with you to to appointments and shared with health care professionals, or school personnel.

What Is A Care Notebook?

A Care Notebook is a way of keeping everything pertaining to your child's health condition organized and in one place. No more having to dig through stacks of papers before meetings.

Personalize it to suit your needs!

It's portable so you can take it with you to appointments. With a Care Notebook, you to have all the necessary information right at your fingertips.

The bottom line is it allows you to be a better advocate for your child!



With the Care Notebook, you can:

· Track changes in your child's medicines or treatments

· List phone numbers for health care providers and community organizations

· Prepare for appointments

· File information about your child's health history

· Share new information with your child's primary doctor, public health or school nurse, daycare staff, and others caring for your child

Use the Care Notebook

To organize your thoughts and concerns before a doctor's appointment.

How To Set Up A Care Notebook

To set up your Care Notebook:

Step 1: Gather your existing information: Gather up any health information you already have about your child. This may include reports from recent doctor's visits, immunization records, recent summary of a hospital stay, this year's school plan, test results, or informational pamphlets.

Step 2: Review the Care Notebook: Which of these pages may help you keep track of information about your child's health or care? Choose the pages you like. You can either print copies of any that you think you will use and fill them out by hand, or download a copy and save it to your computer so that you can easily update the pages in the future.

Step 3: Choose what to keep in the Care Notebook: Decide what information you look up most often and what information is needed by others caring for your child. Store other information in a file drawer or box where you can find it if needed.

Step 4: Assemble your Care Notebook: The key is to make it easy for you to find the information you need, quickly and easily. Some ideas in putting your Care Notebook together include using tabbed dividers to create your own sections, pocket dividers to store reports, and/or plastic pages to store business cards and photographs.


Information taken from The Center for Children with Special Needs

What To Include In Your Care Notebook?

In addition to your child's medical history and other relevant information, you can add such things as mood charts and contact logs to form a lasting record.


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Understanding Their Function

Build Your Own Care Notebook

American Academy of Pediatrics National Center of Medical Home Initiatives for Children with Special Needs

Care Notebook

The Center for Children with Special Needs

Medical Home Portal - Care Notebook

Information, Tools, and Resources to aid Primary Care Physicians in caring for Children with Special Health Care Needs (CSHCN) and providing a Medical Home for all of their patients.

Free Downloads

Download specific pages for your Care Notebook here

Download the entire Care Notebook

From The Center for Children with Special Needs

My Child's Life Care Notebook and Organizer

English Version

My Child's Life Care Notebook and Organizer

Russian Version

My Child's Life Care Notebook and Organizer

Spanish Version

The Maine Health Care Notebook

"It is our hearts' desire that the Maine Health Care Notebook will be a tool that assists you in the record keeping of your child's life and medical journey."---Family Advisory Council of Maine's Children with Special Health Needs Program.

No Time To Make Your Own?

Maybe one of these will suit your needs

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Have You Made A Care Notebook?

Have you made one and found it helpful? If you haven't, will you attempt to make a Care Notebook now?



  • dismalgrin Nov 1, 2011 @ 10:49 pm | delete
    Thank you for this, though I hope none of my children EVER have to go through what I personally go through with this disorder. Do you know where I can find information on dealing with Bipolar for adults?
  • WhitePineLane Jan 26, 2011 @ 9:11 pm | delete
    *Back with my wings on to leave a Squid Angel Blessing!*
  • WhitePineLane Nov 6, 2009 @ 11:47 pm | delete
    Great information and ideas. I really appreciate the download links. Five-starred and lensrolled over to my Asperger's Syndrome: Reference Materials and Resources lens.
  • kimmanleyort Aug 14, 2009 @ 11:41 am | delete
    Wonderful idea and you have given all the information anyone would need. Great job!
  • luvmyludwig Aug 13, 2009 @ 8:53 am | delete
    great job, I love it!
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Macs Bio

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by

Macs

Hello and welcome! My name is Tammi, but you can call me Tam to keep it simple.
I'm married and currently living in Washington. We have 3 cats and a dog;...
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