Advocate For Your Child
Ranked #6,341 in Parenting & Kids, #214,631 overall
Families raising special needs children have many strengths
Emotional, behavioral and mental disorders cut across all income, educational, racial, ethnic, and religious groups. They are found among single parent and two-parent families and in birth, adoptive and foster families.
Many families have learned to manage their circumstances very well, and have developed a repertoire of support networks and strategies they can share with others.
Our family is no different.
Organizing Your Child's Information
Many families use Care Notebooks to keep track of important information about their child's health and care. It's a great place to keep your contact logs and completed mood charts as well.
By doing this, it makes it easier to find and share key information with their child's team.
Advocate Effectively For Your Child

Develop Positive Relationships
· Positive interactions between parents and the professionals involved with your child is best. All parties need to ensure the child comes first and that goals for the child are key and shared.
Be Informed About Your Child's Needs
· Gather facts and information. Learn as much as you possibly can about your child's needs, and how they can best be met.
Become A Note-Taker
· Keep a journal of all correspondence you have with school staff, organizations, support services, phone calls made and received, etc. Make sure to document the date, time and the person you spoke with.
Ask Questions
· Be candid, if you don't understand terms being used, ask for clarification. Getting answers to any questions you may have is one way to avoid any sense of frustration.
Image used with permission via Creative Commons
Meeting Educational Needs
Any discussion of how they qualify must begin with why they qualify, and why you should seek them to qualify.
First and foremost these programs were designed to level the playing field for students who, for whatever reason, cannot benefit from education with out assistance.
This means that Congress recognized that not all children can learn the same way, but if given appropriate modifications, they can benefit from FAPE (Free and Appropriate Public Education).
Navigating The Special Education Maze
If you are the parent of a child with a mental illness (a boy especially), having an IEP prior to your child entering high school is important.
Kids who "get along" in grade school often run into trouble in high school. Trouble is too often handled by expulsion.
Understand The Impact Of Medications
Deciding whether you should medicate your child or not is a personal decision. It is a decision that no parent takes lightly, nor should they.
Bipolar disorder, and the medications used to treat it, can often have a significant impact upon your child's life. The same can be said for most medications.
Educate yourself about side effects and how they could impact your child's life.
Did You Know?
The absence of appropriate childcare prevents many families from participating in social or recreational activities, and they experience isolation from friends and relatives. Often family members must learn to cope with the difficult and demanding behaviors of their children. Many face staggering costs for special treatment, education, or other services.
This affects approximately 6 to 8 million children and youth in the United States, and represents about 12 percent of all children in the U.S. Of these, about half have problems that are severe and persistent.
Comments?
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vallain Aug 15, 2011 @ 9:30 am | delete
- This certainly gives parents some guidance so they don't feel they are floundering. We became guardians for a special needs adult and I wish there was more information available for that situation.
Blessed by a squid angel and featured on You've Been Blessed.
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Othercat
Aug 20, 2010 @ 11:44 pm | delete
- Great lens. I'm lensrolling it and forwarding it to my sister, who has a daughter with TSC. Thank you for your words of wisdom.
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KarenTBTEN
Feb 7, 2010 @ 9:12 pm | delete
- A good introduction for parents who are new to the world of special needs resources.
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WhitePineLane
Nov 6, 2009 @ 11:43 pm | delete
- Excellent info and ideas. Five-starred and lensrolled over to my Asperger's Syndrome: Reference Materials and Resources lens.
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KaraLynnRussell
Aug 18, 2009 @ 9:48 am | delete
- Tam,
Great lens. I agree with all your points and enjoyed your book list as well.
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Macs Bio
This page is for educational and informational purposes. All information contained here is based on my experience as a parent and advocate of, and for, special needs children. It is designed to help support, not replace, the relationship that exists between the child and the professionals involved in their life.
by Macs
Hello and welcome! My name is Tammi, but you can call me Tam to keep it simple.
I'm married and currently living in Washington. We have 3 cats and a dog;...
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