Multiple Chemical Sensitivities and Environmental Illness

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There are millions of Americans who report allergic, immunologic, asthmatic and neurological reactions to perfumes, colognes, chemicals and synthetic fragrances. For these groups of people, just leaving their homes can mean risking the possibility of an exposure to chemicals in our environment.

 

The CIA Campaign strives to educate medical facilities, businesses and churches on how to create a less threatening environment for this growing number of people. True, we may not be able to protect them from every possible harm, nor can we guarantee that our actions will provide a fool-proof environment when out in public. However, if we all do our part, we can make a huge difference by making our facilities a more favorable haven.

 

Our desire is to help these public establishments become a less threatening environment for those who report mild to severe reactions to chemicals and chemical/synthetic fragrances. Please join with us to bring down some of the barriers that keep this community away from our medical offices, businesses and churches! The CIA Campaign makes it easy with signs, flyers and pamphlets for people to give to store owners, managers and doctors' offices. Together, we can make a difference!

 

The Cleaner Indoor Air Campaign

www.CleanerIndoorAir.org

 

Creating a Less Threatening Environment

for People Living with Multiple Chemical Sensitivities

 

 

 

Launched by

The Invisible Disabilities Advocate

www.MyIDA.org

www.InvisibleDisabilities.org

 

Helping People Understand Chronic Illness and Pain

People Who Report Reactions to Fragrances and Chemicals 

Fragrance Tidbits from The Cleaner Indoor Air Campaign - www.CleanerIndoorAir.org

As many as 50 million people in the United States suffer from allergic disease (AAAAI).

In 1998, it was estimated that 26.3 million Americans have been diagnosed with asthma in their lifetime (ALA of Texas).

The Institute of Medicine placed fragrance in the same category as second hand smoke in triggering asthma in adults and school age children (FPINVA, By Design).

Up to 72% of asthmatics report their asthma is triggered by fragrance. Asthmatics and others that are negatively impacted by fragrance often have difficulties working, obtaining medical care, and going about activities of daily living because of others' use of scented products (FPINVA).

Approximately 12.6% of the population suffers from multiple chemical sensitivity (MCS), a condition in which they experience reactions from exposure to low concentrations of common chemicals" (Adams).

[MCS is] marked by multiple symptoms in multiple organ systems (usually the neurological, immune, respiratory, skin, 'GI,' and/or musculoskeletal) that recur chronic-ally in response to multiple chemical exposures. MCS Symptoms commonly include difficulty breathing, sleeping and/or concentrating, memory loss, migraines, nausea, abdominal pain, chronic fatigue, aching joints and muscles, and irritated eyes, nose, ears, throat and/or skin. In addition, some with MCS show impaired balance and increased sensitivity not just to odors but also to loud noises, bright lights, touch, extremes of heat and cold, and electromagnetic fields (MCRR).

[It is estimated that ] more than 5.2 million [with MCS] may lose jobs as a result (Adams)

For the average person, breathing in fragrances from perfumes, colognes, hair sprays, deodorants, air fresheners and/or cleaners can just be a little annoying, "...but for a growing number of others, these smells, called 'emissions of volatile organic compounds,' can be a form of torment that throws their bodies into reactive overdrive. One whiff of a chemical cocktail...can result in a vast array of debilitating symptoms" (Ephraim).

"Even if the general population isn't likely to suffer acute effects from exposure to fragrances, there are long-term chronic health effects connected to these chemicals that we don't fully understand yet," says [Carrie] Loewenherz [an industrial hygienist for the New York Committee for Occupational Safety and Health] (Lyman).

Full Story and Resources

© 2006 CIAC

What is in Perfume? 

Fragrance Tidbits from The Cleaner Indoor Air Campaign - www.CleanerIndoorAir.org

Perfume formulations changed sometime around the late 70s and early 80s. Today, they are approximately 95-100% synthetic (man-made) (Pitts, Featured Author). Using crude oil or turpentine oil as the base material, synthetics are usually derived from chemical reactions (Bridges).

Perfumes, colognes, and many other scented products contain an abundance of harmful chemicals, many of which are listed on the EPA's Hazardous Waste List. They also include numerous carcinogenic chemicals, neurotoxins, respiratory irritants, solvents, aldehydes, hundreds of untested and unregulated petrochemicals, phthalates (which can act as hormone disrupters), narcotics, and much more (Pitts, Featured).

By design, fragrances are composed of materials that quickly get into the air. Once in the air, these materials pose serious health concerns for many with asthma, allergies, migraines, chronic lung disease, and other health conditions (FPINVA, By Design).

Approximately 95% of chemicals used in fragrances are synthetic compounds derived from petroleum (USHR).

Petroleum based chemicals are being found to cause significant attritional effects to the nervous system and immune system after prolonged exposure. Illnesses identified in the medical research include adult and child cancers, numerous neurological disorders, immune system weakening, autoimmune disorders, asthma, allergies, infertility, miscarriage, and child behavior disorders including learning disabilities, mental retardation, hyperactivity and ADD (attention deficit disorders) (Pressinger and Sinclair).

[In 1991 a study performed by the EPA] Identification of Polar Volatile Organic Compounds in Consumer Products and Common Microenvironments, found numerous chemicals commonly used in fragrance products, including, among others: acetone; benzaldehyde; benzyl acetate; benzyl alcohol; camphor; ethanol; ethyl acetate; limonene; linalool; methylene chloride, one or all of which, or in combination with one another, cause, when inhaled, "central nervous system disorders, dizziness, nausea, incoordination, slurred speech, drowsiness, irritation to the mouth, throat, eyes, skin, lungs and GI tract, kidney damage, headache, respiratory failure, ataxia, and fatigue, among other symptoms and illnesses." Material Safety Data Sheets on each chemical confirm these findings (Dewey).

Full Story and Resources

© 2006 The Cleaner Indoor Air Campaign

Fragrance Regulations 

Fragrance Tidbits from the Cleaner Indoor Air Campaign - www.CleanerIndoorAir.org

More than 80 percent of the chemical ingredients in these products have never been tested to see if they are poisonous to humans. Some have been tested only minimally (LA).

By all accounts, the fragrance industry is primarily self-regulated. Safety tested before marketing is not required and ingredients used in fragrance formulas do not have to be disclosed even to regulatory agencies. In general fragrance is a very low priority among regulatory agencies and there is little monitoring of compliance or enforcement of laws that are in place. There is a self-regulatory system in place within the fragrance industry. Compliance with recommendations are voluntary and rarely monitored (FPINVA, Facts and Fiction).

The fragrance industry has traditionally been a very secretive industry. For decades secrecy was required to protect fragrance formulas from being copied by others. Fragrance formulas are considered 'trade secrets' and do not have to be revealed to anyone, including regulatory agencies. The secrecy of the industry has lead to tremendous problems in terms of regulation, monitoring, and impact on those that have problems from fragrance (FPINVA, By Design).

The Cosmetic Regulations state that within 10 days after starting to sell a product, a list of ingredients must be provided. 'Fragrance' is considered a specific ingredient, and no disclosure of the potentially hundreds of chemicals within the fragrance is required (QGBS).

Full Story and Resources

© 2006 The Cleaner Indoor Air Campaign

But You LOOK Good! 

A Guide to Understanding and Encouraging People Living with Chronic Illness and Pain.

But You LOOK Good A Guide to Understanding and Encouraging People Living with Chronic Illness and Pain. This 52 page booklet helps loved ones with what to say, what not to say and how to help people living with debilitating conditions.


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Terms of Use: By using this website, you agree not to hold liable the website owners, supporters, advocates, sponsors, writers or any other affiliated parties for any information, statements, opinions, products or links contained within. You also understand that the opinions stated in this website or in the information given by other parties are not necessarily those of IDA or CIAC. Data found in this website are not to be construed as medical or legal advice. While we acknowledge that some in the medical community are uncertain of the cause-and-effect relationship between scents and disease, we respect symptoms experienced by those who report reactions.

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by Invisible_Disabilities_Advocate

Often the most difficult part of living with a disabling illness or injury is the lack of understanding the person encounters. Since most living with...

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