Coping With COPD/Emphysema

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Coping with emphysema and COPD is possible. Here are some things you can do to help yourself.

Emphysema is included in a group of diseases called Chronic Obstrutive Pulmonary Disease (COPD), a long-term progressive disease of the lungs that produces extreme shortness of breath. The main cause of these conditions is cigarette smoking, followed by air pollution such as chemicals or toxins in the work place or home, and alpha 1-antitrypsin deficiency, which is an inherited trait. If you smoke, quitting can lessen the severity or stop the progression of the smoking and pollution produced symptoms. The effect of the inherited trait can be greatly modified by not smoking, taking care not to inhale second hand smoke, and avoiding breathing other toxins and chemicals.

If you've been diagnosed with emphysema or COPD, there are numerous ways you can cope and still enjoy life. One of these is called "pursed lip breathing," and helps you to control your breathing and lower your blood pressure. Other methods involve the continual use of oxygen therapy, which isn't as difficult as you might think. There are oxygen suppliers who will deliver tanks and concentrators all across the United States. There are emergency inhalers you carry in your pocket or purse, that contain medication that helps keep your airways open. There are nebulizers you can use at home throughout the day to make it easier to breathe.

Traveling with oxygen involves some advance planning, but is not impossible to do. You may find there are strenuous things you can no longer do, but you concentrate on the things you CAN do, and find joy in the small triumphs you can still achieve.

Photo: Emphysema patient, courtesy Judy Schweitzer

How does COPD or emphysema affect lungs?

Why is it so hard to breathe?

Our lungs are comprised of lung tissue around small air sacs called alveoli. The conditions mentioned above that cause emphysema or Chronic Obstructive Pullmonary Disease destroy the tissue, making the air sacs unable to hold their shape upon exhalation. They collapse and air becomes trapped in the lungs, lessening the space for incoming air and filling the lungs with carbon dioxide, resulting in a continual shortage of breath. That's why it's so hard to breathe. Not a pretty picture, but one that is necessary to understand the effect emphysema has on the human lung.

This file is licensed under the Creative Commons Attribution 2.0 Generic license.

Coping with COPD/Emphysema is made easier with pursed lip breathing.

It will also lower your blood pressure if done correctly.

Nothing will panic a person quicker than the inability to breathe. But panic feeds panic, and makes getting enough air a virtual impossibility. A method called pursed lip breathing can help to get you through these difficult times and possibly save your life. Practice this during times when you are not stressed, so when the time comes you need to do it, it will become automatic.

This breathing technique is done by taking a breath IN through the nose, and sloooooowly pushing it OUT through your lips that are "pursed" as if you are going to whistle. The trick is to do the breathing out slowly, and not to completely empty the lungs, as that will make you gasp for the next breath. This is a controlled breathing method that can help you through those times when you have an exacerbation, and are really fighting for air. Controlled breathing also helps to lower your blood pressure and remove carbon dioxide from your lungs.

Whenever you experience a shortage of breath while walking, bathing, changing clothes, or any exertion, remember to stop the activity and do "pursed lip breathing" until you are back in control again.

Coping with COPD/emphysema can be easier using inhalers.

Various inhaled medications are prescribed by your doctor for emphysema or other lung diseases. The one shown here is Spiriva, used to provide long term opening of the lungs. Usually used only once a day. This is one of my medications. Your doctor may prescribe something else, depending on the severity of your condition.

Chances are that your doctor will also prescribe a "rescue inhaler" for you, and possibly other inhalers that will help to keep your airways open over a long term. Proventil, for instance, is a "rescue inhaler" for those times you are really struggling and works almost immediately. Spiriva on the other hand, is a long-acting inhaler that is only inhaled once or twice a day as your doctor advises. You should always have the rescue inhaler with you whenever you leave home for any period of time.

Photo courtesy RonEJ at en.wikipedia [Public domain], from Wikimedia Commons

Coping with being tethered to a 50-foot tubing from the concentrator.

This is your daily oxygen supply lifeline.

The oxygen concentrator is a machine that converts electricity to oxygen that is sent down a 50-foot long tubing to the nasal cannula in your nose, 24 hours a day, 7 days a week, if so prescribed. This enables you to move about your home without carrying or pulling an oxygen tank. If there is a power failure any time, even during the night when you are asleep, the machine has a loud, sharp whistle that will bring you to your feet. That's when you go on your portable oxygen tanks until the power comes back on.

You are advised by physicians not to go to sleep with a portable tank, because when the oxygen runs out, you could be in danger. If your power stays off for longer than a few hours, go to a friend or relatives house where you can take your concentrator and run it from their electricity, so you can sleep. When your power is back on, you may safely return home.

At first it may seem to be a hindrance, having that line connected to you at all times. But over time, you actually sometimes forget that you are wearing it. I've had my purse on my arm, ready to go out the door, when I've suddenly realized..."Hey, I can't get any further than 50-feet with this! What was I thinking?" Then I just turn around, grab my portable tank and turn it on, and turn off the concentrator and go.

EverFlo Oxygen Concentrator with OPI - MSRP $2,395

Coping with COPD/Emphysema doesn't mean staying home all the time.

There are companies who deliver oxygen tanks to your home, so that you need never become a recluse. You can still be active to the best of your abilities, as long as you have the proper equipment. However, your doctor may prescribe liquid oxygen for you, rather than the oxygen tanks. This is something you and your doctor will decide together.

If you are using oxygen tanks, always store them upright in a well-ventilated area. One of my tricks is that I use a multiple shoe storage container turned upright, and set my tanks in the slots. I have it situated just inside my front door where it gets good air movement, and the delivery man can quickly swap out the empties for the full ones. Oxygen tanks come with a tape or plastic seal around the top, so you have to remove it to use the oxygen. This way, you can see at a glance how many tanks have been used so that you can order the exact number from your delivery person.

Never allow any smoking in a home that contains oxygen or an active concentrator. Oxygen is not in itself explosive, but feeds the fire around it. An open flame or cigarette smoking near by could result in terrible injury or even death.

Places I've gone since I've been on oxygen.

Places I plan to go on oxygen.

I've been to Death Valley, California, the Grand Canyon in Arizona, to Yosemite National Park, and across country to visit relatives in Oklahoma and Indiana several times, all while using oxygen. I've also gone on a cruise to Alaska while using oxygen.

I plan on making other trips; Washington, DC, Mt. Rushmore, and any place else I find interesting. I also still visit relatives in the other states when possible. I don't let my oxygen dependency keep me from living.

A video on how to use your nebulizer

Plus troubleshooting tips

Your doctor may prescribe an nebulizer for you. This is a machine that uses albuterol that you inhale to keep those pipes open. It's another tool to help you to live as well as possible. Not everyone will need the nebulizer, but if your doctor prescribes it, be sure to use it.
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Facts about emphysema and COPD you may not know...

COPD is the third leading cause of death in the United States in 2011, and the cost of health care in 2007 was $42.6 billion in health care costs and lost productivity. The cost of health care has not yet been updated.

The course of progressive emphysema and COPD is characterized by occasional sudden worsenings of symptoms called acute exacerbations, most of which are caused by infections or air pollution.

The emphysema sufferer will, when going through a rough patch of breathing, lean forward with arms outstretched, or lean with hands on something so they are slightly bent over. This position helps them to regain their breath. Please do not tell them to stand upright because they'll "feel better," as that is not the case. Allow them to regain their breath before proceeding wherever they're headed.

There is no cure for emphysema or COPD, they are chronic illnesses and progress until the end of life.

Most people do not die from this condition, but from associated conditions; kidney failure, heart failure, pneumonia, etc.

You can read up on emphysema and COPD.

Learn about how to take care of yourself.

The more you know about your condition of COPD and emphysema, the better you will be able to help yourself.
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Medical mobility scooters

Can help you go places

If you are unable to breathe well enough to walk a distance, for instance, to do shopping, you may need a medical mobility scooter. There are many brands and styles to choose from. I prefer the four-wheel variety because I feel it has greater stability. Shop around through the internet to find the features you feel you need.
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Ramps to get your scooter inside available here.

Click on the item for description and/or to buy.

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Medical Mobility Scooter Accessories to buy here.

Click on the image for description or to buy.

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Other places for information about emphysema/COPD

Chronic Obstructive Pulmonary Disease
This link offers a chance to participate in an experimental treatment.
Chronic Obstructive Pulmonary Disease: Stages and Life Expectancy
Life expectancy is lessened for those with emphysema or Chronic Obstructive Pulmonary Disease.
Respiratory Disease
General information about emphysema and Chronic Obstructive Pulmonary Disease.
COPD Foundation
Information about COPD and emphysema and what you can do to help yourself live with it.
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Did you find this lens helpful for you or someone you love?

Please let me know you stopped by.

It is my hope that this lens will be helpful to those who live with oxygen daily. You can still live your life, you just need to make a few modifications to the way you do it. Once you accept that, you find there's still so much to enjoy in the world.

  • poddys May 5, 2012 @ 10:06 am | delete
    Great information, which proves that just because you need to be on oxygen, it doesn't mean you can't have an active life.
  • SarahBarnard Apr 15, 2012 @ 6:43 pm | delete
    My Mum has emphysema - she's off on a cruise next week, with her oxygen. She's taking my Dad too.... COPD hasn't stopped her, and it doesn't have to stop anyone, just slows you down a bit.
  • Ruthi Mar 18, 2012 @ 7:06 am | delete
    The greatest thing is knowing that you don't let COPD or your oxygen dependency keep you from enjoying your life.
  • eddie mars Mar 13, 2012 @ 4:37 pm | delete
    Nancy, I had no idea. This was a great piece even though it's about so unfortunate a subject. Thanks for the follow on Pinterest following back.
  • priscillaB Mar 7, 2012 @ 6:45 pm | delete
    Thanks. My husband was just diagnosed with mild emphysema. Your lens helped me feel a bit better (and not so scared) about his diagnosis.
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nancycarol

Hi, I'm Nancy Hardin, retired from the newspaper industry and now a freelance writer. I love reading true crime stories and the technology that helps... more »

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Old hairdryers can cause lung disease...how old is yours? 

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If your scooter stays outside, try this cover. 

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