Resources for the Disabled

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Are you frustrated trying to find disabilty information?

After 12 years of disability, I know exactly how you feel. What resources are available to me? How can I get help and where? What about travel? How do I bring my wheelchair? So many questions and so many barriers.... I hope that as I work on my lense, it will help answer your questions!

If you are someone who can up from their wheelchair, be careful to turn the power off first! I almost went over the edge of the Grand Canyon just trying to take a photo. I stood and my thigh hit the "forward" on my scooter!

Traveling with a disability 

There are so many things to think about before we even try to travel. Will I be able to take my wheelchair, can I rent an accesible vehicle, what are my rights?

I will list available resources with some details. You will need to click to the sites when possible to get more information as it is too much for me to type.

Travel
Accessible Journeys www.disabilitytravel.com - Focuses on tours/vacations for travelers with "wheels."
"With 24 years of experience making dreams come true for travelers with wheels, we know wheelchair travel firsthand. Enjoy an accessible vacation with no surprises - the way you imagined it should be."

Travel Oasis http://www.traveloasis.com/travel-help.html - "This travel guide provides help in several categories that provide the information you need about the plug adapters and voltage converters you may need. The categories in this travel-help guide are intended to provide the specific information you need. Some information may not apply to your application and would thus be a waste of your time." Also has a lot of travel items to purchase.

Wheelchair www.newdisability.com - A great site if you travel to other countries. Lists and contacts for agencies which rent wheelchairs and accessible vans. Information as to how power varies from country to country. Click the links of interest on the left side of the page.

All About Disabled Travel www.allaboutdisabledtravel.com - Created in 1982 by a registered nurse. "This site covers travel insurance, travel medical insurance, travel accident insurance, travel health insurance, international travel medical insurance, travel and transportation for the disabled, handicapped, mobility limited or for any kind of disability, handicap, health or medical issue, and travel nurse jobs through our travel nurse network." You can also sign up for an email of "Disability tips you can use."

Disabled Travelers www.disabledtravelers.com - " This new site will provide you with information on businesses from around the world that specialize in disability travel.
A comprehensive listing of accessible travel specialists: Travel Agents, Tour Operators, Adventure Travel Companies, Accessible Cruise Specialists, Accessible Van Rentals & Equipment, Travel Companions, Home Exchanges, and Access Guides for wheelchair users and other disabled travelers."

Travel Made Easier
www.flyclear.com - "You don't go to the airport to get stranded on some never-ending airport security line. You're there to make a flight. Which is a great reason to get Clear. Clear is a high-tech card that gives you access to express security lines at airports across the country. Instead of inching along through airport security, you fly through in mere minutes, arriving at your gate stress free. " You can read all about it and apply on this site. Current pricing is: $50 for 3 months and $199/year. The site tells you what you need to apply and which airports this is accepted.

Protect your wheelchair http://www.haseltine.com/ - Wheelchairs get damaged while traveling via air, protect your chair or scooter with this hard, polyethylene case that encloses your wheels! Prices range from $370 to $690 depending on if you have a manual chair or scooter to protect.

Not all air carriers will transport with these cases nor is there always room in the cargo hold so call ahead to ask the airline if they have sufficient room!

Great Stuff on Amazon 

Great items you might find you need!

I have some suggestions for travel items. I can only show 5 items, but more are available on Amazon to pick from.

Luggage Locator - Wireless, you have the locator and there is a reciever on your bag. Helps find your luggage amid all that look alike!

Heated Travel Blanket - I chose the blanket with a timer to display. A timer and thermostat will be much safer so one does not get burned. It plugs into your car.

New Amazon Voting (Plexo) 

How to Get SSI & Social Security Disability: An Insider's Step by Step Guide by Mike Davis

How to Get SSI & Social Security Disability: An Insider's Step by Step Guide by Mike Davis

More people are denied SSI and Social Security Dis more...0 points

Learning Disabilities: From Identification to Intervention by Jack M. Fletcher, G. Reid Lyon, Lynn S. Fuchs, Marcia A. Barnes

Learning Disabilities: From Identification to Intervention by Jack M. Fletcher, G. Reid Lyon, Lynn S. Fuchs, Marcia A. Barnes

Evidence based and comprehensive, this important w more...0 points

Nolo's Guide to Social Security Disability: Getting & Keeping Your Benefits (including CD) by David A. Morton III

Nolo's Guide to Social Security Disability: Getting & Keeping Your Benefits (including CD) by David A. Morton III

Apply for Social Security Disability Insurance (SS more...0 points

Multiple Sclerosis Q & A: Reassuring Answers to Frequently Asked Questions by Beth Ann Hill

Multiple Sclerosis Q & A: Reassuring Answers to Frequently Asked Questions by Beth Ann Hill

An insightful, informative, and empathic resource more...0 points

Muscular Dystrophy (The Facts) by Alan E.H. Emery

Muscular Dystrophy (The Facts) by Alan E.H. Emery

The muscular dystrophies are a group of genetic di more...0 points

Teaching Motor Skills to Children With Cerebral Palsy And Similar Movement Disorders: A Guide for Parents And Professionals by Sieglinde Martin

Teaching Motor Skills to Children With Cerebral Palsy And Similar Movement Disorders: A Guide for Parents And Professionals by Sieglinde Martin

(2007 Independent Publisher Award Bronze Medalist, more...0 points

Cerebral Palsy: A Complete Guide for Caregiving (A Johns Hopkins Press Health Book) by Freeman Miller MD, Steven J. Bachrach MD

Cerebral Palsy: A Complete Guide for Caregiving (A Johns Hopkins Press Health Book) by Freeman Miller MD, Steven J. Bachrach MD

When a child has a health problem, parents want an more...0 points

Obstetric Brachial Plexus Injuries by Rahul K. Nath

Obstetric Brachial Plexus Injuries by Rahul K. Nath

This book is a personal account of the treatment o more...0 points

Home, transportation, safety 

Beds, lifts, ramps, etc.

Not sure where to buy items like beds, lifts, ramps, chairs, accessible vans? I hope I eventually cover each area of need for you! Please feel free to contact me if you have a question.

Beds www.sleepsafebed.com - Really nice looking beds for children and adults with special needs. Tells you what you need to suplly for insurance to pay for some or all of the cost depending on your insurance.

Star Cushion (Wheelchair Cushion) http://www.starcushion.com/

Other Resources 

Dedicated to certain medical conditions

Of course someone like me could never cover EVERY medical condition, so please excuse me if your is not listed. Drop me a feedback so it can be added to this resource list.
Make a Wish Foundation
Helps grant the wishes of children with life threatening illnesses.
Easter Seals
"Easter Seals provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities. "
Cerebral Palsy - Ask the Doctor
"Do you have a child with cerebral palsy? Have you been searching for answers to your cerebral palsy questions? Learn all about cerebral palsy and the latest treatments, read articles and news, or ask the doctor why he thinks your child has cerebral palsy. Dr. Walter Zalcman is a board certified obstetrician who has delivered thousands of babies. Find out if the referring attorneys of Lawyers Incorporated, the hosts of this site, will accept your case. You may be entitled to lifetime benefits. You will receive an answer to your cerebral palsy question within 24 hours."
Exceptional Parent Magazine
Provides information, support, ideas, encouragement & outreach for parents and families of children with disabilities, and the professionals who work with them.
RSD Hope (Reflex Sympathetic Dystrophy)
RSD, CRPS, Reflex Sympathetic Dystrophy Syndrome, Complex Regional Pain Syndrome , website includes; description of RSD, CRPS , signs, symptoms, etiology, facts, articles, blocks, medications, treatments/therapies, RSD videos, DVDs, brochures,and more. American RSDHope is a national non-profit organization dedicated to increasing awareness of RSD/CRPS.
Muscular Dystrophy Association
National site for Muscular Dystrophy, links on the left side to find your local chapter, the 41 Muscular Dystrophy Diseases, people stories, Quest Online Publication and more!
Enterolab
Many problems are caused by the food we eat! You can order your own tests to test for gluten, celiac, soy, casein, and few others. What is great about these tests is that it tests for the antibody which can be present for more than two years even after you may have eliminated from your diet. I think these tests are more conclusive then blood tests which often show false negatives. Doctors more often then drop testing and no longer test or continue into the possibilities that gluten maybe what it causing ones problems.
National Multiple Sclerosis Society
Newly diagnosed, symptoms, trials, events and more!

by RebateQueen

I have been disabled for 12 years with multiple medical issues. My husband became disabled 4 years ago after being diagnosed with an adult onset Musc... (more)

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