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What is Dissociative Identity Disorder (DID)?

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What is DID, formerly known as MPD (Multiple Personality Disorder)?

 

Dissociative identity disorder is a condition in which two or more "personalities" take control of an person's behavior. A number of DID cases have been documented in books and movies, but it's still a controversial diagnosis. I hope this lens will help to enlighten and educate people about the disorder.

Dissociative Identity Disorder on Wikipedia 

Dissociative Identity Disorder (DID), as defined by the American Psychiatric Association's Diagnostic and Statistical Manual of Mental Disorders (DSM), is a psychiatric diagnosis that describes a condition in which a single person displays multiple distinct identities or personalities, each with its own pattern of perceiving and interacting with the environment. The diagnosis requires that at least two personalities routinely take control of the individual's behavior with an associated memory loss that goes beyond normal forgetfulness; in addition, symptoms cannot be due to substance abuse or medical condition. Earlier versions of the DSM named the condition multiple personality disorder (MPD), and the term is still used by the ICD-10. There is controversy around the existence, the possible causes, the prevalence across cultures, and the epidemiology of the condition.

DID Video on YouTube 

I found this video on YouTube. I think it's absolutely brilliant. If you want to gain a glimmer of understanding into life with DID in under three minutes, this is an excellent introduction.

Expression of D.I.D.

This montage is an amalgamation of the letters, emails and comments that we have received from survivors of trauma who have shared their experience of D.I.D. with us. D.I.D. emerges as a survival mechanism in order for the victim to survive their abuse. It is a gift and is feared by many who do not understand it. All of the emails that we have received are from well-functioning, "normal" every day people, who just happen to live with D.I.D. It is part of who they are but does not define them. We hope that this montage will shed some light into our interpretation of D.I.D. and allow conversation to take place, allowing survivors to end their fear and silence. Please visit our website for more: http://www.womenspeakoutnow.com Join us on myspace: http://www.myspace.com/menspeakout

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My Personal Disclaimer 

I'm not a therapist, a doctor, a scientist, or a researcher

Many of the lenses I've created on Squidoo are about relatively unimportant topics such as Who Invented Chocolate? or Alternative Gift Ideas. I don't feel a need to explain why I wrote about those topics. Basically, they're just fun. But I do think I should explain why I chose the topic of DID and what you should know about the information here.

As the subtitle says, I'm not an expert on DID. I'm just a regular person who has had a long friendship with someone with DID. I knew her years before she was diagnosed with multiple personalities (before they changed MPD to DID), and when she finally was diagnosed, it made a lot of sense to me. It explained a lot of things that had happened over the years that didn't seem to have other explanations. So I have never doubted her diagnosis or the existence of DID. You won't find any links or information here that suggest DID isn't real. That's my first bias.

My second bias is that I don't think people with DID are "crazy." In fact, I think they're quite clever and amazing. At least, my friend is. She has been mostly integrated for over a decade, but I knew her alters and found them to be fascinating and creative (and much better artists than she is!). What's crazy is not the way she managed to stay alive, but the horrific things that happened to her when she was a child. Her abuser was absolutely crazy. She is not. I also don't think that someone who is multiple, has no memory of abuse and doesn't want to integrate is crazy.

So that's my disclaimer - I'm no expert, I believe in DID, and I don't think people who have it are crazy.

Now that you've read the disclaimer, please feel free to continue on. I hope you find the information here useful and educational. This page is meant mainly to provide resources for friends and family of people who have been diagnosed with DID as a result of severe trauma or abuse. But if there are any multiples visiting, welcome to you all, too!

Causes of Dissociative Identity Disorder 

DID is generally caused by trauma at an early age. The disorder most often develops in children subjected to severe and repeated physical, sexual, or emotional abuse. According to the Merck Manual online, "about 97 to 98% of adults with dissociative identity disorder report having been abused during childhood. Abuse can be documented for 85% of the adults and 95% of the children and adolescents with dissociative identity disorder."

Symptoms of Dissociative Identity Disorder 

A person with DID may have the following symptoms:

- Exhibits at least two distinct personalities that that each have their own way of perceiving and relating to the world around

- Experiences episodes of amnesia or time loss beyond mere forgetfulness

They may also experience these symptoms, which may be present in people with any type of dissociative disorder (not just DID):

- Depression, anxiety or suicidal feelings

- Depersonalization (feeling detached from yourself)

- Flashbacks

- Sleep disorders

- Eating disorders

- Self-mutilation (such as cutting)

- Drug or alcohol abuse

- Panic attacks or phobias

For more information, visit these links:

Sidran Foundation - Help for PTSD and Dissociation

Mayo Clinic - Signs and Symptoms of Dissociative Disorders

How Many People Have Dissociative Identity Disorder (DID)? 

It's not quite as rare as once thought

According to the International Society for the Study of Trauma and Dissociation, studies suggest that DID may exist in up to 1% of the population.

But the incidence of all dissociative disorders is much higher. "Diagnosable dissociation occurs in approximately two to three percent of the general population," according to the ISSTD, and "immediately following severe trauma, the incidence of dissociative phenomena is remarkably high. Approximately 73% of individuals exposed to a traumatic incident will experience dissociative states during the incident or in the hours, days and weeks following."

Books About DID for Multiples 

Self-help books for those with DID and those who love them

These books are written for people with DID, but are useful reading for anyone wanting a better understanding of the disorder.

The Dissociative Identity Disorder Sourcebook

Amazon Price: $12.21 (as of 08/21/2008)

Amongst Ourselves: A Self-Help Guide to Living With Dissociative Identity Disorder

Amazon Price: $13.57 (as of 08/21/2008)

More Books for Survivors 

Healing from abuse and PTSD

These books are not specifically about DID, but are very excellent sources of information and healing for sexual abuse and post traumatic stress disorder.

The PTSD Workbook: Simple, Effective Techniques for Overcoming Traumatic Stress Symptoms

Amazon Price: $14.93 (as of 08/21/2008)

The Courage to Heal 4e: A Guide for Women Survivors of Child Sexual Abuse 20th Anniversary Edition

Amazon Price: $15.61 (as of 08/21/2008)

Post-Traumatic Stress Disorder Sourcebook

Amazon Price: $12.89 (as of 08/21/2008)

Restoring Hope And Trust: An Illustrated Guide To Mastering Trauma

Amazon Price: $16.47 (as of 08/21/2008)

Books About DID: Personal Stories 

There are a variety of good books that have been written about personal experiences with DID. What I like about these types of books is that they provide a lot of hope. You can see how others have overcome their trauma and learned to thrive.

But while I would recommend these for friends, family and significant others of those with DID because they can be very helpful in understanding the condition, I would caution anyone with DID to be aware that these stories contain accounts or inferences of severe abuse. Therefore, they may be triggering.

Sybil

Amazon Price: (as of 08/21/2008)

When Rabbit Howls

Amazon Price: $10.20 (as of 08/21/2008)

First Person Plural: My Life as a Multiple

Amazon Price: $7.50 (as of 08/21/2008)

Flock: The Autobiography of a Multiple Personality

Amazon Price: $10.17 (as of 08/21/2008)

Breaking Free: My Life with Dissociative Identity Disorder

Amazon Price: $16.47 (as of 08/21/2008)

More Personal Stories of DID 

I Am More Than One

Amazon Price: $12.89 (as of 08/21/2008)

Becoming One: A Story of Triumph Over Multiple Personality Disorder

Amazon Price: $16.95 (as of 08/21/2008)

The Minds of Billy Milligan

Amazon Price: $7.99 (as of 08/21/2008)

Dissociative Identity Disorder Movies on DVD 

Movies about DID

Sally Field won an Emmy and Joanne Woodward won an Oscar for their portrayals of women with DID in the movies "Sybil" and "Three Faces of Eve," respectively. Although these movies feature actresses portraying DID, they are based on real cases and I would recommend them for anyone wanting to understand more about the disorder.

Others would disagree with me. Some people believe movies such as these present an overly-dramatic and not-altogether accurate picture of DID and aren't useful at all. I'd have to agree that these movies simplify and dramatize DID, but I think there is still a lot of value in them. I know my friend with DID watched Sybil a number of times because it gave her hope to see how Dr. Wilbur was able to help Sybil, and I think it also gives people an idea of the type of abuse that causes DID. So that's my viewpoint. You can decide for yourself.

Those movies are available on DVD, but it's also worth checking the TV listings for other movies. A re-make of Sybil aired on CBS in June 2008. Tammy Blanchard played Sybil and Jessica Lange played Dr. Wilbur in this version of the movie. Shelley Long of "Cheers" fame also starred in 1990 in a made-for-TV movie based on the book "When Rabbit Howls."

As with the books, I would caution that movies about DID can be triggering for multiples.

Sybil (Two-Disc Special Edition)

The two-disc 30th anniversary edition of this classic movie includes interviews with the screenwriter, actresses and producer, and also includes paintings created by "Sybil," which was a pseudonym for Shirley Mason, the real woman whose story was told in the movie. The interviews with the screenwriter are particularly interesting, as he answers a lot of questions about the fictional aspects of the movie and why they were included.

It's still the best movie ever produced about DID, IMHO.

Amazon Price: $19.99 (as of 08/21/2008)

The Three Faces of Eve

Amazon Price: $9.99 (as of 08/21/2008)

DID Awareness Shirts and Pins 

I found this CafePress store with great DID awareness products after reading about it on Pilgrim's Journey. I love the ribbon design with the puzzle pieces. Great statement!

DID/MPD Awareness Ribbon Button

Simple white button with the DID/MPD awareness ribbon.

Price: 3.24

Buy Now

Mug with DID/MPD Awareness Ribbon

A mug with the DID/MPD ribbon that says "Multiple Awareness"

Price: 12.00

Buy Now

DID awareness t-shirt

With a quotation from Walt Whitman

Price: 16.00

Buy Now

DID/MPD Awareness Teddy Bear

Snuggle with this bear-it understands!

Price: 14.25

Buy Now

white t-shirt with DID/MPD ribbon

White t-shirt with DID/MPD ribbon and the words DID/MPD awareness

Price: 10.00

Buy Now

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Inspiration from an Incest Survivor 

Marilyn Van Derbur has been an outspoken advocate for abuse survivors

Marilyn Van Derbur was crowned Miss America while in college and later went on to become one of the most successful motivational speakers in the country. She is also an incest survivor. Although she does not have DID, I am including her on this lens as an inspiration for those who have suffered from sexual abuse (as many with DID have). Marilyn repressed her memories of sexual abuse for years, and is a great inspiration to those who have survived similar experiences.

I heard her speak many years ago, and she was amazing. A version of that speech is available on her website, Miss America by Day.com and is called A Story of Hope. It shows her first public speech in which she told about her childhood incest. The speech is inspiring and should be non-triggering for most abuse and DID survivors. I highly recommend it.

A second, more recent speech called "The Journey of Recovery" is also available from the site. It touches on many of the same issues as the first speech, but is spoken from the perspective of someone who has more years of recovery under her belt.

She has also authored a book called "Miss America by Day," which is available from the site or through Amazon. In addition to describing her personal journey of healing, the book offers a variety of self-help sections for abuse survivors and parents who want to protect their children. It's an excellent read for anyone wanting to have a better understanding of the painful process of healing from incest.

Recovered Memories - Believe it or not? 

There has been a good deal of skepticism in the media (and, to a lesser extent, the mental health field) about repressed memories. Can someone really repress a horribly traumatic event and then remember it years later? People with DID can struggle with this issue as they remember abusive situations, as it seems counterintuitive that you could "forget" something that seems like it should be unforgettable.

The Sidran Institute has a great fact sheet on traumatic memories.

And for greater insight into how a person can seemingly forget and then recover a repressed memory, read "Unchained Memories." This book is not about DID, but it is helpful in understanding how the brain handles and remembers traumatic events. Author Lenore Terr, M.D., uses real stories to illustrate how memory works in traumatic situations and critically examines the difference between recovered memories and "false memories." It's balanced, insightful and very readable. Highly recommended.

Unchained Memories: True Stories Of Traumatic Memories Lost And Found

Amazon Price: $12.58 (as of 08/21/2008)

If You or Your Loved One is a Cutter... 

A good book to read

A Bright Red Scream: Self-Mutilation and the Language of Pain

From Publishers Weekly: Strong's research into "cutters" combines journalistic passion with academic integrity. Through dozens of interviews conducted for a 1993 San Francisco Focus article, she explores the reasons that lead over two million Americans to injure themselves regularly and deliberately with such items as knives, razor blades and broken glass. Although most cutters are young women who have been emotionally, sexually, or physically abused as children, Strong's research shows that this specific type of self-harm also appears in other groups.

Amazon Price: $10.20 (as of 08/21/2008)

The Most Famous Person with DID? 

Who was the woman portrayed in the movie Sybil?

The identity of the woman depicted in the movie Sybil was revealed in 1999 to be Shirley Ardell Mason.

Shirley Ardell Mason (January 25, 1923 ? February 26, 1998) was an American psychiatric patient and commercial artist whose life was documented in the book and film both released under the name Sybil. The book was penned by Flora Rheta Schreiber and published in 1973. It was adapted in a made for TV movie in 1976, with Sally Field in the title role. Both the book and the films used the name Sybil Isabel Dorsett to protect Mason's identity, though the 2007 remake revealed Mason's name in its conclusion.

Another Well-Known Person with DID 

Chris Costner-Sizemore was the subject of the movie "Three Faces of Eve"

Christine Costner-Sizemore was the woman whose case of DID was portrayed in the 1957 film and book, "Three Faces of Eve." Joanne Woodward played the main character. Her case also later became the inspiration for the song "Christine" by the English rock band Siouxsie & the Banshees.

Christine "Chris" Costner-Sizemore (born April 4 1927) is a woman who, in the 1950s, was diagnosed with multiple personality disorder. Her case was depicted in the book and film The Three Faces of Eve by her psychiatrists, Corbett H. Thigpen and Hervey M. Cleckley. She lived for many years in South Carolina.

In accordance with then-current modes of thought on the disorder, Thigpen reported that Costner-Sizemore had developed multiple personalities as a result of her witnessing two deaths and a horrifying accident within three months as a small child.

While The Three Faces of Eve was written by Thigpen and Cleckley with limited input from Costner-Sizemore, her later books Im Eve and A Mind Of My Own fill in details. According to psychiatrists...

More Famous People: Herschel Walker 

One of football's greatest running backs reveals he has DID

Breaking Free: My Life with Dissociative Identity Disorder

From Amazon: Born into a poor, but loving family in the South, Herschel was an overweight child with a stutter who suffered terrible bullying at school. He now understands that he created "alters" who could withstand abuse. But beyond simply enduring, other "alters" came forward to help Herschel overcome numerous obstacles and, by the time he graduated high school, become an athlete recognized on a national level.

In Breaking Free, Herschel tells his story -- from the joys and hardships of childhood to his explosive impact on college football to his remarkable professional career. And he gives voice and hope to those suffering from DID. Herschel shows how this disorder played an integral role in his accomplishments and how he has learned to live with it today. His compelling account testifies to the strength of the human spirit and its ability to overcome any challenge.

Amazon Price: $16.47 (as of 08/21/2008)

Herschel Walker Video on DID 

Herschel Walker on Dissociative Identity Disorder

Heisman Trophy winner and former NFL running back Herschel Walker talks to WNYC's Leonard Lopate about his struggles with dissociative identity disorder, which nearly drove him to suicide. http://www.wnyc.org/shows/lopate/episodes/2008/04/15/segments/96866

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DID/Dissociative Identity Disorder Links 

Learn more about DID

This lens seeks to provide an overview of DID and some recommendations about books and movies that may be helpful, but if you'd like to learn more, here are additional links to visit.
ISSTD - FAQ About Dissociation
Frequently asked questions about all types of dissociation from the International Society for the Study of Trauma and Dissociation.
Sidran Foundation
PTSD and Dissociation Resources for Survivors, Supporters and Professionals.
NAMI - Dissociative Identity Disorder
NAMI's fact sheet for Dissociative Identity Disorder formerly known as Multiple Personality Disorder.
MayoClinic.com - Dissociative disorders
Comprehensive overview covers symptoms, causes and treatment of a variety of dissociative disorders, including DID.
Sidran - How to Choose a Therapist
What to look for and how to choose a therapist for post-traumatic stress and dissociative conditions
Sidran: Essential reading list
Essential reading list of articles and books on trauma
Astraea's Resources and Controversy - Multiple Personality
Multiple personality information. Focus on living multiple. Empowerment for all multiples, MPD/DID, natural plurals. We are everywhere!
Newsweek.com - Unmasking Sybil
A re-examination of the most famous psychiatric patient in history
Newsweek.com - Overcoming Multiple Personality Disorder
What is it like to live with 17 alternate selves? A survivor of multiple personality disorder discusses the disease and the painful integration process that made her whole.
Coping with Dissociative Identity Disorder - Multiple Personality Disorder
Dissociativie Identity Disorder, formerly known as Multiple Personality Disorder: Share ideas to cope with the symptoms. Help me Help others with MPD / DID. Stories, tips and links to other resources
Dissociation.com
Some nontraditional theories on multiplicity by Dr. Ralph Allison.
NeeDID Exchange - A DID/ DD NETWORK
Dissociative Identity Disorder Support and information exchange for individuals with Dissociative Identity Disorder, DID, MPD, Multiple Personality Disorder and other Trauma related Dissociative Disorders and their Supportive Others.
Lady Jz Talk Zone
Personal site with inspiration and links
Trauma Information Pages - Comprehensive Resources on Traumatic-Stress, PTSD & Dissociation
Educational site focused on emotional trauma and traumatic stress, including post-traumatic stress disorder (PTSD) and dissociation. Trauma information for clinicians, researchers, students and an amazingly extensive link list.
Labyrinth Of People
LABYRINTH OF PEOPLE SITE - understanding multiple personality disorder
Many Voices Press - Hope for People Recovering from Trauma & Dissociation
Words of Hope for People Recovering from Trauma & Dissociation, PTSD, DID, MPD, DSM-IV,
multiple-personality
Keepers Korner - information and support for people with DID/MPD and their families
Site by a multiple offers an art, gallery, blog and resources
Pilgrim's Journey
An excellent blog by a woman who has DID
Blooming Lotus
Very informative blog by a woman who has integrated from DID

Let Us Know You Were Here 

If this information was helpful, please leave a message!

LadyJtalks

are you a mother/father 4R children's futures?
I wanted to take a moment and ask you to visit our web site and see if you think we are doing the right thing. If after you read our mission statement at
http://ttidd-enter-prize.ws/mothers4Rfutures

Just briefly we are mothers of children who are now in their thirties and it's so hard to watch them have to struggle and both parents working to manage a household these days.

The mothers of Duffys Closet Associate Artisans have decided to start online businesses for each of our children and work then online until they are making enough to be equal to what they make at their jobs right now.

So We'd like to invite you to one of our first sites to check the few opportunties out there.

I chose two that were both $10.00 a month to be a member. One you get lots of free stuff from and can build a business by inviting people. You get $1.00 for each person who signs on from you. Same with the other yet that has a web site. LJ

Posted June 24, 2008

TopStyleTravel

It is sad to face all the problems that plague mankind. But knowledge impowers people to do something about it. Along with prayer.

Posted June 16, 2008

sisterra

Excellent, excellent lens. 5 stars!

Posted June 14, 2008

jaktraks

Thanks for joining the Mental and Emotional Health group. This is a great lens!! Very glad to have you. jak

Posted June 07, 2008

LadyJtalks

You are working well here. It's so good to see links up to all the stuff that has been written over the years. Build it and they will find it.

Any questions on how it is on the inside just write me. Thanks for putting up me little office link here. Let others know that if they find themselves past all that professional stuff and concerned about still being able to hear those inter voices, that they are ok and perfectly normal for a multiple.

I've known many over the years who have "quieted" the alters while undergoing therapy, and it's a needed stillness and calm that they find in their life at that moment. Yet down the road I want them all to know that it is "normal" for the voices to return and never be ashamed or embarressed to admit and talk about that again.

That is where those of us who have been out here all these years again are here for you. I love seeing so many sites with all the information on. Such a wonderful thing. IN your honor today, Lady J

Posted May 22, 2008

 
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