Do I have Lyme Disease
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What is Lyme Disease and how do I get it?
Lyme disease is an infection caused by Borrelia burgdorferi. It is caused by a type of bacterium called a spirochete. An infected tick can transmit the spirochete to the humans and animals it bites. There is some debate to whether other bugs can transmit it, or if it is sexually transmitted. It is however transmitted in utero.
It is a multi systemic infection and if left untreated travels through the bloodstream, establishes itself in various body tissues, and can cause a number of symptoms incuding neuropsychiatric manifestations. It is very important to treat as quickly as possible. If you know you got bit by a tick or start experiencing any symptoms of Lyme Disease, you should see your doctor right away. Don't wait. It could be the difference between acute Lyme and Chronic Neuroborreliosis.
Table of Contents
- What are the symptoms?
- Read The Stories of Other Lyme Patients
- Lyme Stories
- Psychiatric Manifestations of Lyme Disease
- Lyme Disease- The Bull's Eye Rash
- Are you or someone you know sick? What made you look at this lense?
- Lyme Disease Quiz
- Can I be tested for Lyme Disease?
- Please also read these on Lyme Testing
- FDA Issues a Warning about False Results in Lyme Testing
- Assistance With Meds and Testing Costs
- Famous People With Lyme Disease
- These are all great sites to learn about Lyme Disease.
- Lyme Treatment
- Understanding Lyme Tests
- Do you have symptoms of Lyme Disease but had a negative test?
- Misdiagnosis
- Lyme Quiz
- These are the books that helped me understand Lyme the most.
- Zazzle Shop
- Learn More About Lyme
- Imagine
- Guestbook Comments
What are the symptoms?
The Three Stages of Lyme Disease
Stage 1
Early localized infection (The first month)
Some people will never have any symptoms in this stage.
Bull's eye rash (erythema migrans) The rash is usually circular and has a fading spot in the center. Less then half the people infected will develop a rash.
Flu like symptoms
Lack of energy
Fatigue
Headache
Stiff neck
Muscle and joint pain
Swollen lymph nodes
Stage 2
Early disseminated infection (1 to 4 months)
If Lyme disease is not detected and treated while early symptoms are present, the infection may disseminate and affect the skin, joints, nervous system, and heart.
Extreme fatigue
Rashes
Migrating pain
Weakness and/or numbness in the arms or legs.
Twitching muscles
Severe and recurring headaches
Fainting or vaso vagal attacks
Poor memory and concentration problems
Irritability
Vision problem
Internal buzzing feeling
Heart palpitations
Panic Attacks
Mood disorders
Stage 3
Late Persistent Infection
Swelling and pain in the joints
Numbness and tingling in the extremities
Severe fatigue
Insomnia
Bells Palsy (partial paralysis of the face)
Getting lost in common places
Problems speaking, word retrieval problems, word block
Migrating pain and symptoms
Heart damage, pericarditis
Meningitis
Depression
Panic Attacks
Bladder problems
Tinnitus, ear ringing or feeling of fullness
Poor balance
Shortness of breath
Rib and sternum soreness
Fevers/sweats
Vertigo
Upset stomach and GI problems
Burning and stabbing pains
Psychiatric Manifestations of Lyme Disease
A Symptom Less Talked About
Bipolar
OCD (Obsessive Compulsive Disorder)
Panic/Anxiety Disorder
Depression
Derealization (an alterated perception or experience of the external world so that it seems unreal)
Mood Swings
Borrelia Burgdorferi can enter your brain and cause these conditions. Here are some research links.
PSYCHIATRIC IMPACT OF LYME DISEASE
Distinct Pattern of cognitive Impairment noted in Lyme Patients
Ilads Psychiatric Brochure
The Role of Neuropsychology Testing Lyme In Children
The Neuropsychiatric Assessment of Lyme Disease
References for Psychiatry and Lyme/Tick-Borne Diseases
The Human Side Of Lyme
Understanding The Puzzle Of Chronic Lyme
Can Lyme Cause Psychiatric Disorders?
Diseases Of The Mind
Spinal Fluid and Brain Tests
Lyme Disease- The Bull's Eye Rash
Erythema Migrans
Are you or someone you know sick? What made you look at this lense?
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SecondHandJoe
May 5, 2012 @ 6:50 pm | delete
- I live in Eastern Long Island and it's prevalent here. I was considering this as a topic for a new lens- but I see you have it well covered. Nice job!
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wheresthekarma
May 5, 2012 @ 8:10 pm | delete
- THanks Joe, cant spread enough awareness! If you do an article Ill feature it on here :)
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Ladymermaid
Apr 26, 2012 @ 10:15 am | delete
- Chronic illness can be devastating on both the individual and the family. It is so much better now for lime disease sufferers to know that their illness does have a name. The disease is still just as bad but just knowing what is wrong is some security.
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Gloriousconfusion
Feb 19, 2012 @ 4:52 am | delete
- I had heard of it, but was not sure what it was, so this was very informative. We don't seem to get ticks much in UK, but when I lived in Africa, our pets used to get ticks a lot, and we were constantly inspecting for ticks, to get rid of them
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wheresthekarma
Feb 19, 2012 @ 5:08 pm | delete
- THat doesn't surprise me about Africa. I have three friends from Sth Africa who all are in my online support group.
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KonaGirl
Jan 16, 2012 @ 6:55 pm | delete
- Yup. Both my husband and my father-in-law became infected with Lyme's disease. The ticks this past year in upstate New York were terrible. With the warm winter, the Christmas trees even had ticks on them. Here it is the middle of January and it has only now finally gotten cold enough to send them into hibernation. If you don't catch it right away it will knock you down like you wouldn't believe.
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fionamckay9
Nov 14, 2011 @ 9:49 am | delete
- Have been really really tired lately and feeling like I have flu all the time - just looking for any possible reason really
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wheresthekarma
Dec 2, 2011 @ 3:51 am | delete
- I hope you figure it out Fiona...feeling like the flu is the first symptoms of lyme .
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Lyme Disease Quiz
Can I be tested for Lyme Disease?

Blood tests for Lyme Disease.
Our current tests are not very accurate. Your doctor will likely order first a Elisa test. If that test comes back positive then he will order a Western Block. There is also the PCR (Polymerase Chain Reaction).
Elisa Test
There The Enzyme-Linked Immunosorbant Serum Assay is the simplest, least expensive, easiest to perform, and most common Lyme test ordered. It is a test based on detecting the antibodies that our bodies make in response to being exposed to Lyme Disease, aka Borrelia burgdorferi. It is a preferred test by laboratories, not because it is more accurate than other Lyme tests, but because it is automated. It is a fast test, in other words, labs can turn over a quick profit with this test. This test is reported to only be 55% accurate.
How ELISA test works is that it can be primed to be very specific for some of the spirochetes antibodies. This is done by taking a lab sample of the bacteria and breaking the sample down into fragments. These fragments, or know as antigens, are then embedded on the side of a reagent vessel like a test tube. Then the patient's serum is added, and any free antibodies specific for the test strain will then bind to the antigens, which are linked to special enzymes that will change color when antibodies are present. The sample is continually diluted until the reaction no longer occurs and no color change can be detected. The sample is then reported as a dilution ratio, such as one part serum to 256 parts water, or 1:256.
The ELISA test seems simple, but it has some major flaws. Borrelia species are polymorphic. That is, Borrelia species can significantly change its surface proteins enough during cell division as to evade our immune system, which may differ from laboratory strains enough to result in a false negative, even if antiBb antibodies are present. So until we can test for every strain these tests are pretty much useless in my opinion.
The Western Blot
IgM
The first antibody our body makes in response to a foreign invader is usually immunoglobulin type M, abbreviated as IgM. This large antibody takes two to four weeks to be made in quantities large enough to be measured. It is best to test four weeks after exposure to an antigen. The IgM antibody will only stay in circulation for about six months, after that the levels of antibodies are usually too low to detect. If infection persists, this antibody may also persist. In general, a Lyme patient who consistently has detectable IgM levels is usually chronically ill, but its absence is not a reliable indicator that you don't have an infection.
The problem is, most Drs do not even know this. I have been tested for Lyme Disease on a couple occasions and it was never in the time frame suggested for accurate results. This may lead to many false negatives.
IgG
The second antibody we make after the IgM is the IgG antibody. This antibody takes up to eight weeks to form, and is gone in less than one year. It peaks at about six weeks. This antibody crosses the placenta, so an infected mother can pass this antibody to her child. An IgG antibody titer in a newborn baby does not necessarily mean active infection. It does mean the mother has had exposure to the Lyme infection, and the baby must be carefully monitored for signs of the disease. This antibody remains the longest and is the foot soldier of the immune system. It attacks viruses, bacteria, yeast, toxins, and transplants. The IgG antibody can kill bacteria indirectly by tagging or marking the foreign invaders for destruction by the killer T-cells. Or, it can kill the bacteria directly by evoking compliment, a series of enzymes and proteins that will dissolve the intruder.
The Western Blot essentially makes a map of the different antibodies the immune system produces to the bacteria. The map separates the antibodies by the weight of their respective antigens and are reported in units called kilo daltons or kDa. For example, a Western Blot may report bands at 22, 23, 25, 31, 34, 39, and 41 kDa. Each of these bands represents an antibody response to a specific protein found on the spirochete. The 41 band indicates an antibody to the flagella 41 kDa protein and is nonspecific. The 31 kDa band represents the OSPA protein and is specific for just a few species of Borrelia, as is the 34 band OSPB, and 23 kDa OSPC.
Many important bands that were specific to Lyme Disease were removed from the test for unexplainable reason. Many believe it is due to the Lymerix vaccine gone bad. Many who got this Lyme vaccine were testing positive for Lyme Disease so they removed these bands to prevent false positives in people who were vaccinated. I don't know why they wouldn't just ask a person if they had a vaccine instead of completely removing them.
PCR (Polymerase Chain Reaction)
These test are of the more specific of the diagnostic assays in that the PCR detects the genetic material of the organism. Instead of providing indirect evidence of infection by looking at the immune response, like the other tests, the PCR detects the genetic material itself. But, while a positive PCR result does not demonstrate definitively that current infection is present, it is strongly suggestive of current or very recent infection. Unfortunately the PCR assay is often negative when used conducted to assist in the diagnosis of Lyme disease. This could be because the genetic load in the specimen is below the detection level of the test. It may also be because the Lyme bacteria is well known to reside in the blood for only short periods of time. Lyme spirochetes are tissue tropic and may live in areas of reduced vascular circulation, so because of this the PCR assay of the blood or CSF may be negative.
There are researchers out there working on better testing methods. Hopefully soon a more accurate one will become available.
However there are certain labs that specialize in Lyme Disease. The one I refer people to is Igenex Labs out of California. If you contact them they will send you or your doctor a kit. This lab tests for more bands then traditional labs do making it more accurate. Click here to read more on Igenex Labs.
Dr Burrascano has come up with a new test that cultures the blood. To learn more New Culture Test
To learn more on Lyme Testing please read Click here
Are you looking for Lyme Bracelets? - 10% Discount
Please also read these on Lyme Testing
- Laboratory Tests By Tom Grier M.S.
- Description of different Lyme tests.
- Igenex Labs
- A leading Lyme Testing lab.
- Dr Burrascanos New Culture Lyme Testing at Researched Nutritionals
- A new hopeful testing method.
These are all great sites to learn about Lyme Disease.
- ILADS
- International Lyme and tick borne Disease Society
- Lyme Disease Association
- An organization that promotes education, prevention, and advocacy in the fight against Lyme Disease.
- California Lyme Association
- A California Lyme Association
- Turn The Corner
- Turn the Corner is dedicated to the support of research, education, awareness and innovative treatments for Lyme disease and other tick-borne diseases.
- What Is Lyme
- A site that shows you where all the events in your state are taking place, support groups, lyme walks, physician presentations.
Lyme Treatment
No Easy Answer
The usual treament for acute first stage Lyme Disease is a prescription for three weeks of Doxycyclene. It wil probably be for 100mg twice daily.
If you have co-infections or it has disseminated however this may not be enough. You might have to go on a picc line or port for intravenous antibiotics for indefinate amounts of time.
There are a lot of homeopathic or alternative treatments you can also try, such as rife, dietary changes, supplements, and herbal protocals.
It is my opinion that there is not a cure for third stage disseminated Lyme Disease. You can however try different treatments and find something that can help you minimize your symptoms and be as functional as possible. Some people go into remission but most will need to be on maintenance treatment for the rest of their lives. This is why it is so important that people educate themselves about Lyme Disease. Prevention and early treatment are so important.
Do you have symptoms of Lyme Disease but had a negative test?
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Doc_Holliday Apr 16, 2012 @ 8:35 am | delete
- Lyme disease can be particularly nasty. Often it is difficult to diagnose at first blush. For this reason some countries unfortunately deny that they have the problem.
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TriciaLymeMom
Feb 23, 2012 @ 2:33 pm | delete
- great job...adding to featured on http://www.squidoo.com/lyme-symptoms
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Gloriousconfusion
Feb 19, 2012 @ 4:57 am | delete
- Good article and just the right length, so here are some Angel Blessings from me - well done
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wheresthekarma
Feb 19, 2012 @ 5:09 pm | delete
- Thank you for the angel blessing!
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ajgodinho Feb 12, 2012 @ 2:25 pm | delete
- I learned a lot about Lyme disease here. Read about it in your earlier lens and had to find out more about this so decided to come back look into it further. I hope you get much better and thanks for spreading the awareness through your Squidoo lenses and other online work!
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wheresthekarma
Feb 13, 2012 @ 1:42 am | delete
- Thank you AJ! Glad you are educating yourself about this!
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KonaGirl
Jan 16, 2012 @ 7:17 pm | delete
- Great lens. The tick situation was so bad this year it is a good thing for people to know more about this awful disease. Blood tests are not always accurate for two reasons. 1.) Lab techs are not always properly trained to look for it in the blood. 2.) It is very easy to miss under the microscope because the teeny tiny black spots are often mistaken for other things. I watched my father-in-law age 20 years in just a few days because we had no idea what was wrong. When my husband contacted the disease we then knew right away. *Squid Angel Blessed* and added to My Squid Angel Blessings 2012 to the "Healthy Living » Family Health" neighborhood.
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sousababy
Nov 12, 2011 @ 6:30 pm | delete
- Oh, I put this in the age group of tween years of my Living Articles lens (since it is important that parents know how to examine and remove ticks from kids). That age, 9 - 12, also is when kids are more apt to be adventurous in the outdoors (less supervised) and get bitten . . the sooner this is caught, the better. Thank you once again.
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wheresthekarma
Nov 12, 2011 @ 6:33 pm | delete
- Thank you so much! I really appreciate it!! I am going to post some of your lenses tonight on my facebook. I have a support group of over 2,500 lymies and we all are on special diets and always looking for good recipes!!!
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sousababy
Nov 12, 2011 @ 6:20 pm | delete
- Came back to google +1 this very important lens.
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Misdiagnosis
If you have ever been diagnosed with any of these, you may want to consider Lyme Disease.
Since Lyme tests are so inaccurate, it is really common for people with Lyme to get misdiagnosed with other diseases, or with names that sound like diseases but are really just a fancy name for a group of symptoms. Some people are scared to ask their doctors what exactly is causing their symptoms. You should really consider Lyme testing if you have been diagnosed with any of these.Possible Misdiagnosis
MSFibromyalgia
Chronic Fatigue Syndrome
Parkinsons
Depression
Panic Disorder
Manchausens
Ring Worm
Lupus
ALS (Lou Gehrig's Disease
Lyme Quiz
These are the books that helped me understand Lyme the most.
I'll give a brief description of what each one is about and why I am recommending them.

The Lyme Diet:
Nutritional Strategies for Healing from Lyme Disease


I recommend Cure Unknown because Pamela, was a medical researcher/writer turned Lyme Patient. She was very unbiased and did a great job on explaining the history of Lyme and why doctors are so scared to treat it. It's a great book from a science standpoint AND from the patient's view.

Cure Unknown:
Inside the Lyme Epidemic


This was the second book I read on Lyme Disease and it is still on the top three list. Again, I believe that diet, vitamins and minerals are the answers to controlling symptoms and giving your body the best defense it has to fighting these infections.

Healing Lyme:
Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections


PJ Langhoff is a personal friend of mine, she has Lyme herself and is also a medical researcher/writer and was involved in the investigation against the IDSA. She has inside knowledge and has dedicated her life to helping those with Lyme.

God Science:
The Secret World of Rampant Genetics, Hidden Illness, and Biotech Profiteering


Learn More About Lyme
Check these lenses out!
Imagine
A Video For Adults from Kids with Lyme Disease
Guestbook Comments
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Ladymermaid
Apr 26, 2012 @ 10:20 am | delete
- The very best of wishes for your health.
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Annamadagan
Apr 1, 2012 @ 5:43 pm | delete
- Wow this is scary. I hate ticks!
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Frankster Mar 31, 2012 @ 1:18 pm | delete
- I just had a friend remove a tick from his leg and had the bullseye and huge circles around it. He went in about 12 hours after he figured he got it. The doctors told him that it takes 72 hours to get Lymes disease so that he caught it in time and gave him some antibiotics. Does that sound right? Bear hugs, Frankster
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wheresthekarma
Mar 31, 2012 @ 1:27 pm | delete
- NO, he needs to seek out a "lyme literate" physician. This is what is sooo frustrating. THere is no evidence whatsoever that a tick has to be on you a certain amount of time first of all. Secondly, once you have the bull's eye rash that is 100% diagnositic of Lyme Disease. And he will need a long antibiotic treatment. Please let him know how important it is to make sure he is on proper treatment before he turns out chronic like me! Please send him this link to learn more at the International Lyme and Associated Disease Foundation http://www.ilads.org/. This is a foundation that studies only tick borne diseases.
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NYC-Info
Mar 29, 2012 @ 3:10 am | delete
- This is all too common and yet still unknown. People tend to not appreciate how dangerous this disease is. The worst part is that you can be bitten by a tick and not even know it. I knew I always thought that lyme disease and ticks was not a problem. I have been in the woods countless times and never encountered a tick and I am located near the epicenter of the problem.
Then I came in from the woods and later that evening noticed a tick attached to my leg. I was unable to remove it with a tweezer and had to cut it off with a blade. I was lucky and never developed symptoms but now I take extra precautions and always check immediately for ticks. Thank you for all of your lenses on the subject.
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puppyprints
Mar 28, 2012 @ 7:38 am | delete
- Great information.... Lyme is a scary disease
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by wheresthekarma
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