AN INTRODUCION TO DOWN SYNDROME
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Down Syndrome - An Introduction
When you hear that your child has down syndrome you probably experience the following emotions: fear, confusion, anger, bewilderment, numbness.
All of them are very real and understandable and this site is specifically set up to help you make sense of what has just happened and to give you hope.
All of them are very real and understandable and this site is specifically set up to help you make sense of what has just happened and to give you hope.
IN VERY BROAD TERMS
the science bit
Down syndrome is a chromosomal abnormality characterized by the presence of an extra copy of genetic material on the 21st chromosome, either in whole (trisomy 21) or part (such as due to translocations). The effects of the extra copy vary greatly among people, depending on the extent of the extra copy, genetic history, and pure chance. Join Our Support Group
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Down Syndrome - Rise in Number of Births
- BBC - Health - Conditions - Down's syndrome
- A guide to Down's syndrome, facts about the condition and where to go for support.
DOWN SYNDROME SLIDE SHOW
Practically
what does it mean
Down syndrome used to be poorly understood and as little as 50 years ago many children with Down Syndrome were locked away out of sight. It is only in the last 20 years that society has become better educated about Down Syndrome and with education comes understanding.
Years ago many children with Down Syndrome would not have made it to their first birthday due to the very common heart problems they experience. Today, the situation is very much better and most children not only have a good life they make a valued contribution to society.
This site does not seek to give answers to any problems but seeks to continue the educational process started many years ago.
Rather than load up the site with loads of information we have provided subsidiary pages where more specific information can be found. These multiple sites are listed below with a brief overview of each area.
Years ago many children with Down Syndrome would not have made it to their first birthday due to the very common heart problems they experience. Today, the situation is very much better and most children not only have a good life they make a valued contribution to society.
This site does not seek to give answers to any problems but seeks to continue the educational process started many years ago.
Rather than load up the site with loads of information we have provided subsidiary pages where more specific information can be found. These multiple sites are listed below with a brief overview of each area.
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Futher Information Sources
that we trust
- This is Our Story
- This is a site about our story and is growing day by day and year by year.
- BIBIC - British Institute for Brain Injured Children
- Whatever the cause of a child's learning difficulties the effects are still profound. Working with parents and carers, bibic offers a valuable support system which offers time to talk, expert advice and practical help.
Following an inter-disciplinary assessment, we produce tailored programmes to improve the quality of life for the child and family. Parents are then taught how to take an active role in their child's development by implementing these programmes at home.
Progress is carefully monitored and programmes are adjusted as and when necessary.
For further details please fill in the enquiry form and we will send you full details of our services. - specialreadsforspecialneedsincludingdownsyndrome
- This site deals with how to help children to read. It is well worth your time to have a look and read all about how children with down syndrome are being helped to read.
- disabilities allowance
- Find out what you are entitled too
- speach therapy
- information on speech therapy
- Tower.com: Fine Motor Skills in Children With Down Syndrome ...
- Fine%20Motor%20Skills%20in%20Children%. Fine Motor Skills in Children With Down Syndrome (Paperback) .... Andy Palacio World Music Special Tribute Page ...
Other Down Syndrome Sites
google blog search
- Ruling will allow 19-year-old with Down syndrome to play high school sports
- Dompierre is supporting an age-limit waiver that would allow his son with Down syndrome to play football and basketball next season. Dompierre turned 19 earlier this school year and would need the Michigan High School Athletic Association to rewrite ...
- Man kicked woman with Down syndrome in the head, prosecutors say
- A man who was allegedly caught on video kicking his housemate, a woman with Down syndrome, in the head is expected to appear in court Wednesday after being charged with one felony count of dependent adult abuse. Prosecutors say that in at least one ...
- Down's Syndrome gymnast from Widnes carries Olympic Torch in Haverfordwest
- Down's Syndrome gymnast Omar Haddad, 23, of Downside, struck gold in the floor, rings, parallel bars, horizontal bar and all-round disciplines, in the Special Olympics in Athens earlier this year. He was one of 10 Special Olympics athletes selected to ...
- Delco UP Festival benefits Down syndrome community
- As a special treat this year, the entertainment will begin at 1 pm with a performance of the Media Theater State Street Miracles, a performance troupe of young adults with intellectual disabilities, including several who have Down syndrome.
Share your down syndrome experience with us
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KaraLynnRussell
Jul 26, 2009 @ 9:59 pm | delete
- Great lens with lots of great resources. I'd like to recommend one more:
Teaching Children with Down Syndrome about their Bodies, Boundaries and Sexuality by Terri Couwenhoven. I have heard the author speak and my daughter and I participated in one of her puberty workshops as well. This is a difficult topic that is often overlooked. But it is important for all children and teens to learn about their bodies.
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herbie66
Dec 14, 2008 @ 8:30 am | delete
- Welcome to the 'Pregnancy and Baby' Group
( http://www.squidoo.com/groups/pregnancy-baby )
5 stars for your great lens!
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by hazelshealthmatters
My name is Hazel, I am a married mother of 4 children ages from 18 to 12. I have two girls and 2 boys. Our youngest daughter has down syndrome, which is... more »
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