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From the lens Down's Syndrome Blogs.

  • leighsedwards May 28, 2012 @ 11:45 am | delete
    Hi! Thank you for creating this list! I'm going to reference it in my blog as a resource for other parents if you don't mind. I'm a mom to a beautiful little girl with DS. Can you please add my blog to your list? adasperdown.blogspot.com
  • megansaenz May 22, 2012 @ 10:20 pm | delete
    Help!!!!! My son with Down syndrome is 6. I can't seem to get him fully potty trained. He has the idea and will sometimes pee in the toilet but has never gone poo poo in the toilet. Sometimes he will go poo in the bathtub. Sometimes when he pees, he will only pee a little bit. Then I tell him to finish in the hope that he will. He would be so much easier to care for if only he were potty trained. I give him a lot of praise when he does go. He likes to flush the toilet. He tries to sit on the toilet so he can watch himselff go pee but then he puts his butt in the bowl. I'm going to try and take him every half hour during summer vacation. I love the little guy but I really want him to be potty trained. He is extremely active so he has to be watched every minute. Does anyone have any suggestions? Thanks!
  • Dreambig60 May 23, 2012 @ 9:10 am | delete
    A consistent schedule is key! Here's something we do that really helps. Whole my son is sitting on the toilet, we fill a large cup with warm water. While a small stream of water runs in the sink (the noise helps sometimes) we slowly pour the warm water over his penis. Sounds strange but it works every time!! If he has to go, he goes!! Then we praise and reinforce his success. He is staying dry so much more now. BTW, I've heard if a child has low tone (our son is extremely low tone) they don't always feel the sensation to go! Good luck!!
  • rheanna-plemons May 20, 2012 @ 9:06 pm | delete
    I have a six year old with Down syndrome. Our blog is called "The Prince and Me" and is located at http://rheanna.plemons.blog.wku.edu

    Thanks for creating the list!
  • Atreyusmommy Apr 29, 2012 @ 6:07 pm | delete
    What a great lens with a lot of great blogs! I am going to add you to my list of favorite featured lenses on the lens that I am currently working on. I am trying to create a virtual circle of support for parents with special needs children. Thank you for sharing!
  • kimayres Apr 30, 2012 @ 3:33 am | delete
    Thank you for your support and kind words :)
  • kkstrite Mar 25, 2012 @ 5:12 pm | delete
    Our blog is about the adventure of life with 4 guys and a lady and down syndrome at 4-guys.blogspot.com
  • vicvila3 Mar 24, 2012 @ 8:09 am | delete
    Hello! Thank you so much for doing this, it is much appreciated. I blog about my son with Down syndrome, his twin sister, and his big sister at
    www.modernmessy.wordpress.com
  • teamdavidlund Jan 7, 2012 @ 12:41 pm | delete
    I blog about my 20 month old son with down syndrome, www.teamdavidlund.blogspot.com
  • herman1234 Dec 14, 2011 @ 9:42 am | delete
    OMG thanks everyone....I have 558 reads in 2 days. Lets be the change we want to see in this world. Together with our Special children at our side we really can make a difference!
    glitterontheside.blogspot.com
  • herman1234 Dec 13, 2011 @ 11:22 am | delete
    I truly believe that we can come together and make the change we want to see in this world! Began a new DS blog! Please support!!! www.glitterontheside.blogspot.com
  • Justylou Nov 24, 2011 @ 9:08 pm | delete
    I would love to add our blog. www,lovelifeandbegentle.blogspot.com.

    Thank you.
  • romojanet Nov 3, 2011 @ 9:13 pm | delete
    I am a teacher and parent of a child with DS. I would be honored if you would list my blog. www.downsyndrome101.com Thanks, Janet
  • CeliaUCLAEX Oct 26, 2011 @ 1:17 pm | delete
    UCLA Extension's Pathway program is hosting a FREE informational live video chat on Nov. 16th at 2 p.m. for young adults 18-25 with down syndrome, autism, and aspergers. We will discuss what's next after high school, independent living, meaningful employment, and much more.

    We would love for you to join us. For more information, please go to our event page: http://uclaexlivechat.eventbrite.com/.

    To submit questions in advance, email livechat@uclaextension.edu.

    We'd appreciate any help in spreading the word. We want to hear from mothers, teachers, and advocates who want more insight on how to better the lives of their loved ones.
  • boostershotcaregiver Oct 5, 2011 @ 2:48 pm | delete
    I have a friend with Down's who would like to create a blog for herself. Do you have any pointers as to how to begin?
  • kimayres Oct 5, 2011 @ 2:55 pm | delete
    There's no right or wrong way to blog - you just do it. Some people blog about their day-to-day activities, others about their work, or their hobbies, or their passions. Some write reviews, some post videos, some track events. Some people post every day, others once a week.

    Most blogs change over time - they start with one idea in mind and then evolve. Really it just comes down to making a start and doing it. Fairly soon you will find what's working and what isn't.

    All I can really advise is to just go for it :)
  • NoahsDad Sep 18, 2011 @ 11:34 pm | delete
    Hi, we do a daily one minute video about our son who was born with Down syndrome on http://noahsdad.com/ we also have a great Facebook page (http://facebook.com/noahsdadcom/) My wife is a pediatrician, and writes great information I'm sure your readers would enjoy. I'd appreciate being added to this page. Thanks!

    -Rick
    (Noah's Dad)
  • mdbeau Sep 5, 2011 @ 5:47 pm | delete
    I'd be honored if you would include my blog in this great list! It's Big Blueberry Eyes at http://mdbeau.blogspot.com Thanks!
  • kimayres Sep 5, 2011 @ 7:10 pm | delete
    Your blog looks familiar - I'm surprised it wasn't already on here. However, that's now been rectified! Welcome aboard :)
  • elizabeth-patalanobobb May 14, 2012 @ 6:37 pm | delete
    I blog about my family and my daughter who has DS http://myhandsandheartarefull.blogspot.com/
  • vallain Aug 15, 2011 @ 9:25 am | delete
    Straight to the point! You've provided lots of useful places for parents without making them wade through lots of frills and ads. Blessed by a squid angel and featured on You've Been Blessed.
  • kimayres Aug 15, 2011 @ 1:24 pm | delete
    Thank you for the blessing :)
  • indigo_21 Aug 12, 2011 @ 6:11 pm | delete
    Just browsing here. On 25 October 1989 I had my second child Sam who has Down's. I remember everyone feeling sorry for me and my husband that we hadn't got a normal child. Maybe we should try for another child and maybe we would have a son. He's 21 now. Works and goes to college. Raises money for charities (not learning disability). He has a vast and varied social life. He's well travelled all over the world and has represented his school in South African townships forging links with schools there. Plays sport, loves singing, dancing and acting. He can talk at length on a variety of subjects including current affairs and the state of the world. He is compassionate, kind and the funniest person I have ever met. Having watched the riots across my country (England) over the last few days I was just having a thought. Was it me that had the abnormal chlld on that October day in 1989? Mmmmmm...........
  • kimayres Aug 15, 2011 @ 1:27 pm | delete
    It reminds me of one parent who once said, "well at least I know my child is less likely to become a crack dealer or a politician..." :)
  • readermark Aug 9, 2011 @ 1:26 pm | delete
    Anyone who has a child with Down syndrome knows that there are many ups and downs - hopefully more ups! Our daughter with Down has enriched our lives in ways we probably don't even recognize yet. She is 38 and very capable and independent. We are so proud of her, and we love her so much. We know that everyone who meets her receives a gift! Thank you for your blog, for listing the other DS blogs, and for being a frank and honest man.
  • PermissionSlips Aug 2, 2011 @ 9:37 am | delete
    When my older sister was born with DS, her life expectancy as about 35. She is now 54 years old, living quasi-independently, working part-time and still enriching the lives of all those around her. See my recent blog post about Jean: http://permissionslips.wordpress.com/2011/08/01/my-sister-my-friend-myself/
  • psychojenic Jul 26, 2011 @ 4:51 am | delete
    Hello,

    I have started a blog for my Down Syndrome related entries.
    http://downwitdat.blogspot.com/
    I am the mother of three beautiful children: a boy and a set of boy-girl twins... one of which just happens to have an extra chromosome.
  • bames24 Jun 7, 2011 @ 7:18 am | delete
    thanks for sharing... sometimes parent really feel overwhelmed and reading blogs like you have named in your lens help a lot
  • seansmom May 13, 2011 @ 12:28 pm | delete
    I have a 13-year-old son with DS. I've started a blog about the teen years and transitions. It is a little different from most DS blogs though, because, rather than a diary format, it is set up as a source of information on different topics. I hope readers will add to it through the comments section. You'll find it at thirteenandcounting.org
    Thanks!
  • Jennifer515 Apr 26, 2011 @ 8:53 pm | delete
    I have a 9 week old daughter who was diagnosed with DS at birth. I've started a blog to share our journey.

    Life As We Know It - http://lifeasweknowit-jenniferm.blogspot.com/
  • myfive Apr 16, 2011 @ 12:31 am | delete
    Any parents & siblings out there willing to share life experience w/a child/teen/adult w/down syndrome please help! I'm researching down syndrome and have found lots on health challenges, but I want to know how daily living is different/more challenging w/a family member w/DS. Is is mainly the stigma that society places on you that is hardest or is it dealing with health or behavior challenges? I want to understand if so many women are tx just because they want a "perfect" child and are afraid of the unknown, or if there are other huge issues that cause people to choose tx. Any info positive or negative stories/info would be helpful. I'd like to know/understand as much as possible before becoming pregnant since I am older and know I couldn't tx if my baby had DS. I'd like to know if I could be a good parent to a child w/this condition since it's likely my child could have DS. I know these kids & babies are adorable, but want to know what the future holds. Is it bright for every person w/DS or just some? Thank you so much for the into/help!
  • kimayres Apr 18, 2011 @ 6:27 am | delete
    Children with DS are as individual as children without. Personally, I would recommend you get pregnant if you wish to, and enjoy and love the child you have regardless of whether they have DS or not. For my experiences with my daughter having DS, please click on the link about entries on my own blog, in my intro to this lens. From them you will find other links too. What I would say is, it's not half as scary as you fear it will be :)
  • NoahsDad Sep 18, 2011 @ 11:39 pm | delete
    I agree! :)
  • Dreambig60 Mar 25, 2011 @ 7:03 pm | delete
    Life with a special needs child can be more challenging, but also rewarding in so many ways. I hope to inspire and encourage other parents and those who support families of children with disabilities. If you get a chance, please stop by for a visit http://josiahsjourney-blessedwith5.blogspot.com/
  • rickkos Mar 2, 2011 @ 6:09 pm | delete
    A couple of my favorite sites are:
    www.particularlyperfect.com
    www.downsyndromedaily.com
  • kimayres Mar 3, 2011 @ 6:59 pm | delete
    I have only added Particularly Perfect to the list, as that one is more obviously a parent's blog rather than a general info one, which Down Syndrome Daily appears to be
  • LifesLittleSurprises Jan 16, 2011 @ 7:18 pm | delete
    http://shannonblaeske.blogspot.com/ - Lifes Little Surprises. Sharing my journey through motherhood of my twin 2 year olds and my 5 month old princess who has designer genes. Helping to shed light into the wonder and even normalcy of having a different, not quiet the way you planned, life.
  • HSSchulte Jan 12, 2011 @ 3:29 pm | delete
    Thanks for the excellent lens. ~Angel blessings~
  • mom247 Dec 4, 2010 @ 5:41 pm | delete
    Hi there,

    Can I also suggest http://www.kellehampton.com/ It isn't my blog, but I read it constantly and it has the most beautiful birth story ever. I know that this lady has had a lot of national recognition lately for writing such a moving blog about her life with a child with Down Syndrome.
    Thank you for this list.
  • appletcm Nov 26, 2010 @ 11:50 am | delete
    It is my prayer that my blog will encourage other persons and parents as we train and teach my 5yo daughter, Li-Ann, who had been diagnosed with DS. Check it out! Thanks!

    Apple

    I Can Do It!

    http://icandoitmama.wordpress.com/
  • teal915 Nov 4, 2010 @ 11:21 pm | delete
    I have a 6 month old with Down syndrome. Her name is Kamdyn. I've been writing our journey with her as well as our other children here http://teal915.blogspot.com/
  • HSSchulte Oct 24, 2010 @ 5:10 pm | delete
    Would you be so kind as to add my blog "Parenting a Child with Down Syndrome?" Thanks!
    http://parentingachildwithdownsyndrome.blogspot.com/
  • ayanismommy Oct 13, 2010 @ 1:40 pm | delete
    Hello,

    Great Site. Can you add my blog that I created for my youngest daughter who was diagnosed with Down Syndrome. Thanks in advance.

    Blog: A'yani's Journey

    url: www.ayanisjourney.com

    Please feel free to visit and subscribe everyone!!!
  • katimj Sep 12, 2010 @ 12:54 pm | delete
    I've been writing about the adventures of my 5-year-old daughter with Ds. Check it out!

    http://evaclairessunnydays.blogspot.com/ Eva Claire's Sunny Days

    Thanks!
  • KatyJoan Sep 4, 2010 @ 9:00 pm | delete
    I have 3 children, and my youngest (5 months) was diagnosed with DS in June. Could you add my blog to the list?

    http://diaryofazookeeper.blogspot.com

    Thanks!!
  • heidimarie27 May 22, 2010 @ 10:22 am | delete
    our site henry's mommie has changed over to http://mylittlecheekymonkeys.blogspot.com/. please update if you get a chance. thanks so much!!!
  • kelbi Apr 11, 2010 @ 9:34 pm | delete
    fiveflemingroversandadog@blogspot.com five fleming rovers and a dog

    love to share
  • atypicaldad Apr 7, 2010 @ 2:56 pm | delete
    Wow. So many people are writing about their DS kids. So are we!
    atypicalson.com
  • katie50 Mar 22, 2010 @ 5:01 am | delete
    Hi, great list of blogs! Can you add mine http://blog.thiswayup.org ? I've also got a website at www.thiswayup.org
    Many thanks
  • juliekgould Mar 16, 2010 @ 10:50 pm | delete
    What a geat group of blogs to look into...thank you fo putting this together. I would love to have my blog added to your list!

    http://ourspeciallifewithneeds.blogspot.com/

    I have a 18 month old son Jake with Down Syndrome!!
  • Dragon73 Feb 5, 2010 @ 8:38 pm | delete
    Hi there,
    We too have a baby with Ds and have created a blog to share with the world. We would be grateful if you could add us to your list! We are at:
    http://welcometoourhouse-myjournal.blogspot.com/
    Please add us!
    Sandi
  • 1virginia Feb 10, 2010 @ 10:15 pm | delete
    Hi Sandi my name is Virginia and im in 12 grade im doing my senior project in Down Syndrome kids. I need to interview 2 parents that have a child with DS either by person or E-mail. So if you could please e -mail me.

    Thankyou.
  • Dragon73 Feb 16, 2010 @ 2:54 am | delete
    Hi Virginia, Sorry! I just noticed your post today. You can email me anytime and we can go from there! tkd73@sympatico.ca
  • Dragon73 Feb 16, 2010 @ 2:57 am | delete
    I tried to find your email, but I was unsuccessful. If you can email me, I would be happy to help you. tkd73@sympatico.ca (Sandi)
  • JoycePage Jan 25, 2010 @ 5:10 pm | delete
    Hi great site. Can you add mine? http://joycespage.downsyndrome.com called Becky's Next Page
  • PeterKacz Jan 4, 2010 @ 10:50 am | delete
    Hi I see lots of my friends on your list add me too! http://ourdailysmiles.blogspot.com/
  • sabrinaforte Sep 15, 2009 @ 3:59 am | delete
    Hi,
    I'm a mum of a four year old boy with Down syndrome living in Sydney, Australia. I have just started blogging and would love to join your list.

    http://amumslife-withtrisomy21.blogspot.com/

    Regards,
    Sabrina
  • starrlife Sep 13, 2009 @ 2:46 pm | delete
    I am here! I am here! http://starrlife.wordpress.com/
    aka Life Decanted
  • monkeyandbuddy Sep 2, 2009 @ 1:11 pm | delete
    I am a new blogger and would love to share with you. I write about my daughter and son with Down syndrome.

    http://monkeyandbuddy.blogspot.com
  • heidimarie Jul 31, 2009 @ 2:46 pm | delete
    would love to be added to the list!!! my site is http://henrysmommie.blogspot.com/

    thanks,

    henry's mommie
  • KaraLynnRussell Jul 26, 2009 @ 9:47 pm | delete
    I am the mother of four children, one of whom has Downs syndrome. All of my children have been precious gifts. My family has been fortunate in that we have had mostly positive reactions to our "special needs" child. Earlier this year, the daughter of an acquaintance gave birth to a beautiful little girl who has Down syndrome. My acquaintance said her daughter's friends openly told her she should have had an abortion. I was shocked to hear that kind of reaction in this day and age. Thank you for this lens and the contacts listed here. I will pass them along.
  • Marian1 Jun 23, 2009 @ 11:15 pm | delete
    I just stumbled across your blog. It's great!
    Please add me to your list, as I am a new mom with a son who had trisomy 21. I'm new to all of this and I like the positivity of your site:)
    I just started my site so I only have a few posts, but here is the link
    http://bib-babble.blogspot.com/
    Thanks, M
  • Irene2 Mar 22, 2010 @ 11:55 pm | delete
    The communication is very important for parents of children with downs syndrome, it can give the feelling they are not alone.
    This is not a blog, but maybe it'll be also usefull: http://www.childwiki.com/index.php/Down_Syndrome
  • CeliaUCLAEX Nov 4, 2011 @ 11:02 am | delete
    Hi Marian,

    UCLA Extension's Pathway program is hosting a FREE informational live video chat on Nov. 16th at 2 pm PST for young adults 18-25 with down syndrome, autism, aspergers and other intellectual disabilities. We will discuss what's next after high school, independent living, meaningful employment, and much more.

    We would love for you to join us. Please go to our event page: http://uclaexlivechat.eventbrite.com/.

    To submit questions in advance, email livechat@uclaextension.edu.

    Thanks!
    Celia

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kimayres

When I was a teenager I used to fantasize about having my own pair of breasts to play with. Now, as an overweight, middle-aged man, I seem to have them... more »

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