Down Syndrome Support

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Down Syndrome Support

Little is known, about the effects on families who have a child born with down syndrome. Unless you are a parent with a child with down syndrome, you don't know. You cannot understand the upset, pain that parents go through when they learn there child has down syndrome, and will never achieve what they had hoped for the child. It a new way of life for the parents, how they are going to cope, what does the future hold, is my child going to be so dependent on me all my life!
We going to look into the support that is available and how you can get help as a new parents with a child with down syndrome

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CARING FOR A BABY WHO HAS DOWN SYNDROME

A little about the effects, diagnosed and physical signs

I think most who read this, know that down syndrome is a genetic disorder,that causes mental retardation and physical defects. Mothers can be tested for babies with down syndrome before birth, these test are called aminiocentesis and choirionic villus sampling. They take a sample of fluid from the womb to check. After birth if there is a concern that the baby could be down syndrome the baby's blood can be checked for the extra chromosome.
The physical signs which are mentioned will not effect the baby health, like small head,upward slanting eyes, flattened facial features, broad hands,short fingers, curved fingers, small ears.
Other birth defects cause more serious problems. Babies with down syndrome more often and not have poor muscle tone, some have problems with heart defects and often have to have a heart operation in the first three years of their life. Others can have problems with stomach and eyes.
Intelligence ranges from low, normal to very low, (a child with down syndrome can be very slow to learn) which can make learning and development more difficult.

Sources Of Support For Parents

Down's Syndrome Association - Help for people with Down's Syndrome
Down's Syndrome Association - Helping people with Down's syndrome to live full and rewarding lives
Down's Syndrome Scotland
this is a ds scotland support group
Down's Syndrome Association - London Branch - UK
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www.ds-liverpool.org.uk
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www.ds-liverpool.org.uk
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BADSS - Bristol Area Downs Syndrome Support 2
Bristol Area Downs Syndrome Support
Down Syndrome Centre
Read global news & developments relating to Down syndrome
down syndrome association
down syndrome association
helping children with special needs to read
great site to help children with learning difficulties to learn to read
HELPING CHILDREN LEAD A BETTER LIFE STYLE
I have found great help from my child attending bibic on a regular basis. look at the website to find out more.
healthy lifestyle
visit this website to find out more about a little girl life with down syndrome

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Reader Feedback

  • Apr 15, 2009 @ 10:41 am | delete
    I would like to say...the wonderful, helpful knowledge available now, will help parents raise and create the best atmosphere for their babies with DS. My son Eli, born 32 years ago, was not so lucky. There was no internet, books or other parents for me to ask help from. I was young, 20 years old, but determined to raise him to his full potential! I kept journals for the first 22 years of his life. He was unique, and eventually developed autism, catatonia and bi-polar disorder. I published the un-edited journals in Feb. 2008, in hopes to help other parents. Raising Eli has given me strength, compassion and strong will. To fight for him, to encourage him, to speak for him.
    What a wonderful new world for the babies now, and your sight offers so much. Even now, 32 years later, I still seek any information to help him as he ages. Thanks, Carol
    http://stores.lulu.com/store.php?fAcctID=912333
  • Mar 29, 2009 @ 8:19 pm | delete
    So wonderful to have information for new parents.
    Thirty two years ago, when my son was born with DS, there was nothing. No internet, no other parents, no books!
    Even now I search for information to help him even though he is older now.
    Thank you, Carol

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hazelshealthmatters

My name is Hazel, I am a married mother of 4 children ages from 18 to 12. I have two girls and 2 boys. Our youngest daughter has down syndrome, which is... more »

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