There is an illness sweeping this nation, and others. It is an odd and strange experience that will make you question reality and your own sanity. The symptoms associated with this illness are unlike any normal ailments you've been prepared for or warned of. You will know if it happens to you, immediately. We have grown within the capsule of our own human body since birth. A lot like your personal automobile, when a strange sound or feeling occurs, you know something is wrong, different, broken or malfunctioning. Similarly, the change in your body and the feeling of this 'unknown' running through your  system is unmistakable (your check engine light will alert you!).  

When the symptoms of Morgellons are brought to the attention of a medical professional they seem to want us to believe that it simply 'does not exist'.  This could be due to the fact that they don't know what it is either. It doesn't help that it defies all logic and is unlike anything we have ever see before and it's symptoms are so strange that it becomes terrifying and unimaginable. It is actually optically observable with a hand-held microscope ($10. at Radio Shack), a simple magnifying glass or sometimes.. the naked eye.

When doctors do not know what the problem is or how to help us, they seem to follow the same protocol, "ignore it or say it's all in their head". One would think that a professional who is dedicated to saving humans from illness might show a little interest or a bit of curiosity. That is rarely the case here. It might show us that they do not have all the answers, there just isn't a book definition for "I don't know" in the medical world. If there is no diagnosis, there's no paycheck. Also, for those who do get involved professionally, it can be a career suicide. A definate alteration in reputation can be expected.

Currently this subject remains a great controversy, eventhough it has broadcast on most major news shows. The subject has also published in most major newspapers and made it's way into specialized publications around the world. Finally, the CDC (Center for Disease Control) has initiated an investigation and has begun the recognition of the formerly ignored medical mystery. One that may lead to the admittance of the realization that it could already be an epidemic. 

There are a lot of reasons why skin itches. Search the online Merck Manual, the doctor's bible, for "itch or itching," and more than 500 conditions pop up. According to Wrongdiagnosis.com, a clearinghouse of medical information on the Web culled from existing medical literature, there are 703 conditions that can make the skin itch, including diabetes, anemia and iron deficiency, in addition to common disorders such as allergies, viruses such as chicken pox and insect bites. "Swimmer's itch" is the result of an allergic reaction to the larvae of freshwater snails. New research has found that too much calcium in the blood can make the skin itch and that some dental sealants used for fillings can trigger intense itching. Additionally, the site lists 1,742 medications that can cause itching. Those include legal substances such as aspirin, Advil, penicillin and codeine, as well as illegal ones such as cocaine and heroin. "Coke mites" is what the cocaine-induced itching is commonly called, though there are no actual bugs associated with it. Drug or alcohol withdrawal can also cause intense itching. As can the power of suggestion.

And the skin itself is a virtual hothouse of potential infection. Researchers have found that our skin is host to at least 182 species of bacteria, many previously unknown.

So, would it be outside the realm of possibility that these fibers, rather than being delusions, could be something medicine has not seen before? Western medicine has been guilty of closed-mindedness in the past. There is even a name for it: the Semmelweis Reflex, the immediate dismissal of new scientific information without thought or examination. It was named for a 19th-century Hungarian physician who was roundly vilified by his colleagues when he asserted that the often fatal childbed fever could be wiped out if doctors washed their hands in a chlorine solution. He was right. The same knee-jerk rejection of a new idea was true for the bacteria H. pylori, which doctors, researchers and scientists refused to believe was the source of stomach ulcers until the doctor who'd made the connection swallowed some himself to prove it.

And could some diseases, rather than being all in the head, involve both mind and body? Medical researchers are beginning to study the potential link between schizophrenia, a disease of the mind, and exposure to infection in the womb. At the Mayo Clinic in Rochester, Minn., doctors are beginning to discover how imprecise a diagnosis of "delusions of parasitosis" can be. In the past five years, 175 people have been admitted to the clinic with that diagnosis. After thorough evaluations, however, with doctors taking the time to search for underlying problems, only half of those patients left the clinic with that diagnosis intact. Doctors found a very real cause of the itching in the other half. The Mayo Clinic is the only other organization in mainstream medicine, outside of the CDC, to include information about Morgellons in its list of human illnesses.


Wahington Post link to entire story

Click To Go To Video

Morgellons MD Link Here

Some Signs and Symptoms that You May Have Morgellons

1. Skin lesions which stump dermatologists or are simply blamed on you "picking at" your skin?
2. Movement sensations on many different body parts on your skin or under the skin that feels like something moving, stinging or biting. These can be on arms, legs, back, shoulders or under your scalp.
3. Unusual skin findings that might appear as fibers, stringy material, insect bites, granular spects of pieces of insect-like parts. Skin texture is abnormal and can show erosions in the skin.
4. Unusual and poorly explianed body pain in your joints, muscles, tendons or connective tissue pain. It can come and go or persist.
5. New headaches which are hard to fully treat and cure.
6. New fatigue which undermines normal functioning.
7. New thinking trouble - memory, task completion, focus and attention are diminished.
8. New restlessness and agitation and mood lability which is often worse when the medical problems mentioned above are worse. Some feel like gasoline is in thier viens.
9. New intestinal troubles like indigestion, reflux, swallowing difficulty, and changes in bowel habits.
10. Joint pain and discomfort

MRF
Morgellons Research Foundation
PO Box 357
Guilderland, NY 12084-0357

August 2008 Newsletter

Topics:
1. Microbiologist's report
2. NIH Undiagnosed Diseases Program update
3. The Doctors show

To MRF Registrants:

Microbiologist's Report:

A microbiologist whose work was funded through a grant from the Morgellons Research Foundation (MRF) has issued a phase one report. The microbiologist was clear that the information provided to the MRF in this report was absolutely preliminary and not conclusive in any way. The microbiologist has submitted a request to the MRF for an additional two phases of this study which we hope to be able to fund in the future. The microbiologist's name has been omitted at their request since they do not wish to be contacted by patients and the media and wish only to do their work.

You can read this phase one report here: Phase One Report

Link To Public Health Alert News

Morgellons illness is not a medical illness, but simply a specific delusion. Simply, this is not credible because 20,000 things can go wrong with the human body. Why then are the 20,000 possible "delusions" all the same in general content?

We do not believe in "diabetes delusions," because we often do extra basic lab testing to catch early diabetes and because we see a cluster of people with the same problems. Just because this Morgellons cluster tends to be restless does not mean they are psychotic-most heart attack patients are restless and are often given an anti-anxiety medication to decrease their fear, which also decreases the oxygen demand on the heart.

Again, if you only do organ failure blood testing you will not find Morgellons abnormalities. Of course, you could also miss cancer, very early diabetes and a heart attack because these do not usually show up on basic simple lab tests. Finally, I have found rare Morgellons advocates who report they know the SINGLE cause of the disorder. Yet I find 15-20 common abnormal findings and Morgellons is not reducible to one thing. Indeed, I usually find about 4-8 causes of their Morgellons, which combine to cause the symptom cluster of Morgellons.

I have a large number of dermatology books, and some show self inflicted skin damage. These images never look like Morgellons' skin damage to me, unless one only looks at very select areas of itching.

Morgellons lesions are complex, diffuse, deep and have many types of skin presentations all at the same time. If there is any "delusion" to be found in Morgellons, it is that it looks like the skin organ itself has become delusional and shows a vast array of pathology all at the same time.

~Go to the above link to read the full text article.~

LINK

Thousands of US Families Suffering, Tens of Thousands Worldwide

On December 5th, 2006, Dr. Edward L. Spencer MD spoke to the Berkeley California Mayor and City Council Members on behalf of the Community Environmental Advisory Commission (CEAC).

HERE IS A TRANSCRIPT OF DR. SPENCER'S COMMENTS:

Honorable Mayor and Berkeley City Council Members:

My name is Edward Spencer MD. I have practiced Neurology in Northern California for more than thirty years. I am speaking tonight on the issue of health and nanotechnology.

A very strange disorder named Morgellons disease is among us, and the world wide number of cases is approaching 20 thousand with major clusters in the Bay Area and Southern California.

There now exists strong data indicating that this disorder is associated with nanotechnology, specifically nano machines in the form of nanofibers. The National Science Foundation (NSF) defines nanofibers as having at least one dimension of 100 nanometer (nm) or less.

So-called Morgellons disorder presents as brain fog, fatigue and other neurological symptoms. It is associated with the presence of tiny fibers protruding from the skin, intense itching, the possible appearance of ulcerative lesions ringed by a raised crater rim, and other strange lesions. The fibers have been widely observed to move.

There is no satisfactory treatment, physicians and dermatologists are unfamiliar with this chronic disabling disorder and tend to ignore it. Patients become labeled as having Delusions of Parasitosis, and this psychiatric diagnosis is stuck to the patients by dermatologists who have not examined the skin under magnification, and who have not completed the extensive evaluation necessary to exclude all parasitic skin disorders before making a psychiatric diagnosis.



Pictures of the fibers are provided in the packet and I will direct your attention to the blue fiber with the gold tip. This was removed from a patient. This fiber did not burn until it has been heated to 1700 degrees F. Compare that with hair, which is easily burned producing a characteristic odor and has a cellular structure. The fibers are shed regularly and some grow to long lengths indicating fiber production in the human body. Dr. Janovy has stated of this blue fiber, 'it has no eukaryotic cells, it has no cell membrane, it is not a parasite, it is not biological, it is a machine.' Web article: Gold Nano Anchors Put Nanowires in Their Place is appended. Also included are microphotographs by Dr. Hildegarde Staninger of a blue Morgellons fiber removed from a patient. Note the similarity of structure.

There is evidence that Morgellons disorder(s) is carried by insect vectors, as some type of bug bite frequently precedes the onset of the disorder(s). The agent(s) producing Morgellons are in the sewer systems.

Also included are photomicrographs of very strange skin lesions. Morgellons appears almost biblical in its characteristics%u2026. like something described in Exodus. Dr Randy Wymore of the University of Oklahoma sent fibers to the FBI. No matching fibers were found in the FBI forensic database. A contact in Naval Intelligence has recommended looking into Smart Dust. (Specks in field arrays).

The National Register of Environmental Professionals has assigned a task force to look into environmental causes behind Morgellons Disorder. I ask the Berkeley City Council to request that the University of California devote its considerable intellectual and technical resources to studying these nanofibers and this disease.

Under the wise guidance of Wall Street and insurance companies, American Medicine has fallen into an amazing state of degeneracy. Medical care is unavailable for many, access is limited for most, and research money is frequently unavailable except from major drug companies. Using technical terms, American Medicine is in the toilet. The response of the CDC has been lethargic to the point of being alarming.

A simple electronic microscope such as you see here allows inspection of the skin at 50x to 400x and allows the clinician to document the existence of fibers. Eyeballs at two feet won't do it, and simple equipment like this should be available in the UC Clinics. And, of course, we need methods of treatment.

click here to view

click here to read "Dermatology" article

Morgellons Disease
New Lab Findings Point To Silicone/Silica
and High Density Polyethlyene Fibers,
Are These Now Being Sprayed On Meats and Vegetables?

It appears, new lab findings using tissue and bone specimens have solved some of the mysteries of Morgellons Disease.

Eighteen specimens, taken from a 57-year-old woman reveal bone, synovium and joint tissue having extensive degenerative fragmentation, roughening and bony formation and underlying extensive degeneration of the bone. Chronic inflammation with fibrosis, calcification of the bone and surrounding soft tissue of the joint shows presence of crystalloid fragments consistent with silicone and silica. Further, a private study to determine the chemical and biological composition of fiber specimens taken from a second woman in Florida has shown that the fiber's outer casing is made up of high density polyethylene (HDPE). The fiber material is used commonly in the manufacture of fiber optics. Click here for New Lab Findings


Texas: Health Authorities Baffled By Mysterious Condition -
http://www.fox11az.com/news/topstories/stories/kmsb-20061005-wfaajc-morgellons.b6607d0.html

Morgellons: Is skin rash real or imagined?-
http://www.gainesvilletimes.com/news/stories/20060820/localnews/118795.shtml

Latest food additive: Viruses: Los Angeles Times
http://www.latimes.com/features/health/la-he-closer28aug28,0,3552892.story?coll=la-home-health

New York Times:
Nanotechnology Viruses Creating Other Diseases?
http://www.nytimes.com/2006/10/10/technology/10nano.html?_r=1&oref=slogin

ON Fox New Channel 10-10-06
Texas: Health Authorities Baffled By Mysterious Condition
http://www.fox11az.com/news/topstories/stories/kmsb-20061005-wfaajc-morgellons.b6607d0.html

HUGE PAPER FROM THE FRANCE RESEARCH COUNCIL
GM Viruses as Biopesticides Being Sprayed on Food in U.S.
http://www.indsp.org/statement.php

Virus Replication http://www-micro.msb.le.ac.uk/3035/3035Replication.html

FDA Approves Spraying Of Viruses On Our Food Supply
http://www.rense.com/general73/virus.htm

A just-christened illness involves disorientation, multi-colored fibers bursting from sores, and the sensation of bugs crawling under the skin. Is this an age-old delusion or a disturbing new disease?

One day in 2003, Mary Leitao plucked a fiber that looked like dandelion fluff from a sore under her 2-year-old son's lip. Three pediatricians, three allergists, two dermatologists, and many misdiagnoses later, she realized she had a problem. Her toddler son, Drew, had developed more sores, with more fibers poking out of them. Sometimes the fibers were white, and sometimes they were black, red, or blue. He also believed that insects were crawling under his skin, something he conveyed, in two-year-old fashion, by pointing to his lips and saying "bugs."

It wasn't eczema, or an allergy that physicians could discern. Something was seriously wrong. But no one believed Leitao. The last doctor she tried to consult, an infectious disease specialist at Johns Hopkins University, not only refused to see her, but based on Drew's growing pile of medical records, suggested it was a case of Munchausen's by proxy, a psychiatric syndrome in which a parent pretends a child is sick or makes him sick to get attention from the medical system.

Frustrated, in March of 2004, Leitao picked a name for what afflicted Drew: Morgellons disease, from an obscure, 17th century French medical article describing an illness, called the morgellons, in which black hairs emerge from the skin. Then she put up a Web site. "I was hoping to hear from scientists or physicians who might understand the problem," she says. Instead, she heard from thousands of others, all describing the sores and fibers and an additional laundry list of neurological symptoms that included brain fog, fatigue, and muscle and joint pain, among others. "That's when I started to realize how big this problem was," says Leitao.



Many of the people who responded to Leitao's Web site-more than 8,000 as of March 2007-are, like Leitao, locked in conflict with doctors who don't believe they or their children are sick. This is not a new illness, say doctors, but a time-honored psychiatric disorder called delusional parasitosis; patients with the rare condition-mostly middle-aged women already anxious and depressed-claim to feel subcutaneous bugs. So-called Morgellons disease is just a variation on that theme. Medical skeptics complain that Leitao's Web site and the evocative name she chose are giving people a framework on which to hang their delusions, thus impeding the true, accepted treatment: antipsychotic drugs.

The debate has grown so heated that the federal Centers for Disease Control and Prevention got involved, and not because they wanted to. They were inundated with calls from irate people who say they have this disorder and want answers. "More typically we get a very credible indication of an emerging problem from an official source," says Dan Rutz, spokesperson for the CDC. "This was driven by lay people and some clinicians who are frustrated and not sure what to do with these folks." The CDC is in the process of assembling a multidisciplinary research team to examine a cluster of patients sometime in 2007.

Until then, the Morgellons mystery continues.

The Mainstream Viewpoint

Because skin symptoms are often the most visible aspect of this disease, dermatologists are usually the first to be consulted. Most have no doubt that what they're seeing is delusional parasitosis. One reason is that Morgellons patients often present them with what they consider to be hallmark evidence: a sample of what's in their skin. Psychiatrists call it "the matchbox sign," a reference to the little containers in which the samples are typically stored. (Some doctors now call it the Ziploc sign.) Morgellons patients often show up in the doctors' offices carrying Ziplocs full of fibers; dermatologists say they are simply fibers from clothing, embedded in self-imposed sores, whereupon they promptly offer a prescription for antipsychotic medication. Rarely, complain the patients, is their skin examined first. "You think you're bringing them evidence, but you're really just shooting yourself in the foot," says Leitao. "It just closes the door."

Psychology Today Magazine, Mar/Apr 2007
Last Reviewed 15 Nov 2007
Article ID: 4273

Part of the problem seems to be that like the AIDS virus, Morgellons has no cell membrane surrounding it, so standard methods of interfering with viral reproduction by attacking its ability form an enclosing cell membrane don't work. The lack of a cell membrane also make it much harder to see, even under the most powerful microscopes, so proper diagnosis is pretty much impossible for the average dermatologist who has little choice but to call it delusional in nature. Finally, my understanding is that diagnosis as anythying BUT delusional paracitosis without access to electron microscopic evidence, and then treating it as anything else opens the medical professional to all sorts of problems including malpractice, negative peer review including the loss of medical license, and severe governmental backlash which should NOT be the case if the government would allow open investication and really can't be proven to have engineered this and similar illnesses with the help of Merc since the mid 1940's in its biological weapons creation research programs.

Posted by David Curtis on July 05, 2008 at 02:06 PM PDT #

VIEW "PSYCHIATRIC NEWS" ARTICLE

1. Shifting visual acuity. Unexplained frequent need to change glasses prescription.

2. Numerous neurological symptoms and clinical findings. A variety of neurological symptoms and signs have been reported. Common physical findings include abnormal Romberg, peripheral neuropathy (feet and fingers), abnormal reflexes, verifiable neuropathic pain and recurrent brain control abnormalities affecting motor function, circadian rhythm, body temperature and respiratory drive.

3. Gastrointestinal symptoms, often including dyspepsia, gastroesophageal reflux, swallowing difficulty, and changes in bowel habits (Similar to IBS or Crohn's disease)

4. Acute changes in skin texture and pigment. The skin is variously thickened and thinned, with irregular texture and hyperpigmentation pattern. Overgrowth or hyper-growth phenomena are common (nevi, skin tags, microangioma, lipomas, callus formation).

5. Arthralgias. Frequently reported, although arthritis is not. Common joints are in fingers, shoulders, knees and lower vertebrae.

To view entire Disease or Delusion article

Morgellons (also called Morgellons disease or Morgellons syndrome) is a name given in 2002 by Mary Leitao[1] to a proposed infectious condition characterized by a range of cutaneous (skin) symptoms including crawling, biting, and stinging sensations; finding fibers on or under the skin; and persistent skin lesions (e.g., rashes or sores). Current scientific consensus holds that Morgellons is not a new disorder and is instead a new and misleading name for known illnesses. Most doctors, including dermatologists and psychiatrists, regard Morgellons as a manifestation of known medical conditions, including delusional parasitosis, although some health professionals acknowledge that an infectious cause could one day be found. Illnesses such as delusional parasitosis can be serious and debilitating, but tested and effective treatments exist.

Despite the lack of evidence that Morgellons is a novel or distinct condition and the absence of any agreed set of diagnostic symptoms, the Morgellons Research Foundation and self-diagnosed Morgellons patients have successfully lobbied members of Congress and the U.S. government's Centers for Disease Control and Prevention (CDC) to investigate the proposed condition. The CDC states that while it is not known at present whether the condition represents a new disease entity, or whether persons who identify themselves as having Morgellons have a common cause for their symptoms, share common risk factors, or are contagious, it has begun an epidemiological investigation of the "Unexplained Dermopathy (aka 'Morgellons')."

**Some examples of this technology**
that applied to a private research study addressed the composition of the fibers used current terminology to address the researcher's findings.

**Carbon nanotube injectors~ ­ a nano carbon nanotube, conjugated with streptavidin-coated quantum dots. Developed by Xing Chen, Andrax Kis, Alex Zetti, and Carolyn Bertozzi fromt eh University of California at Berklely. Unique feature is its ability to deliver genes.

**Nano motor~ Carlo Montemagno of Cornell University made a molecular motor less than one-fifth the size of a red blood cell. The key components are protein from E. coli attached to a nickel spindle and propeller a few nanometers across, which is powered by ATP, the energy-intermediate that the body itself uses to power all living activities. But this molecular motor works with the efficiency of only 1 to 4 percent, comparing poorly with those in living organisms that could work at close to 100 percent efficiency.

**Nanobombs~ Researchers in Michigan have designed smart "nanobombs" that are said to evade the immune system, to hone in on diseased cells to kill them or deliver drugs to them.

**Nanoelectrosensor ~ Electronic devices that can tell cells to make specific hormones when the body needs them, and electricity generators that self-assembling inside the cell.

**Nano-pharmaceuticals~ ­ Another idea is to interact directly with cells, so they can be harnessed as pharmaceutical factories to produce drugs on demand. Milan Mrksich, chemist at the University of Chicago, plans to hook up cells to electronic circuits by tethering them to a carpet of molecular arms. Carbon chains between 10 to 20 atoms long attached to a gold-plated glass plate with sulphur atoms. The strands are packed so tightly that they have to stand upright on the surface. That creates a thicket of free sticky molecular ends to capture and manipulate cells.

Quantum dots, nanoparticles, carbon nanotubes (in microelectronics) and other throw-away nanodevices may constitute whole new classes of non-biodegradable nano-junk and nanosmog, environmental pollutants that could make cancer-causing asbestos seem tame.

The prospect of adverse immune reactions has already been pointed out. Scientists have yet to develop artificial materials that don't cause at least some problems when inserted into the body, starting with silicone breast implants. Nanoscale devices are worse. As David Williams an advisor to the European Union on problems of public perceptions of medical technologies says, "The human body is best designed to repel or attack things the size of a cell." Worse yet, the devices could clog up our immune system for good.

And if so small as to not stimulate the immune system at all, "What will be the effects upon the cellular membranes, organelles or the nuclear material (DNA) or its membrane. If the nano material is made up of DNA plasmids of fungi, bacteria or viruses will this new material mix and bind to our own internal cell constituents?

******Current studies on the use of nano tubes on rat lungs have shown that the rats become ill or died after the procedure.**************

I have searched and read and read and searched for 4 years now, thousands of hours. Til I almost drove myself nutz, haha. No? ok.
Well, in the beginning I noticed a lot of different groups had similar symptoms which seem to always ask the same question, "What is it?" The problem was that the different hypothesis' created to slip through the guess-nostics by each group did not seem to want to relate to each other, though it was apparent the underlying issue was all the same. Once I was asked, "If queen for a day, what would be my wish?" Reply, "That everyone trying to solve this problem were all in the same room." The time and energy (not to mention funds) used toward the research could be directed more specifically if properly organized. Some theories presented as 'current' by one group was the same information released by another group, A YEAR AGO !

click here for Program details



May 19, 2008

Dr. Doug Buckner & the Morgellons Research Foundation are pleased to announce their participation in today's NIH Undiagnosed Diseases teleconference during which Dr Buckner advocated for continued research into the cause of Morgellons Disease. Participants of this teleconference were aware of Morgellons disease and voiced support for further research into the condition.

The purpose of the teleconference was for NIH to share information about their Undiagnosed Diseases Program, a pilot program aimed at answering questions about medical conditions which have eluded diagnosis. Please note that patients with this, and any other, undiagnosed disease can be considered for this special program by first being referred to NIH by their physician or health-care provider. Although only 50-100 patients will be accepted into this program annually, we feel that it is a wonderful opportunity for all undiagnosed patients. Please see links below for additional details on this program including strict eligibility requirements.

If you are referred to this program, and would like to share any information with us, we would be very happy to hear from you.
Best wishes,
Morgellons Research Foundation

Frequently asked Questions: Undiagnosed Diseases Program:

Undiagnosed Diseases Program
Some patients wait years for a definitive diagnosis. Using a unique combination of scientific and medical expertise and resources at the National Institutes of Health (NIH), the Undiagnosed Diseases Program pursues two goals:

To provide answers to patients with mysterious conditions that have long eluded diagnosis
To advance medical knowledge about rare and common diseases

The program is trans-NIH in scope. It is organized by the National Human Genome Research Institute (NHGRI), the NIH Office of Rare Diseases (ORD) and the NIH Clinical Center. Many medical specialties will contribute expertise needed to conduct the program, including endocrinology, immunology, oncology, dermatology, dentistry, cardiology, and genetics, which are represented among the dozens of participating senior attending physicians who may participate in the program's clinical research.
Any longstanding medical condition that eludes diagnosis by a referring physician can be considered undiagnosed and may be of interest to this clinical research program. Of the total number of cases that may be referred to this program, a very limited number will be invited to proceed in the study at the discretion of the program's medical team.

If you are interested in participating in this clinical research program, discuss the option with your primary physician or health-care provider (nurse practitioner or physician's assistant). Information specialists at the Clinical Center's Patient Recruitment Call Center (1-866-444-8806) can provide more information about eligibility and what kinds of medical information referring physicians must submit for review by the program's medical team. You or your health-care provider can call.
Patients must be referred by a physician or health-care provider. Information your physician must provide directly to NIH includes:
A summary letter describing your condition, when it was first noted and your current health status
A list of treatments and medications that have already been tried and their effects
Copies of reports and results of pertinent diagnostic tests, along with X-rays, MRI results, and other imaging records/studies. Copies of the actual imaging studies are preferred.

Information for Patients

Information for Health Care Providers

NIH Launches Undiagnosed Diseases Program

NIH Office of Rare Diseases (ORD) - Undiagnosed Diseases Program

For more information call: 1-866-444-8806
Referrals to the program for potential acceptance must be made by primary care providers.

Morgellons Research Foundation Website

Forensic scientist Ron Pogue at the Tulsa Police Crime Lab in Oklahoma checked a Morgellons sample against known fibers in the FBI's national database. "No, no match at all. So this is some strange stuff," Pogue says. He thinks the skeptics are wrong. "This isn't lint. This is not a commercial fiber. It's not."

The lab's director, Mark Boese, says the fibers are "consistent with something that the body may be producing." He adds, "These fibers cannot be manmade and do not come from a plant. This could be a byproduct of a biological organism."

Link Here

MORGELLONS SOCIETY OF CANADA

The purpose of MORGELLONS SOCIETY OF CANADA is multifaceted:

Support and encourage all sufferers with Morgellons disease. Provide support to family members, friends and caregivers of people affected with Morgellons disease.

Inform and educate government, business, education, health, media and public sectors about Morgellons disease.

Promote and assist with research into the cause, diagnosis and treatment of Morgellons Disease.

Search for a prevention of future cases of Morgellons Disease.

Publish and share all scientific and research results.

Determine optimal treatment for Morgellons Disease.