Why I'm Writing This
When I had a mini-stroke or TIA (transient ischemic attack) it was a terrible shock. What followed was even more shocking for me because six months later a specialist surgeon told me the condition I have is inoperable and incurable.
Since then I've had to find a way to get on with whatever is left of my life and to do that without freaking out publicly or privately. The condition has had some effect on me and my life which makes things a little difficult sometimes. This is something else I've had to learn to deal with.
Contents at a Glance
I Have a Mini-Stroke

Picture in the Public Domain from the United States Dept of Energy.
In September 2007 I was visiting my best friend, Sylvie, in Bournemouth for a few days. It was breakfast time and I was eating cereal when a crumb went down the wrong way and I started to choke. I coughed and coughed and finally was back to normal - or so I thought.
Sylvie was looking at me and said, "Are you all right?" I said I was but then she said, "Your mouth is crooked." I looked in the mirror and the left side of my mouth was drooping and I was drooling slightly. Sylvie also told me that my speech was strange. That was all fairly alarming.
The next thing I noticed was that I had no feeling in my left hand. I dug my nails into it. I got Sylvie to dig her longer nails in but I couldn't feel a thing. That was even more alarming.
Well, some parts of my brain were still working because I immediately thought that I was either having a stroke or a mini-stroke. Panic seemed to be a reasonable response but probably not very useful so I said what I thought to Sylvie. She said she'd already thought that but didn't want to worry me by saying so. She then phoned 999 (the emergency services number in the UK) and within a few minutes an ambulance with paramedics was outside the door.
They talked to me briefly then took me to the ambulance where they immediately put an oxygen mask over my mouth and nose. They then examined me, took my blood pressure, blood sugar levels, and my pulse. They also went through my recent medical history.
I was then blue-lighted to hospital. Thankfully, Sylvie came with me.
In Hospital
I was taken straight the hospital's A&E (Accident & Emergency) department on a wheeled stretcher. Again, they checked all my vital signs and blood sugar. I was kept on oxygen.Over the next few hours an ECG (electro-cardiogram) was done and all the vital sign tests were done again pretty much hourly. I was examined by two doctors, the first was a junior doctor and then by a more senior one. It was a comfort that the consultant wasn't interested in seeing me. It's always bad news when the most senior doctor in any speciality thinks you are worth seeing.
I was taken to the hospital about 11am. By 7pm I was feeling fine. My mouth was pretty much back to normal as was my left hand and speech. By 7pm I wanted to get out of hospital. I don't like hospitals - they're full of sick people.
When the junior doctor came back, I said I wanted to leave. He said I'd have to speak to the other doctor. Two hours later, after much moaning to the nurses that I wanted to leave, the more senior doctor arrived. He said he wanted to keep me overnight. I said I'd be better off at my friend's house because I found the hospital stressful. He then did all the checks again and additionally told me to grab his hand with my left one and squeeze as hard as possible. Big mistake! I have very strong hands and lift weights. So I did what he told me to do and squeezed as hard as I could which made him shout. Of course, I apologised although I was only doing what he said.
The doctor checked with Sylvie who had been with me for the whole day. She was an absolute star and I'm so glad she's my best friend. She said she agreed I'd be better off out of hospital because I'd get stressed if I stayed. The doctor said I could go as long as I was back in A&E by 8am the next day for more extensive tests.
I agreed and off we went in a cab. The next day Sylvie came back to the hospital with me. The nurses greeted us like old friends and laughingly told me I was a troublemaker which I took as a compliment.
Very quickly I was taken for an X-ray of my heart and lungs and then for an MRI (magnetic resonance imaging) scan of my brain. I had to go back again the following day to see another doctor. He was the one who told me it was a mini-stroke or TIA. He also prescribed some drugs to get from the hospital pharmacy and to start taking immediately. He gave me a cd containing the brain scan for my own doctor.
The picture above is from the British Government's stroke awareness campaign.
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See an MRI Scan of Someone's Brain
I Have Further Tests
When I returned home, I saw my own doctor and he made appointments with the hospital for me to see a consultant (the most senior doctor in any specialist department).First I saw a neurologist who then said I need an ultra sound test on the carotid arteries in my neck and she said she would arrange for it. I would get a letter sent to me and my doctor with the date and time of the appointment.
I waited and waited. In the meantime I was seeing my own doctor monthly. I had been diagnosed with diabetes about five years earlier. Luckily, I wasn't insulin dependent (and I'm still not) and controlled my blood sugar levels with diet and pills. My blood pressure was also at the high end of normal, which is bad for anybody with diabetes. Because of this I was already taking several drugs and since the TIA, my own doctor wanted to monitor me more closely. I mentioned to him eventually in around March that I hadn't heard about the ultra sound test. He said he'd phone the hospital. Within a couple of weeks, I received a letter with an appointment at the beginning of May.
When I attended the hospital for the ultra sound test, it seemed to go on for ages and the technician seemed to spend an awful long time on the right side of my neck. Eventually she asked me to sit on a chair and wait. She came back to say she'd been looking to see if a doctor was free because she had noticed something unusual. Unfortunately, she couldn't find a doctor so she told me to go home and somebody from the hospital would phone me. She took both my mobile (cell) phone and landline numbers.
We live about 40 minutes drive from the hospital and we were about halfway when my mobile rang. It was the hospital with an appointment for an MRI scan for the following week and with a consultant exactly one week later. That alarmed me. They hadn't given me an appointment for months and now they couldn't wait to give me another two and so quickly.
I had the MRI scan which was not too bad particularly as I'd had one in Bournemouth so knew what to expect. The only difference was that the first one was scanning my head but the second one was on my neck and the sides of my head.
Picture above: The Right Carotid Artery
Picture in the Public Domain as it's out of copyright. It is from the 1918 Gray's Anatomy and found on Wikipedia.
Bad News
The following week I saw the consultant. He was a quietly spoken man. He told me I had stenosis in both carotid arteries which means a narrowing. He said that the right hand carotid artery was at least 99% blocked all the way up to the base of my brain and the left hand artery was about 55% blocked.He said that because the blockages were in so much of both arteries, they were both inoperable and any attempt to remove them surgically would probably cause a serious stroke.
My mind literally went blank for a few seconds. I wasn't surprised by the blockages. I'd guessed it was serious and probably a blockage because of the speed I'd been given the two appointments. I wasn't prepared for the blockages to be inoperable.
He went on to say that the best thing that could happen would be if the right artery blocked completely because there would be less chance of it causing a stroke if no blood was going through it.
After that there wasn't much else to say. I came out of the hospital and sat on a seat outside in the grounds for about 15 minutes. My partner had driven me to the hospital and I was supposed to phone him to find out where he had been able to park. I needed to assimilate what I'd just been told, though.
The funny thing was I thought, 'Oh no, I can't die before the London Olympics in 2012.' I love watching the Olympics especially the athletics events although I also enjoy seeing some of the less often seen sports like archery and badminton. Then I realised that I might not see the Beijing Olympics that summer if I was unlucky.
I knew this wasn't helping so pulled myself together and phoned my partner. He was disbelieving when I told him. My policy is never to lie to myself so I discounted much of what he said but I did it gently because he was in shock too.
Above: A photograph of me taken on New Year's Day 2009
How I am Now
Even before the mini-stroke I had been suffering from serious depression and still take medication for it now. As long as I take the pills, I'm OK but I went right down again when I tried doing without them for three months from September to November last year.Overall, I've come to terms with the fact I could die at any moment and feel surprisingly calm about it, even when I stopped taking the anti-depressants I stayed calm about it. I fear a serious stroke leading to major incapacity more than dying. I would want the machines turned off if the alternative was living with no quality of life.
I am a total non-believer. I think it would be great to believe in God and the afterlife but I've never been able to do so. I believe that it really is "earth to earth, dust to dust, ashes to ashes". That's OK, I can live with that. I've said that I would like a non-religious funeral and to be cremated. I'd prefer to have my ashes scattered rather than stored in an urn.
I had my 60th birthday in November last year and I am now officially retired. We have also moved to 'sheltered' flats (apartments) with a manager on site. This means there are alarm cords to pull if anything nasty happens, like a stroke for example. People also notice if curtains (drapes) remain closed when you would normally be up and about.
I get tired more quickly nowadays. I'm not as strong as I used to be. I can't lift anything too heavy and I can't get the lids off hard-to-open jars. When I go to the library, I usually spend about 30 minutes choosing books. Now I have to sit down for a few minutes several times so it takes much longer. The blood doesn't seem to reach my head on the right side and my right eye is deprived of blood so I can't see properly if I stand up or walk for too long. I can walk for about 20 minutes before I need a break. I also get light headed if I'm on my feet much longer than that.
I don't like shopping anymore and going to the library turns into a bit of an endurance test but I don't want to stop. I want my life to be as normal as possible. The other thing I notice is that my short term memory is not good. I've started carrying a notebook to write anything important down. I think I always know when I've forgotten something (how can I be sure?) and usually will remember it again eventually. I try not to allow myself to relax about forgetting on the basis of 'use it or lose it'.
Squidoo has been a real help to me. It's given me goals like becoming a Giant and now to join the 100 Club. I can't just surf the net, clean the flat and take the dogs out. I need things to do and, most of all, I need to write.
This has been very hard for me to write. I hope that it will help anyone else in a similar position, perhaps knowing they have a condition that could kill them at any time. It is possible to live contentedly and meaningfully. Perhaps the important things are to find something you want to do and to achieve a level of calm without lying to yourself about your condition.
Above: Picture of me with my back to the camera taken on Bournemouth beach with my dogs about 4 years ago.
Books about Strokes
The Stroke Network
Like This Lens?
Have you had any experience of a stroke or similar conditions?
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Reply
- Cindy_Egan Cindy_Egan Dec 4, 2009 @ 5:24 pm
- Thanks for sharing your story and more about mini-strokes. You are a very brave woman! God bless you!
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Reply
- happynutritionist happynutritionist Dec 1, 2009 @ 9:15 pm
- Thank you for sharing this story...strokes are "big" in my family, so I understand what you have been through. We do have a great faith in a great God and love His word, the Bible...you love to write, why don't you go on a quest to find out that God IS real and share your quest? You said that you'd like to believe, so give it a go, and write about your journey. There isn't a lot of purpose beyond self without Him. May God make Himself real to you! Congrats on the 2009 Giant Squid Award nomination in your category:-) Enjoy the Christmas season, and I pray that you will enjoy not only the 2012 Olympics, but much more! ~claudia
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- Ngria Ngria Nov 28, 2009 @ 11:09 am
- I certainly enjoyed reading your lens. I am a Nurse and my mother also experienced several TIA's and a CVA due to Atrial Fibrillation.
Your article depicts a most courageous and inspiring woman. I am sur you have periods of discouragement but i thank you for sharing and I will exercise my faith in God and pay that your carotid Artery stenoses be opened and cleared.
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Reply
- Stazjia Stazjia Nov 29, 2009 @ 8:46 am
- Thank you but I don't see myself as either courageous or inspiring. I just keep on living my life in the way that makes me happiest. I'm lucky because I retired earlier than I would have done otherwise. My work was causing me an enormous amount of stress and being forced to retire was the best thing that could happen. I'm now happier and more contented than I have ever been. I'd still like to make it through to be able to watch and enjoy the 2012 London Olympics on TV, though, and would be very annoyed to die just a bit too soon! Thank you very much for your comments, I appreciate them very much.
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- lasertek lasertek Nov 25, 2009 @ 8:23 pm
- My father had a mini-stroke last year. It was a shocker. I never really thought it would happen but it did. So many things have run through my mind at that moment. Will he be paralyzed? What will happen next? We called the doctor right away and he gave my dad an aspirin. After an hour or two, my dad was in a better condition.
- Load More
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I am English and I've spent the last 11 years writing freelance for UK magazines, a couple of books and online. More on my Lensography.

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