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ALS - Lou Gehrig's Disease

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Lou Gehrig's Disease

This lens is to bring attention to an illness that has no cure and could happen to you or someone you love. The intent is not to scare, but you make you aware, for I was not until I knew a family that lost someone to this.

ALS is a horrible non-discriminating disease. One in which there is no known cure. Also, there is nothing one can do that may prevent one from getting this disease.

Because of these things, funding for people afflicted and their families often are not treated as well and medical devices become exorbitantly expensive.

Also, I do not and I have not ever experienced this. I only know from loved one's pain and their experience.

Before you scroll down

watch this video

Johnny Eannel's links

articles about Johnny's fight with ALS - Lou Gehrig's Disease

I didn't know Johnny. But I feel like I did. Here are links to his courageous fight with ALS and his beautiful family.
Living with ALS - neurologychannel - Johnny Eannel
Johnny's story with ALS.
Johnny Eannel: With life, and fight, at end, thoughts turn to family
Amyotrophic lateral sclerosis ALS, or Lou Gehrig's disease, is especially insidious because it cripples the body but leaves the mind alert to every indignity and ache. John fought it with humor and grit. Even in his final days, after he could no longer eat, he wrote in one of his final e-mail messages: "I could really go for a Big Mac."
Florida man with ALS seeks hope in Chinese Stem Cell Treatment
But ALS is relentless and incurable. It incrementally paralyzes its victims, killing them within five years. And Eannel, who is starting year three, is rapidly losing ground.

So he is going to China, to a hospital in Beijing, for an experimental stem-cell procedure that isn't performed - or even allowed - in the United States. To pay the $30,000, he and his wife sit in front of Publix grocery stores, asking for donations from strangers.

But here's his choice: That or nothing.

"If it doesn't work, at least I tried," Eannel said.

"Someone in my shoes is always looking for a miracle."
Family's hope is it's strength
There are no comforting answers. ALS destroys a person physically while leaving their intellect untouched. John's only antidote is hope, if not for himself, then in the lives of his children. That hope gives him reasons to stay around for family milestones, like the recent annual fundraising golf tournament in his honor two weeks ago, Rose's 42nd birthday in September, even his stepson Austin's high school graduation a year from now.
Help to find hope: St Pete Times
Grateful

Johnny Eannel's family today

Beautiful survivors

Roe

Roe

Roe
Roe, John, Rose, Charlene
Johnny's Mom and Dad - September 2009
Johnny Eannel and Family
Mom Eannel
Alexa, Charlene, Rose Marie

ALS Information on the Internet

orgs, the mayo clinic and more

Here are some good resources for information about ALS.
Welcome - The ALS Association
The ALS Association encourages scientific research to find a cure for ALS, heightens awareness of the nature of the disease, stimulates volunteerism and activism, and increases awareness of government leaders to encourage support of research and patient care.
Amyotrophic lateral sclerosis (ALS) - MayoClinic.com
Amyotrophic lateral sclerosis (ALS) - Comprehensive overview covers symptoms, treatment of this degenerative neurological condition.
ALS - Lou Gehrig's Disease - neurologychannel
ALS, lou gherigs disease., Amyotrophic lateral sclerosis, neuromuscular disease, weakness, progressive paralysis, motor neurons, familial ALS, sporatic als

Blog's about ALS

ALS in the blogosphere

Executive finds new strength in disease's legacy
ALS ended the career of Gehrig, a Yankees Hall of Famer, but in a 1939 speech at Yankee Stadium he said he still considered himself "the luckiest man on the face of this earth." Since his death in 1941, ALS has become known as Lou Gehrig's disease.
Dance event to raise money for ALS
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's Disease, affects 30000 Americans at any given time, according to the ALS Association. With the help of local dancers, more research into a cure of the debilitating disease will be possible ...
Newlyweds Prove Love Conquers All; Story To Air Nationwide
The pair met four years ago and were talking about marriage when Steve was diagnosed with amyotrophic lateral sclerosis, or ALS, five months ago. ALS, also known as Lou Gehrig's disease, is a disease of the nerve cells in the brain and spinal cord that ...
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  • Reply
    gonzalezdenise Jun 2, 2011 @ 8:32 am | delete
    Thank you, I am working on an ALS lens, and yours is very helpful. I would like to know if I may link you to my lens. I really love your lens.
  • Reply
    PlanetMassage Aug 1, 2010 @ 12:23 am | delete
    I hope someone that knows this man gets him the word... there is no reason for it to be a death sentence. Active Isolated Stretching can help. Seek out Aaron Mattes of Sarasota Fl. He can be found at Stretching USA dot com. I've seen it with my own eyes and practice this work regularly....this is one of those cases where Western medicine has failed us. There is a simple answer, and people are dying. http://www.PlanetMassage.com
  • Reply
    Marty Murray Apr 25, 2010 @ 10:25 pm | delete
    War and als have this in common. Both persist out of ignorance and because people believe things that are not right.

    One thing that people believe about als that is not right is that there is no way available for a person to solve it.

    The truth is that als develops when factors and patterns in a person's life come together to create it. So, by finding and changing what is going on with those factors and patterns, one can solve the problem and create wellness.

    Back in the late 1980's someone named Evy McDonald wrote a great piece on healing and how she solved her als problem. The piece is full of ideas and details and anyone reading it could learn much about how to solve als, and still twenty years later, people are still saying there is no way available to solve this thing.

    There are others as well including me, Gabor Mate, Bruce Lipton and Steve Shackel, who have developed the ways of understanding and solving als even further.

    In one recent interview, Gabor Mate talks about research that could help people being published and then just disappearing from the discussion as if it had been lost in Bermuda triangle. That seems to be how it goes a lot.

    So I suggest to anyone who wants to solve als, do your homework and get out of the box. There are ways and you can find them.
  • Reply
    Roger Ewing Dec 20, 2009 @ 1:59 pm | delete
    Very powerful message. And frightening as well. The world could find a better way to spend our resources, rather than war. If access to only a portion of the defense budget was allocated to this disease we could make progress. Don't you think?
  • Reply
    rubybluesox Dec 20, 2009 @ 2:14 pm | delete
    I do think so. It's sad that we create such despair through our military industrial complex, rather than create the notion of hope for families coping with something such as this.
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rubybluesox

Currently reside in Los Angeles, California where I formed a business called Artisan Branding, LLC, an online marketing company.
Grew up in Florida a... more »

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