Living alone when you have a chronic illness
Ranked #16,444 in Healthy Living, #252,305 overall
The Spoon Theory
This lens refers to "spoons" as a metaphor for energy. The Spoon Theory by Christine Miserandino is very popular among people with chronic illnesses, as it is a great way of describing how it feels to live with an energy limiting condition. I highly recommend reading the full post, but here is a brief summary:Every morning, you wake up with a certain number of "spoons". Each activity, from brushing your teeth to washing dishes, costs "spoons". Some activities take more spoons than others. When you run out of the day's spoons, that's it - you don't get any more. You can sometimes borrow from tomorrow's supply of spoons, but then tomorrow will be much harder to get through with even fewer spoons than usual. Healthy people have so many spoons that they can afford to spend them carelessly. Living with a chronic illness means living with much fewer spoons, and having to choose how to spend them. You may have enough spoons to cook dinner or to meet with a friend, but not to do both. Which will you do? These are the choices that people living with chronic illnesses must make.
This lens was blessed by SquidAngel WildFacesGallery on 7th January 2012.
Food and Drink
A nutritious diet is important for everyone, but especially for people with chronic illnesses, who may have difficulty absorbing or using nutrients. For me, cooking is one of my major bugbears. Cooking is not only a lot of work in itself, but it also generates dishes and pans that have to be washed. While it's very tempting to skip dinner and munch on unhealthy, convenient snacks, this doesn't do you any favours in the long run.Here are some things that have helped me to keep eating nutritious meals, even on bad days.
Choose meals that make good leftovers, and cook in bulk
Take advantage of ready-made ingredients
In an ideal world I'm sure we'd all choose to eat food prepared from scratch, but this is very energy consuming. You don't have to live on ready meals, though.- Bolognese sauce in jars (such as Dolmio) is a quick and easy way to make a nutritious meal. Just add meat (or in my case, fake meat), and cook up some spaghetti. If you have the spoons, you could chop up a few mushrooms and peppers to add a bit more interest. Family size jars give you about three good sized portions.
- Curry sauce in jars is another staple in my kitchen. I like to add fake meat, tinned chickpeas, frozen spinach, and raisins - all of which require little to no preparation. Serve over rice, which can simmer on the stove top with little attention required, or be cooked in microwaveable pouches.
- I find grating cheese very energy consuming, so I buy pre-grated. It's a little more expensive, but the spoon savings are worth it. Plus, you don't have to wash up a cheese grater.
- Pre-chopped veggies will save you from having to stand at the kitchen counter for ages, and are great for sparing painful hands.
- Frozen and tinned veggies are also very useful, as they last a long time. Frozen spinach and sweetcorn can be added to pasta bakes or curries straight from the freezer.
- Making your own pizza is far healthier and tastier than buying take-away, but can be very energy consuming. Instead of making a base, add your own extra toppings to a cheap frozen pizza. You'll have a delicious meal that'll feed you for a couple of days.
- Stir fry veggie mixes can be bought relatively cheaply, and make a healthy meal. No chopping required! You can also buy partially cooked noodles and rice that you can add straight to the wok, minimising dishwashing.
Ready Meals
It may not be the healthiest or most economic option, but it's much better than skipping dinner altogether.
Broccoli and Macaroni Soup
An easy, healthy, spoonie-friendly recipe
- Serves: 2 - 3
- Prep Time: 5
- Total Time: 25
This hearty vegetarian soup makes a healthy and filling meal. It's also very easy to cook, only uses one pan, and keeps well in the fridge as leftovers. What's not to love?! Serve with some crusty bread for complete protein.
Ingredients
- 1 clove garlic
- finely chopped
- 1 tablespoon olive oil
- 1 tin chopped tomatoes
- 3 cups water
- 1 cube vegetable stock
- 1 teaspoon dried basil
- 1/2 teaspoon salt
- Ground black pepper to taste
- 4 cups broccoli
- roughly chopped
- 1 cup macaroni
- Optional: Grated cheddar or goat's cheese to top
Instructions
1) Fry the garlic in the olive oil until soft but not brown
2) Add chopped tomatoes, water, vegetable stock, salt, pepper and dried basil. Bring to a boil.
3) Add broccoli, reduce heat, and simmer for 10 minutes.
4) Add macaroni and simmer for a further 10 minutes.
5) Serve, topped with grated cheddar cheese or crumbled goat's cheese if desired.
Dishwashing
Washing dishes is my absolute least favourite chore: standing still saps my energy, and the heat and steam make me dizzy. Oh to be able to afford a dishwasher!If I'm able, I try to wash a few dishes as I'm cooking, so that I don't end up with a huge pile of dishes to do after dinner. Doing two small lots of dishes is generally easier than doing one large lot. If you're standing around in the kitchen anyway, waiting for stuff to cook, you might as well put that time and energy to good use.
I've also started keeping paper plates, polystyrene cups and plastic cutlery in the kitchen, for days when I really don't feel up to doing dishes. It's not the most environmentally friendly solution, but it's less waste than a takeaway. Paper plates can often be recycled or composted.
Try to choose recipes that can be made in one pan, or weigh the amount of dishwashing against how far the meal will go. If you're making a batch that will give you several servings, the extra dishwashing is probably worth it. If it's just one meal it usually isn't - unless you're trying to impress someone!
Housework
I do like to maintain a decent standard of cleanliness though, especially since I have pets. Here are some things that have helped.
Changing your world 15 minutes at a time
I highly recommend paying a visit to Flylady, and signing up to her daily emails. I discovered her site about three years ago, and it has completely changed my approach to housework. I don't have the stamina to maintain the whole routine, but I've wholeheartedly adopted her view that every little bit you do makes a difference. FLY stands for Finally Loving Yourself. Instead of looking at your home as a whole and beating yourself up about the state of it, tackle one small thing at a time. Baby steps quickly add up to giant leaps of progress.The most valuable technique I learned from Flylady is setting a timer. It's all too easy to get carried away with a task, overdo, and crash horribly. Setting a timer ensures that you don't go over your spoons budget. Not counting dishwashing or laundry, I do 15 minutes of housework a day. Sometimes I spend the entire 15 minutes on one room; other times I spend five minutes each in three rooms.
It doesn't sound like much, but it's amazing what you can get done in 15 minutes! The most important thing is that when the timer goes off - STOP. Don't be tempted to carry on. Allow yourself to feel proud of what you've accomplished, however small. Even five minutes a day will make a difference.
Establishing routines can also make it easier to stay on top of the housework. A quick swipe of the shower after each use will save you from an exhausting session of scrubbing. A load of laundry each day (or whenever you have enough for a load) will prevent "Mount Washmore" from building up.
Fun stuff from CafePress
Pets
Pets can be a great comfort when you're chronically ill, but they are also a lot of work! I have one dog of my own, one foster dog, and two guinea pigs. Dogs need the exercise and mental stimulation of a daily walk, so if you're unable to do this yourself, PLEASE find a dog walker who can give your dog the daily walk it needs. If you're unable to afford a dog walker, and don't have a friend or family member who can do it, there are some charities that help disabled or elderly people keep their beloved pets. Your vet should be able to tell you if there's a programme like this in your area. Interactive toys
A kong stuffed with peanut butter or cream cheese and then frozen will keep a dog occupied for hours, while a light pointer gives a cat something to chase with minimal effort from you.
Guinea pigs and rabbits enjoy interactive toys too! You can buy a small animal treat ball in most pet shops.
Interactive Pet Toys
Toys to keep your pets busy
You're not alone!
If you're on Twitter, use the #spoonie hashtag to find other people who live with chronic illness.
Reader Comments
I hope you've enjoyed this lens! Please share your spoon saving ideas here, or just say hello!
-
-
wheresthekarma
Feb 22, 2012 @ 1:27 am | delete
- Great lens, going to add it on my "Finding Humor in our Aches and Pains Lens."
-
-
-
andrearicciardi
Jan 29, 2012 @ 3:06 pm | delete
- thank you for writing this! many people dont understand how hard it can be sometimes.
-
-
-
goo2eyes
Jan 7, 2012 @ 5:12 am | delete
- i am just lucky enough to have someone beside and behind me when i am not feeling good.
-
-
-
kimark421
Dec 26, 2011 @ 9:04 pm | delete
- Although I have never had a chronic illness, I did have pneumonia last spring BUT I had my wife to help me with my needs/keep the household running. I can't imagine trying to do it myself, but it seems like their are some great tips here for anyone who does. Well done!.
-
-
-
huvalbd
Dec 21, 2011 @ 1:00 pm | delete
- Good tips. The timer looks like an idea for lots of types of activities, not just cleaning.
-
by freyalou
Hi! I'm Vicky. I live with my partner in Shropshire, England, and we share our home with two guinea pigs and a lurcher dog. My partner currently works... more »
- 10 featured lenses
- Winner of 18 trophies!
- Top lens » Best Typefaces/Fonts for Dyslexia
Explore related pages
- Diatomaceous Earth Kills Parasites Diatomaceous Earth Kills Parasites
- Myalgic Encephalomyelitis Myalgic Encephalomyelitis
- CFS or Fibromyalgia, and Exercise? You have got to be kidding! CFS or Fibromyalgia, and Exercise? You have got to be kidding!
- Gifts That Fight Fatigue Gifts That Fight Fatigue
- Overcoming Chronic Fatigue Syndrome (CFS) Overcoming Chronic Fatigue Syndrome (CFS)
- Understanding Lyme Tests Understanding Lyme Tests
