Cystic Fibrosis
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"65 Roses"
"Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that: clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond." ~ Cystic Fibrosis Foundation
Someone I love very much was born with CF and has been fighting it since birth. ~ This important person in my life does not like to talk about it, so I will not be able to share all of the story or emotions I am feeling, but I hope I will be able to let people know about Cystic Fibrosis who may have never heard about it or know little of the disease.
Any funds that are raised from sales off of this webpage along with earned income from Squidoo will be donated to the Cystic Fibrosis Foundation to try to help those who are fighting CF, and to help research in hopes of finding a way to lessen or prevent it. ~ Thank you for visiting. Every part of this page is very emotional for me because of my love and pride for the person I am close to whose bravery and strength continue every day to fight against CF.
Contents at a Glance
When a Family Member has Cystic Fibrosis
Has "Cystic Fibrosis" touched a loved one?
Do you know someone who is fighting CF? Please share about it.

Yes
Draache says:
My older sister had CF, and passed away at 22. This is a wonderfully informative lens, and I hope more people are able to become educated about this disease.
Blessedmombygrace says:
My cousin's oldest son was born w/ Cystic Fibrosis. He is 12 now and doing very well. I also have a good friend w/ a daughter w/ cystic fibrosis. Thanks for doing this lens!
No
Learn About Cystic Fibrosis
Find Out More
The Cystic Fibrosis Foundation
About 65 Roses
Cystic Fibrosis: Support, Education, Hope: Large amount of info and support to families.
Cystic Fibrosis Factsheet: Good listing of all the basic information about the diesease.
CF for Kids: Excellent site to explain details of the illness to children along with kid friendly ways to cope and understand.
Cystic Fibrosis Directory at Cell Science
~ Complete Research Guide about Cystic Fibrosis
~ Basic: Information about CF & International Associations
~ Charities: Directory of Cystic Fibrosis Charities and Support Groups
~ Experts: World Authorities on Cystic Fibrosis Research and Treatment
~ Funding: Funding bodies and agencies for Cystic Fibrosis
~ Medical: Global Directory of CF hospitals, clinics and medical centers
~ News: Web sites offering latest news and advances in Cystic Fibrosis
~ Research: Global Directory of Research Centers & Institutes for CF
CFF ~ "We Are Commitment!"
How can you help?
~ Check at the Cystic Fibrosis Foundation to find several ways to Make a Donation!
~ Connect with the Cystic Fibrosis Foundation at:
YouTube ~ Facebook ~ Twitter
~ Shop the Marketplace at the CF Foundation.
~ Make donations via the "65 Roses" Shop.
~ Become a Volunteer: There are many ways to get involved.
~ Walk with the Great Strides walk-a-thons.
~ Participate / start a Cure Finders Program at your school or business.
~ Help your company Become a Corporate Partner.
~ Create a Gift Registry!
~ Plan or get involved with a CF Signature Events: Golfing & Fishing Tournaments, Dinner Dances & Galas, and more!
~ Become an Advocate: Your Voice for CF in Congress
Please visit these other pages about CF.
A Touching Cystic Fibrosis Story
Cystic Fibrosis: A Guide for Patient and Family
Amazon Price: $6.00 (as of 06/02/2012)![]()
This excellent book contains all the basics one needs to know about cystic fibrosis and offers advice for those who are living with a patient.
Be Touched with Love
Rose Products

Rose Garden Floral 2012 Calendar by Spice
See other 2012 Calendars
"65 Roses" Songs
Thank you for the Squid Angel Blessing! =D
Thanks for for taking time to learn about CF!
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Wedding_Mom
Jun 19, 2011 @ 5:35 am | delete
- I learned so much about cystic fibrosis. It is indeed very sad, once a kid started to manifest the illness but thank God it can be avoided with a prescribed diet. This is really a great lens, what a wonderful way to learn new knowledge, thanks so much for sharing!
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JoyfulPamela
Sep 22, 2011 @ 11:51 am | delete
- It is genetic and may not be avoided with diet.
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Blessedmombygrace
Feb 2, 2011 @ 8:27 am | delete
- Great information. Angel Blessed.
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eclecticeducation
Jun 2, 2010 @ 10:07 pm | delete
- I'm sorry that someone close to you is fighting this awful disease. I truly hope they find a cure for it.
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Blessedmombygrace
Jun 2, 2010 @ 3:06 pm | delete
- Beautiful lens w/ some really touching videos. Great Job my friend!
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by JoyfulPamela
Hi! My name is Pamela and I am a Christian homeschool mom to three awesome children and wife to a darling man for 20 years. I love teaching and working... more »
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