Lyme Disease Polls
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The Truth About Lyme Disease
I think if you have found this lens that you already know the controversy behind Lyme Disease. I have put some polls together so that the rest of the world can see the truth behind Lyme Disease and the other tick borne infections.
If you do not have Lyme, there are some polls on here for you too. I would like to compare what people have been taught about Lyme Disease to the actual reality of it. So please read through people's comments and leave yours too. Thank you!
Dr Phil Show
"Deadly Consequences"
Dr Phil Debate
Do you think this show will make an impact on family members of yours that watched it?
Yes
tickbitme says:
p.s. I do believe that the show will impact others, though not my family/friends. The public got a better view of things from the Dr. Phil episode April 13, and it may help many people.
Lori8597 says:
Yes it will make a impact on family members who
are sceptical when it comes to Lyme Disease.
Dave says:
Yes, and I sent everyone who I thought may have missed it this web site.
For those who missed the Dr Phil show, plus the behind the scenes uncensored!
BlissGlutenFree says:
Yes actually because I have family members who watched it and it helped them to understand what I am living with.
Deb Venezia says:
I am not sure if any of my family members even watched it, but I am seeing a difference in their thoughts on Lyme Disease. They are beginning to realize it is a much more serious disease, so I am hopeful the show brought more awareness to families.
Sharon says:
Although the segment was too short, it showed the devastation of going from perfect health to severe illness almost overnight. The IDSA doctor had nothing to say addressing what should be done with people with these chronic symptoms - only a negative response of what shouldn't be done. The LLMD looked great compared to him. I think this will open some eyes.
Tick Off 2 says:
Any story's on this Disease is better then nothing.and at least Dr Phil had to Balls to Air it unlike other Prime time so called super star TV doctors and talk shows .
Jeff Rainey says:
I hope it will open some eyes.
No
tickbitme says:
Unfortunately, no. The show was great, and Dr. Phil did a great job, as did the Lyme patients and Dr. B. However, family and friends will not view the show, Under Our Skin, or any Lyme and related vector-borne illness appropriate reading. They don't care enough.
Suzanne Ciskowski says:
Probably not because it would take ears not to be deaf, eyes not to be blind, a mouth not to be silent & a heart to have compassion.
But also those of us with Lyme & Chronic Lyme disease we have to become one. We can't expect others to help, understand, believe in & care about if we can't do the same for each-other.
And we need to treat this as not a regional issue but a national & international issue.
Those with Lyme, the caregivers, all doctors not just the IDSA, the government & the public needs to have a open mind & not believe that only they are right.
And don't have a private agenda.
Julia Bjerre says:
No, those who cared enough watched but already knew the realities of lyme disease. Those who didn't watch have never much cared anyway
Andy says:
Not much. However, we're trying to break new ground here, not "preach to the choir."
zghee says:
i have been 2 over 500 Drs.
Nancy says:
no
What would you guys like to see addressed next in another show about Lyme Disease?
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manette
Apr 14, 2012 @ 9:31 pm | delete
- treatment options such as herbals, antibiotics, etc
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Sylvia McCar
Apr 14, 2012 @ 9:39 am | delete
- The burden of cost, and lack of insurance coverage.
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Jenny Rush
Apr 13, 2012 @ 11:34 pm | delete
- Would love to see a longer air time or perhaps 2 shows...more about the politics behind the disease, a look at insurance companies vs physicians who want to treat the way they see fit, and a look at various options for treating. And get some IDSA people on the hot seat!
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Jennifer
Apr 13, 2012 @ 11:32 pm | delete
- I would like to see more about why insurance is reluctant to cover it. What it costs to treat, patients with more physical symptoms than neuro. The fact that most people look fine but are very sick inside. The CDC exposed, etc.
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rita farmer
Apr 13, 2012 @ 11:31 pm | delete
- what is the truth behind this disease and why is it considered an "underground disease". what is the gov't hiding and what is the truth about plum island. without the truth, we will continue to have to try and treat ourselves and the doctors will never agree on how to treat us. if this disease does not exist, why should we not donate our organs or our blood?
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Deb Venezia
Apr 13, 2012 @ 10:22 pm | delete
- I'd like to see them focus on the tough questions; Like why is Lyme Disease so controversial to begin with? Why aren't these doctors learning to work together for the common good of healthcare? It doesn't make sense to have a war within the medical community over helping sick patients get well, should there? Why isn't more research being done to provide better testing and diagnoses? Of course the IDSA Guidlines should be front an center for debate and how their guidelines is having patients go without proper care, no insurance coverage, difficulty get disability for those severely ill needing it, and so forth... these things need to be brought forth and exposed... We patients have been sick for 5, 10, 20 + years and our patience is running thin, our bodies are frail, and our minds are fatigued... we have waited long enough to be heard and I believe NOW needs to be the time.
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Ginger
Apr 13, 2012 @ 8:30 pm | delete
- In my opinion the two most major points that were glossed over on the Dr. Phil show were the general inability to get treatment covered by insurance, and co-infections.
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Dory
Apr 13, 2012 @ 8:22 pm | delete
- We with chronic lyme disease need to see success stories on what worked. I have had lyme for 39 years...yes I was called a hypocondriac....had injections in my hips at 18 years old for arthritis in the hips...lymphs removed from my neck at 23 that were so infected that they had to remove them....my spine at 25 years was that of a ninety year old...I had pneumonia 4-5 times a year...at 39 I was hospitalized for mycoplasma pneumonia and in between have suffered much back, neck, knee, ankle and hip pain. I had severe babesia and had to go on Malerone along with zithromax for months...I am now using a rife machine and feeling a little better everyday, of course there are always the healing crisis that follow. I have used a lot of prayer and it has probably saved me from doing myself in.
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Damandab
Apr 13, 2012 @ 8:08 pm | delete
- It would be nice to share how political "Chronic" Lyme Disease is, specifically insurance companies' lack of coverage and the cdc's lack of knowledge.
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LLMDs Debate
What do you think?
We all know about the witchunt for Lyme doctors . Several doctors that dare to go outside the IDSA's guidelines for treating Lyme Disease, whether it be with long term antibiotics or with natural treatments end up "under investigation.
Do you think that Dr. Chitra Bhakta might have negative consequences for being on the show and talking openly about Lyme Disease?
Yes, she might
greyheadedmarketer says:
Anyone that goes against established practices open themselves up to negative consequences but is a price you have to pay sometimes to do what is right.
No, I don't think so
A Video I made to Thank Dr Phil, Dr. Chitra Bhakta, Brooke, Kathy and Stephanie
Some General Facts about Lyme Disease
* More people are infected with Lyme Disease then Aids.
* Lyme tests are not accurate, they give out a lot of false negative.
* Lyme should be treated immediately. Once Lyme has passed the first stage, it is really hard to treat.
* Less then half of people with Lyme Disease develop a bull's eye rash.
For Everyone
Do you or someone you know have Lyme Disease?
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greyheadedmarketer
Apr 18, 2012 @ 8:56 am | delete
- No but I had Rocky Mountain Spotted Tick Fever last year and almost did not make it through it. It took several days in intensive care before they knew if I was going to make it.
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GiftRepSandy Apr 13, 2012 @ 10:29 pm | delete
- Yes, daughter, ex-husband and two dogs
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Andy
Apr 13, 2012 @ 8:23 pm | delete
- Yes and yes.
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binmark
Mar 7, 2012 @ 12:31 pm | delete
- Yes, I once knew a teacher who had the Lyme Disease.
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bikerministry
Feb 28, 2012 @ 7:28 pm | delete
- I know someone diagnosed with it.
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exotickitten731 Feb 27, 2012 @ 2:53 am | delete
- not yet
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timo5150
Feb 18, 2012 @ 10:34 pm | delete
- I do not know yet
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NancyN
Feb 17, 2012 @ 2:15 am | delete
- Yes, I had it along with another tick disease, Erlichiosis, AKA Anaplasmosis. These undiagnosed and untreated diseases destroyed two and a half decades of my life. I was successfully treated two years ago, with a cocktail of IV and oral meds and nutritional supplements. Interestingly enough, I know of only a few people that have been diagnosed, other than via facebook and the internet. Thank you for all of your valuable information.
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MillBucks
Feb 16, 2012 @ 9:15 pm | delete
- I have never suffered from Lyme disease but I have a friend who loves the outdoors that did. He was lucky to get it treated right away.
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dsbrennan
Feb 16, 2012 @ 3:09 pm | delete
- I had Lyme Disease, luckily it was successfully treated (so it's at least now at a level where my immune system can handle it). Several friends and family members have had it as well.
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wheresthekarma
Feb 16, 2012 @ 4:41 pm | delete
- I am so happy that you recovered!! And the other in your family. Catching it early is the most important thing to recovery!
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travelerme
Feb 16, 2012 @ 2:41 pm | delete
- good luck on your popularity
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Chris
Feb 11, 2012 @ 12:08 pm | delete
- My whole family has Lyme and co-infections
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Amy Stahl
Feb 11, 2012 @ 12:00 pm | delete
- i have Lyme
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Amy Stahl
Feb 11, 2012 @ 11:59 am | delete
- I have it
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DJS
Feb 10, 2012 @ 1:11 pm | delete
- yes
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SCP-Kc
Feb 10, 2012 @ 4:55 am | delete
- yes, multiple friends, myself formerly, and family members
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Bettyann
Feb 10, 2012 @ 4:40 am | delete
- Yes
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The Bull's Eye Rash
Erythema Migrans
Facts About The Bull's Eye Rash
* Not everyone who gets Lyme Disease gets a bull's eye rash.
* Rashes can be hidden in places you don't see them, like on your back, or under your hairline.
* Other tick borne infections cause rashes too that look different from a bull's eye rash.
For Everyone
Have you ever had a bull's eye rash but were told you did not have lyme?
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Andy
Apr 13, 2012 @ 8:24 pm | delete
- Yes!! Almost 9 years ago and I'm still trying to claw my way out.
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- i've never heard of it :o
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MillBucks
Feb 16, 2012 @ 9:16 pm | delete
- Not yet thank goodness!
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Amy Stahl
Feb 11, 2012 @ 12:00 pm | delete
- no
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SCP-Kc
Feb 10, 2012 @ 4:57 am | delete
- no, but had other strange rashes
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Bettyann
Feb 10, 2012 @ 4:41 am | delete
- No
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Bettyann
Feb 10, 2012 @ 4:41 am | delete
- No
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For Everyone
Did you get bit by a tick and not get the bull's eye rash but got symptoms?
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Andy
Apr 13, 2012 @ 8:26 pm | delete
- Don't know if I was bit by a tick or other insect or exactly when - my bull's eye had no skin puncture, indicating that the infection(s) was already disseminated.
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bikerministry
Feb 28, 2012 @ 7:29 pm | delete
- I've had tick bites in the past.
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timo5150
Feb 18, 2012 @ 10:35 pm | delete
- Not sure
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MillBucks
Feb 16, 2012 @ 9:18 pm | delete
- Never have been bitten but my whole family uses tick repellent when camping or doing any other outdoor activity.
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ribroast
Feb 12, 2012 @ 12:45 pm | delete
- yes .no
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Amy Stahl
Feb 11, 2012 @ 12:01 pm | delete
- yes
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DJS
Feb 10, 2012 @ 1:13 pm | delete
- no
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SCP-Kc
Feb 10, 2012 @ 4:57 am | delete
- yes
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For Lymies
Lyme Testing
Facts About Lyme Testing
* Lyme Testing is not accurate.
* There are many false negatives.
* Some labs specialize in Lyme Testing but insurance won't usually cover them.
* Our current Lyme tests for the antiobodies our bodies make against Lyme Disease, not for the bacteria itself.
* Current testing only tests for a couple strains. There are several that the tests cannot detect.
* There is only certain time frames out bodies will make the antiobodies enough to be detectable on tests.
For Lymies
Everyone
Did your your doctor tell you that you had a false positive test despite you having Lyme symptoms?
Yes
GiftRepSandy says:
Yes, this was true for my ex-husband
Amy Stahl says:
yes
wheresthekarma says:
Yes my neuroligist did.
No,my doctor told me I have Lyme
For Lymies
Has a doctor disregarded your positive Lyme test because it wasn't from the lab of their choosing?
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ribroast
Feb 12, 2012 @ 8:09 am | delete
- Yes,Melisa LTT,
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ribroast
Feb 12, 2012 @ 8:07 am | delete
- Yes Four doctors
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Jenny O'Dea
Feb 11, 2012 @ 6:05 pm | delete
- yes, LTT positive & low CD57 but Elisa, WB negative
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Cl
Feb 11, 2012 @ 3:55 pm | delete
- Yep- Igenex is not credible apparently.
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For Non Lymies
Misdiagnosis
Lyme is often misdiagnosed as:
Multiple Sclerosis
Fibromyalgia
Lupus
Parkinsons
Panic Disorder
Chronic Fatigue Disorder
For Lymies
For Non Lymies
Do you feel sick and noone can figure out what is wrong with you?
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- True of my daughter
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- yeah and most of them just guess like when i was diagnosed with IBS
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timo5150
Feb 18, 2012 @ 10:42 pm | delete
- Yes for 3 years now and none of my doctors has ever tested for lime
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wheresthekarma
Feb 19, 2012 @ 2:37 am | delete
- Unfortunately a lot of drs don't know much about Lyme and the tests are really inaccurate..I hope you do figure things out though tim..Message me if you want more info on lyme.
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wheresthekarma
Feb 19, 2012 @ 2:37 am | delete
- Unfortunately a lot of drs don't know much about Lyme and the tests are really inaccurate..I hope you do figure things out though tim..Message me if you want more info on lyme.
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MillBucks
Feb 16, 2012 @ 9:22 pm | delete
- Only once, tests proven inconclusive
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For Lymies
For Lymies
Lyme Disease Treatment
* There is no one treatment for Lyme Disease
* It usually takes several different antibiotics to help with Chronic Lyme Disease.
* You might have to treat several different infections since ticks pass several infections.
* The usual course doctors usually prescribe is only three weeks of Doxycyclen. But research shows that is not enough.
* Many patients use several different approaches to get better with Lyme Disease. Usually a combination of western med and alternative is needed.
For Lymies
For Lymies
For Lymies
Was your family physician knowledgeable about Lyme Disease?
Yes
No, I had to seek out a Lyme Literate doctor.
GiftRepSandy says:
No Lyme's disease doctor's around in the 1980s. Vets knew more about the disease.
BlissGlutenFree says:
no
ribroast says:
absolutely NOT
For Non Lymies
For Lymies
Why do you think it is so hard to get treated for Lyme Disease?
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- Hard to diagnose, tests aren't specific enough, not enough doctor knowledge ....
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MillBucks
Feb 16, 2012 @ 9:24 pm | delete
- Because it isn't always detectable in the beginning
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travelerme
Feb 16, 2012 @ 2:49 pm | delete
- I really don't know
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ribroast
Feb 12, 2012 @ 8:19 am | delete
- Miss Information, she is deadly.
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Jenny O'Dea
Feb 11, 2012 @ 6:09 pm | delete
- too much arrogance from the IDSA
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For Everyone
Identify yourself as a Lymie or Non Lymie if you comment.
What are your symptoms?
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travelerme
Feb 16, 2012 @ 2:52 pm | delete
- those polls answer if true are shoking
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ribroast
Feb 12, 2012 @ 8:50 am | delete
- Chronic headache, swollen painful purple/red/white/yellow feet and soles tender, thumb pain, electric shocks, crawling under skin, night sweats, low to normal temperature, rashes when given antibiotics for other reasons, knee pain , bone pain, muscle weakness, stiff grindy neck, grindy shoulder joints,pimples, sores that do not go away,thin looking skin with broken veins and bruises,floaters in eyes and times of poor focus, head fog, unable to follow a theme, concentration lacking,can not remember what I was about to say, tremors, shakes,peripheral sensitivity to cold.Lower back pain, testicular pain,Splinter haemorrhages , heart murmur, long term sore throat, bitten 28 years ago, red circular rash. insomnia, sudden sleep episodes, long term fatigue, one ear hot the other cold.
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For Lymies
Lyme Disease Location Risk Facts
* Lyme is in every state now.
* Lyme is found on every continent.
* There have been new species found in the last couple years.
* Research shows different kinds of ticks can spread several different diseases.
* Spirochetes have been found in flies and spiders, but researchers say we need studies to prove whether it is transmitted to humans or not by other bugs.
Canine Lyme Disease Map
For everyone
Do you have any pets with Lyme Disease?
No
Yes
GiftRepSandy says:
Had two in the 1980s
traveler me says:
I have friends who are always worried
Michelle says:
Yes My dog Molly..she has horrible hind leg pain and seizures.... Since changing her diet to gluten free...LOL Like me!! I have been able to take her off her seizure meds and she is doing better..Still can't walk well but at least I don't have to give her that poison anymore :)
wheresthekarma says:
Yes, my dog Tuffy
What state did you get Lyme In?
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CarolJeanCJ
Apr 25, 2012 @ 8:30 am | delete
- New Jersey
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- Wisconsin
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MillBucks
Feb 16, 2012 @ 9:28 pm | delete
- Not a one yet.
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travelerme
Feb 16, 2012 @ 2:55 pm | delete
- no state
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ribroast
Feb 12, 2012 @ 8:55 am | delete
- Vermont
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Amy Stahl
Feb 11, 2012 @ 12:09 pm | delete
- Indiana
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wheresthekarma
Feb 10, 2012 @ 4:39 am | delete
- Illinois and Wisconsin
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Why the huge difference in maps where it pertains to dogs and people?
What makes dogs at risk but not humans?
How Has Lyme Affected Your Life?
For Lymies
For Lymies
For Lymies
For Lymies
For Lymies
For Lymies
Maybe people know the physical symptoms of Lyme but don't realize it causes psychiatric symptoms too.
“Thank you for participating and helping to educate the public about Lyme Disease!”
Non Lymies
Now That You Have Read All This
Please stop by this lens and take the Lyme Quiz!
Guestbook Comments
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TriciaLymeMom
Feb 23, 2012 @ 2:47 pm | delete
- fun way to raise awareness...great job! featured on http://www.squidoo.com/silly-lyme-quiz-v1-0
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MillBucks
Feb 16, 2012 @ 9:30 pm | delete
- Great information offered through this article, enjoyed learning more about Lyme disease. Squidliked
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travelerme
Feb 16, 2012 @ 3:03 pm | delete
- I just wrote that answer before knowing the quiestion
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