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From the lens Myasthenia Gravis.

  • marie ceparano Feb 21, 2012 @ 4:36 pm | delete
    My brother has myasthenia gravis. he lives in florida and is on disability. at this time he has no medical coverage and skips his meds because he can not afford them. He will be getting medical coverage within the next 6 months. But at this time he is getting worse because he doesn't take his meds the correct way. our family try to help get the meds but it has become an expense that is a hardship for all of us. Can you advise us if there is an organization that would help him get the medicine he needs until he has medical coverage?????
  • ShawnsBidness Feb 26, 2012 @ 1:59 pm | delete
    Has he spoken to his doctor about his situation? Sometimes docotor's offices have information on getting help with prescriptions through the drug manufacturer. You can also do this yourself. Contact them to see if they will provide free or reduced costs medications.

    Also, contact the Muscular Dystrophy Association and the Myasthenia Gravis Foundation of America. I'm sure they'll have more information than I do. Good luck to your brother and you.
  • cmontijo Oct 6, 2011 @ 8:15 pm | delete
    My dad has MG, I made a lens about our story. Nice lens
  • cinders57 Dec 18, 2010 @ 9:40 am | delete
    Good information. I recently was see by my opthamologist who was concerned about my very droopy eyelids. She mentioned mg and if not mg then I need to have surgery to correct the droopy eyelids. Blood work came back negative. I don't know if I should pursue the mg angle since it's negative. Eye Dr. already has be set up to meet with a surgeon and I don't know if he will look into this more thoroughly. I think I need to see a neuro Dr. to definitely rule out mg. Anyone have any thoughts on this?
  • ShawnsBidness Dec 18, 2010 @ 11:47 am | delete
    Hi cinders57,

    I can't really give you medical advice, but as someone with MG, I can tell you that droopy eyelids is a common symptom of the disease and negative blood work is common. Perhaps a second opinion with a neuro-opthamologist or a neurologist would give you piece of mind. I wish you the best.
  • terrapin719 Nov 3, 2010 @ 2:56 am | delete
    Very information lens, Connie. I love the way you share information on the web to educate people about these things.
  • asiliveandbreathe Oct 23, 2010 @ 1:45 pm | delete
    Very informative lens. Thanks for sharing your story about this condition that many people have never heard of.
  • DragonsTarot Sep 5, 2008 @ 5:17 pm | delete
    Excellent lens - good info.
    I am watching with interest
  • Wendy May 14, 2008 @ 5:18 pm | delete
    I was searching for myasthenia info and ended up on your blog again :-) I was amused to see a link to my blog and MG.

    I have a question for you about your scooter. Can you tell me what you had to do to qualify? Years ago I was stuck in a wheelchair before my MG diagnosis. Once I got on Mestinon and IVIg, I could walk again with the help of my service dog, Zeke.

    I live in Lakeland, FL now. My new insurance won't pay for IVIg and the heat sure makes me turn into jello. Some days I can barely walk from bed to couch to bathroom. Forget about outside! I only shop at stores that have electric scooters available. Sometimes that seems tough. I have never seen the inside of the Lakeland Mall and I've been in this area since late 2005. They only have manual wheelchairs...useless for MG.

    I love to go to Disney World, but haven't been able to afford to rent an electric scooter there in a couple of years. Sometimes I can get in free with cast members, but I don't get too far.
  • Pat Curry Jan 21, 2008 @ 7:19 am | delete
    You opened my eyes to MG. What great information and links you have provided! You deserve more than 5 stars for this one.
  • Christopher_Scott Oct 1, 2007 @ 1:09 am | delete
    Great lens! Lots of great information for all of us. Keep up the hard work. Come over to A DAY OF HOPE
  • Forgiven Aug 24, 2007 @ 10:38 pm | delete
    Another 5 * Lens!
    God bless
  • APWearsPink Aug 22, 2007 @ 5:35 am | delete
    Another great lens. Thanks for sharing! 5 stars for a super site.
    www.squidoo.com/cfsandme
    www.dancingwiththesandman.blogspot.com
  • fleur_de_lis_rising Aug 7, 2007 @ 2:20 am | delete
    Excellent lens! A definite 5*s -- more if I could! This is very good information for those with MG and for those who know someone with MG.
  • awelldressedbullet Jul 30, 2007 @ 6:01 am | delete
    Another 5 stars, and so wonderful of you to share this information - Kathy
  • Hannah_Jen Jul 11, 2007 @ 12:59 pm | delete
    You are a treasure! And your lenses are just great. Thanks for being you!
  • MagiesPlace.info Jul 8, 2007 @ 8:57 am | delete
    You have great strength and faith, thank you so much for sharing, God Bless, Cheryl
  • beanies Jul 6, 2007 @ 8:31 am | delete
    Great lens! Thanks for sharing your knowledge. Blessings to you! Sky
  • webbfamilysales Jul 5, 2007 @ 10:10 am | delete
    You did a lot of research and it shows!
    5 Stars!
  • Crystal_Booth Jun 17, 2007 @ 1:10 pm | delete
    Excelent description and information. Welcome to the Squidoo Ratings Swap ~ Crystal
  • mllamb46 Jun 17, 2007 @ 10:16 am | delete
    Great Lens!!

    I gave you five stars.
    ~Melody

    http://www.squidoo.com/miniatureartbymelodylealamb/ My Miniature Art and ACEOS

    http://www.squidoo.com/artonrefrigeratormagnets/ My Miniature Art on Magnets
  • DOUA Jun 12, 2007 @ 9:47 pm | delete
    Lots of important information. Thanks for being a part of DOUA and the DOUA group here on Squidoo.

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ShawnsBidness

I have several chronic illnesses. Most are autoimmune diseases. I'd
like to share some information and hopefully help someone along the
way.
I've com... more »

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