My Preemie! Parent's of premature infants.

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What is it like to have a Preemie?

This lens is dedicated to all the prematurely born infants in the world and their tired, worried, scared, frustrated, lonely, heartbroken...parents. This is a place to share your stories, blog links, advice and more. Any money made through this lens will be donated to the March of Dimes. Please check out their website. If you know of or attend a support group for parent's of preemies please put that info on this lens also so other parent's in your area can find the group. Thank you.

Team Zdelar: March for Babies 2009 Would you help?

Fundraiser for babies through the March of Dimes.

My family and I are planning to participate in the May 2009 March for Babies walk and our goal is a simple $100. Would you consider donating even just $5 or $1 to help us reach our goal? This will be the first walk we have participated in and I have a page set up for us at the March of Dimes website for online donations. You can visit it at http://www.marchforbabies.org/tzdelar (Just copy/paste that website into your browser or click on the "Link" below in the list.

And I thank you so much!

Our Preemies.

Just in a nut shell, I had the misfortune to have preeclampsia with both of my pregnancies. All was fine...except for the normal nausea, etc...until somewhere towards my third trimester. My blood pressure elevated to a dangerous level, among other problems that surfaced...differing from each pregnancy and almost to the day...of 6 wks till due date I had to have emergency c-sections. My boys are almost two years apart in age.

I never got to do the "normal" thing when you have a baby...hold them right away, feed them, keep them in your room, take them home when I was discharged. For our family...it meant alot of waiting and praying. Apart from a peek above the surgery curtain I didn't get to see my firstborn for about another 28 hours or so maybe. Didn't get to hold him till he was 2 days old. My husband did get to hold our second son in the delivery room. I did get wheeled into the NICU (neonatal intensive care unit) soon after to see him also. They both had similar issues but our #2 escaped several of the unwanted extras that our #1 couldn't. They both spent at least 3 wks each in the NICU dealing with their preemie problems...the most frustrating for me was the eating! They had to LEARN to eat ENOUGH...its enough to drive a mom crazy. You feel like they'll never "get it". The hospital staff called it "wimpy white boy syndrome". Preemie boys are slower to conquor some issues than girls. My boys weren't super tiny or micro preemie but they were preemie and had their challenges. They both weighed close to 4.5#s.

When I had #1, there was no support group for us parent's...at least not at the hospital that I am aware of. Today however, Aultman Hospital does have a support group for parent's like us. Aultman Hospital is located in Canton, Ohio and if you are in the area and would like more info on this support group, please contact me.

First Annual Reunion Picnic for Aultman Hospitals NICU Graduates

Canton, Ohio Hospital- Preemie Parent Connection support group.

In grand style Aultman Hospital of Canton, Ohio held a wonderful First Annual Reunion Picnic for its recent NICU graduates. Lots of food, fun and some "furry" friends greeted the parents and NICU graduate- children for this event. As the mother of two NICU preemie graduates and a parent-partner servicing this support group our family was there to enjoy this celebration as well. To read more in detail about this event, follow the link (in the link section on this page) to the story in the Canton Repository. To see some of my own pictures from the event visit my myspace link also in the link section.

Aultman Hospital provides a support group for their preemie parents currently...the Preemie Parent Connection (PPC).

Links.

The "Good" test.
So many people think you have to be a good person to make it into heaven. What does God say about it? Afterall, it is HIS home.
First Baptist Church
You can download sound biblical teaching audio and notes from this church. I highly recommend them!
Moms In A Blog
A link for MOMS!
Canton Repository Preemie story.
Find out more about the First Annual Reunion Picnic for Aultman Hospital's NICU preemie graduates and info on the Preemie Parent Connection support group.
Hall of Fame Moms
Whether you are a stay at home mom (SAHM) or a work at home mom (WAHM)- Hall of Fame Moms has something for you! Get your products some extra exposure through my product reviews, find business resources, and some links for saving money while managing your home.

Stop by and take a look around...Hall of Fame Moms!
Team Zdelar: March for Babies. Please sponsor us!
This is our March of Dimes page for the March for Babies walk. Team Zdelar's goal is $100. Would you help us with a small donation? If just 100 people would donate $1 each, we'd make it!

Thank you!

Tell us about your Preemie or just say Hi!

Anyone can leave a message.

Also- share your advice, help, a kind word or support group info!

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  • Reply
    Jessica Mar 12, 2011 @ 10:36 pm | delete
    I am a Mother of a 30 week premature infant who has spent much time out of the NICU creating a journal and keepsake for parents touched by prematurity. I have published three editions to this preemie baby book which provides fill-in pages, journaling and medical resources. Our journal is available on Amazon.com and is truly providing parents a companionship throughout their NICU stay.
    I am in the process of re-publishing our first edition and will be including multiple pages that outline foundations, organizations and websites that are supportive to parents. I would like permission to include you in our resource section and highlight the benefits of your website.
    If you would consider being a part of this endeavor, please email me back with any artwork or verbiage that you wish me to use in your page space. I will be able to provide you with a proof of the work and again with your permission would publish to Amazon.
    I anticipate that within the next 3-4 weeks the journal will be in full publication on Amazon. Your support is greatly appreciated.
    To locate our NICU Companion Journal on Amazon, follow this link::
    http://www.amazon.com/Jessica-Williams/e/B004G0E4PC/ref=ntt_dp_epwbk_0
    If you would like to consider carrying our journal or highlighting it's benefits on your website, please send back an email with that request. We are always honored to be noted by other foundations and organizations, and will include any artwork that you may need for that purpose.
  • Reply
    LisaHW Dec 4, 2009 @ 11:46 pm | delete
    This is a nice lens on premies, needless to say. My (now 28-year-old and very handsome and, of course, wonderful) son was born at 34 weeks, breech, and in an hour and a half. His sister, due at the end of the January and born at a nice, good-enough, 37 weeks, threatened to be born from October. As you mentioned, when your baby comes way too early you can't have/do all the things "every other mother" gets to do (even though lots of babies are premies).
    Not long ago I started a blog, "For Moms of Premies", with the idea of trying to offer "big sister-ly reassurance", along with resources to solid information about the matter of premature babies and delivery. http://www.momsofpremies.blogspot.com/

    Even with a healthy premie, things can be scary. It's one of those things that make mothers feel as if they're in a "special club"; and even long after dealing with issues associated with premature, there can still be that poignancy of knowing you were admitted to a "club" from which you may grow distant over time but to which you will always, in some small way, remain a member.
  • Reply
    emmajbarrett Jul 19, 2009 @ 4:42 pm | delete
    We have a healthy 3 year old called Lily. She started out at 1pound 15 ounces. I still think about our fear almost daily, but want to share our story to give hope to others that tiny babies can turn into healthy babies.
  • Reply
    awelldressedbullet Dec 1, 2008 @ 5:22 pm | delete
    Nice lens, just wanted to drop by and say "hi" - Kathy
  • Reply
    tzdelar Nov 25, 2008 @ 8:32 am | delete
    Thank you so much and I wish you and your family the best! It can seem like forever when they are in the NICU but soon it will be but a memory when they are home and growing up. Take lots of pictures now and even document their experience and yours for them to read about when they are older.

    Thank you for leaving your comment![in reply to Becca]
  • Reply
    Becca Nov 4, 2008 @ 10:37 pm | delete
    I am a new mother of premature twins born at 27 weeks gestation.

    My best friend bought the babies some adorable clothing from:
    www.LittleSproutCollection.com

    I can't believe how soft the clothes are and how perfectly they fit my little ones.

    Definitely check this site out....I can't wait until they get bigger to wear the rest of their new clothes.

    Best wishes to all you new moms and your precious little babies.
  • Reply
    lilbabycakes Sep 19, 2008 @ 6:40 pm | delete
    This is a great lens, all the best to you and your family!
  • Reply
    AvaBaby Sep 14, 2008 @ 11:27 am | delete
    Just want to tell you about a great little preemie boutique. AvaBaby's www.avababys.com. Some of the cutest preemie clothes anywhere. Hope to see you there!
  • Reply
    JJNW Aug 29, 2008 @ 12:16 pm | delete
    BRAVO. Very sweet and thoughtful page.
  • Reply
    Comfortdoc Jun 24, 2008 @ 8:37 am | delete
    You may want to add your lens to the Everything Preemies and NICU Babies Group
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Books for Parent's of Preemies

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The March of Dimes helps.

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Preemie stories...

premature baby bailey 1lb 4oz

premature baby baile... 0 points

Premature baby

Premature baby 0 points

The Face of Prematurity

The Face of Prematur... 0 points

My love for Matthew

My love for Matthew 0 points

Premature Baby Jonny

Premature Baby Jonny 0 points

National Ambassador 2008: Catharine Aboulhouda

National Ambassador... 0 points

In Memory of Jayden

In Memory of Jayden 0 points

1 in 8 babies is born premature

1 in 8 babies is bor... 0 points

Ezekiel's Story

Ezekiel's Story 0 points

Our Son born too early due to Preeclampsia

Our Son born too ear... 0 points

We Must Be Their VOICE - Preemie Abortion Prolife NICU

We Must Be Their VOI... 0 points

NICU information.

Premature baby's first few minutes - NICU Team

Premature baby's fir... 0 points

Saving Preemie Babies - The Linden Fund (Full Version)

Saving Preemie Babie... 0 points

Inside the NICU

Inside the NICU 0 points

Premature baby's First Few Minutes - NICU Team (part A)

Premature baby's Fir... 0 points

CPAP (Continuous Positive Airway Pressure)

CPAP (Continuous Pos... 0 points

Airing of Grievances

Airing of Grievances 0 points

Neonatal Intensive Care Unit at Sharp CV Medical Center

Neonatal Intensive C... 0 points

Asher's Birth Story (Thank you NICU nurses)

Asher's Birth Story... 0 points

Thank You UIHC NICU

Thank You UIHC NICU 0 points

Blogs on ...parenting preemies.

Parents of premature baby celebrate first birthday by giving back
Cheyenne was 12.5 inches long when she was born prematurely at 27 weeks. According to the March of Dimes website, fewer than 1 percent of babies are born before 28 weeks of gestation. (Photo: Contributed) When Missy Douglas gave birth to her baby girl ...
Feeding tubes help kids flourish, but parents pay emotional price
Some use them because they are premature babies or have cerebral palsy and have difficulty feeding themselves or swallowing on their own. But there is a downside to using a feeding tube long-term. Children don't learn how to swallow, ...
Preterm Infants: Risk for Death Estimated More Precisely
The researchers collected data from the Israel National Very Low Birth Weight Infant Database for infants born at 23 to 26 weeks' gestation between 2000 and 2008, and included information on 2544 infants. The model demonstrated a "cumulative risk of ...
I Heart the Mohawk Valley: Blind pianist discusses her art
?Marisa has the worse form of a condition called retrolental fibroplasia (a condition associated with premature infants). So the oxygen that was mistakenly given to Marisa caused a hemorrhage within her. The last two weeks (in the womb) were critical ...

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