PAROTID TUMOR INFORMATION
A few months ago I started to get some serious migraines and felt as if I had a terrible ear ache. I went to multiple doctors and was given four rounds of amoxicillan to no avail. I kept telling my doctors that I was not feeling well and just did not feel "right". It was also during this time that I began to physically feel a type of lump behind my jaw underneath my ear.
Still even after telling three DIFFERENT doctors that I felt a lump of some sort, it was as if they did not believe me-one doctor even told me that he thought I probably just pulled a neck muscle. However, I knew something was wrong and just kept pushing and pushing my primary doctor for answers, after four CT scans and three MRI's, a tumor was found in the tail of my parotid gland.
Believe me when I tell you that I am giving the short version of this story, it is unbelievable to me thinking about what I had to go through to finally get medical confirmation that "yes" I was not crazy and that I was correct in my feeling that something was not "right" with me.
I am now scheduled for surgery on Jan 4, 2008, I am hoping and am confident that my tumor will be benign. However, I have resolved to the fact that it may be malignant, although even with a malignancy there is a very high probability that it will be resolved and that I will go on to live a healthy, happy life.
Now...why the lense? Well, once I found out that yes I do have a parotid tumor I immediately went to the internet trying to find out anything and everything I could about parotid tumors. There is a lot of information but it is scattered and time consuming to find.
So what was my next step? I of course searched for domain names related to parotid tumors, bought two of the names available, put in the key words related to parotid tumors and vio'la..... related resources popped up on one page.
I am also writing this lense because I know how stressful the uncertainity is and if you suddenly have been presented with this diversion in the road (so to speak), please do NOT feel alone because you definitely are not!
I am no expert on parotid tumors but I have done a lot of research and I have first hand experience with it so if you have questions, feel free to pose them..if I can't answer it, I am sure there is someone else out there that can!
If you just need emotional/moral support, I definitely can give that and would be happy to help. My websites have lots of related links to parotid tumors so feel free to take a look: www.parotidtumor.org and www.parotidtumor.info
I will be adding more to this lense and will give a future update on my surgery. If you have comments or questions, please feel free....
Remember, you are not alone.....
If you do leave a comment and/or would like me to respond (and I am happy to do that) PLEASE give your e-mail so I can respond!
TUMOR and CANCER INFORMATION BLOG
UPDATE** 01-07-08
However, what came as a surprise to me was that my surgeon also said that my parotid gland and quite a bit of tissue along my jawline had chronic infection.
He said he also took out the infected tissue and some lymph nodes that were also infected. Although I am never happy to hear that I had an infection, it was somewhat of a relief now knowing this information as I was having continual pain and feeling sick all the time before the surgery and now I understand why!
At least now I know I am not a big baby or imagining things! :)
Considering that I just had surgery, my face is only slighty swollen, the incision will not be too noticable as my surgeon did it right along my ear and my neckline, it really is amazing...surgery is definitely an art. My family and I are both shocked at how well my surgeon did on the incision!
My biggest drawback right now is being tired..I will do something for a little bit and then need a break so.....a break is now needed. However, thanks to all for your kind e-mails. I will definitely write more as soon as I am feeling a bit better. Take care.
BENIGN! YEAH FOR BENIGN!
MUSIC TO MY EARS!
My doctor said that he actually ended up taking more of the parotid gland than he originally thought he would have to. He said he had to take about 80% of my parotid gland and because he did not want the side of my face to sink or cave in, he pulled the remaining parotid gland over and stitched it to my ear canal. I know...gross!
He said my gland was just "withered" and had to be taken out, he also mentioned that the infection was pretty severe along my jawline and he also had to take out a few lymph nodes, one node was especially infected.
It has now been about 3 weeks, my incision is healing and really I have only slight discomfort inside. However, now finding out everything the surgeon did, it is not surprising that I still have some slight discomfort.
Parts of my ear and a bit of the side of my face are still "numb", it is a strange thing to explain...I guess the best comparison is like when you go to the dentist and get a cavity filled and your mouth is numbed..the way my ear and side of my face feel right now is almost the same sensation.
Again, my doctor said the numbness is completely normal and it could take up to a year for the feeling to come back. However, I am just glad my mouth, eyes etc are all okay and were not affected because I was told by my doctor numerous times that the nerves around my mouth and/or eyes could be affected temporarily.
Anyway, everything is good. I could not be happier and I am on the road to recovery. I will keep making posts as to my updates. Again, if you are going through the same thing or similiar thing and need to talk, please contact me. I am here!
PAROTID TUMOR READING RESOURCES
POSSIBLE SYMPTOMS OF PAROTID TUMORS
*swelling in the face area
*mass or some type of lump in the mouth and/or neck
*pain in the side of the face and/or jaw
EXCELLENT MAGAZINES DEALING WITH HEALTH and CANCER
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Reader Feedback
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- Rose J. A Rose J. A Oct 31, 2009 @ 12:03 am | in reply to Susang
- Hi There, you are the only one out here from the other forum. I was wondering how you did on Monday. Hope you are doing well, praying for excellent results for you.
I really miss the old forum that was suspended. Take Care, Rose
Still really don't know how to get in with the oldies that I grew to love. My e-mail address is as follows, rja19398@comcast.net
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Reply
- Susang Susang Oct 28, 2009 @ 6:26 pm | in reply to Marie Hi - Have you been to an ENT? That is who you need to see not your family/GP doctor. I jsut had parotid surgery last week - took out a huge tumor. Surgery went well - all nerves intact - still don't know the pathology yet (benign or malignant) but waiting and hoping. Good luck to you.
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- Marie Marie Oct 8, 2009 @ 6:58 pm
- If anyone knows what mine could be please emaill me at marielee209@aol.com
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- Marie Marie Oct 8, 2009 @ 6:54 pm
- I'm 23 years old with a feeling of a lump on the left side if my throat and went to the dr abs found out I had a swollen paratoid gland on the same side where I feel the lump in my throat! I'm so scared! Ever since the dr pressed on my lymph node my neck down to my shoulder is so sore! I'm so scared to have cancer I have never smoked and I rarely drink. Is there other things that could cause this sensation and pain? I've been feeling the lump feeling for almost a month now and I'm really scared.
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- Susie Susie Aug 21, 2009 @ 9:30 pm
- Good luck to you Judy A. I got my FNA results back today and it was inconclusive for benign mass and adenoid cystic carconma (which scares the daylights out of me). I go for a CT on Wednesday and then back to dr. I hope your surgery goes well.
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by Shellonline
Hello fellow Squidoos!
I am smiling and shaking my head as I am typing because I have once again put myself in a place of unfamiliar territory!&...
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