ACK! I've Got Perioral Dermatitis

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About Me.

At 39 years old, I was diagnosed with Perioral Dermatitis. I've been living with the diagnosis several years now but I've managed to clear it up and would like to share with you what I have discovered.

UPDATE ONE YEAR LATER: I am still Perioral Dermatitis free. I've learned what to do when I start seeing any pink and have been flare-up free even after two occasions where Prednisone was needed.

NEWEST UPDATE TWO YEARS LATER: I now have a full-fledged allergy to Sodium Lauryl Sulfate. If I use any product with SLS as one of the first ingredients, my face breaks out in a terrible rash. Because scarring is now a serious concern, I am going natural. I've started using only SLS-free products and the rash is completely gone. As I learn about new products, I'm including them on my SLS Allergy page. Please, feel free to suggest your favorites. Not only will it help me but the many people who read that page. Thank you.

What Is Perioral Dermatitis?

gotta admit, it sounds better than "muzzle rash"

Barely HidingSo, you're looking for a short but sweet description of Perioral Dermatitis? That's easy. It's a rash that develops around the mouth and nose which gives it the "muzzle rash" nickname. The rash may also surround the eyes as well. As you can well imagine, this is not the most attractive look!

For some reason, women in their 20's, 30's and 40's seem to be the ones most affected. This may very well be due to the amount of moisturizers and make up we tend to use. Also, for some reason, women who are more prone to blushing may be at higher risk for developing this rash.

If you've used topical steroids (i.e. hydrocortisone), you are more likely to develop Perioral Dermatitis).

Some other causes of this rash may include sunlight and fluoridated toothpaste.

The rash doesn't usually itch but it can be a little tender or painful if touched.

Some doctors may mistake Perioral Dermatitis for Rosacea or other skin disorders. If you suspect you have Perioral Dermatitis, see a Dermatologist and do not use steroidal creams to treat the rash.While the rash may disappear temporarily with the use of such creams, it will come back much worse than before. Many of the stories online indicate that physicians will typically misdiagnose Perorial Dermatitis so scheduling a Dermatologist visit is probably the best way to go.

My Story

-Or- How I made a bad situation much, much worse!

We live part-time in the Caribbean thanks to my husband's job. This summer, we were out enjoying that tropical sun and humidity just about every day. Around the end of July, I started experiencing what I thought was a heat rash. Being no stranger to heat rashes, I simply stopped using much of my makeup and just continued to use a light moisturizer. The rash didn't really clear up, but it didn't get worse either.

Fast forward a month, after having this rash for over a month, I finally came to the conclusion this was not a heat rash (doesn't take me long, eh?). I thought maybe it was some fungal thing but I didn't really have anything handy to treat it so I started playing with different creams already in our medicine cabinet.

Kids, don't try this at home
One cream in our medicine cabinet is Mometasone Furoate (a corticosteroid). My son's allergist had prescribed this for my son's latex allergy outbreaks to bring down facial swelling. Upon the first use, almost immediately, my rash disappeared. I used it for a few days and then stopped. My rash started coming back so I applied more. This cycle continued for a month and a half. I'd use the cream and the rash would disappear. I'd stop use and it would come back quickly. Finally, even the cream wasn't stopping the rash. That's when I knew I needed to see a dermatologist. Because my son had been misdiagnosed for almost half a year by regular physicians before a dermatologist correctly diagnosed psoriasis, I knew to skip the middle man and go straight for the dermatologist. Now that I know what this is, that was a smart move. I've read many accounts online of non-dermatologists misdiagnosing this condition and <> prescribing steroidal creams.

The moment my dermatologist saw my face, he instantly knew what this was. He told me the Mometasone Furoate was actually making the condition worse and to stop using it immediately. He prescribed Solodyn (an antibiotic) and Clenia. Fortunately, he gave me some samples of the Clenia to try before I turned in the prescription.

How I Got My Rash-Free Face Back

I immediately started using the Clenia and taking the Solodyn. However, because I stopped the Mometasone Furoate cold turkey, for the next three days, I had a major rash surrounding my nose and on my chin. It was horrible. I couldn't cover it with make up so I just gritted my teeth and carried on as best I could. Unfortunately, being a mom of busy kids, I couldn't just hide at home. I did notice folks staring at my rash. For awhile I just simply explained it but after a day, I found I really didn't care any more so I just let people wonder what was happening. Only one person asked what was wrong with my face.

During the first day, I really researched this condition online. I wanted to learn all I could and find out what I could do to make it better.

A number of people seemed to think apple cider vinegar (ACV) helped the condition so I tried a little experiment.

On one side of my face, I used the Clenia. On the other side of the face, I used the apple cider vinegar. By the next day, the side with the ACV was visibly less red. The side with the Clenia was actually an angrier red. Keep in mind, this was day two of going off the steroidal cream. I stopped using the Clenia, although I did stick with the Solodyn, and just used the ACV. Within several days, there as only the faintest outline of pink and my skin was incredibly soft.

There is one drawback to the ACV, well, actually two. First of all, when you first start using it, it stings like anything. However, I was more than willing to do whatever I could to get rid of this rash. Drawback number two, as my five year old daughter pointed out, is that it is stinky.

I did take a few more suggestions from the internet. I really cut back on sugar and I stayed out of the sun. In less than a week, my rash was gone. And, I'm not sure if this is from the Solodyn or ACV, but my face looks really good right now.

I'll update this page in the future if my rash returns but, if you don't see that update, I continue to be Perioral Dermatitis free and I hope that you are as well.

Updates

Could I possibly be PD free?

I am pleased to say I went off the cortisone cream and had the perioral dermatitis explode on my face, I am now rash free. I do notice that if I have too much sugar, I get a little pink around the nose now. However, I've found a product that seems to be really working for me. I bought the Eucerin Redness Relief soothing cleanser and I really like it. The cleanser is recommended for people with Rosacea. I then have also switched from my usual moisturizers to the Aveeno Ultra Calming Moisturizer. Eucerin does make a Redness Relief moisturizer but I bought the Aveeno before I noticed it. I'm really happy with the Aveeno but I'll try the Eucerin when I run out.

I've stopped using the apple cider vinegar. I really think the ACV worked best when I had the initial breakout. Once I got the breakout under control, I didn't notice it doing too much.

So, in a nutshell, I seem to be staying PD-free by limiting sugar, using my Eucerin Redness Relief cleanser once a day and using the Aveeno Ultra-Calming Moisturizer in the mornings.

Half a year later I am learning what to avoid to trigger a reaction. My skin doesn't seem to like new lotions anymore so I am sticking with the Aveeno and Eucerin. All in all, I'd say I am PD free!

One year later Despite having steroidal shots and being on Prednisone after an especially bad spider bite (black widow?), I've remained PD free. Whenever I notice some pinking around my mouth or nose, I immediately start using my Redness Relief wash and the pink goes away. Yay!

A couple years later: I've now developed an allergy to Sodium Lauryl Sulfates in general. I have not used the Eucerin Redness Relief Cleanser for a number of months but it does contain Sodium Laureth Sulfates. Sodium Laureth Sulfates are not as strong or as harsh as the Sodium Lauryl Sulfates so I am unsure if I will have a reaction. I have found that occasionally using apple cider vinegar helps if I start to pink up. I also am sticking to a few general products because when I deviate, I pink up. I stick to the Bed Head sulfate-free shampoo (love SuperStar...it really is the best). I know this sounds strange but, for me, it works, I've been using the Kiss My Face Whenever Shampoo as a regular soap while in the shower and washing my hands. I did not care for it as a shampoo but love it as a soap. I find that if I use these products together, I stay clear but as soon as I deviate, I start having issues again. I'm sure there are many other wonderful products but since I've found what works for me, I'm sticking with what I know.

*New* Poll

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You can even find help on Amazon!

For those whose toothpaste makes their condition worse, Squigle is highly recommended by many with this condition.

Also, here are some of the lotions and cleansers that are recommended.
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My New Favorite Shampoo

I have found that a sure way to start up my perioral dermatitis is to use soaps or shampoos with SLS as an ingredient. I have tried many shampoos and just love Bed Head's Sulfate-Free Superstar shampoo and conditioner. Other SLS-free shampoos leave my hair tangled and difficult to manage. Not so with Superstar. If shampoos are a problem for you, you might want to check this one out.
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Bed Head Offers Even More For Us!

I'm trying these Bed Head products now and no break out! This company understands us!
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Love the Kiss My Face Products

I have yet to try a Kiss My Fact Product that causes a reaction. I know some of these products can be found in the natural foods aisle of my local store as well so take a look. If you can't find them, Amazon carries them as well.
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Suffering from Perioral Dermatitis?

I hope this page helps somebody else. Of course, everybody is different. You may have found a different approach that worked for you. Please, feel free to share what you have learned with others researching this condition.

Also, if you are looking for SLS-free items, please feel free to check out my SLS Allergy page.

If I don't reply to you here, please feel free to e-mail me directly at misdiagnosedmiscarriage@gmail.com

  • CAT Jun 3, 2012 @ 2:36 pm | delete
    Thought I'd share my situation regarding meds and the return of my PD. I was on Accutane for 6 months and everything cleared remarkably. I had clear, PD-free skin for about 2 years. Then, one day it started coming back. I hid/dealt with it for a while until after about a year it started getting really bad. I know now that it was b/c of some steroid cream I thought was helping take it away.
    I currently avoid plastics (in or around my mouth: wooden toothbrush, etc.) and I also only use 100% natural cosmetics (shampoo, toothpaste, soap...everything - I like justnatural.com products, but Aubrey organics work, too). While I was on Accutane and for the two years after when my PD started reappearing and getting worse, I was not using all natural products. I was using whatever I happened to pick up at the store. I was also using plastic (straws, toothbrush, water bottles, etc.) So, that's probably why my PD came back. I avoid plastic like the plague.
  • suzanne-meredith1 Jun 2, 2012 @ 7:39 pm | delete
    Hi, I was wondering how long it took for your PD/sls allergy to show up after quitting antibiotics. I'm asking bc it's been 2.5 years since I quit antibiotics and I've been using natural skin care since then. I hope I'm not speaking too soon, but from the looks of it my PD's gone. Thanks a bunch!
  • suzanne-meredith1 Jun 3, 2012 @ 7:31 am | delete
    I was also wondering if when the rash came back after you stopped the antibiotics and acv for a while if it came back in the same place as before. By googling I've had trouble figuring out if it always shows up in the same spot or altleast some of the same location each time it reoccurs for people. As far as I can tell I've been pd free but I do still get 1 or 2 pimples around my mouth but they cycle out and usually scar a tiny bit just like normal pimples, but lately I've had quite a few more showing up around my mouth although they cycle out just like normal pimples do and I have quite a few clogged pores and closed comedones there so I'm almost certain none of what's showing up is PD. It's just when you have something so upsetting as pd(especially as bad as I had it with the steroid) it can stress you out a bit each time you see a bump or two show up. Sorry about all the questions and thanks so much:)
  • Deanna Jun 2, 2012 @ 8:27 am | delete
    I had a terrible case of perioral dermatitis for one year. I tried everything on this site, nothing helped.
    I finally did one month round of Accuatane. Then took a month off. Then I took large doses of Diflucan for a month. I started using Obagi facial cleanser (got from the derm) and the evil PD has been completely gone for 6 months.
    Although I tried it, I never believed eliminating SLS could help (it did not),
    as I run out of the natural products, and re-introduce my old favorites...my face is
    still clear. (I missed you, cinnamon crest!)
    This has made me believe PD is fungal related. Fungus can be very hard to kill.
  • Cari_Kay Jun 2, 2012 @ 8:33 am | delete
    I am so sorry you are going through such a terrible time. This makes me think there may be multiple causes to PD. My daughter has developed it now and we've found cutting out SLS works for her as well.
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Cari_Kay

Hello. My name is Kay. I'm not a medical professional but due to life's twists and turns, I've learned a bit about topics like miscarriage (as well as... more »

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