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From the lens Pernicious Anaemia.

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  • mrkensworld May 23, 2012 @ 12:47 am | delete
    Hi Carrie, I am now more informed about the dangers of vitamin B deficiency. I had problems mainly depression and chronic fatigue. I have found a great solution and don't take any shots. My life was really changed by sub lingual B12 and I have just started a site to help others also. Hope that you will critique my Vitamin B12 Deficiency Vitamin B12 Deficiencysite and let me know what you think. I will be of service to assist you bring wellness to others and look forward to hearing from you. Ken
  • John Elliott Apr 11, 2012 @ 4:47 am | delete
    I was diagnosed with Vitamin B12 deficiency 2.5 years ago, and need the regular 3 monthly injections. Very little information was given by the doctors, but my main symptoms are fatigue, memory lapses and hair loss. The doctors insisted that B12 patients claims of fatigue towards the end of the 3 monthly period are just psychosymatic, but I think patients suffer fluctuations of well being. Surely diet is bound up with this.
  • Nicky Goodman May 22, 2012 @ 1:55 pm | delete
    I think you could be right, I was diagnosed with B12 deficiency in January and am still undergoing a variety of blood tests. I suffer with extreme fluctuations of well being and I too have wondered if diet could be responsible. The only consideration I have against this is that tests have shown I am strongly positive for anti bodies which would lead me to assume I am unable to absorb B12 so in theory diet would have no bearing
  • exotickitten731 Feb 23, 2012 @ 11:55 pm | delete
    "I believe that I do not have IBS and that my symptoms are due to Pernicious Anaemia and multiple food intolerances." , and almost all of the symptoms also make sense in my case, so should i take the vitamin b-12 pills or what? i'd prefer not to have to take the shots X_X, feel free to contact me on here to reply, and thank you for sharing this lens!
  • inkserotica Apr 30, 2012 @ 12:10 pm | delete
    If you're suffering from many of the symptoms listed I would recommend that you ask your GP to test for PA. Many sufferers of PA cannot take oral supplements due to the lack of intrinsic factor so injections is the only other way to be treated, unfortunately. Good luck x
  • Just Like Me Oct 10, 2011 @ 6:08 pm | delete
    Symptoms I've been suffering from
    Is this PA or something else?

    The last section you mentions symptoms that were unrelated to PA, I had almost identical symptoms: Until my doctor told me to stop taking my cholesterol medicine. Pravastatin - or any statin - can cause those side effects you listed. Talk to your GP to see if you should try going off them for a while (if you are on a statin) and see if you improve.
  • inkserotica Apr 30, 2012 @ 12:12 pm | delete
    Thanks for the tip! However, I don't take statins so my symptoms are due to something else. Currently I am being investigated for hypothyroidism so that may be the answer I'm looking for :)
  • tracy Mar 14, 2011 @ 11:58 am | delete
    hi i developed pernicious animia 3 years ago after having 3 small strokes befor being diagnosed,ive been left weak down one side and very forgetfull and frustrated my doctor hasnt sent me for any tests after the strokes and only next week am getting my first follow up of blood tests when you are ment to have regular blood tests and check ups i have nerve damage but my doctor is very unhelpfull and i am constanly still exhausted i have injection every 3mth yet some people can have one every two mths i dont see why doctors have to be so unhelpfull and to leave somebody to live like this which just isnt fair
  • sousababy Feb 22, 2011 @ 6:51 am | delete
    Wow, I just had to read this before I left on my trip inkserotica. You have done a fabulous job of pointing out what I have suspected too about IBS (having seen patients with both PA and IBS). (I suffer iron deficiency anemia). It makes clear sense to me (not all in medical circles will agree though) that intrinsic factor (essential to proper digestive functioning) would have a direct result on our bowels. I feel strongly (only a theory) that certain people are genetically predisposed to PA (seems to be more common in females with fair skin, in my experience). I will also make the leap to say hormonal balance is probably influenced too. In women, this can exacerbate symptoms (like IBS) at certain times in their monthly cycles. Wish you had a better GP, however you have done a fabulous job of educating and finding out what works best for you. Glad you trusted your instincts. Stay Well my new friend, Rose
  • inkserotica Feb 25, 2011 @ 2:36 am | delete
    Thank you so much :) Hope you have a good trip! :D
  • lsocher Jan 10, 2011 @ 7:31 am | delete
    I was diagnosed with b12 deficiency that, thankfully, did not evolve into pernicious anemia. I started getting the b12 patch. I cannot believe how much more energy I have today. I ordered mine at www.b12patch.com.
  • Squidoolinepro Dec 4, 2010 @ 11:17 am | delete
    Not enough people know about pernicious anaemia, including doctors sometimes. (jmo) Very good informative lens.
  • WriterBuzz Nov 1, 2010 @ 3:01 am | delete
    Hi there, I just found your lens and really liked it. I gave it a thumbs-up and liked it, because the information is so relavant in today's high stress world. Thanks for providing it, and keep on lensing . . . I just did one on Migraine Headaches that might interest you.
  • kimmanleyort Oct 15, 2010 @ 7:32 am | delete
    Very good research. I have had to diagnose and fix problems of my own, after many visits and tests through doctors. I'm glad that you figured this one out.
  • Dave Jul 31, 2010 @ 4:22 am | delete
    Read this after many hours trawling through the internet.And there it was, finally, someone I can relate to. I was diagnosed IBS by a lazy doc but the symptoms didn't fit. It took an a&e doc who was treating me for a neck injury to insist i see someone re anaemia. Now diagnosed PA and due to have B12 next week ...
  • Jenna Jul 31, 2010 @ 1:19 pm | delete
    Thats good that you can relate. I'm still tryna get myself sorted out. I've been in so much pain today, almost being sick and considering a&e. We'll see what the doc says on weds...
  • Jenna, UK Jul 21, 2010 @ 10:29 am | delete
    I have been diagnosed with Pernicious aneamia for about a year and a half. Having my regular 3 monthly injections. I also have the "IBS symptoms" you described and have been told to just live with it. I've tried changing my diet, cutting things out, putting things in and keeping a diary to try and spot some triggers or a pattern. There is none! Its completely random and I've told various doctors I've seen that the amount of pain I'm in cannot in any way be "lived with". I have a doctors appointment on 4th August and I think I'm just going to demand something be done about it.
    I also have symptoms related to the B12, even after having the injections, I need to sleep for a few hours during the day usually starting at 2pm ish, which isn't good for work. I forget things easily usually within seconds of being told, I feel confused most of the time which is probably the cause of my abundant anger and frustration, my hands shake all the time, some days I even have to rely on caffinated energy drinks just to get me through the day. I find these sometimes send me over the edge and I can become hyperactive, from one extreme to the other but most of this has been blamed on my depression.
    In conclusion, I feel I can relate to you as I've had many doctors tell me yes its this, yes its that but nothing has been done about it. I'm starting to second guess myself and my doctors thinking that its all in my head, like having all the symptoms of schizophrenia but not actually having it. My life is divided into two, the days when I'm okay and the days when I'm not.
  • 3sonsstudio May 1, 2010 @ 9:45 pm | delete
    Excellent Lens! Thank you for the information and for sharing
  • Demaw Apr 4, 2010 @ 11:06 pm | delete
    Sometimes it takes more than one doctor to get it right. If you don't agree with his treatment try another, maybe someone who specializes in blood. Also never use a doctor who does not answer your questions or respects your opinions on your own health. Keep being your own advocate and insist on being listened to.
  • Chereese Jun 1, 2012 @ 2:31 pm | delete
    Hi, I can relate to the frustration of dealing with doctors that either don't take you seriously, don't seem to care, or are insulted when you suggest what you think might be wrong with you. I've seen a few primary doctors and 2 different GI doctors in the past few years. I'm hoping my new PCP will be able to help me. It started 3 years ago with stomach problems, then diagnosed with H. Pylori, treated for that (but the stomach problems never went away). Went for another endoscopy and it confirmed I still had Gastritis, but the H. Pylori was gone. Neither GI doctor gave me any hope that my stomach could heal, nor did they prescribe any medication or treatment plan. Pretty much they said deal with having a messed up stomach and have a nice life. Then, a couple of years ago I started getting weird symptoms such as feeling lightheaded, foggy feeling in my head, tingling in my toes and fingers, legs feeling 'wobbly,' feeling very tired and weak, sore tongue (this is in addition to my ongoing tummy troubles). I saw my doc again a couple of days ago and asked him to repeat my blood work AND test my blood for B12 levels. I hope I get answers soon. I'm really concerned.
  • TheWhistler Mar 7, 2010 @ 9:21 am | delete
    You certainly know your subject. Sorry to hear that you are having trouble with a proper diagnosis. I am well aware that the medical profession can be more than difficult to deal with. Good luck.
  • paperfacets Dec 31, 2009 @ 12:30 pm | delete
    I am sorry to hear that you have this terrible condition. It certainly would not be fun to deal with. I enjoy your articles. Good luck with your search for answers to your health. Oh, Happy New Year, for tomorrow is 2010.
  • RinchenChodron Dec 5, 2009 @ 11:02 am | delete
    You have done an excellent job here! Thanks for all this wonderful information in one place. I've been having some problems myself (docs think either liver or IBS) hmmmm Blessed by an Angel (you can add it to the plexo on my angel lens, if you want). Isn't B12 deficiency a female problem primarily?
  • Spook Dec 3, 2009 @ 10:52 am | delete
    I now understand your quip somewhere else. It's always best to see a specialist and most GP's are just a conduit to this. I'm so sorry about your experience with the nurse, mine have always been cordial. Keep on fighting and keep your chin up. Blessed by an Angel.
  • Joan Nov 14, 2009 @ 7:59 pm | delete
    I was diagnosed with PA 30 yrs ago, I almost died as my hemoglobin was under 2. Since then I have been getting shots every two weeks which works best for me. Luckily, my husband injects me which saves a lot of Dr. time. The CB and needles are cheap. Unfortunately, lately the results of the blood count going down so low has left me with a body that is tired all the time. I was told that eventually I would feel the affects of the late .
  • BevsPaper Oct 19, 2009 @ 8:12 am | delete
    Very informative lens! You have me thinking that I should maybe ask my GP about this condition. It certainly would clear up symptoms that I have had for many years.
  • Jody Oct 18, 2009 @ 5:42 am | in reply to MrMarmalade | delete
    Do you have the information from the specialist yet. My friend has it. Jody (coyote1223@hotmail.com)
  • Dianne B Jun 25, 2009 @ 6:05 pm | delete
    I was recently diagnosed with PA. I am taking 1 b-12 tablet of 1,2000 mcg, and am still so tired. I also have fibromyalgia syndrome. This pain and fatigue feels like it is totally ruining my life. I can't be happy because of the pain and fatigue. All I want to do is sleep. curl up and rest and hope and pray the pain goes away.
  • aj2008 Jan 29, 2009 @ 4:54 am | delete
    Oh Carrie and to think I have been wingeing about having a cold! Sending out positive thoughts and virtual hugs.
  • tdove Jan 15, 2009 @ 11:16 am | delete
    Thanks for joining G Rated Lense Factory!
  • MrMarmalade Dec 19, 2008 @ 3:50 pm | delete
    I have had this fatal disease for better than 11 years. My Aunt had it and died.
    It does run in the family Line.
    If caught in the early days it may be cured. Too long, then put up with it.
    Injections every six weeks. If it is easier and cheaper to get your Nurse to do same.
    Suggest you get another doctor.
    My doctor has a little four drawer filling cabinet. It started out with my packet of three injections. Now all four drawers are filled with Vitamin B!2 users.
    My man has become a specialist in this field. As a close friend of his father was diagnosed with same.
    He is writing me a 100 page thesis on this subject. I hope to have it availabe in the near future.
    Great lens Made you a top five Stars ***** and Fav.
  • GrowWear Nov 3, 2008 @ 11:11 am | delete
    Years ago, I diagnosed myself as having pernicious anemia. The doctor and nurses all had a good laugh, but didn't try to see what WAS wrong. I have since found that I have thalassemia. I wish you good health. Thank you for sharing this!
  • vbright105 Nov 3, 2008 @ 5:17 am | delete
    Thanks for sharing your story. I've never heard of this. Best of luck to you

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inkserotica

I'm a Freelance Writer and Reviewer, who will try her hand at anything. I have a passion for the paranormal, forensics, true-crime, horror, video games,... more »

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