Blighted ovum? Miscarriage? or Miracle babies times three!

On March 30, 2008, I discovered I was unexpectedly pregnant. Since I'd already suffered multiple miscarriages and had been through a lot of testing, I knew I needed to be on blood thinners as soon as I got pregnant. So I called my doctor and asked him to call in a prescription for Lovenox and made an appointment for two weeks later for a dating u/s. It took 2 days before the script finally got called in, so on April 2 I picked up the script and another home pregnancy test. I got home and took the test-negative. So I didn't take the Lovenox, thinking I'd had a missed implantation (early miscarriage). That night when I did my devotions, I got a strong 'nudge' to take the Lovenox despite the negative, so, I didn't ask why, I just did it. The next morning I took another test, got another negative, got another 'nudge', so I did the Lovenox again. Same pattern for the next two days. I finally stopped doing tests because it was getting expensive, I kept getting negatives, and God kept telling me to do the Lovenox anyway.

A week later, on April 11, I got sick while out, impulsively bought another test, took it in the middle of the day, and got a very immediate and dark positive. On April 14 I had my 1st u/s which showed two areas of implantation bleeding and dated me at about 3 to 3 1/2 weeks. (Apparently I'd gotten pg, m/c'd and then immediately gotten pg again, with multiples!) A later u/s showed I'd conceived spontaneous triplets! There were two gestational sacs, but one of them had two yolk sacs (the 'nourishment sac', one for each baby)

Then on May 31, at 10 wks 1 day, I had a sudden gush of bright red blood. Since I was on blood thinners, there was a significant danger of hemorrhage, so I went to L&D. After that one gush, the bleeding stopped. The u/s at the hospital showed one fully developed baby (head, arms, legs) but no heartbeat. The baby was in the sac which had had two yolk sacs, but at this point there was just this huge sac with the baby tucked in the corner and no yolk sacs, no debris, nothing but this huge sac and one little tiny baby with no heartbeat. The other sac was still perfectly round and still growing but completely empty (blighted ovum). They sent me home with a diagnosis of impending miscarriage.

The next night, Sunday, I suddenly started bleeding extremely heavily for about 3 hrs, then for the next week just some light spotting with no cramping. And, through it all, my morning sickness continued as well as all of my other pregnancy symptoms. So, hmmmm???

So now, here I am a week later, still 'sort of' pregnant at 11 1/2 weeks, no bleeding, still sick, haven't passed the 'products' of conception, and I am still, in spite of everything, praying for a miracle, actually THREE miracles. I don't have any medical reason to have hope. I saw the u/s myself. There were no signs of life. And yet I do hope. I hope that all of my babies are still alive. I hope that the baby I saw with no heartbeat was just in some 'odd' position that blocked the u/s from seeing it's little heart beating. I hope that my other two babies were just 'hiding' behind the other baby. I hope that God will bless me with the privilege of bringing these babies into the world and raising them in Christ. I hope. That's all I have.

Hebrews 11:1
Now faith is being sure of what we hope for and certain of what we do not see.

Hebrews 11:3
By faith we understand that the universe was formed at God's command, so that what is seen was not made out of what was visible.

I'll have another u/s at 12 wks which was my original plan. I'll update then. For now I leave you with what I've learned through many, many losses including this possible (most would say definite) loss:

Every life is created by God. Every life has a purpose. Some accomplish their purpose in days, while others take decades. All are precious and loved by their Creator.

Faith is believing that God is right even when you don't agree with Him. Faith is believing God loves you even when you are hurting. Faith is believing God is with you even when you feel lost. Faith is believing God is good even when it doesn't look that way.

God bless.

'Sort of' pregnant means that, although I have to wear maternity clothes because triplets make your uterus pop out way early, I can't answer the question, 'When are you due?' with a simple answer.

'Sort of' pregnant means that, when I meet 'real' pregnant women, I quietly chat with them about their babies without ever mentioning that I am also pregnant, even though I am visibly expecting.

'Sort of' pregnant means that I walk past baby stores with the briefest of glances because I don't feel I have the right to go there.

'Sort of' pregnant means that, whether my babies are dead or alive, I cling to every moment they are still inside me, because it may be the only time I get with them here on earth.

'Sort of' pregnant makes heaven very real and very close, because that's where my babies may grow up.

God bless.

Why is it that doctors are so reluctant to 'get our hopes up'? They'll say, "I don't want to give you false hope" or "I'd rather prepare you for the worst case scenario." It's like the first requirement for getting into medical school is to have a 'glass is half-empty' personality!

So what's the problem with having hope? Isn't hope what we all live on? When I drive my car, I 'hope' no one hits me. When I use my credit card, I 'hope' it goes through (lol). When I get on a plane, I 'hope' its been inspected recently! Hope is a part of our daily life, isn't it? It's not a disease or mental illness or product of an over-active imagination or symptom of denial. It's what gets us out of bed each morning and through each day and back in bed each night to start over again the next day.

And, when we're faced with tragedy or loss, hope can help us 'float' a little more gently into the valley we have to walk through, instead of crashing headlong into the ground.

Another thing about hope. Isn't it strange how incredibly fragile and yet miraculously resilient hope is? Take my situation: every cramp, every twinge, every drop of blood, every decrease in symptoms can crush my hope completely. And then, a little later, hope seeps back in, easing my despair, lighting my way, calming my spirit, preparing me to face whatever comes next.

One last thing about hope. I think a mom's heart is made entirely of hope. We hope for that miraculous moment of conception to take place. We hope for a healthy, happy baby to be born. We hope our children will grow into good and successful adults. And, along the way, when problems arise, we hope for the best. It's not just what we do. It's who we are and what we were made for.

"Ask for whatever you want me to give you." That was God's charge to Solomon. Last night in my devotions, I suddenly felt that was God's charge to me. And I was terrified. What if I asked for the lives of my babies and God granted that but it would cost me my life and leave my children motherless? What if I asked for financial freedom and God granted that but it would come in the form of a life insurance check after the death of my husband? So many 'what ifs' ran through my mind. It wasn't that I thought God was trying trick me; it was that I was realizing that His will is based on perfect wisdom and knowledge and mine on...well, nothing but my own desires. And I was startled to find that I suddenly knew, beyond a shadow of a doubt, that the ONLY safe, practical and wise answer to "Ask whatever you want me to give you" is "Father, give me Your will and not my own."

God bless.

My babies are gone.

I go on, but I'm not living. I function, but I don't feel. It's the only way I can get through each day, pay the bills, do the shopping, clean the house, and a thousand other things that engage my body, but not my heart and mind. It amazes me that no one can see death in my eyes, that they talk and interact with me like life hasn't changed, that they have stayed the same when I've been changed forever. And I can't help but wonder how many other people I see throughout the day feel dead like me. The clerk who messed up my change and then was rude about it, were her heart and mind turned off like mine just so she could get through the day? The fast food window guy who messed up my order and then wanted to argue about it, was he bleeding to death on the inside where no one could see it? How many other wounded souls are wandering around like the living dead, hiding their pain behind empty eyes and empty smiles, concealing their despair inside a body that functions but doesn't feel, and hoping that someone somehow will see and care.

This living death only lasts as long as there are needs to be met and activities to engage in, but then comes the night, the quiet, the stillness, and the pain. I am shattered. I can't breathe. The pain is suffocating. And I cry silently. Somehow I can't share this pain. It's too overwhelming, too powerful. It doesn't have a voice, just a deep and broken moaning of the spirit, a silent communion of the soul with the very God who willed this path for me.

I KNOW that God is good. I KNOW that God is wise. I KNOW that God is love. And I KNOW that God's will and purposes are formed in perfect goodness and perfect wisdom and perfect love. I know this, and I accept His purposes for my life. But that doesn't stop the pain. And that doesn't stop the questions. Why did He create life in me when I wasn't even trying to conceive and then wait just long enough for me to fall in love with my babies and then take them right out of my womb? Why?

Loss after loss I've asked the same questions. And loss after loss I've received the same answer--Trust Me. Love Me. I am here.

Yes, I trust You. Yes, I love You. Yes, I know that You are here. But...

Do you ever want to ask God to leave you alone? To let you live your life in peace? I do, or at least a part of me does. A part of me wants to beg God not to teach me His ways, not to mold me to His likeness, not to use me in His service. But then I think, what would life be like without Him? Would there be less pain? I don't think so, life is painful, with or without Him. I just wouldn't have Him to comfort, guide, and carry me. Would there be more peace? No, life is chaotic, with or without Him. I just wouldn't have Him to shelter me in the storms. Would there be more hope? Impossible, life is short and has a clearly marked dead-end without Him. He is hope. He is my only hope.

Every time I conceive a new life in my womb, my heart expands exponentially to create a home for that child and my mind stretches wide open to welcome a new life into my life. Every time I lose a baby from my womb, my heart and mind are left with a gaping emptiness I don't know how to fill. In the past I've taken those spaces and filled them with hope for 'the next time.' Now, after growing space in my heart and mind for three babies at once and losing them all, I'm left with such a huge emptiness that I feel lost inside of it. But my husband and I weren't planning on having any more children. God planned these babies, not us. So now what do I do? If there is no hope for 'the next time' to fill this hole, to focus those aimless thoughts in the night, to hold the pieces of my heart together, then what do I do with those thoughts and the frayed edges of my broken heart? I don't know. I really don't.

How can I feel so safe in God's arms, so sure of the rightness of His purposes, so certain of the wisdom of His will, and still feel so lost?

I don't know. I really don't.

Have you ever read the book of Job in the Bible? It's always been a book I struggled through and didn't really like. It's all about loss and unwanted advice from family and hurtful comments from friends and the reality of God being God. But it's the story every woman who miscarries can relate to. You know what I'm talking about. We've all heard--"That's just nature's way of getting rid of something that didn't grow right." and "It's not like you lost an actual child." And, from the 'churchfolk'--"You shouldn't feel empty. God is all you need." and "God needed your babies more than you did." What I like about the book of Job is that God didn't get mad at Job for asking questions and for wailing out his pain. But God did get mad at Job's friends who acted like they were speaking for God, like they knew why God did things and how God thought. When people make those comments and when they tell me how I 'should' feel, I just remember Job and those comments lose their sting completely (well, almost completely).

Here are some suggestions for you friends and family members out there who need a little guidance on how to communicate with a mother who's just lost a baby.

"I'm sorry."
"What can I do to help?"
"I don't know what to say."
"I'm hurting so much for you."
"I'm praying for you."

And don't let a day go by for the first couple of weeks that you don't say one or more of those things. It's pretty much all she can think of at that point, and you not mentioning it keeps her silent in a world of pain she doesn't know how to share. Don't try to make her talk, just let her know it's okay if she wants to.

Updated to add 'what NOT to say':
"You can always adopt."
"You're young. You can always try again."(Would you go to a funeral and tell the grieving widow, "You can always just get married again"?)
"At least it happened early." (A loss is a loss, minimizing it is not supportive, just hurtful.)

God bless.

I debated about whether to include this part or not, but, in the interest of complete honesty, I had to. I know that anger is one of the stages of grief, but it is the hardest stage for me because I'm a peacemaker, and anger always seems wrong to me...especially when it's God I'm angry with.

Anyway, here goes...after another night of sorrow, I suddenly woke up ANGRY, not a little angry, but really, really MAD--at God. I tried to hide it, even from myself, but it kept seeping and oozing out and when I got a phone call from our realtor that the buyer had backed out of our contract, I lost it. I cried and ranted and raved at God. And once the anger started flowing, there was no stopping it. I spent the whole day in tears, asking God what He was thinking, where He was in all this, if He really thought I deserved to be tortured, why everything seemed intentionally designed to make my loss as painful as possible, and when He was going to finally decide I'd had enough and LEAVE ME ALONE! And, you know what, I discovered some things. First, I discovered that I didn't just suddenly get angry; I'd been simmering for days and just wouldn't admit it to myself or God. Second, I discovered anew that I truly am a sinful person capable of being about as unlovely and petty and spiteful as the next sinner. Third, I discovered that God loves me just as I am. He wasn't surprised by my anger because He knew what was in my heart all along. Fourth, I discovered that pouring out the anger in my heart was the ultimate act of trust. God said in His word that we couldn't escape from His love and that He loved us while we were yet sinners. Trusting Him with my anger was trusting Him to be who He said He was and trusting Him to do what He said He would. And fifth, I discovered that by being willing, finally, to trust God and walk through this part of the valley, the healing could begin. As I released the anger I'd been hiding in my heart, peace seeped in to take it's place. That is the gift of God, peace that passes understanding. And I could finally begin to receive that gift when I fully trusted God with all that I am, the good and the bad, the beautiful and the ugly.

I know I have a long, long way to go. But a subtle shift has taken place in my soul. I still cry at night and I still hurt all the time, but I am living again, feeling again, moving forward again. And that ever-resilient hope, so fragile, so easily crushed and broken, has risen again.

God bless.

After every loss, I run from the world and fling myself into God's arms, and, like Jacob at Peniel, I 'contend' with God. It's not about anger, or at least, not only about anger. It's the whole process, the hope, the loss, the pain, the despair, the anger, all of it, start to finish. I contend with Him to settle things between us, to bring peace and healing to our relationship. I contend with Him because I can't move on with my life until I do. And so I leave the world behind and isolate myself with my God -- alternately clinging to Him and wrestling with Him, resting in Him and struggling against Him, crying out to Him and lashing out at Him. And, through the darkness, I refuse to let go. I won't let go because, although losing my babies wounds me, losing my God would destroy me. I can't let go because He is life and breath, and letting go would be the end of me. So I hold on until the light dawns, and then, at last, I surrender. I surrender to His will and to His incomprehensible love--a love that would sacrifice His own Son for me, but would still allow such awful pain and loss into my life. God's love makes no sense to me, that He would love me so deeply when I am so unworthy, and that He would hurt me so deeply when He loves me so much. But, in the light of a new dawn, my faith is renewed. My questions remain unanswered, but since "faith is being sure of what we hope for and certain of what we do not see (Heb. 11:1)" that's what I hold on to--I have to believe there is a purpose, a good and loving and perfect purpose, that I can't see. I have to believe that or I couldn't live through so much loss. And, by believing that, I can put my questions aside until I get to heaven, and I can heal, and I can finally move on.

I have now lost eleven babies. Eleven. I can't even begin to wrap my mind around that fact. It's soul-shattering. But I wanted to share my journey with those of you suffering and hurting, to in some way light the path of loss so you can find your way. I hope what I have written has helped. I pray you find hope and healing in my words. And I ask God, in His unfathomable wisdom, to place each and every one of you in the safest place on earth--the center of His will.

God bless.

My triplets were due Dec. 26, 2008, the day after Christmas, but I couldn't post about it or even think about it at the time. I don't want to let their birthday pass without acknowledging it, though, so--Happy Birthday, Babies, and Merry Christmas to all 11 of my little ones who were born into heaven! I can't even imagine how wonderful it must be to be with Jesus from the moment of your birth, but I thank God that He is taking care of you and loves you even more than I do. God bless you all.

This is a hard one for me to put into words, and I've been struggling with it for a long time, so it will probably be written in stages. Please bear with me.

Okay, so the fear hit just as the anger began to ease. I think I prefer the anger. Anger carries with it a false, but oddly comforting, sense of being in control, whereas fear is all about understanding just how helpless I am.

God is in control. I know that, and I accept that. But my mind keeps reminding me of Job and the tragedy God allowed in his life. So while I know and accept that God is in control, what I am having a hard time reconciling is the fact, the absolute truth, that God in HIs goodness and wisdom can and will allow tragedy to enter my life again. I'm paralyzed with fear at the thought. I don't want to move forward or backward or right or left or any direction at all because I don't know where tragedy might be waiting. So clearly, while I do ACCEPT that God is in control, I don't want to SUBMIT to HIs control. That's pretty much the definition of a lack of trust. I don't trust God enough to willingly let Him hurt me

But who would ever willingly let someone hurt them? Well, anyone who has ever had surgery and let a doctor cut them open is willingly accepting the pain the surgery will bring because they know it is in their best interests. I've had surgery, several times. So do I trust surgeons more than I trust God? I'm ashamed to admit that it sure seems like it.

So here's some of what my fears look like:
(And here's my disclaimer: I know these fears are irrational, but the thing about irrational fears is that rational arguments don't relieve irrational fears. Trust and faith DO overcome fear, but...well, we've already gone over where I am in the 'trust department' at the moment.)

Fear #1) If God gave me all these lost babies to teach me to accept loss and to trust Him, and I don't learn the lesson, is this going to keep happening over and over until I 'get it'?

Fear #2) If I don't 'get it' soon, will God take away something even more devastating, like my kids or husband?

Fear #3) If God gave me all these lost babies to show me that using protection wasn't His will for us and we don't submit to that, will this cycle of conception despite prevention followed by loss ever end?

Fear #4) If none of the fears 1-3 are based on reality (and I know they aren't), then will I ever know why this has happened to me over and over again? And can I live without knowing why?

Fear #5) If I never get pregnant and have another baby, can I survive with all these holes in my heart?

Here's a reply I wrote to a sweet lady who was dealing with many of the same fear 'attacks' that I am:

*I've been alternately convinced that I will die if I get pg again, or that one of my children will die in 'exchange' for the new baby, or that I'll have a stillborn baby if I get pg again. I know with absolute certainty that those fears are an attack directly from Satan designed to focus my attention on him instead of on my loving Father. If any of those awful things were to happen, then 1) Satan wouldn't know about it ahead of time since he is not omniscient like God is, 2) Even if Satan did somehow find out what the future held, he certainly wouldn't care enough to warn me, and 3) God is still in control and is still loving and good no matter what happens. I'm not just saying this to comfort or counsel you, I'm LIVING it right now, day after day and especially night after night. I don't believe in praying 'against' Satan because that gives him my attention and I am powerless against him anyway, so I respond to these attacks with praise. When I think I might die if I get pg, then I praise God I'm going to go to heaven (and ask Him to continue to give me the gift of life here on earth), and when I think one of my children might die, then I praise God that He loves them even more than I do (and ask Him to protect them and give them a long life here on earth), and when I think I might have a stillborn baby, then I praise God for receiving all my lost babies into His arms (and ask Him to bless me with a healthy baby). I honestly believe that the only effective response to Satan's attacks is praising and worshiping God, because the last thing Satan wants is to push me closer to God, and because praising and worshiping reminds me where my trust and faith belong.*

I believe to the core of my soul those words I wrote to my sister in Christ, but I'm human and at the moment I'm having such a hard time 'walking out' my faith in the face of fear.

Thank You, Father, for forgiving me and loving me even though I'm such a mess!

Romans 8:14-16 (New King James Version)
"For as many as are led by the Spirit of God, these are sons of God. For you did not receive the spirit of bondage again to fear, but you received the Spirit of adoption by whom we cry out, "Abba, Father." The Spirit Himself bears witness with our spirit that we are children of God"

I know God did not give me the spirit of fear because He clearly said He didn't. I am God's adopted child. I live in the protection of HIs embrace. Fear is a cruel tool of my enemy, and I will NOT submit to it.

I am scared speechless.

Alright, now that I can breath again, here's the story. After losing my triplets, my ovaries just kind of went into 'shock' and shut down. I went back to my RE (reproductive endocrinologist) for a series of blood tests and found that I wasn't ovulating at all or even producing the normal female hormones, and I had a pretty serious endometrial infection. So, after two endometrial biopsies and weeks of antibiotics and blood tests to take care of the infection, we began addressing my hormone and annovulation (lack of ovulation) issues. I have had serious adverse reactions to birth control pills in the past, so even though that is usually one of the first things doctors use to try to regulate a woman's system, that wasn't an option for me. I still wasn't sure we were going to be trying to get pregnant again, but I definitely wanted my body working correctly! So anyway, we started with a low dose of a very mild fertility medication called Letrozole to gently stimulate my hormones and then a shot of hcg to 'trigger' ovulation, but my body didn't respond at all. Then we tried adding a low dose of injectible hormones into the mix, but again, I didn't end up ovulating even though I did produce some follicles (these are sort of pre-ovulation 'cysts' on the ovaries that should contain fertilizable eggs).

It was somewhere in the middle of that second cycle of medication that I realized I was desperately hoping to be pregnant again, and when I failed to ovulate that cycle, I was devastated. My husband wasn't thrilled with the idea of 'going through all of that again' by any means after my last painful loss, but he went along with it anyway, wonderful man that he is.

So anyway, this last cycle, we upped the dose of both the Letrozole and the injectible hormones and tried a double shot of the hcg to trigger ovulation. I had two lead follicles (those are the biggest, most mature and likely to be fertilized), and three smaller ones (unlikely to 'catch up' and mature in time to ovulate and be fertilized). Success! Blood tests showed that I had finally ovulated, and I knew there was a chance I might have conceived on that cycle.

Sooooo...I got a BFP (positive home pregnancy test) at 10 dpo (days past ovulation) and at 11 dpo my beta hcg (the pregnancy hormone) was 33.8 and it was confirmed that I was definitely pregnant. My immediate reaction was sudden heart-gripping, breath-stealing terror. Great reaction, huh?

That was on Feb 24. Then on Feb 26 I had a repeat beta hcg level, and it came back at 106. In most healthy pregnancies, hcg levels will double every 2-3 days in early pregnancy, then as the hcg's get higher, the doubling time slows down to 3-4 days, and then at about 10 weeks the hcg plateaus and even begins to decline gradually throughout the rest of the pregnancy. So my doubling time was closer to 24 hours than 48 hrs, and that was a good sign. I had another set of hcg levels the next week which came back at 1813 on 18 dpo and 3151 at 20 dpo with a doubling time of 60 hours, so of course I panicked thinking this pregnancy was failing (even though I know it's supposed to slow down the higher the levels get and my overall numbers were still way above the norm for those dpo's). Anyway, I asked for another hcg this week, and it came back at 12,508 at 26 dpo with a doubling time of just under 72 hours from the previous week's levels.

So, for now, this pregnancy is progressing as it should, and with more than one healthy follicle when I ovulated, I can't help but hope for multiples again. But I'm very guarded about it, only telling those closest to me and waiting for those precious heartbeats before I truly accept that this pregnancy is real.

Here's a list of my beta hcg levels for those of you obsessing over the numbers like I do :o)

11 dpo 33.8
13 dpo 106
18 dpo 1813
20 dpo 3151
26 dpo 12,508

I have an ultrasound scheduled for next Thursday, which is March 19, when I'll be one day shy of 7 weeks. I'm hoping and praying for heartbeats! (Again!)

Well, at my u/s yesterday we found two gestational sacs, but only one heartbeat which the dr said was slower than she'd like to see (it was 110 bpm, but they want to see at least 120 bpm at this stage). So, I'm in the waiting game again, waiting to see if Baby A's heart will keep beating and speed up to where it's supposed to be, waiting to see if Baby B is developing (the dr couldn't get a good enough angle to see inside the sac, just kind of a side view she couldn't really even get a measurement on). So, again, I wait...and I pray...and I hope.

God, I know You have my babies in the palm of Your hand. Help me to accept Your will whether You bless me with two healthy babies or one healthy baby or two more babies I'll meet in Heaven. Amen.

Baby B is gone.

Baby A has a strong, healthy heartbeat, but at today's NT scan we discovered that the baby has some of it's abdominal organs growing outside of it's abdomen (this is called an omphalocele) and some fluid collecting behind it's brain (this is called a cystic hygroma). The doctor said these two conditions can each be fatal on their own and are not usually seen together. He said he expects the baby to die in utero or shortly after birth, and he wanted to discuss terminating the pregnancy. I told him that wasn't an option. More info later when I can think.

When the doctor discovered I wouldn't discuss termination, he left the exam room and had the nurse take me to his office where I waited about half an hour for him to come in. His first words to me when he walked in and sat behind his desk were, "So I guess you believe in faith and all that." I couldn't put two words together inside my head at that moment, much less trust myself to speak, but I've been nearly as upset by that comment as I am at the devastating news about my baby. I hope I get the chance to respond to that doctor's comment directly sometime soon, but in the meantime, here's what I've been thinking.

My faith doesn't tell me that God will give me what I want if I want it bad enough or if I pray hard enough or if I believe strongly enough, although He can and will work a miracle if that is in His plans.

What my faith does tell me is that God has a purpose for this child's life, no matter how brief or how long that life is, and that He has a purpose for putting this child in my life for however long, and that His purpose is good and right and just no matter the outcome. That's all I know. That's all I can know because I'm not God, and I can't know the mind of God. All I can do is trust Him. And so we will see His purpose through to the end, whatever that end might be. God bless.

I've been walking around in a daze since I got the devastating news about my baby, and I've discovered that living in a state of shock is very uncomfortable. I don't know what to think or feel or say or do. This sense of being unanchored almost makes me seasick. I'm completely disconnected from this pregnancy, this baby, and the world around me in general. I'm like that lone, unmanned bumper car in the middle of the ring being thumped and bumped and sent sliding and spiraling in random directions by the oblivious motorists in the other cars. I have no control over my life. Maybe the control I usually feel is an illusion, but it's incredibly disconcerting to have that illusion snatched away so abruptly. I was completely blind-sided, completely unprepared, completely devastated. Now I know what the cliche 'shaken to the core' actually means.

Pregnancy is usually a time of wonder. "I wonder what the baby will look like," and, "I wonder if it will be a boy or a girl," etc. But for me that wonder has been horribly skewed.

Every night I lay in bed, sleepless, wondering, "Is my baby dead?"

Every morning I wake up, exhausted, wondering, "Is my baby going to die today?"

Every cramp makes me wonder, "Is my baby dying?"

This is so hard.

Most women assume that when they get pregnant they will have a baby. I lost the ability to assume that when I started having miscarriages. But I still did have assumptions. I assumed that 12 weeks was my 'magic mark,' and when I passed that mark I was safe. In fact, the morning before I went in for that infamous NT scan I told my son that I couldn't believe I'd made it to my 'safe zone' and I could finally start getting excited about my baby. Famous last words.

In the midst of all this trauma over the problems with the baby, I can't help hurting for the twin I lost. It's just so hard to accept that I've lost another baby, especially in my present circumstances. My mind plays tricks on me, trying to convince me that the twin is still in there, just 'hiding' behind the other baby or in some awkward corner of my uterus that the ultrasound can't visualize. I know I'm just torturing myself, but it seems just as probable that my twin baby could still be in there as it is that the 'visible' baby will live. If I'm going to grasp onto any hope for the one, I might as well for the other.

I had a follow-up u/s a few days ago at 15 wks 2 days, and the cystic hygroma (swelling behind the baby's brain) is totally gone! I was so excited, but that only lasted for a minute or two, because the baby's bladder was hugely distended and I was told that it was a "lethal condition" that would crush the baby's lungs and prevent them from developing and that it would also crush the baby's kidneys and destroy them. They said nothing could be done, and my baby would die. I went home in a daze, blind-sided by devastating news yet again.

But in the days that followed it dawned on me that they had also said that the cystic hygroma was lethal and would kill my baby...and yet it had disappeared. And, when asked, they didn't even know what was causing the bladder to be distended, so how could they know that it was lethal? So I began to research and found that in some cases a shunt could be placed in the baby's bladder in utero to drain the bladder into the amniotic sac and protect the lungs and kidneys and get the baby to term so it can be born with healthy lungs and kidneys and have surgery to correct the omphalocele and urinary blockage, giving the baby a chance at life. Now, I'm fully aware that all of these problems with my baby might indicate an underlying condition that might be chromosomal or that it might be some kind of a massive defect. But right now we don't know for sure one way or the other, and even in a court of law a 'reasonable doubt' is enough to stop a conviction. So why, when there clearly is 'reasonable doubt' about my baby's condition, is my baby being given a death sentence? Why do I have to research and find possible treatments on my own instead of being presented with options by my doctors? And why am I now having to fight to get the treatment my baby needs to possibly survive?

This just doesn't make sense to me. I'm seeing a fetal specialist who doesn't want to treat a fetus. I'm paying someone thousands of dollars to ignore my baby's medical needs. I'm having to research and find medical information and options on my own even though I am seeing a doctor trained in this exact field. And I'm having to fight to get someone to give my baby the medical help it needs.

I feel like I've stepped into some twisted life or death version of candid camera. But I'm not amused, not at all. This is a human life that is being disgarded because it isn't perfect, and it's being disgarded by the very medical professionals trained to save and treat and cure the imperfect and impaired.

What if this attitude leaks into other areas of medicine? What if cancer doctors only triage patients, decide who has cancer and who doesn't, and then disgard the ones who do? What if pediatritians see children only to separate the healthy from the unhealthy and then council the parents of the unhealthy to disgard them? What if schools for the blind or deaf only teach those who can see and hear?

Thank You, God, that You are the One in control and that You care for those considered 'imperfect' by this world's standards and that I can trust You with my child, here on earth and for eternity.

In our society, whether right or wrong, women are the ultimate arbiters of their unborn baby's life or death. I have the 'right' to go anywhere in the continental United States with a perfectly healthy baby in my womb and choose to have it 'terminated'. That 'right' doesn't seem to extend both ways, though. I want to give my baby every chance at life. I want to choose life, but I'm running up against a wall. Shouldn't I have the 'right' to treatment for my baby even if it isn't perfectly healthy?

By allowing the doctors to do an amnio, I was able to finally convince them to do a bladder aspiration on the baby's bladder to try and preserve the kidney function and allow the lungs to develop. I really didn't want an amnio because, if the baby has one of the fatal chromosomal disorders, I just don't want to know. I need some hope to help me through this pregnancy, and knowing for sure that my baby will die, waiting for it to die day after day while feeling it moving inside of me, would be torture. But the only way to get a bladder shunt inserted to continually drain the baby's bladder was to agree to an amnio and a series of bladder aspirations. They won't put a shunt in if the baby has a fatal condition, nor would I want them to. And the bladder aspirations will determine if the baby's kidneys are still functional or if they have already been too damaged to save. The amnio and bladder aspiration were insanely painful. I wasn't prepared for that. I've had amnios before, but at the end of my pregnancy, just to determine if the baby's lungs were mature. This time I was just under 16 weeks and the doctor had to try four different locations, pulling the 5 inch needle out and jabbing it back in again and again in each location in an effort to get the needle through the amniotic membrane because the membrane kept collapsing instead of allowing the needle into the amniotic fluid. But if it gives us the information we need to move on to getting the bladder shunt, then I'm glad I did it. I'll get the results sometime next week.

God, I'm trying to leave this in Your hands. I don't even know what to pray. I don't know what to ask for because I don't know what's best for this baby. Work out Your will in and through me, Father, and hold this little one in the palm of Your hand. Amen.

A friend called to offer support as we go through this difficult time and made a comment that made me realize how much my perspective has changed through the last couple of years. She said that God wasn't responsible for the bad things that happen in life, but that they are all attacks from Satan and we should pray against them and against him. She said that God allows bad things, but doesn't cause them, Satan causes them.

When reading my devotions that night, I read about God telling Ezekiel that He was going to take the 'delight of his eyes', his wife, from him in death the next morning and Ezekiel was to tell the Isrealites that the loss of his wife was a symbol of God's loss of His bride, the Isrealite people. I started thinking about all the times in the Bible where God had directly intervened in people's lives, sending plagues, earthquakes, floods, destroying armies, etc. When David sinned with Bathsheeba, God took their firstborn child. Throughout the Bible, there is example after example of God's direct use of His power and providence in the affairs of nations, peoples and individuals.

I realized that while I used to 'absolve' God of responsibility for the bad things that happen in this world by saying that He allowed them but never caused them, I no longer believed that. I don't believe that because the Bible doesn't support that view. And I don't believe that because by 'absolving' God I was stripping Him of His power and authority, putting Him far off in the distance as a removed, disinterested, powerless entity.

God is not simply a redlight-greenlight for Satan's activities here on earth, casually allowing or disallowing Satan to carry out his plans. God alone has all authority and power on earth. God alone is in control of our past, present and future. God alone has the right and authority to plan and purpose and direct the lives of His creation.

Satan has no power, no authority, no autonomy. In Job, Satan is called to give an account of his actions. He has to ask God for permission for his every act. So, yes, sometimes God does allow Satan to carry out his evil plans. But does that mean that God is confined to that one method of working His will in our lives? Does that mean that God is at Satan's mercy, confined to using Satan's plans to work out His own will? Does that mean that every time we read of God sending His angels to pour out His wrath that He had to go through Satan first? Of course not!

Satan sure would be happy if that was the case, if God had to come to him in order to accomplish His will, if he was as terror-inspiring as he wants us to believe, if he had the authority to plan the lives of God's creation. And I'm sure Satan loves it when we 'pray against' him. Think of all the attention he's getting! And every shred of attention that is focused on Satan is taken away from God, which serves Satan's plans just as well as whatever 'bad' thing we're 'praying against' him about to begin with.

And so my perspective has shifted. I don't have that inner struggle anymore, wondering where God is in all this mess, wondering if God sees or cares, wondering what other bad thing is going to befall me and if God will intervene or not, because I know that God is already at the center of it all, directing things according to His perfect and good will. My faith is more comfortable now, even in the midst of this hard time, because my faith is in an all-powerful God, not in a distant and disinterested God who can't or won't fight my battles for me. My faith is that God is in control, totally in control, even in the bad things in life. And that gives those things a purpose, a meaning beyond the emotions and heartache of the moment. I don't know that it makes the hard things any less hard, but it makes me more aware of and surrendered to the One who is directing my path.

It's a boy. We've named him Samuel Robert. We'll call him Sammy, but never in his hearing. He has Trisomy 18, a fatal chromosomal duplication. His kidneys have already failed. His lungs will never develop. I'm 17 weeks pregnant right now, so that gives me about 23 weeks of waiting for him to die, feeling his little legs kicking and his little arms stretching inside of me, knowing that he most likely will die in the next few weeks and never make it to birth, but if he does, he will never take a breath, never open his eyes. I'll never hear him cry. I won't hold him when he's born, won't see his face. They'll give me that option, but I don't want the image of a dead baby to be what I remember of him. I have ultrasound photos of him now while he's alive, and that's how I want to remember him. I want to remember the feel of him moving inside of me, not still and silent in my arms. It is such a comfort to know that he'll be born into heaven, welcomed by the Creator of the Universe who created him just as he was meant to be. How do people do this without God?

Samuel Robert (Sammy) was stillborn at 18 weeks on June 5, 2009. We found out his heart had stopped beating two days earlier on an ultrasound. I had an appointment on the morning of the 5th to discuss inducing labor. I didn't know how I was going to go through labor and delivery knowing my baby was dead. But, as it turned out, he was born at home unexpectedly at 6:30 am. I had been having pretty intense cramping all night, but the cramping was constant without the peaks and valleys I associate with labor, so I didn't realize what was actually happening until early in the morning when the cramping finally turned into actual contractions. I was relieved at first because I'm allergic to the medications used to prepare the cervix for labor, and the doctor and I both thought the induction could be long and difficult, so I thought it was a good thing that my body was preparing on its own for labor. Little did I know. Just before 6:30 I got up to get ready for my appointment. I went to the bathroom and right away felt something coming out. I immediately realized what was happening and grabbed a bunch of toilet tissue and caught Sammy as he came out. I just sat there in shock, horrified at what had just happened. He was perfectly formed, with surprisingly long arms and legs, perfect fingers and toes, a normal baby in every way except for his size. He was only about 8 inches long from head to toe and felt like he weighed just a few ounces. I sat there, holding him, not knowing what to do. His umbilical cord was still attached to him and to the placenta which was still inside of me. I knew if I pulled on the cord it could tear the placenta and cause me to hemmorage, but I didn't have anything to cut it with, so I just had to sit there and wait for the placenta to come out. Finally, the placenta came out, and I took a plastic shopping bag that I kept tucked in the bathroom to use to line the trashcan and laid Sammy and the placenta in it, then cleaned up all the blood and got dressed. I went downstairs and found my husband outside getting the car ready to go to the doctor. He turned around when I called his name and immediately knew what had happened when he saw me cradling the bag in my hand. I think he was almost as horrified as I was that I had to go through that alone, poor man. He held me and then we went inside and talked about what to do. One of the things I had been worried about was how Sammy's little body was going to be handled by the hospital after he was born. My husband and I decided to bury him at home rather than take him into the doctor with us. My husband got a tea box and I laid a kitchen towel inside of it, then put Sammy in, still attached to his placenta by his umbilical cord. I made sure Sammy was laying in a comfortable position, then wrapped the towel around him. It was at that moment that it began to hit me that I had just given birth and was getting ready to bury my son, all in less than an hour. I lost it for a moment and my husband and I just held each other for awhile. Then he went outside and buried our little Sammy under my bougainvillea. I had started bleeding heavily through all of this and ended up in the hospital having surgery for retained placental tissue later that day. Now I just have to figure out how to live through this.

Some thoughts and verses for my little lost boy:

2 Samuel 12:23 "I will go to him, but he will not return to me."

How can I miss you so much when I never even met you?

The bogie you are buried under is blooming, my little Sam-I-Am.

I was looking at baby pictures of your brothers and sisters, Sammy, and I could picture exactly what you would have looked like--round little head, chubby cheeks, toothless grin, double chin--so beautiful.