I have Prosopagnosia - I can't recognize faces.

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Prosopagnosia - It's hard to recognize faces.

Prosopagnosia means the inability to recognize faces. It is sometimes called face blindness. I've had it all my life, but I didn't realize I had it until I was in my 20s. Here's my story about what it's like to have Prosopagnosia.

Prosopagnosia is actually a common dysfunction, effecting about 2% of the population. It appears to have a genetic basis, as people with it often also have family members with the disorder too.

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Prosopagnosia Difficulties in Elementary School

No one noticed I had trouble with recognizing faces

Kids in Elementary School (Click to enlarge)I was often described as quiet and shy in school, but my difficulty with recognizing faces was never noticed by a teacher or anyone else. I had other difficulties and strengths that were noticed: a severe speech and language delay and a high IQ ("gifted").

One particular task proved to be quite difficult for me. Sometimes teachers would have the students hand back graded papers. This was a task I had a very hard time doing and I tried to avoid it.

I had an especially difficult time telling apart the boys because many of them had similar haircuts. As a kid, haircuts were something I paid a lot of attention to.

How did I hide my problem in school? Well, with handing back papers, I would simply put the paper to the bottom of the stack if I didn't know who the kid was. Fortunately, the teacher often had several students hand back the papers at the same time, so I would wait until there was a stack of papers already on each kids' desk. Then I would surreptitiously look at the names on the papers and then match up the hand written names. Sometimes this took me a long time, and often the teacher would decide to finish the task. If the teacher noticed my difficulty, she never said anything to me.

I now wonder if my problem with recognizing faces contributed to my desire to always sit up front next to the teacher and becoming the teacher's pet. Of course I could always recognize the teacher. I also didn't make many friends, and my Mother felt that my social skills were delayed, and it is very possible that the Prosopagnosia was part of the reason.

"I have a really hard time remembering people."

Early awareness of something being different

Picture of a FaceMy earliest awareness that something was different with my brain was a conversation I had with my Dad about remembering people's names.

I told him that I had a hard time remembering people, and he assumed that I meant remembering names.

I listened to his name remembering tips, and thought they were good ones, but of course it didn't solve my problem.

I didn't realize then that my real problem was remembering faces, not names.

My College Years - Trouble Working in Retail

I worked at a Deli for just a couple days....

Busy DeliIn college, I still didn't know that I had trouble recognizing faces, and so I didn't take that into consideration when applying for work. I worked at a Deli for a couple of days.

During the early morning rush, there were several customers ordering food at the same time, and I prepared a bagel for one customer and then didn't know which customer it was that had ordered it. The customer was angry and frustrated with my apparent stupidity.

I'm sure that contributed to me being fired after only two days. How did I think about this experience? I thought "I forgot to remember who ordered this bagel..." I was aware that I had made an error, but I didn't know that it had to do with face blindness.

Hard to Follow TV Shows and Movies

Especially when the characters all look similar

Prosopagnosia makes watching TV difficultIt's hard to follow the plot of movies if all of the people are dressed very similarly (i.e. uniforms, or stereotypical period dress) and have similar hair cuts, too. It's hard to recognize people if I've only seen them infrequently, because I don't have much information stored on what they look like. It's also hard if I see someone one place, and then I see them in a different place where I'm not expecting to see them. The circumstance in which I see someone is one of the big clues that allow me to figure out who they are.

Inability to Visualize Faces

Close your eyes and remember them....

Close your eyes and imagine...My Prosopagnosia isn't as severe as some people, because I've never had trouble recognizing family members or people close to me. However, I still have an inability to visualize faces of almost anyone. I can visualize places and objects, but it is hard to recall visual images of faces without looking at photos or people themselves. This applies even to people that I do recognize.

Realizing that I have Prosopagnosia

A Big Realization for Me - Now I have Insight!

Art shaped like a NeuronI can't remember exactly how I discovered Prosopagnosia or Face Blindness, but about five years ago, I was on the internet, and I came across a website about it. It was an immediate recognition. "That's me."

I cried... and my husband and I talked about it. He is super supportive and now when I ask questions like "Who is that" in a movie, I don't feel embarrassed or dumb. And now there's an explanation if I don't recognize someone.

What a world of difference it makes to have a name for the problem, and to know that other people also have it.

Getting Better?

There is no cure.... or is there?

NeuronsNow, supposedly there is no cure for the disorder. However, I've been working on improving my face recognizing abilities. Or heck, improving my abilities to recognize people, whether it's their face or some other aspect! I watch movies and TV for practice. Now with High Definition, using the TV for practice is almost as good as real life, and of course on TV you can expose your mind to many faces easily. Practice, practice, practice!

I used to not know what it meant for someone to have a high cheek bone. Now I look at faces and try to describe them and try to remember them. I've started to recognize similarities between faces. Sometimes I'm wrong, and I think someone is someone else, but I'm learning...

I know it's getting better for me. I still get lost in some movies. But now I can actually sometimes recognize famous actors, even though they appear as different characters in different movies. I have also been practicing recognizing people by the sound of their voice. I think it's a good way to compensate for face recognition problems.

The brain can definitely change over time. It's called neural plasticity. The neurons can make new pathways. I have been trying to help my brain change by taking the nootropic drugs Piracetam and Aniracetam. I think that they do make a difference and hope that someday there will be clinical trials with them or other drugs to see if people can be cured of Prosopagnosia and other brain disorders.

I overcame my speech language problems, and if that's possible, why isn't is possible to overcome Prosopagnosia?

Prosopagnosia Links You May Find Helpful

The Best of the Web

Facial Prosopagnosia May Be Common but Largely Unknown Dysfunction
News article on a study that determined 2.47% of students had congenital Prosopagnosia.
Prosopagnosia Research Centers at Harvard University and University College London - Research
Prosopagnosia, also called face blindness, is an impairment in the recognition of faces. It is often accompanied by other types of recognition impairments (place recognition, car recognition, facial expression of emotion, etc.) though sometimes it appears to be restricted to facial identity. Not sur
Face Blind by Bill Choisser
This online book about face blindness covers: personal story, physical causes, non-face recognition practices, "How I tell people apart," effect of face blindness on emotions, sexuality, and social groups.
Test Your Face Recognition Abilities
This website has several tests you can take. Scroll down to the "Face Recognition, Emotion Perception, and Personality" to take the test that I took. It may help you to diagnose whether you have prosopagnosia.
I have Prosopagnosia
It's true. I'm pretty sure that I have Prosopagnosia and I've had it a lot longer than 4 hours. I've had it my whole life in fact...
I Have Prosopagnosia | Support Group with Personal Stories, Forums and Chat
Do You Have Prosopagnosia? Join friendly people sharing true stories in the I Have Prosopagnosia group. Find support forums, advice and chat with groups who share this life experience. Prosopagnosia anonymous support group with information on diagnos...

My Test Results

Face Recognition & Emotional Recognition Test

Prosopagnosia Test Results

I took the Face Recognition, Emotion Perception, and Personality test recently, and unfortunately did not do much better than I did a couple of years ago when I took it. I am still not recognizing faces. The face recognition part of the test involves me guessing most of the time..... It is a frustrating test to take if you have prosopagnosia, so be warned!

The test results show that I also have some trouble with recognizing emotions. That surprises me... I don't know how to explain that. I never would have thought I had trouble with that. But on the test, they have you look at just pictures of eyes, and in real life, there are many things to look at to judge one's emotions.

How is it then that practice helps? I do wonder. Maybe I'm getting better at recognizing other things about people and maybe I am improving my memory. So, can you cure prosopagnosia? I guess I have no evidence that it is possible. But if I can learn to recognize people better - whether it's faces or something else - then that's a coping mechanism I can live with.

60 Minutes Episode on Face Blindness

Lesley Stahl on Prosopagnosia - March 18, 2012

I was pleasantly surprised by the quality of this 60 minutes segment. In this segment, you meet some people who are face blind, who can't recognize their own family members. Also featured is author and neurologist Oliver Sacks and a portrait artist who can't recognize faces. This episode also touches on the opposite of face blindness - people who recognize and remember every face they see. These people are called "super recognizers."

This video may help others who aren't faceblind to understand what the disorder is like.
Face Blindness, part 1
by CBSNewsOnline | video info

16 ratings | 4,628 views
curated content from YouTube

Your Comments on Prosopagnosia

  • mariajomith May 26, 2012 @ 7:45 pm | delete
    Thank u for sharing this personal story, I think it will help many others
  • monica May 24, 2012 @ 11:42 pm | delete
    I was at my work and my nieghbor came in to pick something up, and i did not reconize him. Ive known this man for over a year and see him about every other day. Out of contast I did not reconize him. Then at work i mistaken a customer for a differnet customer, im 31 years old and dont understand whats going on.
  • hotbrain Jun 2, 2012 @ 3:59 pm | delete
    It is definitely harder to recognize people when you see them in places that you don't usually see them. For example, seeing your neighbor in front of their house makes it easy to recognize him, but seeing him at the store you might not know who he is. If this is a new problem for you, you might want to see a neurologist to see if there's any cause he can detect.. But if you've had this problem all of your life, then it's probably genetic and there is no treatment, but you can try to practice recognizing people, if not by their faces, then by their voices or other characteristics.
  • Steve_Kaye May 13, 2012 @ 3:39 pm | delete
    This is new information for me. I've been reading articles on things like this today, and the overall message is that we need to be more compassionate.
  • LizMac60 Apr 28, 2012 @ 4:02 am | delete
    What an interesting lens. Blessed.
  • Ruthi Apr 25, 2012 @ 10:01 am | delete
    I have never heard of Prosopagnosia before now; thanks for sharing your personal story. I think it is amazing there are ways to train your brain to counteract this problem. You have my blessings and a bit o' sunshine.
  • lisadh Mar 30, 2012 @ 11:44 pm | delete
    I've never been good at recognizing and remembering people's faces, although I don't think it's problematic enough to count as Prosopagnosia. I do know that I'd be a terrible witness to a crime because I'm not good at remembering details of what people look like.
  • Einar_A Mar 28, 2012 @ 9:23 pm | delete
    This sounds incredibly familiar to me! I didn't know it had a name...
  • Lynne Mar 20, 2012 @ 10:14 pm | delete
    Thank you for your information. My daughter developed it during college and the thought is that it has to do with her types of migraines. Her's is intermittent and affects her when she is in the US and in England where is now going to school but not when she is in Africa. I haven't heard of this type before.
  • hotbrain Mar 23, 2012 @ 5:50 pm | delete
    Very interesting. I've never heard of intermittent face blind, but there are all kinds of strange brain phenomena.
  • Chrmdpoet Mar 4, 2012 @ 4:44 pm | delete
    This is a wonderful lens. Thank you for sharing your personal struggle and so much knowledge.
  • Rosaquid Feb 24, 2012 @ 5:42 pm | delete
    This is so interesting. I can relate to much of it.Thanks for the info!
  • SecondHandJoe Jan 23, 2012 @ 9:58 pm | delete
    I am more and more impressed with squidoo as a catalyst for learning new things, often from a first person perspective. I have gone decades not knowing about Prosopagnosia. This is a fabulous lens. Thank you for sharing it!
  • Tipi Jan 13, 2012 @ 11:33 am | delete
    Prosopagnosia is new to me and your personal discussion teaches so very well. You are such an overcomer and I'm always so impressed with your adaptive skills and rich encouragement to others. I like your discussion of the facial recognition test...its a tool that indicates some of the information but only can do it in part as any evaluation tool. Blessed.
  • alwaysjules Jan 9, 2012 @ 4:09 pm | delete
    How difficult it must be for you. Thank you for sharing your story. I can see why it was chosen a top 100 Community Favorite for 2011. Congratulations.
  • skeffling Jan 6, 2012 @ 6:21 am | delete
    Fascinating lens. Blessed this lens!

    I had the horror of giving papers back too, luckily we all had to sit in the same seats so I learned where everyone was. I took the face test and thought I was guessing I got one of the practice questions wrong 3 times!! I feel I can't remember or even see faces very well or faces and names together, and I was in the top 10 percentile! So it must be something else.
  • Lily Jan 2, 2012 @ 12:47 pm | delete
    OMG, that's why it's so hard for me to remember people faces?! i thought i was just a forgetful person. i work as cashier and even before reading this article, i used customers' voices as clue to identify who's who.
  • Papier Jan 2, 2012 @ 1:51 am | delete
    This is very compelling. Sometimes I think I must have a bit of this condition. For me, it is necessary to find some kind of emotional connection to the new person; otherwise I may meet a person several times before I recognize them. thanks. congrats!
  • hotbrain Jan 2, 2012 @ 3:56 am | delete
    That makes sense... Sometimes it seems that I don't know "how" I recognize people.. I'm sure it's some combination and emotion does play a part! I'm becoming increasingly curious as to how prosopagnosia effects relationships and connections with others.
  • VickiSims Jan 1, 2012 @ 10:04 pm | delete
    Thanks to you I learned something new today! I'd never heard of this condition. I appreciate the links to the tests - fascinating research!
  • Auntiekatkat Dec 31, 2011 @ 10:36 pm | delete
    Congrats on being nominated for Community Favorite Lenses of 2011. A wonderful lens. Fortunately we both share one thing it was easier to vote than for most as mine was my "why-I-am a- vegetarian was nominated as well. A proud moment for all of us. Good luck in the voting.
  • JoyfulReviewer Dec 31, 2011 @ 4:48 pm | delete
    Thanks for sharing your story and helpful information. Congratulations on being one of the final 100 favorite Squidoo lenses of 2011!
  • MCB2011 Dec 31, 2011 @ 3:40 pm | delete
    The Brain is amazing. I took one of the tests. Great lens.
  • BalanceByDesign Dec 31, 2011 @ 3:19 am | delete
    I am 55 and for the first time...I have a name for my problem! I thought I was just being careless. I often have people come up and talk to me like they know me and I would swear I had never met them in my life. Very embarassing. It has been a problem at work and church also. For me, it carries over into places and cars, which I also don't remember.
  • hotbrain Dec 31, 2011 @ 4:31 am | delete
    Thanks for your comment!! It's very rewarding to know that I've helped someone realize something about themselves :) I think many people have it but don't know it. Having a name for a problem sure helps!
  • MysticTurtle Dec 30, 2011 @ 6:52 pm | delete
    Wow, this is a real disorder? I didn't know that! I always thought I just didn't pay close enough attention.
  • hotbrain Dec 31, 2011 @ 4:27 am | delete
    Like with most disorders, there are varying degrees of severity... For some people it's very debilitating, other people find it to be just an annoyance.
  • snazzify Dec 30, 2011 @ 6:49 pm | delete
    blessed by a squid angel :) <3
  • Mistel Dec 30, 2011 @ 5:38 pm | delete
    I never knew about Prosopagnosia, this is what I love about Squidoo, it really broadens your horizon! Thank you for sharing and for making me aware of this!
  • OhMe Dec 30, 2011 @ 3:32 pm | delete
    I had never heard of Prosopagnosia and had no idea there was such a thing. This was very interesting. Congrats on being in the Top 100 Community Favorites.
  • MarigoldTortelli Dec 30, 2011 @ 3:23 pm | delete
    I learned to recognize people by the way they walk. Everyone has a fairly distinctive walk. Other than that I just wait for the person to say something so I can recognize their voice.
  • hotbrain Dec 31, 2011 @ 4:32 am | delete
    I also pay attention to how people walk... It is a big clue! It sounds like you are very aware of your difficulty and are doing a great job at compensating.
  • TheSoundofSettling Dec 30, 2011 @ 8:40 am | delete
    very interesting, I was not aware of Prosopagnosia. Thanks for sharing this information!!
  • SheWritesaLot Dec 15, 2011 @ 2:26 pm | delete
    Very interesting lens. I wish your problem could have been recognized when you were in school and maybe you wouldn't have had such a difficult time. But you sound like a very confident person now. thank you for taking the time to share.
  • Adam Oct 18, 2011 @ 10:30 pm | delete
    Hi Heidi, do faces tend to all look very similar or some faces will sort of look like one you've just seen? Certain pharmacological interventions which act upon Serotonin can cause this: perhaps a lot can be learnt from their action as to why some people experience this normally? In my experience, things which agonise the 5HT-3C receptor induce this for me, where as those which antagonise it (such as the NaSSA anti-depressant, Mirtazapine), cause the opposite and, also the nice side effect of almost photographic memory for people, names, places, dates, numbers: perfect recall!
  • hotbrain Oct 18, 2011 @ 11:29 pm | delete
    Yes, faces often do look similar to me... When I started to get better at recognizing faces, I also started, at the same time, incorrectly recognizing faces! It seems that being able to recognize the similarities is part of the learning process. That's interesting about the Mirtazapine... Serotonin is supposed to play a role in learning.
  • WaynesWorld Oct 11, 2011 @ 12:00 am | delete
    Heidi very interesting lens, First off I never heard of this but there is a ton of stuff I have never heard of(I don't get out much.)
    Sencond, I went and took a couple of those recognition tests, the one on emotion just pissed me off enough I didn't make it through the sample part let alone the rest.
    Recognizing the famous people that I should know or whatever, some of the pictures were really crappy pictures. The JFK junior I thought looked like Antonio Banderas, I couldn't remember Susan Sarandon's name, I knew where to look for the name but wasn't going to cheat, same with Renee Zelweeger and Nicole Kidman, recognized their faces new one was Tom Cruises real ex-wife and one was his wife from "Jerry McGuire" movie. I had a 70 where the average is 75. I think they should have a better face shot of the people, some of the people I just didn't know but you know what? Too bad, I'll live with it. The wife and I will watch shows and I am pulling peoples names out the shows and she is saying, "That's not them." And when we watch the credits or I go online at http://imdb.com I can find them in the credits of the movie or show.

    I don't want to make light of your situation with my own dislike of their tests.

    School was hard enough without being different, wish I would of enjoyed school more, it would be great if you could of gotten rid of all the name calling and stuck-ups.
  • hotbrain Oct 13, 2011 @ 5:54 am | delete
    Thanks for your comment! I didn't really like taking any of the tests, but from comparing my results to my husband's, I can tell that if you do recognize faces you will probably do better on the tests than someone who doesn't. The emotions part is annoying. They do give you very little to work with and try to confuse you. It sounds like you are doing fine recognizing people... Of course there are other ways to recognize people besides faces, like by voice or by how someone walks or their posture. Any way you can do it is pretty good, in my opinion!
  • T G Sep 18, 2011 @ 4:04 pm | delete
    Thank you, I had not heard of this term until a couple days ago and am now realizing that I too may have prosopagnosia, based off of how similarly I relate to your difficulties! I scored similarly to you on the face memory test.
  • hotbrain Sep 19, 2011 @ 2:08 am | delete
    I'm glad that my article helped you. It sure helped me to be able to put a name to the problems I was having!
  • Rachel Aug 12, 2011 @ 10:45 am | delete
    Thanks for sharing your story. I have heard of prosopagnosia and it was actually one of the disorders which piqued my interest in neuroscience. I plan to major in neuroscience in college and hope that I will be able to research this disorder and possibly find a cure. Good luck!
  • hotbrain Sep 19, 2011 @ 2:09 am | delete
    Neuroscience is a great major! I'm sure you'll enjoy it :)
  • Russia33 Jul 31, 2011 @ 7:52 pm | delete
    Hmm I learned a lot reading this lens, considering I had never heard of prosopagnosia. I used to get frustrated with people when they would not recognize someone they knew, now I'll have to try to be more understanding!
  • hotbrain Sep 19, 2011 @ 2:11 am | delete
    Yeah, I try to realize that people may have difficulties that I'm not aware of... Everyone's different, and you never know what someone else is experiencing.
  • bakerwoman Jul 26, 2011 @ 12:44 pm | delete
    Thank you for this enlightening lens. I have never heard of prosopagnosia and now I know how to be more sensitive to people that may have it. Usually, I would think people are just forgetful when they fail to remember faces or names which is quite common especially in a big gathering.
  • chris_triby Jul 26, 2011 @ 8:45 am | delete
    I had heard a little about this before but didn't really know much. Thanks for sharing your story, it was a good read and I learned a lot. Thank you for sharing your lens in PB's thread and keep up the great lenses.
  • Prophetic_Blogger Jul 26, 2011 @ 1:08 am | delete
    Thanks for highlighting this lens on my forum thread. I found your story really interesting and highlighted a condition which I was never aware of. It sounds like you've had a pretty hard time, the bagel scenario must have been pretty soul destroying at the time. I think it's great that you work hard at getting better at facial recognition and I hope it gets easier for you. Thankyou for highlighting your lens it was definitely one that I found interesting, informative, insightful and at times I was quite moved by your story. Hope things continue to get better for you. Kind Regards PB
  • hotbrain Sep 19, 2011 @ 2:21 am | delete
    Thanks for your comments... I'm fortunate to be gifted in other areas, so I think that makes up for the prosopagnosia.. It took me a long time before I realized my difficulties with face recognition. If I had realized at the time, I probably would have figured out a strategy to cope with working at the bagel store (like remembering what the people were wearing) or maybe not applied for that kind of job.
  • smithlights Jun 23, 2011 @ 2:25 am | delete
    Wow! I have never heard such a thing! I am opposite... with a photographic/identic memory. Thanks for sharing!
  • hotbrain Sep 19, 2011 @ 2:23 am | delete
    Wow, that's amazing!
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More Interesting Reading on Squidoo

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Kylyssa describes techniques that have helped her difficulties with social interaction.

Prosopagnosia Books on Ebay

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I'm Heidi and I love to write on Squidoo. Here's my story about my face blindness or Prosopagnosia problems with recognizing faces.

Feeling creative? Create a Lens!

Dr. Oliver Sacks on Prosopagnosia 

And other Visual Disorders

The Mind's Eye

Amazon Price: $6.92 (as of 06/03/2012)Buy Now

Oliver Sacks is a neurologist who writes books with stories about his patients who have strange or unique disorders. I've read several of his books, and in this book, "The Mind's Eye," Oliver Sacks reveals that he has prosopagnosia. Because of this difficulty, he avoids large meetings, conferences, and parties. It sounds like his experience with prosopagnosia is similar to mine, as he uses the way people move (motor style) to recognize people, which is one of the things I also rely on. Like me, he can recognize emotions and various things about a face, but has trouble recognizing the whole face.

This kind of prosopagnosia that Oliver Sacks and I have is called congenital or developmental prosopagnosia, which is far more common that prosopagnosia caused by brain trauma.

"The Mind's Eye" is a very interesting book, full of stories of people that have different kinds of problems with recognization. It also talks about some of the brain neurology that might be the cause of these disorders.

A True Story About Family, Face-Blindness, and Forgiveness 

Learning about her face blindness helps her improve her relationships

You Don't Look Like Anyone I Know

Amazon Price: $1.99 (as of 06/03/2012)Buy Now

I haven't read this book yet, but it's a first-person account of coping with prosopagnosia which sounds quite interesting.

Helpful Book about Prosopagnosia in Children 

Learn how to tell if your child has face recognition problems, and find out ways to help them