Depression With Psychotic Features

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My Brush With Psychotic Depression

In a way, it's not as dramatic as it sounds.

I wasn't having thoughts of suicide or self-harm. Given my history, I figured that meant I was doing pretty OK, considering. Sure, my brain was telling me some pretty crazy things -- which I'll describe in a little while -- but I knew they were just that. Crazy. Untrue. Irrational.

How crazy could I really be, if I knew I was crazy?

So I did the silly things required to placate my silly brain. I ignored my spiraling mood. I ignored my increasing anxiety. I just went about my business. No big deal, right?

Then why is that "psychotic" word in there?

Photo retrieved from wikimedia commons

If You're Worried About Going Crazy, It's A Sure Sign You're Not. Right?

Wrong.

Phrenology Chart of Head

Phrenology Chart of Head



I used to think that "psychotic" meant that a person was completely disconnected from reality, unable to tell what was real and what was imaginary. In early December, I discovered that I had been wrong. I had a psychotic episode.

As it turns out, illnesses like depression, obsessive-compulsive disorder, and anxiety disorder can all manifest in psychotic symptoms. In these illnesses, unlike in schizophrenia or a manic phase of bipolar disorder, the person experiencing the psychosis knows full well that they're irrational. The medical term for this is "patient insight". In some ways, this "insight" is definitely comforting. In other ways, it makes the whole thing even stranger than it already is.

In the following article, I'll talk about what happened to me, the treatment that followed my crisis, and the signs and symptoms that could have alerted me that something was wrong. If I had known what to look for, I might have been able to prevent my psychotic episode. Since it's too late for that, I hope that I can help others track their own (or their loved ones') moods and signals, and possibly avert the sort of event that happened to me.

What is Psychosis, Anyway?

The word gets thrown around a lot.

"Psychosis" describes a psychological state in which the subject (that's me!) develops "reduced contact with reality." This takes the form of either delusions, which are false beliefs; or hallucinations, which is seeing or hearing things which aren't actually there.

Wizard of Oz: Dorothy and Toto are Caught up by the Tornado



Looking back on the events of 2010, there were several points at which I may have experienced "reduced contact with reality". There was the time last Spring when I felt like the storm outside was trying to pry off the roof of my house to get at me -- but I knew intellectually that it wasn't, so it's all good. Or so I thought.

A Pair of UH-60 Black Hawk Helicopters Approach their Landing in Baghdad, Iraq



There was the time when I was visiting my parents, and a helicopter hovered over their home at 1 in the morning, and a part of me felt absolutely terrified that it was after me -- but I knew it wasn't, so I pretended to myself that I wasn't panicking. Wouldn't it be hard, I thought, to be "actually paranoid" and to "really believe" that the helicopter was there for me? Good thing I'm "normal", right?

Early Light Bulbs: Left: First Commercial Light Bulb, Right: Electric Filament Lamp, 1879



Last fall, with increasing frequency, I had to turn on all the lights in the house at night. I wasn't scared of shadows or someone breaking in. No, part of me was convinced that having the lights on in the kitchen and not in the living room would cause the house to become unbalanced. The darkness from the living room would pour into the kitchen, and that would be Bad.

Rationally, of course, I know that photons have no mass, and therefore can't weigh enough to overbalance anything. Good thing I'm rational! I turned the lights on anyway, because not having them on scared me.

And then, there was The Episode. The one with the microwave cabinet. That was the one that was finally bad enough for me to alert my doctor.

Important!

Psychotic People Are Not Criminals!

It is widely believed that "psychotic" people are violent, or even remorseless, criminals. This arises from a confusion of "psychosis" with the word "psychopath" -- psychopaths are people who have no conscience or ability to empathize with others. The fact is that the vast majority of people experiencing psychosis never commit crimes, and the vast majority of criminals are not psychotic.

The Menacing Microwave Cabinet

Or, Addy Has A 'Sode

I'm in my kitchen. It's early December, about 5:30 in the evening. I'm cooking soup, alternating between stirring it and working at my computer. I've been feeling increasingly bad since 4 pm. Like a character in a Bergman film, I start to feel that life is bleak and meaningless, destined to be snuffed out by the all-consuming dark.

I start to cry. I stir the soup, and return to my computer to try and get some Christmas shopping done. I look around at my badly-lit kitchen. I start to cry harder. I feel like I can't handle my life anymore. There are dark shadows everywhere. I imagine them devouring photons until there's nothing but darkness left in the universe. Then, I look at my microwave cabinet and a feeling of dread comes over me.

A Voice In The Dark

Don't worry, it's just a metaphor.

Ideas Emanating from Person's Brain



A voice comes out of my ancient hind-brain -- the very old part, the one that still listens for rustling noises from the back of the cave, in case there's be a saber-tooth tiger back there -- and warns me that the microwave cabinet is a threat.

"Huh?" says my rational self. "It's a piece of furniture. It's an inanimate object, without intelligence of any kind. Least of all the kind required to pose any sort of threat."

It's a threat., my hind-brain insists. It's dangerous. Don't turn your back on it.

Being terrorized by that stupid cabinet was like being four years old, and afraid of the monster that lived under my bed. Even at the age of 4, I knew monsters were imaginary. That is, I knew they were imaginary during the day. When the sun was up, or the lights were on, the area under my bed didn't scare me at all because I knew that monsters weren't real. When the lights went off at night, though, all bets were off. Monsters were real, and the darkness under my bed held unspeakable horrors.

Yet here I was, a grown woman in my mid thirties -- with all the lights in the house on, no less -- being menaced by a piece of furniture.

Not Quite a Tinfoil Hat

Cuz I'm not the one wearing it.

What the Brain Does

What the Brain Does
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Oddly, as my issues with the microwave cabinet are flourishing, my mood is getting better. I start to consider my next move.

For now, I have my computer set up in such a way that I can see the cabinet out of the corner of my eye, but I'm not looking at it directly, and my back isn't turned. I start to wonder what to do next. I know the reasonable thing to do would be to leave the room -- at least, that's the next most reasonable thing to do. The most reasonable thing to do would be to stop being afraid of a damn cabinet. However.

Don't make eye contact, says Ancient Hindbrain. But don't leave the room. You need to stay here where you can to keep an eye on it. Besides, even if you leave, it will still be here ... WAITING.

"We can't stay here all night," I argue. "You don't want to sleep in the same room with it, do you?"

Absolutely not! says Ancient Hindbrain. We need to find a way to contain the threat.

"And how, exactly, do we do that?" I ask.

Office foil prankThe answer, when it comes, is as surprising as it is implacable.

You need to cover the cabinet with foil, says Ancient Hindbrain. That will keep it from devouring the light. It will keep it from threatening us.

Really. I was having paranoid delusions about a piece of furniture, and that's where my mind went. Aluminum foil. It looked like I'd be living a cliche for the next little while.

So I covered my cabinet in foil.

And I felt a lot better.

A Short List of Words You Don't Want to Hear From Your Psychiatrist

Mental Health Disorders, Mood Swings, Depression
Mental Health Disorders, Mood Swings, Depression
Perker, M. K.



That is, I felt better until I talked to my psychiatrist a few days later for a routine med check.

Yeah, that's right. I waited for three days to talk to my doctor about what happened. In retrospect, it probably was not smart.

Anyway, what had happened to me was pretty scary, but I didn't figure it was that bad. I was lucid, right? My rational voice was loud and clear, and telling me that covering the cabinet in foil was silly. Besides, it's not like my irrational thoughts had me wanting to hurt myself or someone else. Somehow I'd always believed that as long as I didn't cross that threshold, I was fine.

So I went in to my doctor's appointment, expecting him to raise the dose of my antidepressants and possibly my ADHD meds as well. I got more than I expected, to say the least. I heard several words that I never, ever wanted to hear from my psychiatrist.
  1. "This has me concerned".
  2. "Psychotic".
  3. "Delusion"
  4. "Paranoid"
  5. "This has me very concerned."
  6. "You're not going to like this ..."

Treatment For My Psychotic Depression

Abilify, and a Sun Lamp

Brain Salt Headaches Humour Medicine, UK, 1890
Brain Salt Headaches Humour Medicine, UK, 1890
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I suppose I got off lucky. When my doctor said "you're not going to like this", he suggested a low dose of an antipsychotic medication. At least it wasn't electro-convulsive therapy.

The medication my doctor put me on was Abilify. In high doses, it's used as an antipsychotic. In lower doses, it's used for treatment-resistant depression, and depression with psychotic features. My doctor also ordered me to go home and buy a sunlamp that very night.

My memory of that appointment was not terribly clear. I think I was in a certain amount of shock after hearing the word "psychotic" applied to me. I'm still not entirely sure exactly what happened to me, or what I can do to keep it from happening again.

What To Look For In A Sun Lamp

Full-spectrum light, and 10,000 lux.

My appointment with my doctor scared me, and upon arriving home that evening I immediately went online and ordered a sun lamp. This model happened to be the least expensive one that met my therapeutic requirements.

I ordered it on a Wednesday night, and it arrived the following Monday morning. I turned it on and ate my breakfast sitting in front of it. I noticed an immediate difference that day as I went about my business -- I was better able to focus on what other people were saying, and had the energy to participate in conversations.

NatureBright SunTouch Plus Light and Ion Therapy Lamp

Amazon Price: $58.99 (as of 05/24/2012)Buy Now

In order for a lamp to be therapeutically useful, it needs to emit light along the full visible spectrum, just as sunlight does, and it needs to have an output of 10,000 lux. This lamp meets both requirements. The "ion therapy" is pointless pseudoscience, and since it smells slightly of burning plastic, I just don't bother to turn it on.

So What's The Big Deal?

Psychotic Depression Is Not a Joke.

Dark Genius, 1891/92

Dark Genius, 1891/92
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My depression had gotten so severe that I was experiencing actual psychosis. In patients with depression, psychotic episodes can be a precursor to severe treatment-resistant depression, of the kind where sufferer has trouble taking care of her basic needs.

Despite the occasional psychotic delusion, I was able to wake up in the morning, feed myself, bathe and clothe myself, and generally (albeit with difficulty) go about my day. If I had not sought treatment when I had, I might have become unable to leave the house -- or worse, unable to get out of bed entirely. People with that level of depression are at risk for suicide, and often have to be hospitalized because they are unable to care for themselves.
Important!

Call 1-800-SUICIDE If You Need Help!

If you feel that you are at risk for suicide or self-harm, GET HELP NOW. Call your local emergency or social services for assistance. In the US, you can call 1-800-SUICIDE or 1-800-784-2433.

Another option is to call 1-800- 273-TALK, or 1-800-273-8255.

You don't have to suffer alone!

Depression With Psychotic Features

Living With A Scary Mental Health Diagnosis

Waterlily



Hearing my psychiatrist apply the word "psychotic" to something I'd experienced has been the scariest thing a doctor has ever said to me. Suddenly, I went from someone who was (I thought) reasonably normal, to someone whose shrink felt the need to call every three days to check in. My antidepressant dose was quadrupled. I was put on antipsychotic medication. My ADHD meds needed to be increased to deal with the cognitive side effects of the antidepressants and the antipsychotics, because apparently the meds I'm on all fight each other, and I also need sleeping pills to come down at night. I feel like Elvis, with all the drugs I'm on.

So I decided to place myself on medical leave. From early December through the beginning of February, I didn't do much of anything except make art. I completely cut myself off from the news and current events, not even watching The Daily Show. I gave myself a break from checking my email. In short, I did everything I could to remove stress from my life. I think it's the best thing I could have done for myself, and I've so far managed to stay on the knife-edge of sanity.

What Now?

Living With Psychotic Depression

Pensive Woman Looking Out of Window



Since my psychotic episode, my doctor and I have made various adjustments in my treatment. I was put on 5 mg of Abilify -- possibly the most patronizing medication name ever -- and that helped with the paranoia. I started using my sunlamp for an hour in the morning and an hour after sunset every day, and that evened my mood out a little bit.

My dose of Zoloft was raised from 12.5 mg to 50 mg; it helped my depression, but made my anxiety worse. It also had a negative impact on my cognition. When a complete stranger rang my doorbell to let me know that I'd left my keys in the door of my home, which is in a not-so-great neighborhood of San Francisco, I called my doctor about changing to another antidepressant.

I've been taking 5 mg of Lexapro since early January. As the days have gotten longer, I've been able to go down to 2.5 mg of Abilify, and I've been able to loosen up my sunlamp schedule a bit. I still find that I need the lamp on gloomy days, and if I forget to take my medication, the depression comes back immediately. I'm doing much, much better -- but I'm not ALL better.

Why I Didn't See It Coming

Or: How An Experienced Mental Patient Got Blindsided

Digitally Generated Image of a Black Hole

Digitally Generated Image of a Black Hole


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I've spent the last several months beating myself up for "letting myself get so depressed" that I was at the point of psychosis. Writing my current blog, which is basically a mood journal so I can track my progress on my new medication, I realized something very important: there's no way I could have seen that coming. Why? Because I was nowhere near "The Pit".
Psychotic Depression: Why I Didn't See It Coming
I didn't think I was getting "more depressed" before my psychotic episode -- because I was nowhere near "The Pit".

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When To Seek Help

Please, don't wait as long as I did.

Malinois (Belgian Shepherd Dog) Trained for Work as a French Red Cross Dog



One of the things that scares me about my experience with psychotic depression is that it happened while I was already on medication, under the care of a psychiatrist. I've been on meds for ADHD for two years, and on varying doses of antidepressants for fifteen. I know depression inside and out. So how did this happen?

The answer to that lies in depression itself. You see, one of the most pernicious aspects to depression is that it causes you to minimize your suffering. "Be strong," that inner voice tells you. "What's wrong with you? Other people can handle this," it says. "You don't have REAL problems," it insists, "be a grown-up!"

If you feel yourself growing more anxious, or if you feel your mood slipping, talk to your doctor. Don't suffer needlessly. Not only will you feel better, but you'll prevent something much more serious from going wrong -- like what happened to me.

Definitions and Help

Computer Keyboard with Word Help Highlighted

Depression with Psychotic Features
PubMed's definition of Depression With Psychotic Features.
National Alliance on Mental Illness (US)
A great place to go for information on all kinds of mental illness, as well as advocacy to end discrimination against the mentally ill.
Beyond Blue (Australia)
Information and assistance with depression from Australia's national depression initiative.
Depression Alliance (UK)
"We work to relieve and to prevent this treatable condition by providing information and support services."
Depression Information
All sorts of information on all types of depression and its various treatments.

The Lamictal Diaries

In which I try yet another medication

White Mouse Standing Near a Pile of Mixed Pills
White Mouse Standing Near a Pile of Mixed Pills
Melford, Michael
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So, the Lexapro didn't wind up working out, and my doctor has decided to try me on Lamictal (lamotrigine in the generic). The plus side is that it's been shown to be a very effective medication to treat depression in bipolar patients as well as those whose unipolar depression fails to respond to SSRI's. The downside is that it comes with a host of exciting side effects that can include a potentially fatal skin rash.

I'm keeping a blog of my mood symptoms and any side effects I encounter. In the past, certain medications (I'm looking at you, Lexapro!) have sedated me to the point where I was almost unaware of how sedated I was. I'm hoping that by keeping a detailed journal of my experience I'll be in a better position to decide whether lamotrigine is working for my depression.
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What's your experience with depression?

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  • candidaabrahamson Mar 30, 2012 @ 2:15 pm | delete
    A very well-done and fascinating lens. Did any of your meds ever work out for you? I hope so--and if so, I'd love to hear your voice over on my duel debate lens on how to treat depression. I've noticed that Squidoo is overwhelmingly, as a unit, into alternative treatments. Those can be fantastic, but there are some illnesses that do require medication, and I'd love to hear that voice. Meanwhile, just wishing you the best in stability.
  • MermaidDoc Mar 20, 2012 @ 8:12 pm | delete
    Thank you for this very insightful and helpful lens. I have had a decades long battle with depression also, it helps to read about someone else's experiences.
  • JimDickens Mar 12, 2012 @ 8:17 pm | delete
    interesting and scary. Good lens
  • jonnyyoung13 Feb 8, 2012 @ 4:12 am | delete
    Well done for speaking so frankly and honestly about this. I hope you stay well.
  • Mermaiden Oct 28, 2011 @ 7:36 pm | delete
    Thank you for sharing your experience. I really identified with your story. I've suffered with depression all my life and don't know if we'll ever find the miracle cure, but it's comforting knowing that there are others out there and we're not alone.
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In December of 2010, I suffered a mental health crisis in the form of a minor psychotic episode. I was under psychiatric care at the time, as I still... more »

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