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RA Chatter

From the lens Living With RA.

I'd love to hear from other people that are living with RA. Please take a moment to say hello.

  • JaguarJulie Feb 29, 2012 @ 8:34 am | delete
    RA did affect my grandma who lived in Cleveland, Ohio for most of her life. I wonder how the coldness of the weather might have affected her? And, had she moved to a warmer climate, like Florida, would she not have suffered so? I'm thankful that advances in therapy have helped those who suffer with RA.
  • Tipi Feb 15, 2012 @ 12:29 pm | delete
    I don't have RA but sure do appreciate you gathering all these resources together for those seeking information.
  • harryr Jul 8, 2011 @ 6:20 am | delete
    Been living with arthritis myself for the past ten years. First few years were tough but everything changed once I started Remicade treatments, gave me my life back,
  • Angela May 14, 2011 @ 1:43 pm | delete
    I have lived with RA for 15 years. I am gratefor for my Rheumatolgist who recommended
    rituxan infusions. I don't have stiffness in the morning, and have a normal life. My biggest
    problem is with my hands. My right hand is so deformed, I am considering surgery.
    Does anyone have any experience with hand surgery involving the tendons. I have seen
    3 hand surgeons and can't decide what to do. The recovery may take up to 3 months, which means you can not work, b/c you don't have use of your hands. I look forward to hearing from someone, anyone.
  • CountryTwinkee13 Mar 8, 2011 @ 8:03 am | delete
    My sister has RA. She does good some days and others not good. She now has it in her neck. Doctors told her if. she loses the bone in her neck. She will have a strokeon the left side and be in a wheel chair. She use to knit, and i notice when i was down this fall. Was going to show her how to make fudge.. Now i see why she cannot do it. The hand do not work. She is having real bad head aches. I know of the shots. And with out the shot she cannot walk. Does anyone know when this desease will take my sister? She looks like a little old lady. With a big heart..
  • Feb 24, 2011 @ 2:17 am | delete
    Thanks for this useful lens.
  • Jessica R Feb 24, 2011 @ 12:42 am | delete
    Hello, you just got added to my favorites : ) Well just finally got the positive RF test yesterday (the forth test they have done). Not that I am happy it is just that I am in so much pain for the last two years and I have herd everything from I am depressed to it's in my head. So now off to meet the RA Dr. next month. I will not let bring me down at least I can start a treatment and hopefully get better use of my hands! Thank you for the blog useful information!
  • 2muchtrash Jan 25, 2011 @ 3:40 am | delete
    Great resource for RA sufferers. Although I have no personal experience of it, my understanding is that it is debilitating, and that some days are worse than others. I hope you are able to get to a point where you are physically capable of opening your vegan restaurant and that it gives you the satisfaction and pleasure you desire. *SquidAngel Blessed*
  • mysticmama Jan 12, 2011 @ 12:21 pm | delete
    I was diagnosed with RA when I was 23 & thank Yoga for still having as much mobility as I still have ay 46. My RA didn't really start slowing me down until I hit my 40's ~ I find the hardest thing about having RA is trying to explain to other people how painful & physically limiting it can be, since people can't see RA unless they look at my swollen hands before the meds kick in, they often have a hard time believing it's real ~ or maybe that was just my unsupportive X lol :)
  • Angela May 14, 2011 @ 1:49 pm | delete
    You are so lucky and so smart for using yoga. You are right about people, and their lack of common sense when it comes to RA. Have you been told that you need surgery on you hands? I would love to hear from you, as this is my situation, needing hand surgery, and not convinced that it wiil work.
  • javrsmith Jan 6, 2011 @ 9:01 pm | delete
    We knew a wonderful aunt that struggled with RA back in the 1970's and 80's. It's interesting to see that exercise is helpful. Good luck!
  • Chromey Nov 21, 2010 @ 9:15 pm | delete
    Thanks for helping spread the word!!
  • Ener-G Oct 28, 2010 @ 2:51 pm | delete
    What a great resource for those who have RA. May your own journey be always and all ways into better wellness and wholeness!
  • crosscreations Oct 7, 2010 @ 7:36 am | delete
    Excellent support for RA on this well-formatted page. Lensrolled and faved. :-)
  • Valerie Sep 14, 2010 @ 7:00 pm | delete
    For kids with JRA, check out JGCAF.org
  • Sep 5, 2008 @ 8:19 pm | delete
    Good info here about RA. My daughter has Juvenile Rheumatoid Arthritis. The last 15 years have been quite challenging.
  • health_advisor Jul 24, 2008 @ 9:03 pm | delete
    Very informative.
    Great lens. Rated it 5 stars.
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    because a healthy body is an investment.
  • Dr_Joe Jul 20, 2008 @ 8:07 pm | delete
    Very informative.
    Great lens. Rated it 5 stars.
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  • BarryKrost Jan 29, 2008 @ 4:34 pm | delete
    Very informative lens. I don't have RA, but I have clients who do. I will send them here. Thanks.
  • genglo Aug 25, 2007 @ 5:14 pm | delete
    I'm so sorry you had to go through this. I remember how frightening it was when I was first diagnosed. I thought my life was over, especially since I had just given birth to a baby and was afraid I'd never be able to hold her. Are you in remission now?
  • Proximity-Freedom Aug 25, 2007 @ 9:27 am | delete
    I am a 29 year old female and was diagnosed 2.5 years ago. went to bed fine and woke up the next morning unable to move my legs. Within about 3 days, I was hardly able to move anything and broke into a massive fever. I was suicidal when diagnoed, but have no come off medication and 90% better.
  • genglo Mar 23, 2007 @ 8:47 am | delete
    Be wary of the scammers on Squidoo. I am really disappointed by the lenses selling snake oil to those of us with arthritis and other chronic illnesses. Please speak with your rheumatologist before wasting your money on these "miracle cures" promised online.
  • genglo Oct 11, 2006 @ 8:29 pm | delete
    Tai Chi is wonderful for RA. While it may not affect the disease, it does increase mobility. I would recommend Dr. Paul Lam's Tai Chi for Arthritis program.
  • oniyagi Aug 30, 2006 @ 12:39 am | delete
    I'm curious about the effects of martial arts on RA. I know that there are a host of Tai Chi videos and books out there targeted towards people with arthritis, and I'd like to be able to recommend some to my MA blog readers as I have had some inquiries on the subject. If you have any info, I'd love
  • genglo Aug 7, 2006 @ 4:09 pm | delete
    Hi Amanda, I'm sorry that your father has been suffering. I know it can be hard, but there is always hope. I was once very ill and now with good care, I feel pretty good most of the time.
  • ABMarano Jun 27, 2006 @ 11:36 am | delete
    My father has been living/suffering with RA for about 10 years. It has taken its toll on not only him, but our family - as he and my mom are still young and have 3 children in their young adult and teen years. I am always looking for new sites/suggestions that can help ease their pain.

by

genglo

Hi, my name is Julianne and I am a patient living with Rheumatoid Arthritis.

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