Symptoms of Fibromyalgia - Guestbook from Symptoms of Fibromyalgia

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    julie julie Nov 11, 2009 @ 11:51 am
    i was diagnosed over a year ago and put on quite a few drugs before i found some that worked for me, i am now learning meditation to help control the pain, its a bit like the shoulin munks do so they can break bricks with there heads and not feal any pain, its just the start but fingers crossed it will work. i'll keep you informed. i also have had a lot of weight loss, so i too sit on bones and not flesh, i now have a medical sheep skin which is great, it goes every where with me if i need to sit for a little while.
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    Dr. Harris Meyer Dr. Harris Meyer Nov 11, 2009 @ 2:06 am
    I sympathize with all of you who suffer with this syndrome. Because it's a collection of symptoms, there is not one easy solution and most practitioners will attempt to treat the worst symptoms as best they can. Under those circumstances, finding the natural alternatives to the synthetic medications usually prescribed can spare you side effects as well as the toxicity which is a real problem that worsens with time. I find a good degree of success combining chiropractic care with appropriate supplements and dietary modification. Exercise wherever possible is of great benefit. Advocate for yourself and do the research to find the best non-synthetic food supplements for your symptoms. It can run up a costly tab but the alternative is usually considered to be worse. Best wishes, Harris Meyer, DC. Chiropractor in San Francisco. www.BodyFocusHealth.com
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    Tam Tam Nov 10, 2009 @ 11:06 am
    Everyone is different but in my case this is what works for me:
    Twice daily cod liver oil caps
    Twice daily magnesium/calcium/zinc combination pill
    Walking a bit each day, stretching out my legs and going up and down stairs at work (mostly my legs and lower back ache)
    I know alot of people say B-12 but for me, this makes my fibro symptoms worse! It gives me a bit more energy but not worth the pain in my legs! For the few times I can't sleep well, I take melatonin. Works great. Avoid caffeine also. Ibuprophen for when I do have aches and pains.
    If I take my minerals every day, I have very little pain, can sleep well and feel good most of the time.
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    Dominica Dominica Oct 30, 2009 @ 8:41 am
    Hi, as a registered nurse I spent 7 months in a confused and distressed state untill I had a name for my problem - Fibromyalgia. What scared me more than the diagnosis was knowing how from first hand how the medical fraternity view people with this disease. Luckily I have a great GP who referred me to a specialist. In all my 15 years nursing it was the first time a Doctor supported alternative treatments at the same time. I am only in the beginning of my journey in learning about this painful bugger. My hope is that I can find the right combination of treatments to help, but from what I have read Fibromyalgia changes constantly. But being a nurse if someone gave me a list and said I had to pick a disease I would pick this one above all the many horrific diseases out there and I was convinced I had one of the terminal ones. As the late (died from pancreatic cancer) Professor Randy Pausch said "you cannot change the cards dealt, only how you play them"
    Cheers from Australia
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    pat pat Oct 17, 2009 @ 10:56 pm
    hi had fibro for about 24 yrs only releif i get is on a low dose antibiotics been on them for about 4 but feeling bit run down can't stay on them for ever sick off the pain nausea irratable bowel as well sleep apnea get tired when off the tablets and ches pain scares me but had test done nothing showed up i am 68 hope there will be a cure one day.
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    Patsy Patsy Sep 23, 2009 @ 5:33 pm | in reply to Ivys P
    Hi again everyone, I 've been reading all the comments and feel the need to give out a suggestion. I know that when my B12 is down I starting getting very depressed and paranoid, but as soon as I take my shot (once a month) I am a hundred percent better, mentally anyway. It also releives alot of the surface burning I get in my upper quads and arms. I have never been diagnosed with annemia, the reason most people take B12 but my B12 was one of the symptoms that I had during my diagnosis. B12 is an over the counter vitamin that anyone can take once a day. Its my mental health prescription and for me its a must. I have a very supportive boyfriend who can vouch for the instant change in my mood. I hope this little bit of advice will help those who may not have the insurance to cover other meds, you should notice a difference in your mood right away.
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    Patsy Patsy Sep 23, 2009 @ 4:51 pm | in reply to Jeanette
    I was diagnosed with FMS after almost two years of testing for everything from Lupus to MS. I woke up one morning and couldn't walk, I literally felt like I had sand in both my hips...it was excrutating. After the two years of test after test they concluded I had FMS and Bi-lateral bursitis. I really didn't believe that is what I had and until this year I still believed that I just had arthritis. My symptoms come and go constantly, I took tons of different meds but my stomach couldn't handle them. The only thing that seems to tame my symtoms is a B12 shot, constant stretching and determination to not let it bother me. But, to answer your questions with regards to your coccyx, I get this pain as well. I work at a desk all day and find alot of small walks seem to alleviate some of the pain. I just found this site and I would like to thank everyone who has made a comment, it makes me feel like I am not the only one. Cheers.
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    chickadee48 chickadee48 Sep 17, 2009 @ 5:56 pm
    Angel I feel your pain. Your lens sounded like my life. I have been taking alot of natural supplements that help some. Without them I can't function .Have you tried any of the things mentioned in the above Natural Fibromyalgia Treatment Gets Better Faster Results. Try them they work.
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    Angel Angel Sep 12, 2009 @ 10:45 pm
    I am a single mother. I was working and in school to support my daughter I have been diagnosed with fibromyalgia and psoratic arthritis. I am in pain every single day. Pain in my fingers, knuckles, intense wrist pain( witch the doctors said I had carpel tunnel syndrome in both wrists (already had surgery on my right hand)but it still hurts, I have pain in my elbows, shoulders, the back of my head and neck hurts, intense back pain, hip pain sciatica in my right leg because of sacroilliac hip dysfunction in both hips that I have to get facet blocks in both hips to help with pain ( which only work for about a couple of weeks), I have pain down my thighs ( my skin hurts to be touch sometimes), my knees , ankles, heel , and every joint in my feet. I have been trying to get the right treatment, but I have Peach state health care(medicaid) every medicine my doctors try to give me, peach state refuses to pay for them and I can't afford to pay for the meds I have to take care of my daught
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    debbie debbie Sep 11, 2009 @ 5:44 pm
    i found out i have fibromyligia right before i got married last yr its been hard and sometimes my husband doesnt understand i work for a chiropractor who helped figure outwhat was wrong and been helping me with supplements to keep the pain undercontrol. it helps to get adjusted once and week and sometimes once a month. i had horrible side effects from lyrica and went through so many sleeping pills that my dr and i was playing guess and check the amytriptiline really works best u can really get some sleep with it. im 26 and learning daily what works and what doesnt best advice i can give do what you can and kno when to stop work with it not against it.
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    Jeanette Jeanette Sep 11, 2009 @ 4:22 pm
    I was diagnosed with fibromyalgia in 2000. Since than, it seems to have progressed. Every thing that I read from people who have been diagnosed is almost the same symptoms. My question is: has anyone had pain in the coccyx? I have had all kinds of tests done but nothing shows up that would cause all of this pain. I hurt when I sit down and hurt worse when I get up. It never stops! I went to a bone Dr, just today and they say it is the fibromyalgia!! Could this be true?? Thanks
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    carol fox carol fox Sep 9, 2009 @ 8:56 am
    i have just been told that i have fms and i would like to know if i will every get back to work as the pain is getting worse i dont understand all of this
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    Kimmie Kimmie Sep 3, 2009 @ 4:16 pm
    FMS is definitely not an easy thing to live with. It's like an annoying relative who overstays his welcome.

    I think the hardest part to deal with is the lack of understanding that others have for it. People expect that if you're taking medication and you're under a doctor's care, then you should be fine to do all the things they can do. They don't understand how any "little" thing can alter the pain levels on a daily basis, and what meds used to work can stop working. There are times when I'm not able to walk but some people will roll their eyes and say "It can't be that bad! You were fine yesterday!" Though what looked like "fine" to them was "just bearable" for me. It's not an easy thing to live with, but I've learned over the past 18 years to keep modifying my meds as necessary, work with my doctor, and with the people in my life affected by my illness. Never give up! There's help for us. Stay proactive in finding what works for YOU.
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    Pat from Rayrown, Mo. Pat from Rayrown, Mo. Sep 1, 2009 @ 4:02 pm | in reply to Cheryl in Raytown, Mo.
    Hi Neighbor I guess we have a few things in common. I was diagnosed back in 03, but that was after a decade or more of symptoms and going from one quack to another getting only funny looks and a bill. I hate FMS and live with it like I would a big wart on the end of my nose. seriously though, a wart everyone could see and know I had something wrong with me. The awful part is others tend to think you are just an attention seeking self absorbed hypocondriac.. I hope I have learned to deal with that over the years, now I try to turn the emotional pain into synical humor. If you focus on the pain, all you get is pain. If you focus on other things you get them and the pain. No the truth is the pain overrides everything else, you can't escape it, Good luck.
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    Diana Diana Sep 1, 2009 @ 2:41 am
    I have had Fibro since 1977. It comes and goes. This month it came in such a painful way I suspected it was an unusual disease. After 3 MRI's several X-Rays and many different docs it is now Fibro with arthritus and 10 times as painful than ever before. I have tried several things, pain patches (didn't help much) taking sleep meds (also didn't help) now I am trying meditation for reducing stress and some topical cream to reduce the pain. Finally some rest. I don't know if the pain is gone because of time or all the stuff I've tried, but who cares as long as it gives me a little time free of pain. Because I am a diabetic (insulin dependant) and have had a mastectomy recently life does get a little scarey but I will keep going smiling as this too helps.
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    laura laura Aug 31, 2009 @ 1:43 pm | in reply to geralyn
    i feel so bad for you.i havent been diagnosed beacause i dont have insurance but i have done alot of research and i have every symptom.every day is different but i feel like i dont have anything to look forward to but just another day of feeling awful.but my 3 kids keep me from getting in a deep depression.i know how you feel and its hard when people dont understand the strength it takes to just get through the day.i wish i could help you.i find keeping busy helps because you dont have time to sit and feel every little pain.

    dont give up......Laura in AZ
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    geralyn geralyn Aug 30, 2009 @ 9:49 am
    I was diagnosed with fibromyalgia about 2 years ago. At first, my only symptom was about a level 3 background pain. However, this year I have started having flare ups of more intense pain, usually about level 7 -10, that last around a week. I have been hospitalized 3 time for these flare ups, which leave me unable to walk, very limited use of my arms and extreme back pain. The most recent episode has included deliberating muscle burning and fatigue. This episode was so severe, I planned to commit suicide rather than live like this any longer. My quality of life is nonexistent. My condition is getting progressively worse. Now i am in danger of losing my part time job because i am increasingly unable to perform my job duties. I have no one to take care of me at home or help out. The only medications my dr. had prescribed are neurontin and savella neither of which help. The hospital prescribed me morphine to take at home but i am too scared to use it because it is so addictive
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    SueP SueP Aug 28, 2009 @ 3:46 pm
    I've had fibromy&*%$%$#algia for 25 years. It's quite the ride I tell ya.
    I find creativity is my best friend, puts my mind in a different place and can get a few minutes relief here and there. I took up photography and this is when i discovered the effects of creativity. I do want I want when i can. I find keeping busy is far easier on me than sitting still. I've created huge gardens here and it hurts like mad, but i don't care. I'd rather have a reason to hurt then just hurting from sitting there thinking about how bad i hurt. At least i get the satisfaction of accomplishment, which beats feeling defeated.
    Find what you love to do and see if it helps. Scrapbooking is a very joyous thing, and painting as well. A good dose of laughter goes a really long way too. Spoil yourself,
    you deserve it. If i have to travel as a passenger for long distances i bring lots of pillows and bury myself in fluff. Heated seats in my car are amazing as well. The Dizzies suck.
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    VIRGINIA VIRGINIA Aug 24, 2009 @ 9:58 am
    i M TIRED OF NOT BEING ABLE TO DO THINGS THE DR. JUST FIGURE OUT WHAT I HAD AND KNOW I DONT THINK IM CRAZY ANYMORE THAT THE BEST THING OF ALL NOW I CAN DEAL WITH IT THE PAIN IS SO SEVERE THAT I JUST CANT FUNCTION FROM DAY TO DAY. I WISH YOU ALL THE BEST AND THAT YOU GET MUCH RELIFE
    I PRAY THAT YOU ARE ALL BLESSED AND I PRAY FOR YOU.
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    Mary L Mary L Aug 19, 2009 @ 6:38 pm
    I've had fibromyalgia for several years and the best relief my Dr. has prescribed for me has been skelacton for the muscles and tramidol for the pain... I also take trazodone at night so I can get a good nights sleep.....Talk to your Dr. and see if any of these will help you.....
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    carol carol Aug 17, 2009 @ 11:02 am
    Hi all!
    For the last 3 years i have been suffering with severe head and neck pain, my doctor put this down to stress. But after many visits and blood tests i was eventually diagnosed with Myeloma {cancer of blood}. As this affects your bones they thought the head and neck pain was due to this. I have had many mri scans which have ruled this out. My pains were now worse than ever, my neck and head and all over my body, especially in my feet, legs and arms. I havent had a decent nights sleep in months, i thought i was going mad!! My consultant wrote to my doctor this week and they now think i have fibromyalgia. I went to the doc today and he has referred me to a rheumatologist. I am taking tramadol and today i start amytriptiline so will hopefully get a nights sleep, hooray!
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    fibro_cfs_gal fibro_cfs_gal Aug 15, 2009 @ 11:11 am | in reply to sue hill
    Sorry to hear your fibromyalgia hasn't improved over the years, Sue. However, I do know of people, myself included, who *have* improved. As with anything in life, I believe it's an individual journey and each person's "mileage may vary". I also believe that major lifestyle changes are necessary to get well, along with knowledgeable doctors, a personal support system, a lot of research and knowing what works for your own body and mind. Whatever you do, don't give up the entire responsibility for treating this illness to your doctors: take your life and health into your own hands, do your research, find out what works best for you, and never give up.
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    sue hill sue hill Aug 15, 2009 @ 2:24 am
    i have sufferd with this painfull deases for about 8 years and beleive me it doesnt get any better. You do learn to live with it with medication and exercise and I keep on the move all the time because if I stop and sit for a short time you would think Iwas an old woman. Sorry I feel for anyone with Fibromyalgia.
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    Coleen Coleen Aug 14, 2009 @ 3:53 pm
    I was diagnosed with FM in Jan of 2007 after spending 6-9 months trying to figure out why I hurt so bad all of the time. I even spend a week in the hospital about 2 years ago unable to walk at all. I had been dealing with muscle pain and weakness for about 3-6 months when one day I just couldn't get out of my chair. My legs would not support me. I spend a week in the hospital and one doctor actually told me that they were going to prove to me that it was all in my head. It took about 3 months to get full use of my legs back but I'm unable to walk without the lyrica. Yes, there are bad days but you just have to learn to deal with them and enjoy the good days. Several poeple have told me of different foods that irritate it more but I haven't found that to be true with me. I wouldn't wish this on anyone but I'm just glad that I have it rather then my husband or son. Just remember that it's NOT fatal! It could be worse.
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    angie angie Aug 11, 2009 @ 9:17 pm
    i got told i have fm bout year ago.ive decided not to let it take over my life.sometimes this becomes very hard not to do,i wake up in middle of night in such bad pain all i can do is cry.cant sit one way for to long or leg goes to sleep.im having a grandbaby next month,and im determened to hold her,play with her,watch her grow up.i know it seems hopeless at times,just try to look at big picture,at everything you have to live for.that gets me though the really painful days,one day at a time.
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    Pisces Pisces Aug 10, 2009 @ 10:30 am
    I was diagnosed with FM some 9 yr ago. The treatment consisted of various medications and a set of injections into the so-called triggerpoints- lower skull,neck muscles and shoulders. This treatment had instant results. I had 2 more injection treatments with similar good results. 6 days ago i had a further dose of injections.What a disaster. No improvement at all - far worse that before with severe bruising, constant pain, headache, etc. Muscular pain at peak when i awake in the morning. Feels as though I have dislocated my neck or a nerve is being pinched. What now?
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    ls(help) ls(help) Aug 10, 2009 @ 3:56 am | in reply to Deb
    i am a nurse,and one day i started hurting, my feetand hands were numb and tingling, one knee started hurting now both hurt all the time, really, really bad, if a lay on one side more than 30 mins that side go to sleep,that whole side pains me really bad,i have lower back pain so bad that when i get out of the bed i walk like a old woman,the bottom of my feet hurt, if i move or lift something, i hurt so bad in my lower back, if i work at a nursing home pushing a cart, i hurt so bad i want to cry, my feet, hands, and legs swells daily. i rub up with this horse rub,ibuprofren. i use to take lyrica but i could not deal with the side effects, there is not a good day, some are better than others. i have not been diagnosed because i do not have insurance, i have tried to get cover 10 because i have not been working much, they said that even though it was a accident policy, i had to be without even it for 6 months, so now i am waiting 6 month if i can, help me
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    Pam Pam Aug 6, 2009 @ 4:43 pm | in reply to Ivys P
    I wish I could tell you I am better, I had this for a long time, but diagnosed in1993, I did get better after being on SSD for 2 and half years, I had gotten a puppy, who was a high energy dog and would walk him every where, I also was on different meds. at that time, I was able to go back to work as a night nurse at a rural ICU, I always said that job was esy, because I would usually have 1 to 3 patients, usually not that ill. I then took a job at a very busy cardiac hospital, because I love everything about how the heart works and all the high technical equipment that you get to use, well, I slowly started feeliing ill, and after being there 3 years was having major problems with my body, I hurt sooo much, I had a great pain DR. but was using short term disability all the time, after 5 years I told my boss that I couldn't do that job anymore, she said I would have to re-appy for position less strenuos, but it was a way of getting rid of me, I was unemployable..
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    fibro_cfs_gal fibro_cfs_gal Aug 5, 2009 @ 11:49 pm | in reply to BevsPaper
    I'm so sorry to hear you lost your husband. I have had a lot of improvement in my symptoms since I was diagnosed just over 3 years ago, so it's painful to read so many other people's stories of suffering and how they didn't get the help they needed for their fibromyalgia and/or depression, or aren't getting it now. Best wishes to you...
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    BevsPaper BevsPaper Aug 5, 2009 @ 10:34 pm
    It took my husband about 15 years and quite a few different types of doctors before he finally got the diagnosis of fibromyalgia. Unfortunately for him, it came too late. The depression had become so great that he chose to end his life. I'm so glad that there is better help out there now...just wish it had been around for him. I wrote about his story in He Chose Suicide.
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    Deb Deb Aug 3, 2009 @ 7:13 am
    Today i have been diagnosed with fibromyalgia...I have waited for a long time to be diagnosed...Changed my doctor and whoopi an answer........BUT it didnt help to find out nothing can really be done...I have thyroid,utercaria vasculitus,irritable bowel, reflux, high cholestral,an immune problem, and now this....My NEW doctor says he thinks my problems all stem from the mismanagement of my thyroid problems....I am not sad or angry ... whats the point.... its my body thats let me down...not anyone elses fault....I am the lucky one...As far as i know i am not dying.. and i WILL see my 9 yr old daughter grow up..and hopefully i will grow old with my very supportive husbund and family. I have decided not to take tablets for this new diagnosis and to try to manage just on paracetamoles and occasionally ibrufen...as i have before...having a name put to this painful nusence has helped...i'm not going mad...it's not in my mind......And thats the important thing......GOOD LUCK.X
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    Deborah Deborah Aug 2, 2009 @ 11:37 am
    I too have fibromyalgia. I've had it for years. I was diagnosed 4 years ago. Although movement goes against everything you feel like doing. You must "just do it". The robotic feeling gets better with each step.The pain does not go away. It is there. It is forced movement without a doubt. But you do loosen up. I refuse to acknowledge that my symptoms have control over me. I try to feel like I am as capable as anyone else...even though I am not...I have many limitaitions. This is my life and I want it back so I am forcing myself on every occassion to function to the best I can.
    I started yoga 6 months ago. It helps so much. I go once a week. I wish I could go two times but I am really proud that I go at all. I unravel a wee bit more each time I go and it helps you to concentrate...now that is a real challenge as well. lol

    My advise is this. It's your life..take it back. It may not sound as easy as this but you must try. Attiude goes a long way.
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    Ila Ila Jul 29, 2009 @ 2:23 am
    My mother had fibro and muscular dystrophy. She was in immense pain but diidn't know what disease/disorder caused it. I am 33 and for the last 2.5 years have intense painn in my neck, throat and shoulders, restles legs, insomnia, horrible menstral cramps, hip pain (although not all the time). I keep going back to the doctor and he keeps saying it is muscle pain. He tells me to keep working out and take Tylenal since I cannot take ibuprophin....I am almost certain that I have many symptoms of fibro and told him this but he is not willing to look any firther. I am trying to find a new doctor. Do these sound like fibro signs? Does anyone also have stiffness when the pain gets bad? Help please!
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    D. JOHNSON D. JOHNSON Jul 28, 2009 @ 10:26 am
    I started reading these post in hopes of finding some hope, and yet I find that I am more depressed than before I began. I was diagnoised a month ago and my dr. told me to do some research. I have been going to the dr. for years over fatigue and muscle pain, done all the test - I suffer from spondolthesis, bulging disk, depression. i have been taking epidural shots for my back w/ pain meds. been on lexapro for depression. dr changed me from lexapro to cymbalta, the cymbalta seems to help a little with the pain, however i feel more depressed, don't sleep well, and i have zero energy. i can't believe it is possible to feel so horrible all the time. i have new grandbaby (first granddaughter) and i can not begin to enjoy her. this illness must be a cruel joke. i just want to live again. i pray that no one would have to go through this.
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    Ivys P Ivys P Jul 28, 2009 @ 8:13 am
    I was diagnosed a little over a year ago. Unreal how my life has gone from business woman in control of everything, to barely being able to get out of bed without some help. I always wonder what Ive done to deserve an illness like this. My body hurts everywhere: my knees, my legs, my hips just kill me, my back, neck, shoulders, migrains, chronic fatigue, my brain is like poof, cant ever remember anything, my arms and hands. oh lord, my hands, I can even open the simplest thing. I suffer from panic disorder and depression. My husband doesnt get it, my teens try and I feel like I am the only one in the world going thru this. I do pray, everyday hoping that this will go away. The worst part is that I seriously feel like they have not yet found the route of my problem. Almost as if something worse is to come....... Words of wisdom anyone. :)
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    Seina Seina Jul 22, 2009 @ 10:28 pm
    I was diagnosed with Fibro about 20 years ago. I'm glad to have found this sight. I have been reading the posts and feel like there are others who understand what it's like. Most of what I get from people is to buck up or they pooh pooh the degree of discomfort. I was diagnosed when about 3 years after my husband died suddenly and my boys were 7 & 11. I feel bad for them because they missed out on a lot because of my inability to do so many things. I was 35 at the time. My body does not deal well with medications so I have taken as little as I could. A few months ago, I came across a product that is all natural that has made a huge difference in my energy...stamina...pain level...and I'm sleeping way better. The product is called AIO...you can check out the website...www.peakmotion.myceresliving.com...there is a ton of info on the site. If you want to order...you can go to get started and sign up as a retail customer...I love this product. Hope this helps!
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    Loopty_Loo Loopty_Loo Jul 22, 2009 @ 8:19 pm | in reply to Brigette
    I can totally relate to your sadness for the memory of what used to be, I often feel guilty because I can't manage the housework or play with my kids like I used to and it frustrates me as I used to be extremely active, had a full time job, 2 dogs to walk and my boys who are 7 and 11.....my husband works long hours and is very supportive but I still don't think I will ever come to terms with the fact that even 3 years after diagnoses I can't control my life any more. I have recently found out that I am pregnant! and am unable to take the pain relief and sleeping tablets that I am used to, I did feel a desperate need in the early days and it was almost like I was dependant, but lets face it when you find something that helps and get used to it it would be nigh on impossible not to feel dependant. If there is any one out there who has survived pregnancy with Fibro. please advice.....I am coming into week 12 and loosing the plot!!!!
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    Brigette Brigette Jul 18, 2009 @ 10:05 am | in reply to cerce
    Hello to a fellow sister. I am a breastcancer survivor. I then started to have this chronic pain and thought that I was lossing my mind. I have also taken lyrica but, with no real help. I also am not recieving any at home help. My husband thinks that I am addicted to the pain medication and not really in pain. I might be if I ever found anything to take away the pain.(Ha Ha ) I have gone through all of the emotions from depression to I already served my time time with cancer. My children are 6yrs & 8yrs of age they may not remember me anyothe way and this saddens me . I hope one day We all will find a new normal that is a happy place . Thank you for your story and I live the days you are talking about .Please reply if you want to .
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    Mary Callari Mary Callari Jul 16, 2009 @ 12:48 am | in reply to Cheryl in Raytown, Mo.
    I Give God the Glory, but I do ask him where he go his sence of humor, I don't know if your fibromyalgia can gets worse over the years but i'm to the point i cant get down to sit in a chair. And I can't stand the pain the meds there giveing me don't help. I just don't know where to go from here. What is myofascial pain?
    P.S. I also get the burning in the back of my legs and in my knees .
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    Cheryl in Raytown, Mo. Cheryl in Raytown, Mo. Jul 9, 2009 @ 9:24 am
    I have recently been diagnosed with fibromyalgia, which has debilitated my life totally. I once was an energetic, ambitious person, which would take on any project of interest. Now, I find it hard just to get out of bed in the morning. I have been prescribed everything over the past few years they think helps, but nothing has. I started aquatherapy, which feels good for a minute, but the symptoms come back. For any and everyone who suffers this, I am quite sure you ask God Why? as sometimes I do, then I think how much worse others are with conditions and terminal illness, so I just thank God for not having anything worse. My point, stay encouraged spiritually, which always helps the overall problem and keep remembering, GOD is in control and he can do anytihing, but fail. Ephs 3:20 says Now unto him who is able to do exceedingly, abundantly above all that we ask or think, according to the power that works within us! To God I give the glory.
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    cammie1 cammie1 Jul 6, 2009 @ 2:15 pm
    Yes limu is great and I also drink VMIXX. MY fibro pain was gone after about a week or so. Nutrients from drinks like limu and VMIXX are wonderful for our cells. VMIXX is bioavailable and it also has the prebiotics and probiotics that our digestive system requires to keep it all in balance. There is something about nutrition and fibro. I really believe that fibromyalgia is a warning of disease to come. I had it for 7 years before I was diagnosed with cancer. I didn't eat right, I didn't drink enough water and my body shut down. It's time for all of us to turn to nutrition and see what happens. If our body doesn't respond keep trying. Search for better products, shop the outer isles at the grocery store. Nutrition cured my fibromyalgia. If you think about it, your cells just want
    nutrients. Feed them and there is a great chance that they will take care of you...
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    Peggy Peggy Jul 5, 2009 @ 4:31 pm
    [in ply to Shirley Colon]

    Dear Shirley, I was diagnosed w/fibro 8 years ago. I have terrrible burning in my lower legs and feet. I am being tested for MS, and also diabetes. If these come back negative, I guess its the fibro reinventing itself
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    cerce cerce Jul 3, 2009 @ 2:00 am
    Yes I have been taking lyrica, for the last 6 mo's. I gained about 30 lb's. Gee's I have been suffering for 17 years. I have been taking prozac and amyltriptilin for years. I tryed to stop the lyrica and found my pain so unbearable I had to start again. I feel the quality of life ways the side effects, I can move better so I have some hope to keep going for as long as I can. I have a wonderful 20 year old daughter and a wonderful 16 year old son and my little wonderful Gabriel is 9. Dear God they have suffered right along with me and learned more patients then any adult I have ever met. I guess there is a reason for all this, but when I am laying in my bed for the 10th time befor 2pm, I have to ask god, "why me, why me"

    Thanks for any support, I need friends that can understand why I can't do much or why I can't stop taking my meds.

    Oh I just lost my job and my health insurance. So if anyone has any good Idea's for me don't hessitate to say something.
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    joan ward joan ward Jun 29, 2009 @ 12:34 am
    [ihi Frank, I am so sorry to hear that you are so badly effected with FM. I know the feeling of being ridiculed and how that hurts. I have had fibro for about 30 years, It started when I was about 28 not long after having had a kidney removed, and has worsened progressively ever since. I have done every conceivable thing (physio, accupuncture, etc etc0 and they have all helped a little. Now at 68 I am almost bedridden,have just finished a course of chemo for lymphoma, and have jusst been prescribed Lyrica by a rheumatologist. The only things I can do to ease the pain is to lie still, preferably on an electric blanket and sleep. I sleep sometimes for 22 hours a day when the condition is very bad. It's a terrible thing to live with. I wish I could give you some comfort, but I cannot. God bless you anyway.
  • Reply
    Robin Robin Jun 22, 2009 @ 12:32 am | in reply to Diane
    Hi. my name is Robin in Arkansas, I do have Fibromyalgia for sure, diagnosed about 1 year ago.I hope you don't join the club too, and there would never be any offense!! Because it is not a fun thing. I took Lyrica, it went way bad, metally too, and I think I have lasting effects on me. Anyway I now list Lyrica as an allergy....YES do find out. it is usually a Rule Out situation, like rule out Lupus, and for me Lymes and so on. when those are set aside and you still have those lovely symptoms, it is usually Fibro. and possibly Chronic Fatigue...depending on the fatigue, that I don't know much about. For me here is how it goes: I have very very low energy (used to have lots) poor concentration, easily distracted, widespread pain, alot in feet! Thus I can not walk for long before it shots up to a 10 pain wise. Pain in legs, ribs, neck, hands, thumbs esp. arms,feet. you name it. OH, there is not really any specific test for Fibro. like I mentioned above is rule it out.
  • Reply
    Shirley Colon Shirley Colon Jun 21, 2009 @ 9:43 pm
    I've had fibromyalgia for years, but am experiencing something new and wonder if it's related? I've been having burning sensations in my muscles, as if they are on fire. It's really bad in the back of my legs. Has anyone else experienced this?
  • Reply
    cjay57 cjay57 Jun 15, 2009 @ 7:06 am
    Most of my fibromyalgia symptoms center around muscle spasms. I have a lot of trouble with IBS and headaches as well but the muscle spasms are killers. So when I clicked on your link above about "simple steps to relieve muscle spasms..." I was excited that maybe there was something new to learn. Disappointed to find it a dead link.

    Great lens. Thanks!
  • Reply
    baehrjrb baehrjrb Jun 7, 2009 @ 9:35 am
    I have great news for you! My sister and I both suffer from fibromyalgia, my sisters worse than mine. She also suffers from chron's and other health issues. Well I was interduced to a miracle superfood called Limu. This Limu contains fucoidan, the only other natural essential immune booster other than whats found in breast milk. Please check out my lens to read more and start feeling better! How to be healthy and wealthy. It really is a miracle! Take care!
  • Reply
    AbbasAbedi AbbasAbedi Jun 2, 2009 @ 7:15 pm
    Excellent Lens. 5*

    If you get a chance check out my Instant Stress Management lens.
  • Reply
    Frank Frank May 27, 2009 @ 8:23 pm
    After a lifetime of ridicule, FM was finally diagnosed. Too late for me, very advanced, can't work, poor quality of life, now have Peripheral Neuropathy as well. Maintaining good PMA, but declining physically.I am a burden on my wife(who loves me unconditionally) and her future life is centred around me, and that hurts more than my condition. I'm lead to believe that males are less frequently afflicted, but just as painful as females, maybe worse when I see my role in my family as provider and champion for every good thing a Dad is supposed to be decline and disappear.My grandchildren don't understand why Grandad can't play with themlike their Grandma can. I am close to wheel chair stage, and feel totally reliant on my Darling. Positive suggestions most welcome.
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    love2glow love2glow May 18, 2009 @ 9:22 pm
    Hello, Fantastic Lens. Thank you for sharing your great info!

    Please come by and say Hi, at Multiple Sclerosis in My Life

    Hope to see you soon!
  • Reply
    Diane Diane May 9, 2009 @ 6:42 am
    I have all the sympyons of fibro, but have not been tested.I am going to bring up tests to my Doctor and see what happens.No offense but I hope I don't join your club,but I need to find out why I'm so sore and tired constantly. thanks for the info.
  • Reply
    colette mullins colette mullins Oct 29, 2008 @ 8:02 am | in reply to colette mullins
  • Reply
    Heidi_Whitaker Heidi_Whitaker Feb 2, 2008 @ 3:40 am
    Many people with the environmental sensitivities that you mention above have been helped by doing a candida cleanse. (Of course, you have to change your diet and habits or the candida will just return.)
  • Reply
    Lundy Lundy Nov 23, 2007 @ 6:28 pm
    My cousin, a surgeon in Alabama, has done some serious research on fibromyalgia and you might find his research paper to shed some new light on treating this condition.
    http://www.tuscaloosasurgery.com/research.htm

    It was sorta by accident that he made the connection he presents.
  • Reply
    llolson llolson Nov 20, 2007 @ 4:07 pm
    Hi, You sound like a very upbeat person in spite of it all - kudos to you. FYI my friend has had great success in getting rid of the pain in people who have fibro. You can get his free CD (S
  • Reply
    Kay Kay Sep 26, 2007 @ 10:27 pm
    Pity the poor souls who have to deal with horrible pain of fibromyalgia and pray you find a good Dr.

    Who would consider fibromyalgia, CFS, spondalosis/lytis, palmoplantar pustolosis, life threathing?

    I have the above.

    I worked 25yrs. with the elderly. I only get SSI in SC.

    Help! Kay
  • Reply
    fibro_cfs_gal fibro_cfs_gal Aug 2, 2007 @ 1:49 am
    Sorry to hear you're in so much pain. I hope you and any of my other readers won't give up looking for treatment options. Read one of the books I recommend on this page; finding just one way to alleviate or reduce your pain can make a huge difference :-)
  • Reply
    colette mullins colette mullins Aug 1, 2007 @ 6:23 pm
    I went to the doctors a couple of years ago and was told that i have fibromyalia I suffer a lot with the pain,I was brought to the hos-for pains and numness in my legs and arms I had a ct scan there and mri and thay found marks on my brain they think i my have multiple-scioris as well as fibromyagia

Symptoms of Fibromyalgia See more at Symptoms of Fibromyalgia

See more at...

Symptoms of Fibromyalgia

The symptoms of fibromyalgia can vary from person to person, but if you think you may have fibromyalgia, or if you've recently been diagnosed, it's important to familiarize yourself with this condition so you can find... (more)

Contents at a Glance

  1. My Story - The Short-But-Sweet Version ;-)
  2. One of my favorite articles on treating the symptoms of fibromyalgia naturally
  3. Barb's "Must-Read" Fibromyalgia Book Review
  4. Fibromyalgia and Chronic Fatigue Related Links
  5. Barb Recommends: o24 Fibromyalgia - All Natural Topical Pain Relief
  6. Fibromyalgia Book Review
  7. Symptoms of Fibromyalgia - Guestbook