WELCOME!! I'm 31 years old and I have ts. With all the crappy information floating around the media these days about Tourette's Syndrome I wanted to make a site here with up to date websites and info.......I'm still scouring the 'net' for information to add here. Feel free to look around and make sure you bookmark because i'm adding new info. all the time!!
Links to Tourettes Syndrome resources worldwide
- Tourettes Syndrome Foundation of Canada
- They provide resources for those with or affected by Tourette Syndrome through programs of: education, advocacy, self-help and the promotion of research. Membership is available for Canadians
- Tourette Syndrome Association, Inc.
- The Official web site of the national Tourette Syndrome Association, Inc. Lots of newsletters, research and publications on ts. There's information for the 'newly diagnosed' and links to resources whether it is for yourself, family member or child. Excellent site!!
- Official Tourette Syndrome (UK) Association
- Very good resource for those in the United Kingdom with tourettes. They have support, events, family networking and information on up to date research.
- NINDS Tourette Syndrome Information Page
- The National Institute of Neurological Disorders and Stroke(NINDS)conducts and supports research on brain and nervous system disorders.
- Tourette syndrome: minimizing confusion
- This site is intended primarily for parents who have children newly diagnosed with Tourette syndrome. It has extremely thorough and comprehensive information on ts from the genetic factor to diagnoses and why physicians are sometimes reluctant to give a diagnosis of ts to a child.
- Brad Cohen's website "Front of the Class"
- Brad is the author of the book "Front of the Class" pictured above in the Amazon links. He is also a motivational speaker......and a darn good one too!!
Here's a picture of Brad from his appearance on Oprah earlier this year.
This is a passage from his website about his motivational speaking....
"Growing up with Tourette Syndrome has given Brad many obstacles to overcome, but Brad always kept his dream alive of being the teacher he never had. His story is about perserverance and not giving up. He shows us all how he has taken the initiative and made the most of living with Tourette's." - Life's A Twitch
- B. Duncan McKinlay is a psychologist in Ontario Canada.
"Through empathy, good humour, research, and both considerable personal and professional experience, Dr. McKinlay teaches acceptance of Tourette Syndrome and associated disorders in the world and in ourselves." (lifesatwitch.com)
This site has TONS of resources for info on ts, many of which are Canadian (YAY!!).
Tourette's Literature
I personally picked these out for you because they're the BEST of the BEST!!
Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had
Brad Cohen appeared on Oprah this past season (05/06) to discuss growing up with ts. After I saw the show I emailed Brad because his story was so touching and even more so since I had a lot of the very same difficulties as a kid. He's a super smart and sweet guy who wrote an awesome book that is inspiring to anyone who has a child with ts or has it themselves.
Amazon Price: $15.61 (as of 10/07/2008)
List Price: $22.95
Children With Tourette Syndrome: A Parent's Guide (Special Needs Collection)
Amazon Price: (as of 10/07/2008)
List Price: $14.95
I Can't Stop!: A Story About Tourette Syndrome
Boy, I used to say this all the time growing up!!!!!!!
Amazon Price: $10.85 (as of 10/07/2008)
List Price: $15.95
Tourette Syndrome Association Newsletter
The newsletter of the Tourette Syndrome Association. The Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder.
* 4 issues/yr.
Amazon Price: $55.00 (as of 10/07/2008)
List Price:
Hi, I'm Adam: A Child's Book About Tourette Syndrome
A real little boy who was 10 yrs old at the time wrote this book himself about having tourette's syndrome. Give it to your child if they have ts, or read it yourself and remember what it was like at that age dealing with ts.
Amazon Price: $4.95 (as of 10/07/2008)
List Price: $4.95
The misconceptions of Tourette's Syndrome and Coprolalia
Get Educated on Coprolalia
- Coprolalia and Tourette Syndrome
Not everyone with Tourette's does this and it drives me NUTS when its made into a joke in movies and on television!!
